Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 Hi Dan, and welcome Seems to me you ought to convince your doctor to test you for TSH, Free T4, Free T3 initially. You can also get TSI antibody test (this one takes a week, and costs a bit more, but finding out if you have Graves Antibodies is important). Your symptoms (except, in my experience, the gynecomastia which I had to look up, so it's not something anyone here has mentioned before) certainly sound consistent with GD. Do post your lab results when you get them, and we'll happily help you interpret them. Note, also that many doctors still order Total T4, Total T3, FTI and T3 uptake tests--these are out of date tests that don't do anything but waste your money. So, be sure you get the lab slip for the ones I listed above. Terry > > Reply-To: graves_support > Date: Sat, 30 Aug 2003 00:35:59 -0000 > To: graves_support > Subject: Muscle weakness > > Hi Everybody, > > This is my first post, so thank you in advance for any help you can > give me. I am 28, male, and I was diagnosed with a mild form of > muscular dystrophy about 15 years ago. Since it was a 'best guess' > diagnosis, I have recently come to my senses and decided to find out > definitively what is wrong with me. That's when I came across info > about Graves. > > Does anyone know the severity of muscle weakness in those who show > signs of this symptom? Has anyone ever been misdiagnosed with MD? I > also show some other male Graves symptoms such as premature hair > thinning, minor gynecomastia, often restless legs and very fine > tremors in my hand. In addition, I have always had a faster than > normal pulse and blood pressure. > > Any info would be great.... > > Thank you! > > Dan > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > ------------------------------------------------------------------------------ > -------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2003 Report Share Posted August 30, 2003 > Hi Everybody, > > This is my first post, so thank you in advance for any help you can > give me. I am 28, male, and I was diagnosed with a mild form of > muscular dystrophy about 15 years ago. Since it was a 'best guess' > diagnosis, I have recently come to my senses and decided to find out > definitively what is wrong with me. That's when I came across info > about Graves. > > Does anyone know the severity of muscle weakness in those who show > signs of this symptom? Has anyone ever been misdiagnosed with MD? I > also show some other male Graves symptoms such as premature hair > thinning, minor gynecomastia, often restless legs and very fine > tremors in my hand. In addition, I have always had a faster than > normal pulse and blood pressure. > > Any info would be great.... > > Thank you! > > Dan Hi Dan The syptoms you display are similar to those of my husband. I don't know your location but we are in the UK and we have found that doctors here know very little about Graves. We were given very little information and had to find out a lot for ourselves. It's very frustrating being misdiagnosed as you feel you have been. You didn't mention in your mail any eye symptons as people with Graves have quite distintive 'bulging' eyes which can be painful. My husband suffers terribly with his eyes, he describes it as 'pressure' as if something is pushing his eyes out. I hope you discover the true diagnosis and I wish you the very best of health for the future. Jemima Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2003 Report Share Posted August 31, 2003 Hi Dan. I can comment on 2 of your symptoms: often restless legs Do you have any pain with the restless legs? People with restless leg syndrome often have painful cramps. You can find out more info about RLS and periodic limb movement disorder on www.rls.org and www.rlshelp.org. I joined an rls support group and found it a bit depressing. The people there have such severe problems that basically they spend much of the time comparing tranquilizers and painkillers. And, based on the few weeks I've been there, they seem to be intelligent and well-informed. I hope this isn't the only route for rls. Rls does seem to be linked to deficiencies in iron, transferrin, and ferritin so do be checked for that. Interestingly there also seems to be some connection between RLS and hypOthyroidism and very fine > tremors in my hand. In addition, I have always had a faster than > normal pulse and blood pressure. Not unusual for Graves. Are you on any medication for MD? Find out if that means beta-blockers are contraindicated. Do get the recommended tests and share the results (as well as the lab's ranges) with us and don't rush into permanent treatment once you get a definite diagnosis. Insist on anti-thyroid drugs, along with beta blockers or calcium-channel blockers, at the very least to give you a few months to research. Chances are, you will decide this is the best route for you treatment-wise. Take care, Fay ________________________________________________________________ The best thing to hit the internet in years - Juno SpeedBand! Surf the web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2003 Report Share Posted August 