Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 Hi Randall, One way to see if a certain type of CoQ10 is working for you is to have your doctor to do a CoQ10 blood test on you after you have been on the CoQ10 for awhile. But you would have to have the CoQ10 blood test done prior to starting the CoQ10 for a baseline. If your levels increase than I would say that the brand you are on is working for you, if your levels don't increase than I would suggest that you try a different brand of CoQ10. I know of a few people who have Mito and are on CoQ10 they need massive amounts and still their CoQ10 plasma levels haven't increased as much as their doctors wanted to see. I don't care for the powdered capsules of CoQ10. I don't think they are absorbed as well. But each person has to go with what is right and what works for them. Some people also have GI problems and can't tolerate certain brands. Good Luck and I hope you are able to make your decision soon as to what brand you want to try. Ann-Marie Randall wrote: Some of the studies Epic sent me make it seem as if CoQ10 (other than Tishcon's Q-Gel) barely raises the plasma levels (at least at the dosages used, like 120 mg) and by inference, the tissue levels of CoQ10. I would think the researchers who have used CoQ10 would have some sense of issues like this, since it would be pretty important for any clinical studies. Randall Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Does anyone know which blood test will check for CoQ10 levels? My Dr says there isn't one? Thanks, Elle peetie peetie@...> wrote: Hi Randall, One way to see if a certain type of CoQ10 is working for you is to have your doctor to do a CoQ10 blood test on you after you have been on the CoQ10 for awhile. But you would have to have the CoQ10 blood test done prior to starting the CoQ10 for a baseline. If your levels increase than I would say that the brand you are on is working for you, if your levels don't increase than I would suggest that you try a different brand of CoQ10. I know of a few people who have Mito and are on CoQ10 they need massive amounts and still their CoQ10 plasma levels haven't increased as much as their doctors wanted to see. I don't care for the powdered capsules of CoQ10. I don't think they are absorbed as well. But each person has to go with what is right and what works for them. Some people also have GI problems and can't tolerate certain brands. Good Luck and I hope you are able to make your decision soon as to what brand you want to try. Ann-Marie Randall wrote: Some of the studies Epic sent me make it seem as if CoQ10 (other than Tishcon's Q-Gel) barely raises the plasma levels (at least at the dosages used, like 120 mg) and by inference, the tissue levels of CoQ10. I would think the researchers who have used CoQ10 would have some sense of issues like this, since it would be pretty important for any clinical studies. Randall Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 It is a blood test that specifically looks for coq10. If you have it done it must be frozen immediately if it is going to be sent to lab other than the place you are having it drawn or the test will not be accurate. Re: CoQ10/Plasma levels, etc... Does anyone know which blood test will check for CoQ10 levels? My Dr says there isn't one? Thanks, Elle peetie peetie@...> wrote: Hi Randall, One way to see if a certain type of CoQ10 is working for you is to have your doctor to do a CoQ10 blood test on you after you have been on the CoQ10 for awhile. But you would have to have the CoQ10 blood test done prior to starting the CoQ10 for a baseline. If your levels increase than I would say that the brand you are on is working for you, if your levels don't increase than I would suggest that you try a different brand of CoQ10. I know of a few people who have Mito and are on CoQ10 they need massive amounts and still their CoQ10 plasma levels haven't increased as much as their doctors wanted to see. I don't care for the powdered capsules of CoQ10. I don't think they are absorbed as well. But each person has to go with what is right and what works for them. Some people also have GI problems and can't tolerate certain brands. Good Luck and I hope you are able to make your decision soon as to what brand you want to try. Ann-Marie Randall wrote: Some of the studies Epic sent me make it seem as if CoQ10 (other than Tishcon's Q-Gel) barely raises the plasma levels (at least at the dosages used, like 120 mg) and by inference, the tissue levels of CoQ10. I would think the researchers who have used CoQ10 would have some sense of issues like this, since it would be pretty important for any clinical studies. Randall Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Researchers have been using CoQ10 in various studies - for Mito and other conditions. I'm thinking it would be nice to at least know what type of CoQ10 - if not the specific brand - they are using in the studies and perhaps their reasoning for doing so. I doubt they just decide randomly, though maybe it has to do with companies offering free CoQ10 or reduced prices for the studies. Randall Re: CoQ10/Plasma levels, etc... Does anyone know which blood test will check for CoQ10 levels? My Dr says there isn't one? Thanks, Elle peetie peetie@...