Re: shoe for my son

[Guest guest]

Hello and welcome. If your sons foot is relapsing even the slightest bit,

his foot probably won't stay in the Markells. If it has relapsed

slightly, I think you should go get another cast to fix the relapse before

trying the shoes again. The shoes will only be successful if the foot is

fully corrected in the first place. Have you tried to make sure his

foot/heel is all the way down in the shoe? Please check the tips and

tricks list for the FAB in the files section of this site. Also, there

may be a reason his foot wasn't staying in the shoe. It could be as

simple as not all the way in or simply not tight enough. May I ask where

you take your son for treatment?

P/M is short for Ponseti s brace

AFO-Ankle Foot Orthotic (basically a completely useless piece of equipment

for clubfoot treatment)

Hang in there, you have come to the right place for help.

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax

[Guest guest]

If your sons foot is relapsing then you need to get him back in casts done by a

Ponseti trained physician. Meanwhile contact about getting you a pair of

shoes as he can make very tiny ones. Then be sure his foot is completely

corrected before you head back in to shoes. Keep us updated!

As for the s - not a problem for us from the beginning. Very easy to

use and she's never gotten out of them.

Chris

shoe for my son

HI all,

My son has a left club foot. He is 10 weeks old. He has been

corrected by the Ponseti Method and a tenotamy. Received his DBB a

week ago, and in the past 6 days I've been to the orthotist 5 times.

No one can keep him in these #@#$%! shoes. I'm curious as to the

success people have had with the shoes. Anyone out there

have problems with the Markells and switched to the s? I

would LOVE to hear from you. Also, a few questions...what do these

abbreviations mean p/m fab? afo? Just curious.

My son's foot is already relapsing because he hasn't been able to wear

his DBB. This is all so frustrating.

[Guest guest]

Hi, again,

I'm glad you posted here as well as the other group. I hope you get

some good information and help to get your son back on track.. I know

how frustrating this must be. Do you have an appt to see the doc about

recasting? Does he know about the trouble you've been having with the

brace?

I think you said you are in Michigan, is that correct? just curious..

is your son being treated by the doc who is listed on Dr. Ponseti's

site?

I hope you are able to get this resolved soon and that everything gets

better soon,

take care,

> HI all,

> My son has a left club foot. He is 10 weeks old. He has been

> corrected by the Ponseti Method and a tenotamy. Received his DBB a

> week ago, and in the past 6 days I've been to the orthotist 5 times.

> No one can keep him in these #@#$%! shoes. I'm curious as to the

> success people have had with the shoes. Anyone out there

> have problems with the Markells and switched to the s? I

> would LOVE to hear from you. Also, a few questions...what do these

> abbreviations mean p/m fab? afo? Just curious.

>

> My son's foot is already relapsing because he hasn't been able to

wear

> his DBB. This is all so frustrating.

[Guest guest]

Hi,

Im using boots for my daughter. She has been in them for five

weeks. I think they are brilliant! I was expecting alot of trouble as

she hated casts and didnt sleep very well with them.

However with the s she slept so well the first 3days I thought

she was ill!! But no, she was fine just more comfy! Ive never

experienced a sleepless night yet (unlike the casts).

I can put the s on easily by myself (hubby works away) and my

daugher has experienced no sores, marks or blisters whatso ever.

I must admit never tried the Markells as my daughter has Atypical and

Dr Ponseti recommended the s. But s are now being used

by lots of kids without Atypical.

Me I woulnt believe how good the s have been!

Worth a try if you really dont like the Markells.

I agree you need to see the docs asap if foot has moved to get re-cast.

Hope this helps

Julzd and Aurora

> HI all,

> My son has a left club foot. He is 10 weeks old. He has been

> corrected by the Ponseti Method and a tenotamy. Received his DBB a

> week ago, and in the past 6 days I've been to the orthotist 5

times.

> No one can keep him in these #@#$%! shoes. I'm curious as to the

> success people have had with the shoes. Anyone out there

> have problems with the Markells and switched to the s? I

> would LOVE to hear from you. Also, a few questions...what do these

> abbreviations mean p/m fab? afo? Just curious.

>

> My son's foot is already relapsing because he hasn't been able to

wear

> his DBB. This is all so frustrating.

[Guest guest]

Jake had some trouble staying in his shoes too- they put a pad in the

heel of the shoe, towards the top lip of the shoe, so there was space in

the bottom for his heel. That worked really well, and when his foot got

a little bigger they just took the pad out. An idea to ask about....

Kassia

3/22/01 (Lt clubfoot, ATTT surgery April 2004)

and 11/22/02

[Guest guest]

susan.shook@... wrote:

Hello and welcome. If your sons foot is relapsing even the slightest bit,

his foot probably won't stay in the Markells. If it has relapsed

slightly, I think you should go get another cast to fix the relapse before

trying the shoes again.

