Guest guest Posted May 16, 2005 Report Share Posted May 16, 2005 Guys...Girls, Thank you to all who have given me the support I have so desperately needed. I cannot tell you how much it means to me and how MUCH you all have educated me. Like I've posted before, my baby's clubfoot was not caught in utero and when he was born we were very scared and didn't know what to do. Then after treatment, casting, surgery and NO LUCK with the Markells (due to a relapse, lapse in time in receiving the DBB, and possibly not a fully corrected foot)I felt like I was at my wits end. Without all of you posting to me I can honestly say I don't know what I would be doing at this point. Thank God for all of you, Thank God for the internet, and THANK GOD for Dr. Ponseti. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2005 Report Share Posted May 16, 2005 , I'm really thrilled for you and ! Sighs of relief all around... I'm glad Dr got you in so quickly and is even closer to home. That's the kind of treatment everyone should get from the start. (I was telling my husband this morning that when I hear stories like yours, I wish I could fly around the world as some kind of Ponseti vigilante slapping doctors around and hugging babies and their parents...) How many casts is Dr thinking he'll need to get the correction back? That he might need to repeat the tenotomy procedure is not a big surprise since the Achilles tightens back up pretty quickly (that's why the shoes need to be dorsiflexed--pointing the toes towards the head--15 degrees or so on the bar: to keep the Achilles stretched out). It's so great to hear that you are in good hands. Please stick around so that you can share your story and what you have learned through all of this with other parents who join the group. We're glad you found us! Naomi The Family Naomi Hannah(02/21/01) Jonah(06/20/03, bilateral clubfoot, FAB 14/7) jlkittredge jlkittredge@...> wrote: Guys...Girls, Thank you to all who have given me the support I have so desperately needed. I cannot tell you how much it means to me and how MUCH you all have educated me. Like I've posted before, my baby's clubfoot was not caught in utero and when he was born we were very scared and didn't know what to do. Then after treatment, casting, surgery and NO LUCK with the Markells (due to a relapse, lapse in time in receiving the DBB, and possibly not a fully corrected foot)I felt like I was at my wits end. Without all of you posting to me I can honestly say I don't know what I would be doing at this point. Thank God for all of you, Thank God for the internet, and THANK GOD for Dr. Ponseti. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2005 Report Share Posted May 17, 2005 Naomi powellbugs@...> wrote: , I'm really thrilled for you and ! Sighs of relief all around... Yeah, no doubt. I'm feeling much happier...just because I know the issues we were having are going to be taken care of in a timely matter. Even though we're pretty much back where we started, I feel this Doc has more time to spend with my son, also he's Ponseti trained, uses the Ponseti brace, etc.. I'm glad Dr got you in so quickly and is even closer to home. That's the kind of treatment everyone should get from the start. I feel SO BLESSED that this doctor is close to our home. It means the WORLD to me. With my first son we had to make trips every other week to Chicago for 8 LONG MONTHS for my son's plagiocephaly (flattening of the skull). It was horrible. (I was telling my husband this morning that when I hear stories like yours, I wish I could fly around the world as some kind of Ponseti vigilante slapping doctors around and hugging babies and their parents...) You sure helped me, so thank you for the big hug, and words of encouragement. How many casts is Dr thinking he'll need to get the correction back? He's not totally sure at this point. He did say possibly only two before performing another (possible) tenotamy. Then of course he'd be in the cast for 3 weeks after that. As soon as he's out of the cast, the shoes and bar are waiting right there for us, and he has an in-house orthotist. He told me he uses the Ponseti shoe....anyone know how this differs from the Markell? That he might need to repeat the tenotomy procedure is not a big surprise since the Achilles tightens back up pretty quickly (that's why the shoes need to be dorsiflexed--pointing the toes towards the head--15 degrees or so on the bar: to keep the Achilles stretched out). When he dorsiflexed my son, he said that there was no dorsiflextion...maybe negative 10 degrees! I was shocked!!!! Because when I went to Dr. Hotchkiss, I told him that I felt his heel was so tight...he told me to perform stretches on him, thinking this would solve the problem. And maybe it would have, I'm no doctor, but