coldhands and feet

April 8, 2006

HI EVERYONE I HAVE HAD A BAD 24 HRS. I HAVE HAD TERRIBLE MUSCLE PAIN

IN MY RIGHT LEG TO THE POINT WHERE I THOUGHT MY LEG WAS GOING TO

BURST. AND MY HANDS AND FEET I CANN'T GET THEM WARM THEY ARE COLD AND

TURN COLORS. CAN ANYONE HELP ME . I CALLED U OF M TO TALK WITH THE dR.

BUT SHE WAS NOT IN . THIS IS AL NEW TO ME. I HAVE ONLY BEEN TOLD THAT

I HAVE HAD IT SINCE JAN. 06 BUT I HAVE HAD ALOT OF MEDICAL THINGS

GOING ON IN MY LIFE FOR THE PAST 4 YRS.

THANKS FOR ANY SUGGESTIONS,

KATHY

April 9, 2006

Kathy

I'm sorry you had such a scary experience.

First of all, you can ask for the resident on call when your doctor

isn't in. They may not be familiar with you, but they can call the doc

if need be.

The hand and foot coldness is not all that unusual, especially if you

have dysautonomia. Where they blue or red? It could also be caused by

low blood pressure and I'm sure other things.

Do you still have the leg pain? If so, I think it should be checked

out without waiting to get ahold of the doc. It could be something

unconnected to mito, such as a blood clot. I had to have this done in

the ER one night. It turned out that I didn't have a blood clot and it

was never determined exactly what it was, but a blood clot was ruled

out.

Good luck,

laurie

> HI EVERYONE I HAVE HAD A BAD 24 HRS. I HAVE HAD TERRIBLE MUSCLE PAIN

> IN MY RIGHT LEG TO THE POINT WHERE I THOUGHT MY LEG WAS GOING TO

> BURST. AND MY HANDS AND FEET I CANN'T GET THEM WARM THEY ARE COLD AND

> TURN COLORS. CAN ANYONE HELP ME . I CALLED U OF M TO TALK WITH THE dR.

> BUT SHE WAS NOT IN . THIS IS AL NEW TO ME. I HAVE ONLY BEEN TOLD THAT

> I HAVE HAD IT SINCE JAN. 06 BUT I HAVE HAD ALOT OF MEDICAL THINGS

> GOING ON IN MY LIFE FOR THE PAST 4 YRS.

>

> THANKS FOR ANY SUGGESTIONS,

> KATHY

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail

> is entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with

> their physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

April 10, 2006

I do not have any suggestions except that you are not alone. A couple of weeks

ago I had the worst calf muscle cramp I have ever had. It woke me up--I could

not get it to go away. My husband who was in another room came over and rubbed

it for 10 minutes before I stopped screaming in pain. That was a week ago and

it is still sore somewhat.

I often get the cold feet but not the hands. I take off my socks if I have them

on since it seems to keep the cold in. Then I wrap them in a warm soft fleece

blanket I have. Lastly I put a heating pad on top of that. It still takes over

an hour to warm them up but it helps.

Janet Sample

coldhands and feet

HI EVERYONE I HAVE HAD A BAD 24 HRS. I HAVE HAD TERRIBLE MUSCLE PAIN

IN MY RIGHT LEG TO THE POINT WHERE I THOUGHT MY LEG WAS GOING TO

BURST. AND MY HANDS AND FEET I CANN'T GET THEM WARM THEY ARE COLD AND

TURN COLORS. CAN ANYONE HELP ME . I CALLED U OF M TO TALK WITH THE dR.

BUT SHE WAS NOT IN . THIS IS AL NEW TO ME. I HAVE ONLY BEEN TOLD THAT

I HAVE HAD IT SINCE JAN. 06 BUT I HAVE HAD ALOT OF MEDICAL THINGS

GOING ON IN MY LIFE FOR THE PAST 4 YRS.

THANKS FOR ANY SUGGESTIONS,

KATHY

Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

April 12, 2006

I also get the cold hands and feet. I call it a cold attack. I almost always

keep socks on, even to sleep. if I get really cold I need a hot bath or heating

pad on my feet. I also go to U of M. Last time I called with a specific question

on a problem no one ever called me back after it was relayed to the Dr. in

West Michigan

Janet Sample thesamples@...> wrote: I do not have any suggestions

except that you are not alone. A couple of weeks ago I had the worst calf

muscle cramp I have ever had. It woke me up--I could not get it to go away. My

husband who was in another room came over and rubbed it for 10 minutes before I

stopped screaming in pain. That was a week ago and it is still sore somewhat.

I often get the cold feet but not the hands. I take off my socks if I have them

on since it seems to keep the cold in. Then I wrap them in a warm soft fleece

blanket I have. Lastly I put a heating pad on top of that. It still takes over

an hour to warm them up but it helps.

Janet Sample

coldhands and feet

HI EVERYONE I HAVE HAD A BAD 24 HRS. I HAVE HAD TERRIBLE MUSCLE PAIN

IN MY RIGHT LEG TO THE POINT WHERE I THOUGHT MY LEG WAS GOING TO

BURST. AND MY HANDS AND FEET I CANN'T GET THEM WARM THEY ARE COLD AND

TURN COLORS. CAN ANYONE HELP ME . I CALLED U OF M TO TALK WITH THE dR.

BUT SHE WAS NOT IN . THIS IS AL NEW TO ME. I HAVE ONLY BEEN TOLD THAT

I HAVE HAD IT SINCE JAN. 06 BUT I HAVE HAD ALOT OF MEDICAL THINGS

GOING ON IN MY LIFE FOR THE PAST 4 YRS.

THANKS FOR ANY SUGGESTIONS,

KATHY

Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

April 13, 2006

I have had this problem and the leg cramps for years. My Neurologist says part

of the problem with my feet could be due to me having severe periphal neuropathy

in both legs, the right is much worse? My right leg is the one with the MD like

condition and my walking is greatly impaired. I have had a really bad time of

it this year and that is part of the reason why I have just read no written,

plus my e-mail has been messing up more often than not. I suffered with " major

gastro " problems starting Jan first then I was in such a weakened condition that

I took four falls, two bad from which I received a hairline skull fractrue from

one and one seizure at 11:30 at night and I live alone. All of this forced me

to make another " life altering decision " and I will be moving to Aldersgate

Village here in Topeka (it is part of the United Methodist Churches, Inc) and I

will be going into an independent living setting where I will have 24 hour

medical care if I need it, Sorry to

be so long winded but I thought since my e-mail was working I would chime in.

Thanks, Dolores

Okerlund susanmito@...> wrote: I also get the cold hands and feet.

I call it a cold attack. I almost always keep socks on, even to sleep. if I get

really cold I need a hot bath or heating pad on my feet. I also go to U of M.

Last time I called with a specific question on a problem no one ever called me

back after it was relayed to the Dr. in West Michigan