I went back to the doctor who casted my son with the Ponseti method and I said

(exact words), " I'm concerned about my son's foot, its turning back in again. "

Doc said to me, " It will do that, next time don't let it go 2 weeks before

calling me. " I kind of wanted to SMACK him a good one. You see, my son's last

cast came off 2 weeks ago to this date. Had to wait 5 days to even receive his

DBB, and then over the next 6 days I visited the orthotist 5 times to try and

get the Markells to stay on. I think his words, " don't let it go 2 weeks " were

a very poor choice to use with someone who has logged a bizillion hours and 5

trips to an orthotist struggling to get the shoes that he prescribed to fit!

AHHHH!!! He agreed that my son's foot was turning back in, but said (in his

exact words) " its okay though, because his foot can still be held in

correction. " I didn't like that answer AT ALL, so I scheduled him to be recast.

THe soonest they can get him in is next week Friday. I'm not

sure how long he'll be in casts, but I want to make certain that his shoes

arrive shortly after he is out of casts.

The shoes will only be successful if the foot is

fully corrected in the first place. Have you tried to make sure his

foot/heel is all the way down in the shoe?

Oh yes, I've tried that.

Please check the tips and

tricks list for the FAB in the files section of this site. Also, there

may be a reason his foot wasn't staying in the shoe. It could be as

simple as not all the way in or simply not tight enough. May I ask where

you take your son for treatment?

I take him to Dr. Hotchkiss, he's located on Michigan Street in Grand Rapids,

Michigan. He uses the Ponseti method. He did attend a Ponseti seminar, but did

not submit the necessary files to Dr. Ponseti to be approved (we just found all

of this out by Dr. Ponseti himself.)

I have sent photos to Dr. Ponseti via email and am awaiting his answer. I think

that me demanding him to be recast was definatly the right move. Does anyone

know how long it takes to get a pair of s? How much time lapses before

you get the shoes?

P/M is short for Ponseti s brace

AFO-Ankle Foot Orthotic (basically a completely useless piece of equipment

for clubfoot treatment)

Thank you. I was wondering what all those terms meant.

Hang in there, you have come to the right place for help.

Thanks for your support.

.

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax

[Guest guest]

julzdavidsonuk julzdavidsonuk@...> wrote:

Hi,

Im using boots for my daughter. She has been in them for five

weeks. I think they are brilliant! I was expecting alot of trouble as

she hated casts and didnt sleep very well with them.

However with the s she slept so well the first 3days I thought

she was ill!! But no, she was fine just more comfy! Ive never

experienced a sleepless night yet (unlike the casts).

I can put the s on easily by myself (hubby works away) and my

daugher has experienced no sores, marks or blisters whatso ever.

I must admit never tried the Markells as my daughter has Atypical and

Dr Ponseti recommended the s. But s are now being used

by lots of kids without Atypical.

Me I woulnt believe how good the s have been!

Worth a try if you really dont like the Markells.

I agree you need to see the docs asap if foot has moved to get re-cast.

Thank you for responding to my post. I am willing to give the s a try

as the Markells just don't seem to want to fit. I figure it can't get ANY

worse. Glad your daughter does so well in her shoes.

.

Hope this helps

Julzd and Aurora

> HI all,

> My son has a left club foot. He is 10 weeks old. He has been

> corrected by the Ponseti Method and a tenotamy. Received his DBB a

> week ago, and in the past 6 days I've been to the orthotist 5

times.

> No one can keep him in these #@#$%! shoes. I'm curious as to the

> success people have had with the shoes. Anyone out there

> have problems with the Markells and switched to the s? I

> would LOVE to hear from you. Also, a few questions...what do these

> abbreviations mean p/m fab? afo? Just curious.

>

> My son's foot is already relapsing because he hasn't been able to

wear

> his DBB. This is all so frustrating.

[Guest guest]

and Claire atemc@...> wrote:

Hi, again,

I'm glad you posted here as well as the other group. I hope you get

some good information and help to get your son back on track.. I know

how frustrating this must be. Do you have an appt to see the doc about

recasting?

Yup, its for next week Friday. I cannot wait to get his treatment back on

track.

Does he know about the trouble you've been having with the

brace?

OH yeah, I've pretty much been pestering everyone non stop about it.

I think you said you are in Michigan, is that correct? just curious..

is your son being treated by the doc who is listed on Dr. Ponseti's

site?

No, but if I have any more trouble with this doc. I'm going to go to the Ponseti

doctor for a second opinion. I am also awaiting word from Dr. Ponseti himself

regarding my son (I sent him photos of Nick's foot)

I hope you are able to get this resolved soon and that everything gets

better soon,

Thanks for your support and kind words.

take care,

> HI all,

> My son has a left club foot. He is 10 weeks old. He has been

> corrected by the Ponseti Method and a tenotamy. Received his DBB a

> week ago, and in the past 6 days I've been to the orthotist 5 times.