I didn't feel very good about his answer. Also of note, Dr. said that my son's cavus (spelling?) was not ever corrected properly, or had relapsed completely. It's so great to hear that you are in good hands. Please stick around so that you can share your story and what you have learned through all of this with other parents who join the group. I'd be GLAD to share my story with other parents, especially if it will help them. I'm half scared to put all my faith in anyone at this point, because I thought my son would be well taken care of where he was before...but I'm trying to trust in God and that everything happens for a reason. We're glad you found us! I'll let you know what goes on in the mean time. Dr. took photos of the " starting point " and of Nick's cast so that we have something to compare to when we're finished. Naomi The Family Naomi Hannah(02/21/01) Jonah(06/20/03, bilateral clubfoot, FAB 14/7) jlkittredge jlkittredge@...> wrote: Guys...Girls, Thank you to all who have given me the support I have so desperately needed. I cannot tell you how much it means to me and how MUCH you all have educated me. Like I've posted before, my baby's clubfoot was not caught in utero and when he was born we were very scared and didn't know what to do. Then after treatment, casting, surgery and NO LUCK with the Markells (due to a relapse, lapse in time in receiving the DBB, and possibly not a fully corrected foot)I felt like I was at my wits end. Without all of you posting to me I can honestly say I don't know what I would be doing at this point. Thank God for all of you, Thank God for the internet, and THANK GOD for Dr. Ponseti. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2005 Report Share Posted May 17, 2005 Do you go to Dr. ? Kittredge jlkittredge@...> wrote: Naomi powellbugs@...> wrote: , I'm really thrilled for you and ! Sighs of relief all around... Yeah, no doubt. I'm feeling much happier...just because I know the issues we were having are going to be taken care of in a timely matter. Even though we're pretty much back where we started, I feel this Doc has more time to spend with my son, also he's Ponseti trained, uses the Ponseti brace, etc.. I'm glad Dr got you in so quickly and is even closer to home. That's the kind of treatment everyone should get from the start. I feel SO BLESSED that this doctor is close to our home. It means the WORLD to me. With my first son we had to make trips every other week to Chicago for 8 LONG MONTHS for my son's plagiocephaly (flattening of the skull). It was horrible. (I was telling my husband this morning that when I hear stories like yours, I wish I could fly around the world as some kind of Ponseti vigilante slapping doctors around and hugging babies and their parents...) You sure helped me, so thank you for the big hug, and words of encouragement. How many casts is Dr thinking he'll need to get the correction back? He's not totally sure at this point. He did say possibly only two before performing another (possible) tenotamy. Then of course he'd be in the cast for 3 weeks after that. As soon as he's out of the cast, the shoes and bar are waiting right there for us, and he has an in-house orthotist. He told me he uses the Ponseti shoe....anyone know how this differs from the Markell? That he might need to repeat the tenotomy procedure is not a big surprise since the Achilles tightens back up pretty quickly (that's why the shoes need to be dorsiflexed--pointing the toes towards the head--15 degrees or so on the bar: to keep the Achilles stretched out). When he dorsiflexed my son, he said that there was no dorsiflextion...maybe negative 10 degrees! I was shocked!!!! Because when I went to Dr. Hotchkiss, I told him that I felt his heel was so tight...he told me to perform stretches on him, thinking this would solve the problem. And maybe it would have, I'm no doctor, but I didn't feel very good about his answer. Also of note, Dr. said that my son's cavus (spelling?) was not ever corrected properly, or had relapsed completely. It's so great to hear that you are in good hands. Please stick around so that you can share your story and what you have learned through all of this with other parents who join the group. I'd be GLAD to share my story with other parents, especially if it will help them. I'm half scared to put all my faith in anyone at this point, because I thought my son would be well taken care of where he was before...but I'm trying to trust in God and that everything happens for a reason. We're glad you found us! I'll let you know what goes on in the mean time. Dr. took photos of the " starting point " and of Nick's cast so that we have something to compare to when we're finished. Naomi The Family Naomi Hannah(02/21/01) Jonah(06/20/03, bilateral clubfoot, FAB 14/7) jlkittredge jlkittredge@...