Frustrated with my body :(

[Guest guest]

Ever have one of those days!?! I went in for my every 3-4 month check up this

evening hoping to reduce some of our medical expenses (primarily DME) and the

result was anything but. My O2 sats were 88-90 at rest, comfortable, not in

distress...so my oxygen isn't going anywhere. Then I asked him to check my

ankle which keep failing me. He said the ligaments are very loose and not

supporting the joint (truly not a surprise) but it will definitely need some

support to prevent additional injury. So, he ordered an air cast. He felt this

would be most appropriate. On the plus side he is very supportive of the

approval to receive a service dog in May and signed three sets of forms

verifying that. Curiously, he said he has suggested them to a number of his

patients and they all rejected the suggestion. He hadn't realized a patient

could initiate the process independently and succeed. My Lupus labs were

finally " good " after a year of adjusting meds and increasing steriods. Not good

for my weight, but good for the affected organ systems.

I know, I'll adjust, it's just the principle of it all. And, more equipment, etc

to cart around the country when we travel (which is often). Some weeks the fun

doesn't end. Of course, my girls think this is great as now mom can more fully

relate

Joanne Kocourek (mom to , lies, and )

visit us at: http://www.caringbridge.org/il/annakris

[Guest guest]

Joanne

I'm sorry your appt. wasn't what you wanted, but thrilled that your

doc approved of the service dog. Hang in there and think great

thoughts about that dog you are getting.

Hugs,

laurie

> Ever have one of those days!?! I went in for my every 3-4 month check up

> this evening hoping to reduce some of our medical expenses (primarily DME)

> and the result was anything but. My O2 sats were 88-90 at rest,

> comfortable, not in distress...so my oxygen isn't going anywhere. Then I

> asked him to check my ankle which keep failing me. He said the ligaments

> are very loose and not supporting the joint (truly not a surprise) but it

> will definitely need some support to prevent additional injury. So, he

> ordered an air cast. He felt this would be most appropriate. On the plus

> side he is very supportive of the approval to receive a service dog in May

> and signed three sets of forms verifying that. Curiously, he said he has

> suggested them to a number of his patients and they all rejected the

> suggestion. He hadn't realized a patient could initiate the process

> independently and succeed. My Lupus labs were finally " good " after a year

> of adjusting meds and increasing steriods. Not good

> for my weight, but good for the affected organ systems.

>

> I know, I'll adjust, it's just the principle of it all. And, more

> equipment, etc to cart around the country when we travel (which is often).

> Some weeks the fun doesn't end. Of course, my girls think this is great as

> now mom can more fully relate

>

>

> Joanne Kocourek (mom to , lies, and )

> visit us at: http://www.caringbridge.org/il/annakris

>

>

[Guest guest]

Joanne,

sorry things are rough, hang in there....what are your steroids up to nw?

dont want to see them go to high...

The air cas tmight be a pain in the butt but I bet it will help quite a bit.

I am so glad he approve d the dog. we are going for our evaluation april

2nd for my dog with the service dog company you recommended in a week. I am

excited but nervous.

hope things aget better for you

[Guest guest]

My prednisone is at 10 mg. He would like it at 7.5 but i have major problems

every time it is decreased. I know the air cast might help, and sure can't

hurt. It''s just the principle of it all.

I trust your dog will do just fine. Try to relax about the process as he/she

will pick up on your anxiety. Have you seen the public access requirements? If

not, I woudl be happy to fax a copy to you. They are very specific and then you

woudl know what will be evaluated.

MitomomX3@... wrote:

Joanne,

sorry things are rough, hang in there....what are your steroids up to nw?

dont want to see them go to high...

The air cas tmight be a pain in the butt but I bet it will help quite a bit.

I am so glad he approve d the dog. we are going for our evaluation april

2nd for my dog with the service dog company you recommended in a week. I am

excited but nervous.

hope things aget better for you

[Guest guest]

Joanne,

I havent seen hte reauierments, I would love it if you would send them.

that way I \will be more prepared if I go over and over them specifically. But

they wil havet o go thru snail mail my fax will go out but not in.

this sunday however is not the public access test it is the test to see if

they will accept him into the program. the program is 15 mos, it is fully

certified through the ADA. once a week for 18 months.

I just got bumped down also on the sterodis from 60 mg from the last 4 mos

to 40 mg. for a month then 30 mg for a month then he said I am staying at 20

mg indefinantly..steroids stink dot they?

can I E mail you again off list to give you myu snail mail

my e mail is

mitomomx3

then I can get those requirements from you and Baron and I can start getting

comfortable with those, what do you think they will do sunday to see if he

is fit for the program?

[Guest guest]

Hi ,

This is the link to the public access test:

http://www.adionline.org/publicaccess.html

This way you can bookmark the page and have it available to easy reference.

I believe the trainer will evaluate how well your dog responds to you. Does

he follow commands? Is he attentive? Are you able to maintain control of him

at all times? What basic commands does he know and perform on command

consistently? These are all areas that they will evaluate. They will also ask

what tasks you would like the dog to do that he may not currently do. They will

likely evaluate good canine citizenship.

From what you've shared about your dog, I expect you will do just fine. Try

to relax so the dog doesn't pick up on any insecurity you might have. Enjoy each

other. That's really important.

I agree about the prednisone. I hate it. It may also be contributing to your

memory issues, although I'm not sure because lies has almost identical

issues to those you detailed in your other post. The challenge will be

determining what reasonable accommodation can be made. A PDA does work for

some. lies, though, could never remember where she laid it or to check it

Short term, index cards do help her as long as she keeps them available.

Praying for good thing to come your way.

MitomomX3@... wrote:

Joanne,

I havent seen hte reauierments, I would love it if you would send them.

that way I \will be more prepared if I go over and over them specifically. But

they wil havet o go thru snail mail my fax will go out but not in.

this sunday however is not the public access test it is the test to see if

they will accept him into the program. the program is 15 mos, it is fully

certified through the ADA. once a week for 18 months.

I just got bumped down also on the sterodis from 60 mg from the last 4 mos

to 40 mg. for a month then 30 mg for a month then he said I am staying at 20

mg indefinantly..steroids stink dot they?

can I E mail you again off list to give you myu snail mail

my e mail is

mitomomx3

then I can get those requirements from you and Baron and I can start getting

comfortable with those, what do you think they will do sunday to see if he

is fit for the program?