Guest guest Posted May 15, 2005 Report Share Posted May 15, 2005 Hi, This might seem out of left field.. but .. I think you are in Michigan, correct? Would you consider going to Iowa, to see the doctors there? Or the one in Michigan on the Ponseti list, if he's not the one you are seeing? The fact that you mention a two week break between casts and getting the brace raised a red flag. If your son had a break of that long, or even a day or two, before getting the brace he has now, it's no wonder the shoes are not staying on. There's no way they could. The feet start relapsing right away if they're left free. Especially at that young of an age. The brace should be set up for your baby, ready and waiting for the MINUTE that last cast comes off. Sometimes parents end up blaming the brace or the Markell shoes when that's not the problem, but because the feet aren't fully corrected in the first place, or have relapsed. Many doctors are new to the method, or are not following it precisely, and/or are working with orthotists who are unfamiliar with it. Parents have to be wary. Here are two checklists of questions and tips for parents, which might be helpful: http://members.tripod.com/ponseti_links-ivil/id13.html http://www.clubfoot.co.za/checklist.htm All this is intended only in the spirit of helping .. Maybe I'm misunderstanding your situation. I certainly don't intend to offend! I do hope you can get things straightened out soon. Hang in there, > HI guys, > Am having a nightmare getting my son's Markell shoes to fit. > After two weeks (out of casts) and one week trying to get the > Markell's to fit, after 5 consecutive trips to the orthotist....I've > given up. These shoes are just not going to work at this point in > time. My son's club foot was corrected via Ponseti method and with > a tenotamy. He is 10 weeks old, well, almost 11 weeks old. He is > already having a relapse because no one can keep the shoes on him, > not even the orthotist, or the specialist.....so my question to all > of you is......Have ya'll seen the files section where someone glued > tennis shoes to the DBB? THAT is awesome. Shucks, I'm willing to > give anything a try at this point. I've posted to you guys about > the shoes, and have gotten a great response from parents > who have put their children in them...I'm really considering those. > I'm concerned though in the 2 week lapse of not being in a cast > (when my son comes out of them again) and waiting for the shoes to > arrive that he'll have yet another relapse. Also, does ins. pay for > shoes if the Markell's do not work? I just don't even want > to mess ANYMORE with the Markells. THinking of having a bonfire > tonight with them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2005 Report Share Posted May 15, 2005 So sorry to hear that you are having such a hard time with the Markells. They most certainly can be a bear to get the hang of, and if you don't get the hang of them quickly, it opens up a whole new set of troubles... I'm not sure I understand your situation correctly. Are you saying that your son was out of casts for 2 weeks before going into the FAB/DBB??? If so, it is no wonder that you are having problems. These little feet relapse very, very quickly, especially at first and especially in the youngest children. The Markells will absolutely not work on feet that are not fully corrected. In fact, they will be uncomfortable, they will come off, no one will be happy. Another thing that is a huge red flag here is that you say your son is relapsing, but that you are still putting the shoes on him. Why is he not in a casts to deal with the relapse? Where are you located and who is treating your son? The Markells and the FAB do not do any of the work of correcting the foot, they are more like a retainer (as when you have braces, once the teeth are straight, you wear a retainer) and essential in preventing a relapse. You must have the foot corrected before you try the FAB again. I think a few people have used various other shoes mounted on the bar, mainly before Markell started making the tiniest sizes. My son, now nearly 2, has been asking to wear his Teva sandals to bed instead of the Markells--certainly look more comfortable to me. I'll send you a copy of the tips 'n' tricks in another email. Naomi The Family Naomi Hannah(02/21/01) Jonah(06/20/03, bilateral clubfoot, FAB 14/7) jlkittredge jlkittredge@...> wrote: HI guys, Am having a nightmare getting my son's Markell shoes to fit. After two weeks (out of casts) and one week trying to get the Markell's to fit, after 5 consecutive trips to the orthotist....I've given up. These shoes are just not going to work at this point in time. My son's club foot was corrected via Ponseti method and with a tenotamy. He is 10 weeks old, well, almost 11 weeks old. He is already having a relapse because no one can keep the shoes on him, not even the orthotist, or the specialist.....so my question to all of you is......Have ya'll seen the files section where someone glued tennis shoes to the DBB? THAT is awesome. Shucks, I'm willing to give anything a try at this point. I've posted to you guys about the shoes, and have gotten a great response from parents who have put their children in them...I'm really considering those. I'm concerned though in the 2 week lapse of not being in a cast (when my son comes out of them again) and waiting for the shoes to arrive that he'll have yet another relapse. Also, does ins. pay for shoes if the Markell's do not work? I just don't even want to mess ANYMORE with the Markells. THinking of having a bonfire tonight with them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2005 Report Share Posted May 15, 2005 Naomi powellbugs@...> wrote: So sorry to hear that you are having such a hard time with the Markells. They most certainly can be a bear to get the hang of, and if you don't get the hang of them quickly, it opens up a whole new set of troubles... I've tried EVERYTHING that there possibly was/is to do. They just will not fit him. Its like trying to put a square peg in a round hole, it just ain't gonna fit. I'm not sure I understand your situation correctly. Are you saying that your son was out of casts for 2 weeks before going into the FAB/DBB??? Nope, currently my son has been out of casts and DBB for 2weeks now. The lapse between getting out of his final cast and receiving the DBB was 5 days. He received his DBB on Wednesday. All day Wednesday I tried to get them on him, they would just slide off, no matter how much I tried. I tried all day Thursday as well. I called Thursday before they closed and they got me in on Friday. They made some adjustments thinking that they had solved the problem. They got the shoes and bars on him, all proud that they got them on, yet by the time I got him and got him out of his car seat, his club foot was out (and he slept all the way home, didn't fuss and barely moved), so imagine my surprise when he was out of them. Went back on Monday, Tuesday, and Wednesday for more of the same (useless adjustments). Finally, having had enough I went back to the Doctor who used the Ponseti procedure. My son is going