> No one can keep him in these #@#$%! shoes. I'm curious as to the

> success people have had with the shoes. Anyone out there

> have problems with the Markells and switched to the s? I

> would LOVE to hear from you. Also, a few questions...what do these

> abbreviations mean p/m fab? afo? Just curious.

>

> My son's foot is already relapsing because he hasn't been able to

wear

> his DBB. This is all so frustrating.

[Guest guest]

Hi .

Well it sounds like your doc is a jerk. I don't know him from Atom, but

geeze! He knows the foot can start to relapse in less than 24 hours right

out of the casts! Usually they will tell you to have the shoes ready at

the last cast removal. 2 weeks, no wonder your son was having trouble.

I'm glad they were willing to recast for you. It's great that you emailed

Dr. Ponseti. If your sons feet are fine, at least you got an opinion from

the 'best' and can be at ease of worry.

You may want to consider the Markells one more time. I think the problem

was the foot turning back in. It is worth a second try at the very least.

If he is still having trouble with the Markells, then at that point maybe

try the s. I only say that because of the cost factor. The

Markells do work if the feet are fully corrected.

Way to be strong with the doc!!! I was naive in the beginning, and boy do

I regret it!!!

Please let us know what Dr.P says.

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax

[Guest guest]

susan.shook@... wrote:

Hi .

Well it sounds like your doc is a jerk. I don't know him from Atom, but

geeze! He knows the foot can start to relapse in less than 24 hours right

out of the casts!

MAN, I sure wish he would have TOLD me that. I mean, man, couldn't he have

ordered the shoes and bar and had them waiting for me in his office when they

took the last cast off....or called the Orthotists and told them to get me right

in or something?? I had NO IDEA that my appointment to get the bar five days

later was of any concern or that he would relapse so quickly.

Usually they will tell you to have the shoes ready at

the last cast removal. 2 weeks, no wonder your son was having trouble.

I'm glad they were willing to recast for you.

My appointment to recast with him was this coming Friday. That was the soonest

they could get me in. I went and got a second opinion from a Ponseti approved

doctor today and he recast Nick right on the spot and is now treating him. He

told me that if he gets stumped over a particular case that he consults with Dr.

P himself!

It's great that you emailed

Dr. Ponseti. If your sons feet are fine, at least you got an opinion from

the 'best' and can be at ease of worry.

You may want to consider the Markells one more time. I think the problem

was the foot turning back in. It is worth a second try at the very least.

If he is still having trouble with the Markells, then at that point maybe

try the s. I only say that because of the cost factor.

Yeah, $382 adds up quickly!

Please let us know what Dr.P says.

You know, I was expecting to hear from him last week Friday because he wasn't in

on Wednesday...he was not feeling well. I hope he is doing ok, because I still

haven't heard from him. I understand that he is a wonderful, wonderful man.

I'm so excited to hear from him. I will for sure let you all know what he says

when I hear from him.

.

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax

[Guest guest]

Been catching up a bit. I agree that it is odd that the brace wasn't ordered

before the last cast off. We got a script for ours before our tenotomy, and the

doc made sure I knew I was supposed to get an appointment NOW so that the brace

would be ready for us. Hope all goes well this time around.

Re: shoe for my son

susan.shook@... wrote:

Hi .

Well it sounds like your doc is a jerk. I don't know him from Atom, but

geeze! He knows the foot can start to relapse in less than 24 hours right

out of the casts!

MAN, I sure wish he would have TOLD me that. I mean, man, couldn't he have

ordered the shoes and bar and had them waiting for me in his office when they

took the last cast off....or called the Orthotists and told them to get me right

in or something?? I had NO IDEA that my appointment to get the bar five days

later was of any concern or that he would relapse so quickly.

Usually they will tell you to have the shoes ready at

the last cast removal. 2 weeks, no wonder your son was having trouble.

I'm glad they were willing to recast for you.

My appointment to recast with him was this coming Friday. That was the

soonest they could get me in. I went and got a second opinion from a Ponseti

approved doctor today and he recast Nick right on the spot and is now treating

him. He told me that if he gets stumped over a particular case that he consults

with Dr. P himself!

It's great that you emailed

Dr. Ponseti. If your sons feet are fine, at least you got an opinion from

the 'best' and can be at ease of worry.

You may want to consider the Markells one more time. I think the problem

was the foot turning back in. It is worth a second try at the very least.

If he is still having trouble with the Markells, then at that point maybe

try the s. I only say that because of the cost factor.

Yeah, $382 adds up quickly!

Please let us know what Dr.P says.

You know, I was expecting to hear from him last week Friday because he wasn't

in on Wednesday...he was not feeling well. I hope he is doing ok, because I

still haven't heard from him. I understand that he is a wonderful, wonderful

man. I'm so excited to hear from him. I will for sure let you all know what he

says when I hear from him.

.

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax