Guest guest Posted May 8, 2001 Report Share Posted May 8, 2001 My name is Donna and I have 4 1/2 year old boy/girl twins. My son is dx autistic and my daughter is dx asperger's. We've had Triston (son) on the GFCF diet for 10 months and he seems to have improved greatly. Started talking for the first time ever and continues to make great progress. My daughter just started the diet and is improving somewhat but can't really say to what degree. We've just had some testing done on my son through GP Labs and had a pretty good amount of abnormal results. Our DAN doctor is only a psychiatrist and this is out of his league. He's the one that helped me order the tests and decide which ones to do. I'm wondering if anyone has had similar results or experience with the same problems. 1. Elevated hippuric- a marker for dysbiosis (abnormal microbial overgrowth) in GI. 2. High DHPPA- a metabolite of tyrosine produced by gastrointestinal bacteria of Clostridia species. 3. Increased Citric in Krebs cycle. 4. Glutathione deficiency. 5. Also his Essential Fatty Acids are totally out of whack, most are all low but one is elevated. Triston has constantly had trouble with diarrhea, gas, reflux, etc. His diet for the last two months has been only chicken, potatoes, rice, and pears, green beans and spinach. He seems to do much better on this than just GFCF. We've started super nu thera vitamins and a calcium supplement. Have also started acidophilus supplements for bacteria. But in the last couple of weeks, his condition seems to be getting slowly worse. Diarrhea, horrible gas, sometimes very lethargic, sometimes vomiting. His teachers state that he seems more and more tired but he's sleeping and napping well. Yesterday, he just passed out at school and started running a 102 fever. We took him to our pediatrician (who doesn't support the diet) along with the recent test results and got absolutely nothing. He referred us to a GI specialist in late July. I'm in the Houston area. If anyone knows of a doctor who would be a good referral, I would greatly appreciate it. I know my son is getting worse and yet cannot convince either of his doctors to act and do anything. We almost took him to the emergency room last night because of the fever and the fact that he was refusing to eat or drink. That's unusual- he drinks around 130 -150 oz. of water everyday. I hope I'm overlooking some little something that I can do to help him. We're going to the DAN conference this weekend and hope to get some info there too. Thank you for your time in reading this, please email me at dwpittard@... if you have a suggestion. Donna Quote Link to comment Share on other sites More sharing options...
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