> wrote: Guys...Girls, Thank you to all who have given me the support I have so desperately needed. I cannot tell you how much it means to me and how MUCH you all have educated me. Like I've posted before, my baby's clubfoot was not caught in utero and when he was born we were very scared and didn't know what to do. Then after treatment, casting, surgery and NO LUCK with the Markells (due to a relapse, lapse in time in receiving the DBB, and possibly not a fully corrected foot)I felt like I was at my wits end. Without all of you posting to me I can honestly say I don't know what I would be doing at this point. Thank God for all of you, Thank God for the internet, and THANK GOD for Dr. Ponseti. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2005 Report Share Posted May 18, 2005 reid jones jones_reid@...> wrote: Do you go to Dr. ? We do now...as of Monday. Kittredge jlkittredge@...> wrote: Naomi powellbugs@...> wrote: , I'm really thrilled for you and ! Sighs of relief all around... Yeah, no doubt. I'm feeling much happier...just because I know the issues we were having are going to be taken care of in a timely matter. Even though we're pretty much back where we started, I feel this Doc has more time to spend with my son, also he's Ponseti trained, uses the Ponseti brace, etc.. I'm glad Dr got you in so quickly and is even closer to home. That's the kind of treatment everyone should get from the start. I feel SO BLESSED that this doctor is close to our home. It means the WORLD to me. With my first son we had to make trips every other week to Chicago for 8 LONG MONTHS for my son's plagiocephaly (flattening of the skull). It was horrible. (I was telling my husband this morning that when I hear stories like yours, I wish I could fly around the world as some kind of Ponseti vigilante slapping doctors around and hugging babies and their parents...) You sure helped me, so thank you for the big hug, and words of encouragement. How many casts is Dr thinking he'll need to get the correction back? He's not totally sure at this point. He did say possibly only two before performing another (possible) tenotamy. Then of course he'd be in the cast for 3 weeks after that. As soon as he's out of the cast, the shoes and bar are waiting right there for us, and he has an in-house orthotist. He told me he uses the Ponseti shoe....anyone know how this differs from the Markell? That he might need to repeat the tenotomy procedure is not a big surprise since the Achilles tightens back up pretty quickly (that's why the shoes need to be dorsiflexed--pointing the toes towards the head--15 degrees or so on the bar: to keep the Achilles stretched out). When he dorsiflexed my son, he said that there was no dorsiflextion...maybe negative 10 degrees! I was shocked!!!! Because when I went to Dr. Hotchkiss, I told him that I felt his heel was so tight...he told me to perform stretches on him, thinking this would solve the problem. And maybe it would have, I'm no doctor, but I didn't feel very good about his answer. Also of note, Dr. said that my son's cavus (spelling?) was not ever corrected properly, or had relapsed completely. It's so great to hear that you are in good hands. Please stick around so that you can share your story and what you have learned through all of this with other parents who join the group. I'd be GLAD to share my story with other parents, especially if it will help them. I'm half scared to put all my faith in anyone at this point, because I thought my son would be well taken care of where he was before...but I'm trying to trust in God and that everything happens for a reason. We're glad you found us! I'll let you know what goes on in the mean time. Dr. took photos of the " starting point " and of Nick's cast so that we have something to compare to when we're finished. Naomi The Family Naomi Hannah(02/21/01) Jonah(06/20/03, bilateral clubfoot, FAB 14/7) jlkittredge jlkittredge@...> wrote: Guys...Girls, Thank you to all who have given me the support I have so desperately needed. I cannot tell you how much it means to me and how MUCH you all have educated me. Like I've posted before, my baby's clubfoot was not caught in utero and when he was born we were very scared and didn't know what to do. Then after treatment, casting, surgery and NO LUCK with the Markells (due to a relapse, lapse in time in receiving the DBB, and possibly not a fully corrected foot)I felt like I was at my wits end. Without all of you posting to me I can honestly say I don't know what I would be doing at this point. Thank God for all of you, Thank God for the internet, and THANK GOD for Dr. Ponseti. . Quote Link to comment Share on other sites More sharing options...
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