To Olga in Finland

[Guest guest]

Olga,

Welcome to our group and congratulations on your twins.

It sounds to me like Aleksi's feet are not corrected properly. Do

you have access to equipment to share electronic pictures of his

feet (digital camera or scanner?)?

There is a lot of information in the files section and links section

of this board- have you had a chance to look at it? There is a

really good book available that you can download for free here:

http://www.global-help.org/publications/ponseti-cf.html

and a second companion sheet for parents here:

http://www.global-help.org/publications/cf.parents.pdf

Putting the brace on Aleksi won't help if it's causing him pain or

if his feet are not corrected completely. I hope that we can help

you figure out what to do. It is odd that you say that he's fine

during the day, but has problems at night. What concerns me most is

that you think that his feet are turning in again. If you can see

that yourself, then to me, that's a sign that something isn't

right. When does that Ponseti-trained doctor come back from

vacation? Have you been to that doctor before?

As far as sleeping, you can try putting a rolled up blanket or small

pillow under/between his legs to help prop them up.

Regards,

& (3-16-00, left clubfoot)

> Hi Kori and ! Thanks you for your replies. I am happy to

be a member

> of the list. I see that people here have big experience and know a

lot about

> clubfoot. We already have a long story but I do not know about

Ponseti

> method much.

> I am from Kotka, Finland. I have 2 babies-twins. They are 1 year

old. Son

> Aleksi has bilateral clubfoot. He had soft cast from 3 days old

for 6

> months. But it did not work and Aleksi had sores all that time.

When he was

> 10 months we went to University hospital in Helsinki and Aleksi

had his

> Achilles tendon operated. Then 2 months he had cast. Then he had

again

> Achilles tendon operated. Then he had cast for 3 weeks and now we

have DBB

> for 3 weeks. 1st week he did not wear them because they were not

good and

> Aleksi was sick. Now he is OK during day time. But at night at

best he can

> sleep for 3 hours then he began to scream and he can not stop

until I take

> shoes off. I am desperate. He must have shoes for 23 hours and he

has ones

> 12-17 hours. I can see his feet are turning inside again. There is

only one

> doctor in Finland who knows this method and she on vacation. Kori!

After

> reading your recommendations I realized that Aleksi's heels were

not in

> right place. The shoes are attached to the bar. I managed to put

1st heel

> into the back of the shoe but the other one I still can not put. I

will keep

> trying. I do not understand what has to be the length of his

shoulders. It

> is bar or distance between the heels of the shoes? Also how to

determine 70

> degrees?

> What sleeping positions are good when baby has DBB? If you can

help us I

> will appreciate it VERY much. Aleksi already had so much and we do

not want

> him more operations.

>

> Please help!

> Thanks a lot,

> Olga – mama of and Aleksi.

>

> >From: " Goodin "

> >Reply-To: nosurgery4clubfoot

> >To: nosurgery4clubfoot >

> >Subject: Re: Denis Browne shoes

> >Date: Fri, 6 May 2005 19:24:46 -0600

> >

> >Welcome Olga! What surgery did your son have? The only one

involved in

> >the Ponseti Method is the cutting of the Achilles tendon. Did

your son

> >have this procedure done twice? It can take several days to get

use to

> >them especially at night because they may have to learn a new

position to

> >sleep or figure out how to get comfortable. The bar should be

the length

> >of his shoulders. If it is not that could cause some

discomfort. Also,

> >check to see if his feet are rotated 70 degrees and the shoes are

set

> >there. It may just take some time to get use to. Make sure you

get them

> >very tight, so he doesn't escape! Good luck!

> > Denis Browne shoes

> >

> >

> > Hi! My son has clubfoot. He had 2 operations by Ponseti

method. Now he

> > has to wear Denis Brown shows. He is fine during daytime. But

he can

> > not sleep in these shoes. He crys all the time. Doctor said it

was

> > very important to have shoes on. Can anybody recommend what to

do in

> > this situation? Thanks! Olga

> >

> >

> >

> >

> >

> >

> >

> >