back into casts this coming Friday. If so, it is no wonder that you are having problems. These little feet relapse very, very quickly, especially at first and especially in the youngest children. The Markells will absolutely not work on feet that are not fully corrected. In fact, they will be uncomfortable, they will come off, no one will be happy. That is EXACTLY what is happeneing. Another thing that is a huge red flag here is that you say your son is relapsing, but that you are still putting the shoes on him. Why is he not in a casts to deal with the relapse? That is going to happen this coming Friday. Where are you located and who is treating your son? I am located in Grand Rapid, MI. Dr. Hotchkiss, MD is treating my son. He is located at Michigan Ave. The Markells and the FAB do not do any of the work of correcting the foot, they are more like a retainer (as when you have braces, once the teeth are straight, you wear a retainer) and essential in preventing a relapse. You must have the foot corrected before you try the FAB again. I think a few people have used various other shoes mounted on the bar, mainly before Markell started making the tiniest sizes. My son, now nearly 2, has been asking to wear his Teva sandals to bed instead of the Markells--certainly look more comfortable to me. I've never heard of the Teva sandals before, what are those? I'll send you a copy of the tips 'n' tricks in another email. Thanks. I need some advice. If my son is going back into casts this coming Friday, and I do NOT want to use the Markell shoes again (I'm afraid of more useless trips to the orthotist) and would like to order the sandals, however they take 2 weeks to get...so NOW I'm afraid my son will relapse again when he gets out of his casts while waiting for the s to arrive. Should I order the impression kit before he's out of his cast? Not too sure how to go about all of this. Just want what is best for my little boy. Jen -Jen K. --------------------------------- Yahoo! Mail Mobile Take Yahoo! Mail with you! Check email on your mobile phone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2005 Report Share Posted May 15, 2005 There is absolutely no reason for your son to be out of casts waiting for the FAB. More than one child here has had " holding " casts while waiting for a brace. Just because the foot it corrected doesnt mean it should be free if there is no brace for it to go into immediately. Also, you mention that the Markell's just don't fit ... how do you mean?? I mean, is his foot shaped different than a " normal " foot? A corrected clubfoot should look JUST LIKE a normal foot. If it doesn't then it is either not corrected or possibly there is something else going on (like atypical). Angel Caitlen 8/29/97 Arica 8/22/01 Kai 12/31/02 ----Original Message Follows---- Reply-To: nosurgery4clubfoot To: nosurgery4clubfoot Subject: Re: Tennis shoes on the DBB Date: Sun, 15 May 2005 18:20:07 -0700 (PDT) Naomi powellbugs@...> wrote: So sorry to hear that you are having such a hard time with the Markells. They most certainly can be a bear to get the hang of, and if you don't get the hang of them quickly, it opens up a whole new set of troubles... I've tried EVERYTHING that there possibly was/is to do. They just will not fit him. Its like trying to put a square peg in a round hole, it just ain't gonna fit. I'm not sure I understand your situation correctly. Are you saying that your son was out of casts for 2 weeks before going into the FAB/DBB??? Nope, currently my son has been out of casts and DBB for 2weeks now. The lapse between getting out of his final cast and receiving the DBB was 5 days. He received his DBB on Wednesday. All day Wednesday I tried to get them on him, they would just slide off, no matter how much I tried. I tried all day Thursday as well. I called Thursday before they closed and they got me in on Friday. They made some adjustments thinking that they had solved the problem. They got the shoes and bars on him, all proud that they got them on, yet by the time I got him and got him out of his car seat, his club foot was out (and he slept all the way home, didn't fuss and barely moved), so imagine my surprise when he was out of them. Went back on Monday, Tuesday, and Wednesday for more of the same (useless adjustments). Finally, having had enough I went back to the Doctor who used the Ponseti procedure. My son is going back into casts this coming Friday. If so, it is no wonder that you are having problems. These little feet relapse very, very quickly, especially at first and especially in the youngest children. The Markells will absolutely not work on feet that are not fully corrected. In fact, they will be uncomfortable, they will come off, no one will be happy. That is EXACTLY what is happeneing. Another thing that is a huge red flag here is that you say your son is relapsing, but that you are still putting the shoes on him. Why is he not in a casts to deal with the relapse? That is going to happen this coming Friday. Where are you located and who is treating your son? I am located in Grand Rapid, MI. Dr. Hotchkiss, MD is treating my son. He is located at Michigan Ave. The Markells and the FAB do not do any of the work of correcting the foot, they are more like a retainer (as when you have braces, once the teeth are straight, you wear a retainer) and essential in preventing a relapse. You must have the foot corrected before you try the FAB again. I think a few people have used various other shoes mounted on the bar, mainly before Markell started making the tiniest sizes. My son, now nearly 2, has been asking to wear his Teva sandals to bed instead of the Markells--certainly look more comfortable to me. I've never heard of the Teva sandals before, what are those? I'll send you a copy of the tips 'n' tricks in another email. Thanks. I need some advice. If my son is going back into casts this coming Friday, and I do NOT want to use the Markell shoes again (I'm afraid of more useless trips to the orthotist) and would like to order the sandals, however they take 2 weeks to get...so NOW I'm afraid my son will relapse again when he gets out of his casts while waiting for the s to arrive. Should I order the impression kit before he's out of his cast? Not too sure how to go about all of this. Just want what is best for my little boy. Jen -Jen K. --------------------------------- Yahoo! Mail Mobile Take Yahoo! Mail with you! Check email on your mobile phone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2005 Report Share Posted May 15, 2005 , After reading all you've written here, it really sounds like the main reason the shoes won't fit him is because he was left without any kind of correction for so long. The shoes need to be applied IMMEDIATELY after the last cast, within an hour or two. Not a day, not 2 days, certainly not 5 and absolutely not 8. They didn't get your son into his shoes and his foot relapsed. A relapsed foot will not stay in the shoes and the Dr. should never have allowed it in the first place. Additionally, the Dr. should be smart enough to see that's the reason he's having the problems. To ignore this, is