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Re: Wanting to say hello

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Hi Adrienne,

I'm in Atlanta with my daughters ( 16 and lies 20). You can

identify us by the presence of service dogs. Malisa is hoping to attend with

her husband, Dave. V is here (we're sharing a room).

Hi guys,

Wow, it has been a what, 6 months since I've posted here I think. I

decided with the conference nearing, I'd just touch base with you

guys. I didnt think I would be going, but we decided to go few wks

ago. Was wondering who else was going. I know I keep up with some of

you sometimes on the MDA chat or through caringbridge, etc but

thought I'd let yall know I have not forgotten bout this lovely

group. I hope you all are doing fine. I myself am doing ok- I've

stayed out of the hospital for the longest time in awhile and am very

happy about that. I have had some improvements with some symptoms but

then some progression with others and new symptoms to add. I won't

write all about it here- I'm exausted and this is one reason I don't

post here or answer people's posts now, because I just can't keep up

enough and I have problems with reading and thinkin due to multiple

symptoms and you know how the rest can be. I do hope to try and

answer a few posts now and then, i feel like I disappeared totally

and I dont wanna do that. Anyways, prayers go out to you all, always

thinkin bout you guys and looking forward to seeing old faces and

meeting new ones in a few days.

take care,

adrienne

age 26 (27 next wk, goodness!) MELAS phenotype-complex I, III and

IV www.caringbridge.org/va/adriennei

Joanne Kocourek (mom to , lies, and )

visit us at: http://www.caringbridge.org/il/annakris

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Adrienne

It is great to hear from you and know you have not been in the hospital lately.

I'm glad you are going to the conference. I won't be there this time

and wish I could get to see you again. Say hi to those you do see.

laurie

>

>

>

>

>

>

> Hi guys,

> Wow, it has been a what, 6 months since I've posted here I think. I

> decided with the conference nearing, I'd just touch base with you

> guys. I didnt think I would be going, but we decided to go few wks

> ago. Was wondering who else was going. I know I keep up with some of

> you sometimes on the MDA chat or through caringbridge, etc but

> thought I'd let yall know I have not forgotten bout this lovely

> group. I hope you all are doing fine. I myself am doing ok- I've

> stayed out of the hospital for the longest time in awhile and am very

> happy about that. I have had some improvements with some symptoms but

> then some progression with others and new symptoms to add. I won't

> write all about it here- I'm exausted and this is one reason I don't

> post here or answer people's posts now, because I just can't keep up

> enough and I have problems with reading and thinkin due to multiple

> symptoms and you know how the rest can be. I do hope to try and

> answer a few posts now and then, i feel like I disappeared totally

> and I dont wanna do that. Anyways, prayers go out to you all, always

> thinkin bout you guys and looking forward to seeing old faces and

> meeting new ones in a few days.

> take care,

> adrienne

> age 26 (27 next wk, goodness!) MELAS phenotype-complex I, III and

> IV www.caringbridge.org/va/adriennei

>

>

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Hi all,

I will be flying to Atlanta tomorrow afternoon. See you there. Shelby

> Hi Adrienne,

>

> I'm in Atlanta with my daughters ( 16 and lies 20). You

> can identify us by the presence of service dogs. Malisa is hoping to

> attend with her husband, Dave. V is here (we're sharing a room).

>

> Hi guys,

> Wow, it has been a what, 6 months since I've posted here I think. I

> decided with the conference nearing, I'd just touch base with you

> guys. I didnt think I would be going, but we decided to go few wks

> ago. Was wondering who else was going. I know I keep up with some of

> you sometimes on the MDA chat or through caringbridge, etc but

> thought I'd let yall know I have not forgotten bout this lovely

> group. I hope you all are doing fine. I myself am doing ok- I've

> stayed out of the hospital for the longest time in awhile and am very

> happy about that. I have had some improvements with some symptoms but

> then some progression with others and new symptoms to add. I won't

> write all about it here- I'm exausted and this is one reason I don't

> post here or answer people's posts now, because I just can't keep up

> enough and I have problems with reading and thinkin due to multiple

> symptoms and you know how the rest can be. I do hope to try and

> answer a few posts now and then, i feel like I disappeared totally

> and I dont wanna do that. Anyways, prayers go out to you all, always

> thinkin bout you guys and looking forward to seeing old faces and

> meeting new ones in a few days.

> take care,

> adrienne

> age 26 (27 next wk, goodness!) MELAS phenotype-complex I, III and

> IV www.caringbridge.org/va/adriennei

>

> Joanne Kocourek (mom to , lies, and )

> visit us at: http://www.caringbridge.org/il/annakris

>

>

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