To Laurie

[Guest guest]

Jean,

don't feel bad about your needing to vent about your situation with

. Her reaction is part of this disease and we are here to help both

sufferers of CP and caregivers and you are trying to be a caregiver to

your daughter, she is just unwilling to be helped right now. I wish

there was something I could say or do that would help your daughter deal

with this illness and be reasonable about how she is dealing with the

kids.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.

[Guest guest]

Hi Louie,

I hope my information will help, but remember, when it comes to

pancreas problems, doctors are very reluctant to go there. They

want to tell you it is anything but the pancreas (IBS is a common

misdiagnosis). But you may be on the right track with the

gallbladder idea and all....., who knows, because like you say,

we are all so different. The important thing is to find a doctor

who will work with you, no matter what it ends up being.

I saw your questions to Mark concerning SOD and HIDA scans.

My HIDA didn't show the SOD - but then, it may have been done

too soon to show it. My understanding is that this test doesnot

rule out SOD because the problem can be so intermittent. It

should though, be able to see a blockage in the biliary tract,

along with a dysfuntional gall bladder. What I have been told,

only ERCP with manometry can absolutely diagnose SOD. You

will have very high pressures in the biliary sphincter or pancreas

sphincter. But even then, it can come back normal, if the patient

is not experiencing spasms at the time of the test. This

diagnosis is relatively hard to establish and is fraught with

controversy in the medical community. Both in the actual

existence of a " functional " disorder and the subjectivity and

imprecision of the diagnostics involved in evaluating the

sphincter.

I wish you and your daughter a lot of luck - the nausea is very

common and I really do not have any suggestions other than to

avoid the foods that seems to make it worse (which is almost

impossible at times). Peppermint tea or capsules help some

people. Chewing gum has helped me. Also avoiding smelling

food. I try not to be around strong food smells during the day. My

thinking is that since she has just been released from the

hospital, that her doctors will be aggressive in finding the cause.

It just may take some time unfortunately.

Laurie

[Guest guest]

Hi Laurie,

I think you can get what you need here. There are many of us who have had RAI

who were not monitored properly until we began to take charge, making sure

that we were on the right type and kind of replacement hormone when we needed

it. Graves' disease also causes a number of nutrient deficiencies that must be

addressed no matter what treatment you had.

There are probably others, like me, who didn't realize that you already had

RAI. We do encourage people to use whatever treatment works best for their

situation. Obviously, you have already done that. Those of us who have RAI have

gone forward. While we encourage everyone to research treatment options

carefully, we also know what concerns can come up. In this respect, we offer

support

and encourage patients to take charge so that their hypothryoidism can be

properly treated. Take care, Elaine

[Guest guest]

Hi Laurie,

I've been away for awhile and wondered if you'd already given the

group a post-surgical update. How are you feeling? (Also, didn't

Barbara have surgery, too? Has anyone heard from her?). I hope you are

recovering well.

Best,

Shayna

[Guest guest]

Shayna

Thanks for asking. I am recovering well. I had an internal stitch pop

and my biggest incision cam unglued, but have fragile skin, so I am

use to such things.

Our newest family issue is that my dad had to have his amputated

today. and I were at the hospital and she probably isn't even

home yet. I sure am glad I have learned to take each day as it comes.

laurie

> Hi Laurie,

> I've been away for awhile and wondered if you'd already given the

> group a post-surgical update. How are you feeling? (Also, didn't

> Barbara have surgery, too? Has anyone heard from her?). I hope you are

> recovering well.

> Best,

> Shayna

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail

> is entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with

> their physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

>

>

>

[Guest guest]

My goodness, Laurie, I'm sorry for the difficulties you and your

father have been/are facing. You do seem to have a great deal of

acceptance and equanimity, though. Best to you, too, , with the

stress of caring for your Dad.

Hugs,

Shayna

> > Hi Laurie,

> > I've been away for awhile and wondered if you'd already given the

> > group a post-surgical update. How are you feeling? (Also, didn't

> > Barbara have surgery, too? Has anyone heard from her?). I hope

you are

> > recovering well.

> > Best,

> > Shayna

> >

> >

> >

> >

> >

> > Medical advice, information, opinions, data and statements

contained herein

> > are not necessarily those of the list moderators. The author of

this e mail

> > is entirely responsible for its content. List members are reminded

of their

> > responsibility to evaluate the content of the postings and consult

with

> > their physicians regarding changes in their own treatment.

> >

> > Personal attacks are not permitted on the list and anyone who

sends one is

> > automatically moderated or removed depending on the severity of

the attack.

> >

> >

> >

> >

> >

> >