beyond ludicracy... it's bordering on malpractice if you ask me. If we parents know this, the docs should too. I don't want to say for 100% sure that it's not the shoes, because perhaps you will find that you son's foot is a little special and may indeed need the P/M shoes. However baring the signs we know that indicate Atypical, he has as good a chance as any CF child of successfully wearing the Markell's with competent hands correcting his feet. Which is sounds like he may not have right now. Or perhaps the hands are competent, but the administration and communication isn't. There is simply no excuse for not having those shoes available for him as soon as his casts come off. And should they not be available for some reason, he should have been placed in a holding cast till they arrived. Hands down, there's no other way it should have been done. They were wrong, and thus compromised your son's feet in their complacency. Not your fault at all, not the child's fault, and not his feet's fault. It's is the caregiver's fault. I know this sounds harsh and difficult to believe being that you're there seeing all this first hand and wanting to hurl the shoes off a bridge... But I want you to understand that you have been handed a loosing situation and your son was not given the best of care. There was little or no way you could have changed it. But you can now. Do not let those feet be without casts till whatever shoes you prefer arrive. Naomi has sent you the tips document, there is information in there which will help you to be able to apply the shoes properly and tools to aid you in knowing if they're staying on properly if you do choose to try them again on nicely corrected feet. I would encourage you to consider them once more because they are a good choice for *most* (and most being at least 95%) clubfeet corrected with this method. Knowing how to apply them properly is one of the main factors in making them work properly. And many, many parents, including myself have come to realize we were not doing it right at all and actually caused the problems ourselves - this does not sound like you but it could have been even if everything was done 100% right by the docs. You were given no tools to make this work and quite honestly, with the way they handled it even if you had those tools you would likely still be in the same place you are at now. You are not the first, and won't be the last parent who has had this happen but you're in the right place now to get it handled properly and effectively. We are here to help in any way we can. Hang in there! After all my time here, and actually asking the very same question you did about the tennis shoes... I have come to the conclusion that tennis shoes will not hold the feet as well as the Markells. The strap on these shoes is an integral part of their design, and often is the main factor for keeping the heel down. Any shoe could be worn, but will it securely and effectively hold the heel 100% seated in the bottom of the shoe? Very likely no. Regular shoes are simply not designed with that in mind. Without maintaining that heel deep down in the shoe you cannot complete the healing of the tendon that was cut so that the heel could actually do this. It will not stretch properly (the brace is dorsiflexed - the bar is bent so the toes point up) and will heal tight again. Which will mean another surgery for babe. Which can be done, but do you really want to start all over again at that point 6 months down the road? As for the Ponseti/'s, well 2w may be what it says, but we know that in mad crazy with orders right now and 2w lead time is pretty optimistic right now. So you have a choice, get babe right into the Markell's with nicely corrected feet immediately after full corrective casting, or keep him in casts till his P/M's arrive. You will likely be pleased with the P/M's if you choose them, but they aren't really intentioned for all clubfeet for the entire duration of the treatment and bracing period. Many parents are using them at first because the ARE easier to use, but will switch back to the Markell's once the foot grows and the heel forms better. Larger sizes, past about size 5 aren't even available yet. They are primarily meant for infant feet and Atypical clubfeet, at least at this time. Infant feet are a bit wonky shaped in general which is the root of much of the problem with little feet and the Markells, but nicely corrected clubfeet grow to become very stable like a normal foot within the first year or so. And application of the Markell's is relatively simple with such a foot. I just wanted to let you know that part of the equation to help with your decision making process about what shoes to get. I would have to say that whatever way you want to go with shoes (as long as it's a FAB) will be the right decision for you. And we are lucky to have the option now for the P/M's, even if insurance coverage is limited at best right now. Do your research, consider how you can make sure his feet are properly and fully corrected to be prepared for bracing, and apply them properly. You can't go wrong when you're following your heart and are here for support. If you need help with making the Markell's work, we're here. If you need support with a baby in casts waiting for the P/M's... we're here. If you need help finding a doc for a second opinion, this is the place to find a good one. If you are going to be the one to show the current doc a thing or two with your amazing child... well you couldn't be in a better place! Please let us know how you decide, and if there's anything else we can do to help. Remember, you are not alone in this journey... so many of us have been in your position and lived to tell the story afterwards. With happy footed babies and children running and jumping and carrying on like there's not a thing in the world wrong with their feet. The light at the end of the tunnel is very bright indeed! hugs! Kori Darbi Rt. CF 3/28-00 FAB 12-14hr/d At 06:20 PM 5/15/2005, you wrote: >Naomi powellbugs@...> wrote: >So sorry to hear that you are having such a hard time with the >Markells. They most certainly can be a bear to get the hang of, and if >you don't get the hang of them quickly, it opens up a whole new set of >troubles... > >I've tried EVERYTHING that there possibly was/is to do. They just will >not fit him. Its like trying to put a square peg in a round hole, it just >ain't gonna fit. > > >I'm not sure I understand your situation correctly. Are you saying that >your son was out of casts for 2 weeks before going into the FAB/DBB??? > >Nope, currently my son has been out of casts and DBB for 2weeks now. The >lapse between getting out of his final cast and receiving the DBB was 5 >days. He received his DBB on Wednesday. All day Wednesday I tried to get >them on him, they would just slide off, no matter how much I tried. I >tried all day Thursday as well. I called Thursday before they closed and >they got me in on Friday. They made some adjustments thinking that they >had solved the problem. They got the shoes and bars on him, all proud >that they got them on, yet by the time I got him and got