Guest guest Posted March 26, 2006 Report Share Posted March 26, 2006 I just wanted to quickly thank those folks who gave their input on where to go for mito specialists. We recently returned from Mass. General where my daughter was inpatient for 9 weeks. She saw many wonderful docs who determined that she needed a colectomy to rectify her constant bacteremias and endocarditis troubles. She was flown via air ambulance back to AZ and is at home with the home health care team (3 IV pumps, labs, port care, etc.). Her muscle biopsy results are so far consistent with the mito cytopathy, but the specific assays won't be back for a while. Again, thanks , Lyn www.caringbridge.org/az/bonniemarie Quote Link to comment Share on other sites More sharing options...
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