31, 2003 Hi and all, I changed the subject heading in my response, which made this hard to find, so I thought I'd repost it. - In graves_support , " sindydolljemima " wrote: Hi Dan The syptoms you display are similar to those of my husband. I don't know your location but we are in the UK and we have found that doctors here know very little about Graves. We were given very little information and had to find out a lot for ourselves. It's very frustrating being misdiagnosed as you feel you have been. You didn't mention in your mail any eye symptons as people with Graves have quite distintive 'bulging' eyes which can be painful. My husband suffers terribly with his eyes, he describes it as 'pressure' as if something is pushing his eyes out. I hope you discover the true diagnosis and I wish you the very best of health for the future. Jemima --- End forwarded message --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2003 Report Share Posted September 1, 2003 Hi everyone... I have started feeling the muscle weakness and joint pain...especially in my knees and arms. When I lay down to sleep i feel the pain in my lower back and am gettin constant charlie horses in the tops of my feet and shins... I have went to my GP and he has put me on an antiinflammatory called Vioxx.... I read here about the chiropractic treatments seem to help...I wonder if I should attempt a couple sessions and see what it does for me?....Or just rely on the Vioxx? Allie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2003 Report Share Posted September 1, 2003 I can get restless legs also, don't get cramps, but do find that with regular chiropractor adjustments, I am fine. Occasionally late in the evening my legs and hips get restless, I realize that my body is saying " go to bed " . When I lay down and sleep, I am fine. Jen M Re: Muscle weakness > Hi Dan. I can comment on 2 of your symptoms: > > often restless legs > > Do you have any pain with the restless legs? People with restless leg > syndrome often have painful cramps. You can find out more info about RLS > and periodic limb movement disorder on www.rls.org and www.rlshelp.org. I > joined an rls support group and found it a bit depressing. The people > there have such severe problems that basically they spend much of the > time comparing tranquilizers and painkillers. And, based on the few weeks > I've been there, they seem to be intelligent and well-informed. I hope > this isn't the only route for rls. Rls does seem to be linked to > deficiencies in iron, transferrin, and ferritin so do be checked for > that. Interestingly there also seems to be some connection between RLS > and hypOthyroidism > > and very fine > > tremors in my hand. In addition, I have always had a faster than > > normal pulse and blood pressure. > > Not unusual for Graves. Are you on any medication for MD? Find out if > that means beta-blockers are contraindicated. Do get the recommended > tests and share the results (as well as the lab's ranges) with us and > don't rush into permanent treatment once you get a definite diagnosis. > Insist on anti-thyroid drugs, along with beta blockers or calcium-channel > blockers, at the very least to give you a few months to research. Chances > are, you will decide this is the best route for you treatment-wise. > > Take care, Fay > > > ________________________________________________________________ > The best thing to hit the internet in years - Juno SpeedBand! > Surf the web up to FIVE TIMES FASTER! > Only $14.95/ month - visit www.juno.com to sign up today! > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2003 Report Share Posted September 1, 2003 I would always try a method that did not require more pills, especially pain pills. I got charlie horses when I was more hypo, the leg and arm weakness when I was hyper. Chiropractic really helps me, but once again, finding a good chiropractor is just as hard as finding a good endo. Jen M Re: Muscle weakness > Hi everyone... > I have started feeling the muscle weakness and joint pain...especially in my > knees and arms. When I lay down to sleep i feel the pain in my lower back and > am gettin constant charlie horses in the tops of my feet and shins... > I have went to my GP and he has put me on an antiinflammatory called > Vioxx.... > I read here about the chiropractic treatments seem to help...I wonder if I > should attempt a couple sessions and see what it does for me?....Or just rely on > the Vioxx? > Allie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 I do not pop up much just to say hello I am a reader and suffer the same as many as others a couple of years ago I had an op for a twisted bowel the muscles holding the bowel becamevery weak and caused the bowel to twist I have been told this May happen again I am a melas deaf dibeties and one of those that can not tolerate Q10 Gaye v Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 I too am a deaf/diabetic melas how about your thyroid? Is there anything they can do pro actively to prevent it happening again? Vivian Quote Link to comment Share on other sites More sharing options...
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