him out of his >car seat, his club foot was out (and he slept all the way home, didn't >fuss and barely moved), so imagine my surprise when he was out of >them. Went back on Monday, Tuesday, and Wednesday for more of the same >(useless adjustments). Finally, having had enough I went back to the >Doctor who used the Ponseti procedure. My son is going back into casts >this coming Friday. > > If so, it is no wonder that you are having problems. These little feet > relapse very, very quickly, especially at first and especially in the > youngest children. The Markells will absolutely not work on feet that > are not fully corrected. In fact, they will be uncomfortable, they will > come off, no one will be happy. > >That is EXACTLY what is happeneing. > > > > > >Another thing that is a huge red flag here is that you say your son is >relapsing, but that you are still putting the shoes on him. Why is he not >in a casts to deal with the relapse? > >That is going to happen this coming Friday. > > > > Where are you located and who is treating your son? > >I am located in Grand Rapid, MI. Dr. Hotchkiss, MD is treating my >son. He is located at Michigan Ave. > > The Markells and the FAB do not do any of the work of correcting the > foot, they are more like a retainer (as when you have braces, once the > teeth are straight, you wear a retainer) and essential in preventing a > relapse. You must have the foot corrected before you try the FAB again. > >I think a few people have used various other shoes mounted on the bar, >mainly before Markell started making the tiniest sizes. My son, now >nearly 2, has been asking to wear his Teva sandals to bed instead of the >Markells--certainly look more comfortable to me. > >I've never heard of the Teva sandals before, what are those? > > > >I'll send you a copy of the tips 'n' tricks in another email. > >Thanks. I need some advice. If my son is going back into casts this >coming Friday, and I do NOT want to use the Markell shoes again (I'm >afraid of more useless trips to the orthotist) and would like to order the > sandals, however they take 2 weeks to get...so NOW I'm afraid my >son will relapse again when he gets out of his casts while waiting for the >s to arrive. Should I order the impression kit before he's out of >his cast? Not too sure how to go about all of this. Just want what is >best for my little boy. > > > > > >Jen > > > >-Jen K. > > >--------------------------------- >Yahoo! Mail Mobile > Take Yahoo! Mail with you! Check email on your mobile phone. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2005 Report Share Posted May 16, 2005 , I couldn't agree more with all that Kori is saying here. We went through the same things with my son and the Markell shoes, he kept the shoes on but got terrible sores from them. I was lucky enough to have the option of a plastic boot type shoe (similar to an AFO designed by our Dr., Dobbs in St. Louis) attached to the FAB which we used for about 8 weeks. By that time my son's foot had grown a little and was a little more solid; I tried the Markell shoes again and haven't looked back since. We use them now (it's been about 4 months) without ANY problems. About the tennis shoes on the bar, as Kori was saying, I think that most kids would be able to slip their foot right out of a tennis shoe due to the lack of the strap holding the foot down. Also, our Dr. said that the other problem with tennis shoes is finding a sturdy way to attach the bar to a soft bottomed shoe. Anyway, just wanted to reiterate what has already been said, that we are here to support you whatever you decide to do, just keep asking for advice, use us for a sounding board or whatever. Just don't give up! Hugs! Jenna (4/7/01) & Sammy (9/25/04, Dobbs Brace, 16-18/7) > >So sorry to hear that you are having such a hard time with the > >Markells. They most certainly can be a bear to get the hang of, and if > >you don't get the hang of them quickly, it opens up a whole new set of > >troubles... > > > >I've tried EVERYTHING that there possibly was/is to do. They just will > >not fit him. Its like trying to put a square peg in a round hole, it just > >ain't gonna fit. > > > > > >I'm not sure I understand your situation correctly. Are you saying that > >your son was out of casts for 2 weeks before going into the FAB/DBB??? > > > >Nope, currently my son has been out of casts and DBB for 2weeks now. The > >lapse between getting out of his final cast and receiving the DBB was 5 > >days. He received his DBB on Wednesday. All day Wednesday I tried to get > >them on him, they would just slide off, no matter how much I tried. I > >tried all day Thursday as well. I called Thursday before they closed and > >they got me in on Friday. They made some adjustments thinking that they > >had solved the problem. They got the shoes and bars on him, all proud > >that they got them on, yet by the time I got him and got him out of his > >car seat, his club foot was out (and he slept all the way home, didn't > >fuss and barely moved), so imagine my surprise when he was out of > >them. Went back on Monday, Tuesday, and Wednesday for more of the same > >(useless adjustments). Finally, having had enough I went back to the > >Doctor who used the Ponseti procedure. My son is going back into casts > >this coming Friday. > > > > If so, it is no wonder that you are having problems. These little feet > > relapse very, very quickly, especially at first and especially in the > > youngest children. The Markells will absolutely not work on feet that > > are not fully corrected. In fact, they will be uncomfortable, they will > > come off, no one will be happy. > > > >That is EXACTLY what is happeneing. > > > > > > > > > > > >Another thing that is a huge red flag here is that you say your son is > >relapsing, but that you are still putting the shoes on him. Why is he not > >in a casts to deal with the relapse? > > > >That is going to happen this coming Friday. > > > > > > > > Where are you located and who is treating your son? > > > >I am located in Grand Rapid, MI. Dr. Hotchkiss, MD is treating my > >son. He is located at Michigan Ave. > > > > The Markells and the FAB do not do any of the work of correcting the > > foot, they are more like a retainer (as when you have braces, once the > > teeth are straight, you wear a retainer) and essential in preventing a > > relapse. You must have the foot corrected before you try the FAB again. > > > >I think a few people have used various other shoes mounted on the bar, > >mainly before Markell started making the tiniest sizes. My son, now > >nearly 2, has been asking to wear his Teva sandals to bed instead of the > >Markells--certainly look more comfortable to me. > > > >I've never heard of the Teva sandals before, what are those? > > > > > > > >I'll send you a copy of the tips 'n' tricks in another email. > > > >Thanks. I need some advice. If my son is going back into casts this > >coming Friday, and I do NOT want to use the Markell shoes again (I'm > >afraid of more useless trips to the orthotist) and would like to order the > > sandals, however they take 2 weeks to get...so NOW I'm afraid my > >son will relapse again when he gets out of his casts while waiting for the > >s to arrive. Should I order the impression kit before he's out of > >his cast? Not too sure how to go about all of this. Just want what is > >best for my little boy. > > > > > > > > > > > >Jen > > > > > > > >-Jen K. > > > > > >--------------------------------- > >Yahoo! Mail Mobile > > Take Yahoo! Mail with you! Check email on your mobile phone. