low gluten vs. non-gluten

[Guest guest]

question here.

i was wondering whether Lower Gluten would be better than No Gluten, ?

And if not, why not? Does anyone know how this works?

I'm wondering why kids who go GFCF " react " if they get gluten later [cheat,

accident], and why they weren't like that " before " going GFCF?

This is so confusing to me.

I'm wondering if this is the sort fo ting that just " works " and we don't

quite know why yet. Thanks

[Guest guest]

At Tuesday 5/8/01 08:11 AM, you wrote:

>i was wondering whether Lower Gluten would be better than No Gluten, ?

As I understand the reasoning behind the diet, yes it would. For our kids

the gluten and casein is getting into the brain as morphine-like chemicals,

which just doesn't happen for others.

Because of this, our kids develop problems from what is really a drug

addiction. The reason the diet appealed to me from first reading about it

on ' site is because to date it's the only thing I've read that

seems to explain the way my son acts. And since going on the diet almost

four months ago he's acting less like that.

Bringing my mind back there, I'm particularly talking about him hurting

some one of us, laughing while he's doing it. For me this was the most

disturbing behavior of all, for obvious reasons. I haven't seen that in a

great while. There is a very important line between mischievousness and

outright sadism and I had a 3 yr old who was frequently crossing that line.

>I'm wondering why kids who go GFCF " react " if they get gluten later [cheat,

>accident], and why they weren't like that " before " going GFCF?

Before altering the diet, my son lived on glutenous cereal with milk, ice

cream, noodles and ketchup. That was where the bulk of his nutrition came

from, and if the theory of the diet is right then he was 'self medicating'

himself. He had built up his levels of the offending peptides as high as he

could. By removing these foods he's had to go through withdrawal.

But I would say that the bad behavior was there before the diet much more

than since. And the outbreaks of bad behavior since the diet I and my wife

have concluded occurred within 1-3 days of a cheating episode. This can be

subtle because we didn't know many sources of gluten and casein in the

beginning.

We're learning, and he hasn't cheated in over a week - knock on wood. We

just removed tuna on Sunday, a big favorite of his; after finding out it

had casein in it. Last night he wet his bed, something he hasn't done in

months. And yesterday and today he had a little wheezing, something that's

come up a handful of times which I now believe are withdrawal symptoms.

There are doubtless other sources of gluten and casein in his diet we don't

know about yet. I just went on the diet this weekend to keep him company,

and see what effect it might have on me. We are now aiming at eating

everything prepared from scratch.

In the meantime, 's doing great. He saw a pediatrician this morning who

didn't know him and she was surprised to hear the diagnosis of autism,

saying she thought he was 3 (he's four). This one year delay opinion

matches the speech eval scores done a few months ago at his pre-school...

which is an ABA program called The Children's Annex, a wonderful place.

>This is so confusing to me.

>I'm wondering if this is the sort fo ting that just " works " and we don't

>quite know why yet.

I think that this diet can truly do no harm, and would encourage anyone in

a position to try it to do so.

Marty, 's Dad

[Guest guest]

Maybe this will help, the rason they do not act like that pre gf/cf is

because they have built up a tolerance. Much like drinking alcohol, if you

drink regular you may be able to drink more before becoming drunk, but if

you have not drank in a long time and then have a drink , you really feel

the affects quickly. I really believe in the no gluten approach, because

even a small amount affects my son, and I actually see gluten and casein as

a drug to him so just like I would never let my son do drugs, he wont be

eating food that acts like drugs in his body. Have you read unravelling the

mystery of Autism and PDD by kathryn Seroussi? It was what I read that

helped me understand and really want to do the diet,I am so thankfull I did

My son still has ASD but functions so much better than before the diet.

F

low gluten vs. non-gluten

> question here.

> i was wondering whether Lower Gluten would be better than No Gluten, ?

> And if not, why not? Does anyone know how this works?

> I'm wondering why kids who go GFCF " react " if they get gluten later

[cheat,

> accident], and why they weren't like that " before " going GFCF?

> This is so confusing to me.

> I'm wondering if this is the sort fo ting that just " works " and we don't

> quite know why yet. Thanks

>

>

>

[Guest guest]

I doubt this helps, but have you read Seroussi's Unraveling the Mystery

of Autism Book? I just read it and while I can't answer your questions

accurately, I think the book might help. d w pittard

[Guest guest]

> I'm wondering why kids who go GFCF " react " if they get gluten later

[cheat,

> accident], and why they weren't like that " before " going GFCF?

Look at it this way -- an alcoholic can consume quite a few beers before

feeling anything. But, if they abstain from all alcohol for a period of

time, after one or two beers they'll start feeling it.

>

>

[Guest guest]

Hmmm... this puts a new twist on things. Are you guys saying that your

children now have a more negative reaction to G&C than they did before

the diet?

The worst time had was the withdrawl symptoms that lasted two

weeks after going G&C free. Now when there is an infraction

(unfortunatly there are lots as he is sensitive to much more than G&C)

he just resumes his 'old' ways. His behavior after eating an offending

food isn't any worse or any better than it was pre-diet. It's exactly

the same as far as I can tell. When he is free of food toxins it's like

a light has been turned on in his little mind.

If he gets a lot of a problem food it is much worse than getting a

little bit. The more he gets the deeper he goes. In s case,

there is no question that a little bit of gluten is not better than

none.

Is he a minority here or did I just misunderstand the question and

responses?

Jeannie

Foland wrote:

>

> Maybe this will help, the rason they do not act like that pre gf/cf is

> because they have built up a tolerance. Much like drinking alcohol, if you

> drink regular you may be able to drink more before becoming drunk, but if

> you have not drank in a long time and then have a drink , you really feel

> the affects quickly. I really believe in the no gluten approach, because

> even a small amount affects my son, and I actually see gluten and casein as

> a drug to him so just like I would never let my son do drugs, he wont be

> eating food that acts like drugs in his body. Have you read unravelling the

> mystery of Autism and PDD by kathryn Seroussi? It was what I read that

> helped me understand and really want to do the diet,I am so thankfull I did

> My son still has ASD but functions so much better than before the diet.

> F

> low gluten vs. non-gluten

>

> > question here.

> > i was wondering whether Lower Gluten would be better than No Gluten, ?

> > And if not, why not? Does anyone know how this works?

> > I'm wondering why kids who go GFCF " react " if they get gluten later

> [cheat,

> > accident], and why they weren't like that " before " going GFCF?

> > This is so confusing to me.

> > I'm wondering if this is the sort fo ting that just " works " and we don't

> > quite know why yet. Thanks

> >

> >

> >