> wrote: Hi Randall, One way to see if a certain type of CoQ10 is working for you is to have your doctor to do a CoQ10 blood test on you after you have been on the CoQ10 for awhile. But you would have to have the CoQ10 blood test done prior to starting the CoQ10 for a baseline. If your levels increase than I would say that the brand you are on is working for you, if your levels don't increase than I would suggest that you try a different brand of CoQ10. I know of a few people who have Mito and are on CoQ10 they need massive amounts and still their CoQ10 plasma levels haven't increased as much as their doctors wanted to see. I don't care for the powdered capsules of CoQ10. I don't think they are absorbed as well. But each person has to go with what is right and what works for them. Some people also have GI problems and can't tolerate certain brands. Good Luck and I hope you are able to make your decision soon as to what brand you want to try. Ann-Marie Randall wrote: Some of the studies Epic sent me make it seem as if CoQ10 (other than Tishcon's Q-Gel) barely raises the plasma levels (at least at the dosages used, like 120 mg) and by inference, the tissue levels of CoQ10. I would think the researchers who have used CoQ10 would have some sense of issues like this, since it would be pretty important for any clinical studies. Randall Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Thank you. Is there any way you can get the code for me? It sounds like this is the one they did at Cleveland clinic that they had to put in a bucket of ice right then and there. I thought it had more to do with testing for mito? Elle buddy325@... wrote: It is a blood test that specifically looks for coq10. If you have it done it must be frozen immediately if it is going to be sent to lab other than the place you are having it drawn or the test will not be accurate. Re: CoQ10/Plasma levels, etc... Does anyone know which blood test will check for CoQ10 levels? My Dr says there isn't one? Thanks, Elle peetie peetie@...> wrote: Hi Randall, One way to see if a certain type of CoQ10 is working for you is to have your doctor to do a CoQ10 blood test on you after you have been on the CoQ10 for awhile. But you would have to have the CoQ10 blood test done prior to starting the CoQ10 for a baseline. If your levels increase than I would say that the brand you are on is working for you, if your levels don't increase than I would suggest that you try a different brand of CoQ10. I know of a few people who have Mito and are on CoQ10 they need massive amounts and still their CoQ10 plasma levels haven't increased as much as their doctors wanted to see. I don't care for the powdered capsules of CoQ10. I don't think they are absorbed as well. But each person has to go with what is right and what works for them. Some people also have GI problems and can't tolerate certain brands. Good Luck and I hope you are able to make your decision soon as to what brand you want to try. Ann-Marie Randall wrote: Some of the studies Epic sent me make it seem as if CoQ10 (other than Tishcon's Q-Gel) barely raises the plasma levels (at least at the dosages used, like 120 mg) and by inference, the tissue levels of CoQ10. I would think the researchers who have used CoQ10 would have some sense of issues like this, since it would be pretty important for any clinical studies. Randall Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 It does not have to do with mito testing. Unfortunately I do not have a code, my Dr. wrote a script for me to have it done. However they did not handle it properly and the test had to be performed a second time. It is just a standard blood draw that can be taken anywhere all you need is a script from your Dr. to have it drawn. I was told some mito patients have low levels of q10 and some do not. Having low levels of q10 however can cause some of the symptoms mito presents, and with q10 therapy most symptoms are alleviated for those people. But just having low q10 levels does not mean you have mito. Mike From: Elleen To: Sent: Monday, June 26, 2006 3:03 PM Subject: Re: CoQ10/Plasma levels, etc... Thank you. Is there any way you can get the code for me? It sounds like this is the one they did at Cleveland clinic that they had to put in a bucket of ice right then and there. I thought it had more to do with testing for mito? Elle buddy325@... wrote: It is a blood test that specifically looks for coq10. If you have it done it must be frozen immediately if it is going to be sent to lab other than the place you are having it drawn or the test will not be accurate. Re: CoQ10/Plasma levels, etc... Does anyone know which blood test will check for CoQ10 levels? My Dr says there isn't one? Thanks, Elle peetie peetie@...