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2005 Report Share Posted May 16, 2005 Angel Gray m_kitaki@...> wrote: There is absolutely no reason for your son to be out of casts waiting for the FAB. That is what I thought too! More than one child here has had " holding " casts while waiting for a brace. Just because the foot it corrected doesnt mean it should be free if there is no brace for it to go into immediately. Also, you mention that the Markell's just don't fit ... how do you mean?? I mean, is his foot shaped different than a " normal " foot? It certainly is shaped different than a normal foot. It is turning in. A corrected clubfoot should look JUST LIKE a normal foot. If it doesn't then it is either not corrected or possibly there is something else going on (like atypical). What does atypical mean? I've heard that word used alot in the group. . Angel Caitlen 8/29/97 Arica 8/22/01 Kai 12/31/02 ----Original Message Follows---- Reply-To: nosurgery4clubfoot To: nosurgery4clubfoot Subject: Re: Tennis shoes on the DBB Date: Sun, 15 May 2005 18:20:07 -0700 (PDT) Naomi powellbugs@...> wrote: So sorry to hear that you are having such a hard time with the Markells. They most certainly can be a bear to get the hang of, and if you don't get the hang of them quickly, it opens up a whole new set of troubles... I've tried EVERYTHING that there possibly was/is to do. They just will not fit him. Its like trying to put a square peg in a round hole, it just ain't gonna fit. I'm not sure I understand your situation correctly. Are you saying that your son was out of casts for 2 weeks before going into the FAB/DBB??? Nope, currently my son has been out of casts and DBB for 2weeks now. The lapse between getting out of his final cast and receiving the DBB was 5 days. He received his DBB on Wednesday. All day Wednesday I tried to get them on him, they would just slide off, no matter how much I tried. I tried all day Thursday as well. I called Thursday before they closed and they got me in on Friday. They made some adjustments thinking that they had solved the problem. They got the shoes and bars on him, all proud that they got them on, yet by the time I got him and got him out of his car seat, his club foot was out (and he slept all the way home, didn't fuss and barely moved), so imagine my surprise when he was out of them. Went back on Monday, Tuesday, and Wednesday for more of the same (useless adjustments). Finally, having had enough I went back to the Doctor who used the Ponseti procedure. My son is going back into casts this coming Friday. If so, it is no wonder that you are having problems. These little feet relapse very, very quickly, especially at first and especially in the youngest children. The Markells will absolutely not work on feet that are not fully corrected. In fact, they will be uncomfortable, they will come off, no one will be happy. That is EXACTLY what is happeneing. Another thing that is a huge red flag here is that you say your son is relapsing, but that you are still putting the shoes on him. Why is he not in a casts to deal with the relapse? That is going to happen this coming Friday. Where are you located and who is treating your son? I am located in Grand Rapid, MI. Dr. Hotchkiss, MD is treating my son. He is located at Michigan Ave. The Markells and the FAB do not do any of the work of correcting the foot, they are more like a retainer (as when you have braces, once the teeth are straight, you wear a retainer) and essential in preventing a relapse. You must have the foot corrected before you try the FAB again. I think a few people have used various other shoes mounted on the bar, mainly before Markell started making the tiniest sizes. My son, now nearly 2, has been asking to wear his Teva sandals to bed instead of the Markells--certainly look more comfortable to me. I've never heard of the Teva sandals before, what are those? I'll send you a copy of the tips 'n' tricks in another email. Thanks. I need some advice. If my son is going back into casts this coming Friday, and I do NOT want to use the Markell shoes again (I'm afraid of more useless trips to the orthotist) and would like to order the sandals, however they take 2 weeks to get...so NOW I'm afraid my son will relapse again when he gets out of his casts while waiting for the s to arrive. Should I order the impression kit before he's out of his cast? Not too sure how to go about all of this. Just want what is best for my little boy. Jen -Jen K. --------------------------------- Yahoo! Mail Mobile Take Yahoo! Mail with you! Check email on your mobile phone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2005 Report Share Posted May 16, 2005 An atypical clubfoot is just that - it is different from a " normal " clubfoot. It reacts differently to casting because it is actually different on the inside. Here is a link for my website with pics and description. it is not complete and some of the information is out of date, but it gives you a good idea of what atypical clubfoot is! http://adifferentfoot.freeservers.com Angel Caitlen 8/29/97 Arica 8/22/01 Kai 12/31/02 ----Original Message Follows---- Reply-To: nosurgery4clubfoot To: nosurgery4clubfoot Subject: Re: Tennis shoes on the DBB Date: Mon, 16 May 2005 09:04:00 -0700 (PDT) Angel Gray m_kitaki@...> wrote: There is absolutely no reason for your son to be out of casts waiting for the FAB. That is what I thought too! More than one child here has had " holding " casts while waiting for a brace. Just because the foot it corrected doesnt mean it should be free if there is no brace for it to go into immediately. Also, you mention that the Markell's just don't fit ... how do you mean?? I mean, is his foot shaped different than a " normal " foot? It certainly is shaped different than a normal foot. It is turning in. A corrected clubfoot should look JUST LIKE a normal foot. If it doesn't then it is either not corrected or possibly there is something else going on (like atypical). What does atypical mean? I've heard that word used alot in the group. . Angel Caitlen 8/29/97 Arica 8/22/01 Kai 12/31/02 ----Original Message Follows---- Reply-To: nosurgery4clubfoot To: nosurgery4clubfoot Subject: Re: Tennis shoes on the DBB Date: Sun, 15 May 2005 18:20:07 -0700 (PDT) Naomi powellbugs@...