Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 Hi , Sorry to hear that you have all over body pain. I can totally relate to that. I have always had all over body pain, long before I was diagnosed with Mitochondrial disease. I live in Pennsylvania. I was wondering who diagnosed you with Mito? Who is your Mito doctor? Is your Mito doctor prescribing your pain medication or do you see a Pain Management Doctor? Like Laurie said she takes Lamictal(an anticonvulsant) for her myoclonus but it also helps control her pain. I for one used Lamictal too for myoclonus, but it didn't help control any of my pain. I would say that if the Oxycontin is helping to control your pain than by all means stick with it. But if you are having break-thru pain ask your doctor about putting you on something else. There is a wide selection of pain medication out there that is helpful. No one should have to go through life in pain. Sorry you have Mito but I am glad you found this great group. We are a great group of people who share our experiences and are here to answer questions, and help in any way we can. There are a lot of knowledgeable people on this list. So if you have anymore questions, just ask!! Hugs, Ann-Marie Cich wrote: hello I was tested two years ago for Mito Myopathy. I am 29yo man from Buffalo NY and I am on Oxycontin 40 mg 3 x a day for the pain. is anyone on pain killers for to treat the pain? I have pain all over my body and there is not alot to treat it with it so far spread of the body. Quote Link to comment Share on other sites More sharing options...
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