> wrote: Hi Randall, One way to see if a certain type of CoQ10 is working for you is to have your doctor to do a CoQ10 blood test on you after you have been on the CoQ10 for awhile. But you would have to have the CoQ10 blood test done prior to starting the CoQ10 for a baseline. If your levels increase than I would say that the brand you are on is working for you, if your levels don't increase than I would suggest that you try a different brand of CoQ10. I know of a few people who have Mito and are on CoQ10 they need massive amounts and still their CoQ10 plasma levels haven't increased as much as their doctors wanted to see. I don't care for the powdered capsules of CoQ10. I don't think they are absorbed as well. But each person has to go with what is right and what works for them. Some people also have GI problems and can't tolerate certain brands. Good Luck and I hope you are able to make your decision soon as to what brand you want to try. Ann-Marie Randall wrote: Some of the studies Epic sent me make it seem as if CoQ10 (other than Tishcon's Q-Gel) barely raises the plasma levels (at least at the dosages used, like 120 mg) and by inference, the tissue levels of CoQ10. I would think the researchers who have used CoQ10 would have some sense of issues like this, since it would be pretty important for any clinical studies. Randall Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 I know one study that MDA did was done with a national vitamin health food brand because of just that reason. They got the CoQ10 from the company free. $ unfortunately is the driving force with most studies. Randall Bosin wrote: > Researchers have been using CoQ10 in various studies - for Mito and > other conditions. I'm thinking it would be nice to at least know what > type of CoQ10 - if not the specific brand - they are using in the > studies and perhaps their reasoning for doing so. I doubt they just > decide randomly, though maybe it has to do with companies offering > free CoQ10 or reduced prices for the studies. > > Randall > > Re: CoQ10/Plasma levels, etc... > > Does anyone know which blood test will check for CoQ10 levels? My Dr > says there isn't one? > > Thanks, > Elle > > peetie peetie@... > wrote: > Hi Randall, > > One way to see if a certain type of CoQ10 is working for you is to > have your doctor to do a CoQ10 blood test on you after you have been > on the CoQ10 for awhile. But you would have to have the CoQ10 blood > test done prior to starting the CoQ10 for a baseline. > > If your levels increase than I would say that the brand you are on is > working for you, if your levels don't increase than I would suggest > that you try a different brand of CoQ10. > > I know of a few people who have Mito and are on CoQ10 they need > massive amounts and still their CoQ10 plasma levels haven't increased > as much as their doctors wanted to see. > > I don't care for the powdered capsules of CoQ10. I don't think they > are absorbed as well. But each person has to go with what is right and > what works for them. Some people also have GI problems and can't > tolerate certain brands. > > Good Luck and I hope you are able to make your decision soon as to > what brand you want to try. > > Ann-Marie > > Randall wrote: > > Some of the studies Epic sent me make it seem as if CoQ10 (other than > Tishcon's Q-Gel) barely raises the plasma levels (at least at the > dosages used, like 120 mg) and by inference, the tissue levels of > CoQ10. I would think the researchers who have used CoQ10 would have > some sense of issues like this, since it would be pretty important for > any clinical studies. > > Randall > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Here is information on one lab that does them. I had mine done by a lab in Atlanta back in 1997 I believe it was. http://epic4health.stores.yahoo.net/howtogetlabt.html Elleen wrote: > Does anyone know which blood test will check for CoQ10 levels? My Dr > says there isn't one? > > Thanks, > Elle > > peetie peetie@... > wrote: > Hi Randall, > > One way to see if a certain type of CoQ10 is working for you is to > have your doctor to do a CoQ10 blood test on you after you have been > on the CoQ10 for awhile. But you would have to have the CoQ10 blood > test done prior to starting the CoQ10 for a baseline. > > If your levels increase than I would say that the brand you are on is > working for you, if your levels don't increase than I would suggest > that you try a different brand of CoQ10. > > I know of a few people who have Mito and are on CoQ10 they need > massive amounts and still their CoQ10 plasma levels haven't increased > as much as their doctors wanted to see. > > I don't care for the powdered capsules of CoQ10. I don't think they > are absorbed as well. But each person has to go with what is right and > what works for them. Some people also have GI problems and can't > tolerate certain brands. > > Good Luck and I hope you are able to make your decision soon as to > what brand you want to try. > > Ann-Marie > > Randall wrote: > > Some of the studies Epic sent me make it seem as if CoQ10 (other than > Tishcon's Q-Gel) barely raises the plasma levels (at least at the > dosages used, like 120 mg) and by inference, the tissue levels of > CoQ10. I would think the researchers who have used CoQ10 would have > some sense of issues like this, since it would be pretty important for > any clinical studies. > > Randall > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Mike I believe the blood can be drawn most places, but it has to be sent to one of the labs that test for it. Mine was sent through a series of 