> wrote: So sorry to hear that you are having such a hard time with the Markells. They most certainly can be a bear to get the hang of, and if you don't get the hang of them quickly, it opens up a whole new set of troubles... I've tried EVERYTHING that there possibly was/is to do. They just will not fit him. Its like trying to put a square peg in a round hole, it just ain't gonna fit. I'm not sure I understand your situation correctly. Are you saying that your son was out of casts for 2 weeks before going into the FAB/DBB??? Nope, currently my son has been out of casts and DBB for 2weeks now. The lapse between getting out of his final cast and receiving the DBB was 5 days. He received his DBB on Wednesday. All day Wednesday I tried to get them on him, they would just slide off, no matter how much I tried. I tried all day Thursday as well. I called Thursday before they closed and they got me in on Friday. They made some adjustments thinking that they had solved the problem. They got the shoes and bars on him, all proud that they got them on, yet by the time I got him and got him out of his car seat, his club foot was out (and he slept all the way home, didn't fuss and barely moved), so imagine my surprise when he was out of them. Went back on Monday, Tuesday, and Wednesday for more of the same (useless adjustments). Finally, having had enough I went back to the Doctor who used the Ponseti procedure. My son is going back into casts this coming Friday. If so, it is no wonder that you are having problems. These little feet relapse very, very quickly, especially at first and especially in the youngest children. The Markells will absolutely not work on feet that are not fully corrected. In fact, they will be uncomfortable, they will come off, no one will be happy. That is EXACTLY what is happeneing. Another thing that is a huge red flag here is that you say your son is relapsing, but that you are still putting the shoes on him. Why is he not in a casts to deal with the relapse? That is going to happen this coming Friday. Where are you located and who is treating your son? I am located in Grand Rapid, MI. Dr. Hotchkiss, MD is treating my son. He is located at Michigan Ave. The Markells and the FAB do not do any of the work of correcting the foot, they are more like a retainer (as when you have braces, once the teeth are straight, you wear a retainer) and essential in preventing a relapse. You must have the foot corrected before you try the FAB again. I think a few people have used various other shoes mounted on the bar, mainly before Markell started making the tiniest sizes. My son, now nearly 2, has been asking to wear his Teva sandals to bed instead of the Markells--certainly look more comfortable to me. I've never heard of the Teva sandals before, what are those? I'll send you a copy of the tips 'n' tricks in another email. Thanks. I need some advice. If my son is going back into casts this coming Friday, and I do NOT want to use the Markell shoes again (I'm afraid of more useless trips to the orthotist) and would like to order the sandals, however they take 2 weeks to get...so NOW I'm afraid my son will relapse again when he gets out of his casts while waiting for the s to arrive. Should I order the impression kit before he's out of his cast? Not too sure how to go about all of this. Just want what is best for my little boy. Jen -Jen K. --------------------------------- Yahoo! Mail Mobile Take Yahoo! Mail with you! Check email on your mobile phone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2005 Report Share Posted May 16, 2005 Angel Gray m_kitaki@...> wrote: An atypical clubfoot is just that - it is different from a " normal " clubfoot. It reacts differently to casting because it is actually different on the inside. Here is a link for my website with pics and description. it is not complete and some of the information is out of date, but it gives you a good idea of what atypical clubfoot is! Thank you Angel. http://adifferentfoot.freeservers.com Angel Caitlen 8/29/97 Arica 8/22/01 Kai 12/31/02 ----Original Message Follows---- Reply-To: nosurgery4clubfoot To: nosurgery4clubfoot Subject: Re: Tennis shoes on the DBB Date: Mon, 16 May 2005 09:04:00 -0700 (PDT) Angel Gray m_kitaki@...> wrote: There is absolutely no reason for your son to be out of casts waiting for the FAB. That is what I thought too! More than one child here has had " holding " casts while waiting for a brace. Just because the foot it corrected doesnt mean it should be free if there is no brace for it to go into immediately. Also, you mention that the Markell's just don't fit ... how do you mean?? I mean, is his foot shaped different than a " normal " foot? It certainly is shaped different than a normal foot. It is turning in. A corrected clubfoot should look JUST LIKE a normal foot. If it doesn't then it is either not corrected or possibly there is something else going on (like atypical). What does atypical mean? I've heard that word used alot in the group. . Angel Caitlen 8/29/97 Arica 8/22/01 Kai 12/31/02 ----Original Message Follows---- Reply-To: nosurgery4clubfoot To: nosurgery4clubfoot Subject: Re: Tennis shoes on the DBB Date: Sun, 15 May 2005 18:20:07 -0700 (PDT) Naomi powellbugs@...> wrote: So sorry to hear that you are having such a hard time with the Markells. They most certainly can be a bear to get the hang of, and if you don't get the hang of them quickly, it opens up a whole new set of troubles... I've tried EVERYTHING that there possibly was/is to do. They just will not fit him. Its like trying to put a square peg in a round hole, it just ain't gonna fit. I'm not sure I understand your situation correctly. Are you saying that your son was out of casts for 2 weeks before going into the FAB/DBB??? Nope, currently my son has been out of casts and DBB for 2weeks now. The lapse between getting out of his final cast and receiving the DBB was 5 days. He received his DBB on Wednesday. All day Wednesday I tried to get them on him, they would just slide off, no matter how much I tried. I tried all day Thursday as well. I called Thursday before they closed and they got me in on Friday. They made some adjustments thinking that they had solved the problem. They got the shoes and bars on him, all proud that they got them on, yet by the time I got him and got him out of his car seat, his club foot was out (and he slept all the way home, didn't fuss and barely moved), so imagine my surprise when he was out of them. Went back on Monday, Tuesday, and Wednesday for more of the same (useless adjustments). Finally, having had enough I went back to the Doctor who used the Ponseti procedure. My son is going back into casts this coming Friday. If so, it is no wonder that you are having problems. These little feet relapse very, very quickly, especially at first and especially in the youngest children. The Markells will absolutely not work on feet that are not fully corrected. In fact, they will be uncomfortable, they will come off, no one will be happy. That is EXACTLY what is happeneing. Another thing that is a huge red flag here is that you say your son is relapsing, but that you are still putting the shoes on him. Why is he not in a casts to deal with the relapse? That is going to happen this coming Friday. Where are you located and who is treating your son? I am located in Grand Rapid, MI. Dr. Hotchkiss, MD is treating my son. He is located at Michigan Ave. The Markells and the FAB do not do any of the work of correcting the foot, they are more like a retainer (as when you have braces, once the teeth are