Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 hi all, just got the results back from my latest mbx. showed no COX/SDH or gomouri trichrome evidence of mito. there were some pale NADH areas, but i'm not sure what that means. i thought that was a mito indicator, too. they found no inclusion bodies, so this test shows i don't have IBM either. it was down to IBM and mito, but they say i have neither. they did see some areas that were PAS positive and are running more tests on the same sample for glycogen. they also want to test the same sample for dystrohy related proteins. so it looks like i have gone from thinking we were narrowing the diagnosis down to one of two to thinking that i have neither and finding there may be two new possibilities. does anyone know anything about glycogen storage diseases? even if it turns out i don't have mito, i hope you won't mind if i stick around on this board. i have gleaned so much good information and encouragement from so many of you. kent Quote Link to comment Share on other sites More sharing options...
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