Mito Conference

[Guest guest]

,

Every couple of years the Mitochondrial Medical professionals hold a Symposium

in order to educate and update the Medical community on Mitochondrial diseases

and research and treatments.

Due to Chuck Cohan's founding of the UMDF United Mitochondrial Foundation

Patients and families have been invited to come to these conferences. Learn

what the Dr.'s learn (In more laymen's terms) Network with other patients and

families and talk face to face with the International Dr.s who are on the front

line of this disorder.

I have attended twice. It is an invaluable source of information and

understanding. We formed the Mitoldies Just prior to the Second conference in

2000. At that time the Conference was geared toward parents with children

afflicted. Since then we as Adults have made great strides in getting the

medical attention we need as well.

For information, transcripts and tapes go to the website www.umdf.org and

click on the links for the Symposium or Conference. Lots of good stuff there.

I have gone back and forth with is it Mito or Thyroid? or Diabetes? or MS? or

Lymes disease. Only to keep comming back around to the bottom line..... faulty

Mitochondrial causing ALL of my symptoms!.

Good luck with you journey. We are all here because we want answers and we

NEED to help each other!

hugs,

Elle

scoretex scoretex@...> wrote:

My internet service was down the last few days and today it's on again.

I'm in a small town and the local internet company I use needs more hardware I

think.

Today was hard to take physically and mentaly, even the glass of wine didn't

help, that's hard to take.

What was the conference?

Some how, I hope Laurie and others who attended the conference were able to

get our message of needing our own Docs accross?

Life should NOT be a journey to the grave with the intention of arriving

safely in an attractive and well preserved body, but rather to skid in sideways,

chocolate in one hand, wine in the other, body thoroughly used up, totally worn

out and screaming WOO HOOEY! WHAT A RIDE! (author unkown)