straight, you wear a retainer) and essential in preventing a relapse. You must have the foot corrected before you try the FAB again. I think a few people have used various other shoes mounted on the bar, mainly before Markell started making the tiniest sizes. My son, now nearly 2, has been asking to wear his Teva sandals to bed instead of the Markells--certainly look more comfortable to me. I've never heard of the Teva sandals before, what are those? I'll send you a copy of the tips 'n' tricks in another email. Thanks. I need some advice. If my son is going back into casts this coming Friday, and I do NOT want to use the Markell shoes again (I'm afraid of more useless trips to the orthotist) and would like to order the sandals, however they take 2 weeks to get...so NOW I'm afraid my son will relapse again when he gets out of his casts while waiting for the s to arrive. Should I order the impression kit before he's out of his cast? Not too sure how to go about all of this. Just want what is best for my little boy. Jen -Jen K. --------------------------------- Yahoo! Mail Mobile Take Yahoo! Mail with you! Check email on your mobile phone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2005 Report Share Posted May 16, 2005 jagrindon@...> wrote: , I couldn't agree more with all that Kori is saying here. We went through the same things with my son and the Markell shoes, he kept the shoes on but got terrible sores from them. I was lucky enough to have the option of a plastic boot type shoe (similar to an AFO designed by our Dr., Dobbs in St. Louis) attached to the FAB which we used for about 8 weeks. I might have to check those out when we get back to the DBB/FAB point again. By that time my son's foot had grown a little and was a little more solid; I tried the Markell shoes again and haven't looked back since. We use them now (it's been about 4 months) without ANY problems. About the tennis shoes on the bar, as Kori was saying, I think that most kids would be able to slip their foot right out of a tennis shoe due to the lack of the strap holding the foot down. Yeah, I bet you're right. Its hard enough to keep their heels down in these special little shoes. Anyway, just wanted to reiterate what has already been said, that we are here to support you whatever you decide to do, just keep asking for advice, use us for a sounding board or whatever. Just don't give up! Thank you, so much appreciated. Hugs! Jenna (4/7/01) & Sammy (9/25/04, Dobbs Brace, 16-18/7) > >So sorry to hear that you are having such a hard time with the > >Markells. They most certainly can be a bear to get the hang of, and if > >you don't get the hang of them quickly, it opens up a whole new set of > >troubles... > > > >I've tried EVERYTHING that there possibly was/is to do. They just will > >not fit him. Its like trying to put a square peg in a round hole, it just > >ain't gonna fit. > > > > > >I'm not sure I understand your situation correctly. Are you saying that > >your son was out of casts for 2 weeks before going into the FAB/DBB??? > > > >Nope, currently my son has been out of casts and DBB for 2weeks now. The > >lapse between getting out of his final cast and receiving the DBB was 5 > >days. He received his DBB on Wednesday. All day Wednesday I tried to get > >them on him, they would just slide off, no matter how much I tried. I > >tried all day Thursday as well. I called Thursday before they closed and > >they got me in on Friday. They made some adjustments thinking that they > >had solved the problem. They got the shoes and bars on him, all proud > >that they got them on, yet by the time I got him and got him out of his > >car seat, his club foot was out (and he slept all the way home, didn't > >fuss and barely moved), so imagine my surprise when he was out of > >them. Went back on Monday, Tuesday, and Wednesday for more of the same > >(useless adjustments). Finally, having had enough I went back to the > >Doctor who used the Ponseti procedure. My son is going back into casts > >this coming Friday. > > > > If so, it is no wonder that you are having problems. These little feet > > relapse very, very quickly, especially at first and especially in the > > youngest children. The Markells will absolutely not work on feet that > > are not fully corrected. In fact, they will be uncomfortable, they will > > come off, no one will be happy. > > > >That is EXACTLY what is happeneing. > > > > > > > > > > > >Another thing that is a huge red flag here is that you say your son is > >relapsing, but that you are still putting the shoes on him. Why is he not > >in a casts to deal with the relapse? > > > >That is going to happen this coming Friday. > > > > > > > > Where are you located and who is treating your son? > > > >I am located in Grand Rapid, MI. Dr. Hotchkiss, MD is treating my > >son. He is located at Michigan Ave. > > > > The Markells and the FAB do not do any of the work of correcting the > > foot, they are more like a retainer (as when you have braces, once the > > teeth are straight, you wear a retainer) and essential in preventing a > > relapse. You must have the foot corrected before you try the FAB again. > > > >I think a few people have used various other shoes mounted on the bar, > >mainly before Markell started making the tiniest sizes. My son, now > >nearly 2, has been asking to wear his Teva sandals to bed instead of the > >Markells--certainly look more comfortable to me. > > > >I've never heard of the Teva sandals before, what are those? > > > > > > > >I'll send you a copy of the tips 'n' tricks in another email. > > > >Thanks. I need some advice. If my son is going back into casts this > >coming Friday, and I do NOT want to use the Markell shoes again (I'm > >afraid of more useless trips to the orthotist) and would like to order the > > sandals, however they take 2 weeks to get...so NOW I'm afraid my > >son will relapse again when he gets out of his casts while waiting for the > >s to arrive. Should I order the impression kit before he's out of > >his cast? Not too sure how to go about all of this. Just want what is > >best for my little boy. > > > > > > > > > > > >Jen > > > > > > > >-Jen K. > > > > > >--------------------------------- > >Yahoo! Mail Mobile > > Take Yahoo! Mail with you! Check email on your mobile phone. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2005 Report Share Posted May 16, 2005 frogabog frogabog@...