Guest guest Posted April 6, 2006 Report Share Posted April 6, 2006 Welcome back a. You were missed! Hope you are feeling a lot better. You continue to be in my prayers. Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2006 Report Share Posted April 6, 2006 I am more than a little behind with posts from the list, as I am finally home after a 5 week hospital stay (yes, Kristie, I followed in your footsteps with the length of stay!) :-) I was in for migraines and stroke like episodes that were leaving me very weak and unable to do much of anything. My doctors finally decided to try a medically induced coma to try to break the cycle of the SLE's, as they were afraid what would happen if I kept having them. During the coma, my central line became infected and had to be removed. I currently have a PICC line, until April 19 when I will get my new Hickman placed. I came out of the coma on March 17, after 5 days. I have not had a SLE since. The headaches are there at times, but no SLE's. HOORAY! My memory was affected some and I do not remember most of February and March, as that is when I was in the hospital. The doctors expected some memory loss, but not as much as I have. I do remember bits and pieces, especially when family starts talking about it. I am finally back in my apartment and resting so I can gain back strength. I wanted to welcome all the new members on the list. You have joined a great group of caring and knowledgeable people. I look forward to getting to know you. Barbara, how is your PICC line? How is the J tube doing? You may have already discussed this, but I am a little behind . . . :-) I know many of you have been struggling lately and my thoughts are with all of you. Smiles, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2006 Report Share Posted April 6, 2006 a, Thanks for asking. Still have my PICC and TPN. Now it's my turn for incarceration, admission Monday at KUMC to figure out why I can't eat as much as I could before we pulled the tube Feb 2. The tube-pulling started a string of disasters that no one anticipated. Among other things, a couple of weeks ago I got a pseudomonas infection around the j-button and just finished a course of IV antibiotics during which we had to pull the button and let the stoma close. Otherwise the bacteria would stick to the silicone and reinfect over and over. My adrenal insufficiency doesn't help at all. Pulling the button was a leap of faith since that means I either have to get all calories by mouth, TPN or have more surgery to place another tube. But none of the options are promising solutions. My gut is not accepting the feedings now since the tube was pulled, but we don't know why. I can only eat limited food, but we don't understand that either, as the gut does appear to be moving. Lots of stuff going on............I'm reading a little but not posting. So sorry to hear of your long ordeal, a. Thinking of you and everyone often. Will try to update eventually. I don't know what will happen next week, but we're praying for some solutions. Hugs, Barbara > Home finally and welcome > > I am more than a little behind with posts from the list, as I am finally > home after a 5 week hospital stay (yes, Kristie, I followed in your > footsteps with the length of stay!) :-) I was in for migraines and > stroke like episodes that were leaving me very weak and unable to do much > of anything. My doctors finally decided to try a medically induced coma > to try to break the cycle of the SLE's, as they were afraid what would > happen if I kept having them. During the coma, my central line became > infected and had to be removed. I currently have a PICC line, until > April 19 when I will get my new Hickman placed. I came out of the coma > on March 17, after 5 days. I have not had a SLE since. The headaches > are there at times, but no SLE's. HOORAY! My memory was affected some > and I do not remember most of February and March, as that is when I was > in the hospital. The doctors expected some memory loss, but not as much > as I have. I do remember bits and pieces, especially when family starts > talking about it. I am finally back in my apartment and resting so I can > gain back strength. > I wanted to welcome all the new members on the list. You have > joined a great group of caring and knowledgeable people. I look forward > to getting to know you. > Barbara, how is your PICC line? How is the J tube doing? You > may have already discussed this, but I am a little behind . . . :-) > I know many of you have been struggling lately and my thoughts > are with all of you. > Smiles, > a > > > Medical advice, information, opinions, data and statements contained herein are > not necessarily those of the list moderators. The author of this e mail is entirely > responsible for its content. List members are reminded of their responsibility to > evaluate the content of the postings and consult with their physicians regarding > changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2006 Report Share Posted April 6, 2006 Glad you are home and hope you continue to be able to be at home. Shelby > I am more than a little behind with posts from the list, as I am > finally > home after a 5 week hospital stay (yes, Kristie, I followed in your > footsteps with the length of stay!) :-) I was in for migraines and > stroke like episodes that were leaving me very weak and unable to do > much > of anything. My doctors finally decided to try a medically induced > coma > to try to break the cycle of the SLE's, as they were afraid what would > happen if I kept having them. During the coma, my