3 labs (normal pattern), but can't remember where it ended up. laurie > > > > > > > It does not have to do with mito testing. Unfortunately I do not have a > code, my Dr. wrote a script for me to have it done. However they did not > handle it properly and the test had to be performed a second time. It is > just a standard blood draw that can be taken anywhere all you need is a > script from your Dr. to have it drawn. I was told some mito patients have > low levels of q10 and some do not. Having low levels of q10 however can > cause some of the symptoms mito presents, and with q10 therapy most symptoms > are alleviated for those people. But just having low q10 levels does not > mean you have mito. > > Mike > > > From: Elleen > To: > Sent: Monday, June 26, 2006 3:03 PM > > Subject: Re: CoQ10/Plasma levels, etc... > > Thank you. > > Is there any way you can get the code for me? It sounds like this is the > one they did at Cleveland clinic that they had to put in a bucket of ice > right then and there. I thought it had more to do with testing for mito? > > Elle > > buddy325@... wrote: > It is a blood test that specifically looks for coq10. If you have it done > it must be frozen immediately if it is going to be sent to lab other than > the place you are having it drawn or the test will not be accurate. > Re: CoQ10/Plasma levels, etc... > > Does anyone know which blood test will check for CoQ10 levels? My Dr says > there isn't one? > > Thanks, > Elle > > peetie peetie@...> wrote: > Hi Randall, > > One way to see if a certain type of CoQ10 is working for you is to have > your doctor to do a CoQ10 blood test on you after you have been on the CoQ10 > for awhile. But you would have to have the CoQ10 blood test done prior to > starting the CoQ10 for a baseline. > > If your levels increase than I would say that the brand you are on is > working for you, if your levels don't increase than I would suggest that you > try a different brand of CoQ10. > > I know of a few people who have Mito and are on CoQ10 they need massive > amounts and still their CoQ10 plasma levels haven't increased as much as > their doctors wanted to see. > > I don't care for the powdered capsules of CoQ10. I don't think they are > absorbed as well. But each person has to go with what is right and what > works for them. Some people also have GI problems and can't tolerate certain > brands. > > Good Luck and I hope you are able to make your decision soon as to what > brand you want to try. > > Ann-Marie > > Randall wrote: > > Some of the studies Epic sent me make it seem as if CoQ10 (other than > Tishcon's Q-Gel) barely raises the plasma levels (at least at the dosages > used, like 120 mg) and by inference, the tissue levels of CoQ10. I would > think the researchers who have used CoQ10 would have some sense of issues > like this, since it would be pretty important for any clinical studies. > > Randall > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 There is a blood test for CoQ10. Dr. Kelley just ordered one for . He also requested a lipoprotein/cholesterol to be done at the same time for reference. will have her blood drawn on Wednesday and it has to be sent out to a lab. Shelby > Does anyone know which blood test will check for CoQ10 levels? My Dr > says there isn't one? > > Thanks, > Elle > > peetie peetie@...> wrote: > Hi Randall, > > One way to see if a certain type of CoQ10 is working for you is to > have your doctor to do a CoQ10 blood test on you after you have been > on the CoQ10 for awhile. But you would have to have the CoQ10 blood > test done prior to starting the CoQ10 for a baseline. > > If your levels increase than I would say that the brand you are on is > working for you, if your levels don't increase than I would suggest > that you try a different brand of CoQ10. > > I know of a few people who have Mito and are on CoQ10 they need > massive amounts and still their CoQ10 plasma levels haven't increased > as much as their doctors wanted to see. > > I don't care for the powdered capsules of CoQ10. I don't think they > are absorbed as well. But each person has to go with what is right and > what works for them. Some people also have GI problems and can't > tolerate certain brands. > > Good Luck and I hope you are able to make your decision soon as to > what brand you want to try. > > Ann-Marie > > Randall wrote: > > Some of the studies Epic sent me make it seem as if CoQ10 (other than > Tishcon's Q-Gel) barely raises the plasma levels (at least at the > dosages used, like 120 mg) and by inference, the tissue levels of > CoQ10. I would think the researchers who have used CoQ10 would have > some sense of issues like this, since it would be pretty important for > any clinical studies. > > Randall > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 I could not find the code but your doc can just write a script for CoQ10 levels. This is a send away test. It can only be done in a couple of places in the US. Some other mito tests also need to be kept on ice (?pyruvate). Mom to the two best kids in the world! http://www.caringbridge.org/visit/thomasandkatie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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