> wrote: , After reading all you've written here, it really sounds like the main reason the shoes won't fit him is because he was left without any kind of correction for so long I totally agree. The shoes need to be applied IMMEDIATELY after the last cast, within an hour or two. Not a day, not 2 days, certainly not 5 and absolutely not 8. Wish that I would have been told that by Nick's doctor, or the orthotist!!! They didn't get your son into his shoes and his foot relapsed. A relapsed foot will not stay in the shoes and the Dr. should never have allowed it in the first place. Additionally, the Dr. should be smart enough to see that's the reason he's having the problems. Yeah, I think so too. I think that he initially did a good job with my son, but when I came back to him with all of the troubles I was having with the shoes, he should have been able to see why (that his foot was turning in and that it wasn't the shoes). When he told me, " the foot was ok because he could still " hold " it in correction that brought up a huge red flag to me. " The foot should have been in correction on its own at this point. To ignore this, is beyond ludicracy... it's bordering on malpractice if you ask me. If we parents know this, the docs should too. I don't want to say for 100% sure that it's not the shoes, because perhaps you will find that you son's foot is a little special and may indeed need the P/M shoes. However baring the signs we know that indicate Atypical, he has as good a chance as any CF child of successfully wearing the Markell's with competent hands correcting his feet. Which is sounds like he may not have right now. Or perhaps the hands are competent, but the administration and communication isn't. There is simply no excuse for not having those shoes available for him as soon as his casts come off. No doubt. I wish that they would have had them ready for him. I didn't know any different at this point and thought that this was standard procedure... no one told me any different. The doctor should have, or the orthotist should have...SOMEONE!!! I know this sounds harsh and difficult to believe being that you're there seeing all this first hand and wanting to hurl the shoes off a bridge... But I want you to understand that you have been handed a loosing situation and your son was not given the best of care. There was little or no way you could have changed it. But you can now. Do not let those feet be without casts till whatever shoes you prefer arrive. I consulted with a Ponseti approved doctor this afternoon and within 15 minutes he had my son in a new cast, agreeing that my son was relapsing and should have been in shoes immediatly. He has an onsite orthotist and GET THIS, he is THREE MILES from my home. I am so excited I can barely stand it. Naomi has sent you the tips document, there is information in there which will help you to be able to apply the shoes properly and tools to aid you in knowing if they're staying on properly if you do choose to try them again on nicely corrected feet. Yeah, I printed that puppy out and have it right here on my desk. I would encourage you to consider them once more because they are a good choice for *most* (and most being at least 95%) clubfeet corrected with this method. Knowing how to apply them properly is one of the main factors in making them work properly. And many, many parents, including myself have come to realize we were not doing it right at all and actually caused the problems ourselves - this does not sound like you but it could have been even if everything was done 100% right by the docs. At first I'm sure I wasn't putting them on properly, but after ready the document and going through it step by step, I was certain I was putting them on properly at that point, and those suckers would NOT stay on. You were given no tools to make this work and quite honestly, with the way they handled it even if you had those tools you would likely still be in the same place you are at now. You are not the first, and won't be the last parent who has had this happen but you're in the right place now to get it handled properly and effectively. GOSH, I sure don't want this to happen to anyone else!! It sucks. We are here to help in any way we can. Hang in there! Thank you so much for your support. As for the Ponseti/'s, well 2w may be what it says, but we know that in mad crazy with orders right now and 2w lead time is pretty optimistic right now. WOW!! All these babies being born with clubfeet??HOLY COW! So you have a choice, get babe right into the Markell's with nicely corrected feet immediately after full corrective casting, or keep him in casts till his P/M's arrive. I believe I'll give the Markells another shot with this new doctor, and if they don't work then we'll trouble shoot it from there. You will likely be pleased with the P/M's if you choose them, but they aren't really intentioned for all clubfeet for the entire duration of the treatment and bracing period. Many parents are using them at first because the ARE easier to use, but will switch back to the Markell's once the foot grows and the heel forms better. That makes sense. Larger sizes, past about size 5 aren't even available yet. They are primarily meant for infant feet and Atypical clubfeet, at least at this time. Infant feet are a bit wonky shaped in general which is the root of much of the problem with little feet and the Markells, but nicely corrected clubfeet grow to become very stable like a normal foot within the first year or so. And application of the Markell's is relatively simple with such a foot. I just wanted to let you know that part of the equation to help with your decision making process about what shoes to get. Thank you so much. I would have to say that whatever way you want to go with shoes (as long as it's a FAB) will be the right decision for you. And we are lucky to have the option now for the P/M's, even if insurance coverage is limited at best right now. Insurance sucks, those money thirsty freaks! At this point, I don't care what the cost is, I just want what is best for my little baby. Do your research, consider how you can make sure his feet are properly and fully corrected to be prepared for bracing, and apply them properly. You can't go wrong when you're following your heart and are here for support. If you need help with making the Markell's work, we're here. If you need support with a baby in casts waiting for the P/M's... we're here. If you need help finding a doc for a second opinion, this is the place to find a good one. If you are going to be the one to show the current doc a thing or two with your amazing child... well you couldn't be in a better place! Please let us know how you decide, I decided to get a second opinion, and I'm glad that I did. I feel alot more confident and secure now. Thank you for your care and concern for my child. The fact that you would take the time to educate me ( a complete stranger) with all this information you posess is very nice. Thank you. and if there's anything else we can do to help. Remember, you are not alone in this journey... so many of us have been in your position and lived to tell the story afterwards. With happy footed babies and children running and jumping and carrying on like there's not a thing in the world wrong with their feet. Can't wait for that!! Nick 3-1-05 club foot on left 3-29-01 perfect feet! -Jen K. --------------------------------- Yahoo! Mail Mobile Take Yahoo! Mail with you! Check email on your mobile phone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2005 Report Share Posted May 17, 2005 That is great news !! Shook Retail Operations Manager/Baking Instructor Vie de France Yamazaki, Inc. 2070 Chain Bridge Rd. Suite 500 Vienna, VA 22182 x374 x374 fax Quote Link to comment Share on other sites More sharing options...
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