central line became > infected and had to be removed. I currently have a PICC line, until > April 19 when I will get my new Hickman placed. I came out of the coma > on March 17, after 5 days. I have not had a SLE since. The headaches > are there at times, but no SLE's. HOORAY! My memory was affected some > and I do not remember most of February and March, as that is when I was > in the hospital. The doctors expected some memory loss, but not as > much > as I have. I do remember bits and pieces, especially when family > starts > talking about it. I am finally back in my apartment and resting so I > can > gain back strength. > I wanted to welcome all the new members on the list. You have > joined a great group of caring and knowledgeable people. I look > forward > to getting to know you. > Barbara, how is your PICC line? How is the J tube doing? You > may have already discussed this, but I am a little behind . . . :-) > I know many of you have been struggling lately and my thoughts > are with all of you. > Smiles, > a > > > Medical advice, information, opinions, data and statements contained > herein are not necessarily those of the list moderators. The author of > this e mail is entirely responsible for its content. List members are > reminded of their responsibility to evaluate the content of the > postings and consult with their physicians regarding changes in their > own treatment. > > Personal attacks are not permitted on the list and anyone who sends > one is automatically moderated or removed depending on the severity of > the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 Barbara I will be thinking of you during your hospital stay. I hope they can find some answers to all your problems. laurie > a, Thanks for asking. Still have my PICC and TPN. Now it's my turn > for incarceration, admission Monday at KUMC to figure out why I can't eat > as > much as I could before we pulled the tube Feb 2. The tube-pulling started > a > string of disasters that no one anticipated. Among other things, a couple > of > weeks ago I got a pseudomonas infection around the j-button and just > finished a course of IV antibiotics during which we had to pull the button > and let the stoma close. Otherwise the bacteria would stick to the silicone > and reinfect over and over. My adrenal insufficiency doesn't help at all. > Pulling the button was a leap of faith since that means I either have to > get > all calories by mouth, TPN or have more surgery to place another tube. But > none of the options are promising solutions. My gut is not accepting the > feedings now since the tube was pulled, but we don't know why. I can only > eat limited food, but we don't understand that either, as the gut does > appear to be moving. Lots of stuff going on............I'm reading a little > but not posting. So sorry to hear of your long ordeal, a. Thinking > of > you and everyone often. Will try to update eventually. I don't know what > will happen next week, but we're praying for some solutions. > > Hugs, Barbara > > > > Home finally and welcome > > > > I am more than a little behind with posts from the list, as I am finally > > home after a 5 week hospital stay (yes, Kristie, I followed in your > > footsteps with the length of stay!) :-) I was in for migraines and > > stroke like episodes that were leaving me very weak and unable to do much > > of anything. My doctors finally decided to try a medically induced coma > > to try to break the cycle of the SLE's, as they were afraid what would > > happen if I kept having them. During the coma, my central line became > > infected and had to be removed. I currently have a PICC line, until > > April 19 when I will get my new Hickman placed. I came out of the coma > > on March 17, after 5 days. I have not had a SLE since. The headaches > > are there at times, but no SLE's. HOORAY! My memory was affected some > > and I do not remember most of February and March, as that is when I was > > in the hospital. The doctors expected some memory loss, but not as much > > as I have. I do remember bits and pieces, especially when family starts > > talking about it. I am finally back in my apartment and resting so I can > > gain back strength. > > I wanted to welcome all the new members on the list. You have > > joined a great group of caring and knowledgeable people. I look forward > > to getting to know you. > > Barbara, how is your PICC line? How is the J tube doing? You > > may have already discussed this, but I am a little behind . . . :-) > > I know many of you have been struggling lately and my thoughts > > are with all of you. > > Smiles, > > a > > > > > > Medical advice, information, opinions, data and statements contained > herein are > > not necessarily those of the list moderators. The author of this e mail > is > entirely > > responsible for its content. List members are reminded of their > responsibility to > > evaluate the content of the postings and consult with their physicians > regarding > > changes in their own treatment. > > > > Personal attacks are not permitted on the list and anyone who sends one > is > > automatically moderated or removed depending on the severity of the > attack. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2006 Report Share Posted April 8, 2006 a, Welcome home! I hope things continue on an upward swing and you get to stay home for a long long time. Hugs, a C Koch wrote: > I am more than a little behind with posts from the list, as I am finally >home after a 5 week hospital stay (yes, Kristie, I followed in your >footsteps with the length of stay!) :-) I was in for migraines and >stroke like episodes that were leaving me very weak and unable to do much >of anything. My doctors finally decided to try a medically induced coma >to try to break the cycle of the SLE's, as they were afraid what would >happen if I kept having them. During the coma, my central line became >infected and had to be removed. I currently have a PICC line, until >April 19 when I will get my new Hickman placed. I came out of the coma >on March 17, after 5 days. I have not had a SLE since. The headaches >are there at times, but no SLE's. HOORAY! My memory was affected some >and I do not remember most of February and March, as that is when I was >in the hospital. The doctors expected some memory loss, but not as much >as I have. I do remember bits and pieces, especially when family starts >talking about it. I am finally back in my apartment and resting so I can >gain back strength. > I wanted to welcome all the new members on the list. You have >joined a great group of caring and knowledgeable people. I look forward >to getting to know you. > Barbara, how is your PICC line? How is the J tube doing? You >may have already discussed this, but I am a little behind . . . :-) > I know many of you have been struggling lately and my thoughts >are with all of you. >Smiles, >a > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2006 Report Share Posted April 8, 2006 Oh Barbara, please know that you will be in my thoughts and prayers that the docs can figure out why your gut isn't working the way it was and can find a solution. Hugs, Barbara Seaman wrote: >a, Thanks for asking. Still have my PICC and TPN. Now it's my turn >for incarceration, admission Monday at KUMC to figure out why I can't eat as >much as I could before we pulled the tube Feb 2. The tube-pulling started a >string of disasters that no one anticipated. Among other things, a couple of >weeks ago I got a pseudomonas infection around the j-button and just >finished a course of IV antibiotics during which we had to pull the button >and let the stoma close. Otherwise the bacteria would stick to the silicone >and reinfect over and over. My adrenal insufficiency doesn't help at all. >Pulling the button was a leap of faith since that means I either have to get >all calories by mouth, TPN or have more surgery to place another tube. But >none of the options are promising solutions. My gut is not accepting the >feedings now since the tube was pulled, but we don't know why. I can only >eat limited food, but we don't understand that either, as the gut does >appear to be moving. Lots of stuff going on............I'm reading a little >but not posting. So sorry to hear of your long ordeal, a. Thinking of >you and everyone often. Will try to update eventually. I don't know what >will happen next week, but we're praying for some solutions. > >Hugs, Barbara > > > >> Home finally and welcome >> >> I am more than a little behind with posts from the list, as I am finally >>home after a 5 week hospital stay (yes, Kristie, I followed in your >>footsteps with the length of stay!) :-) I was in for migraines and >>stroke like episodes that were leaving me very weak and unable to do much >>of anything. My doctors finally decided to try a medically induced coma >>to try to break the cycle of the SLE's, as they were afraid what would >>happen if I kept having them. During the coma, my central line became >>infected and had to be removed. I currently have a PICC line, until >>April 19 when I will get my new Hickman placed. I came out of the coma >>on March 17, after 5 days. I have not had a SLE since. The headaches >>are there at times, but no SLE's. HOORAY! My memory was affected some >>and I do not remember most of February and March, as that is when I was >>in the hospital. The doctors expected some memory loss, but not as much >>as I have. I do remember bits and pieces, especially when family starts >>talking about it. I am finally back in my apartment and resting so I can >>gain back strength. >> I wanted to welcome all the new members on the list. You have >>joined a great group of caring and knowledgeable people. I look forward >>to getting to know you. >> Barbara, how is your PICC line? How is the J tube doing? You >>may have already discussed this, but I am a little behind . . . :-) >> I know many of you have been struggling lately and my thoughts >>are with all of you. >>Smiles, >>a >> >> >>Medical advice, information, opinions, data and statements contained >> >> >herein are > > >>not necessarily those of the list moderators. The author of this e mail is >> >> >entirely > > >>responsible for its content. List members are reminded of their >> >> >responsibility to > > >>evaluate the content of the postings and consult with their physicians >> >> >regarding > > >>changes in their own treatment. >> >>Personal attacks are not permitted on the list and anyone who sends one is >>automatically moderated or removed depending on the severity of the >> >> >attack. > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2006 Report Share Posted April 9, 2006 Likewise, Barbara. It is very humbling to see what some of you are/have been going through, and despite all of that still have time to listen to and get involved in the (often lesser) problems of others. pamela Re: Home finally and welcome Oh Barbara, please know that you will be in my thoughts and prayers that the docs can figure out why your gut isn't working the way it was and can find a solution. Hugs, Quote Link to comment Share on other sites More sharing options...
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