Any suggestions about muscle pull?

June 26, 2006

I don't know if Mito = vallium intolerance. As with any and all new supplements

and prescriptions.... Be aware of any adverse reactions.

For me, Valium and all of its derivitives are VERY bad for me. But I'm one of

those who if it says only 1 in a million will react... I will be that 1!

Hence I claim to be " 1 in a Million! " :-) There are others who share the Mito

Cytopathy possible MIDS who seem to share the response.

hugs,

Elle

adamm4321 AdamM321@...> wrote:

Well, I called my primary care and he suggested valium and resting for

a couple of days. Not moving at all is more like it. [g] That was my

next question..is it ok for mito to take valium? I haven't taken it

before. I thought it was addictive or something like that?

Thanks for your input.. :-)

>

> we really have to be careful about stretching and so forth. I know

I have

> problems with foot and toe cramps if I stretch and the

" charelyhorse " can do on

> for hours and hours. I have keterolac (10mg) in my cabinet and

valium 5mg in

> my cabinet for seizures and cramps.

> Hope this resolves quickly for you! Vivian

>

June 27, 2006

Hi, I read your e mail and I would like you to hear

this. At first I thought I pulled a muscle also. It

happened just like yours. I awoke and went to yawn and

I had moved my arms, and muscle cramp, charlie horse

happened. Mine too got worse. Didn't go away right

away. For a full day and a half it occured when ever I

went to move, across the back etc. Well went to doc

and he said he didn't think it was a pulled muscle, he

found high lactic acid and some other things a little

out of whack. We worked on bringing my lactic acid

down and increased my baclofen and it went away right

away. If I don't stay on my increased baclofen it

occurs again. So I would not assume it may be a pulled

muscle, just in case. Hope this helps or may point you

in a direction too.

--- adamm4321 AdamM321@...> wrote:

> Hello :-)

>

> I pulled a muscle today and would like to ask

> whether there is

> something I should be doing/not doing, to speed up

> healing. I was

> amazed that I am having a real problem with it. I

> was sitting up in

> bed and just yawned and raised my arms over my head

> to stretch a

> little and afterward I thought I was having a cramp

> in that muscle in

> my back around the rib cage going down into my waist

> and that it would

> be fine in a few minutes. But it got worse and

> after a half hour, I

> was in pain with any movement. Now I can barely get

> comfortable or

> move around without pain.

>

> I thought I remembered someone telling me not to use

> too much ice or

> for too long, when you have mito muscles. I am not

> looking forward to

> sleeping tonight. I have to change positions a lot

> while I am

> sleeping and I can only imagine how that is going to

> go. I may have

> to go to my primary care doc tomorrow, but what is

> he going to be able

> to do? He is not experienced with mito.

>

> Is this just a case of doing what any other person

> would do for a

> pulled muscle or not?

>

> Thanks very much

> :-)

>

__________________________________________________

June 30, 2006

Hi :-)

Thanks for responding to my post. I knew there had to be someone here

having similar problems. :-) I did try the valium and it certainly

helped the first two nights, to get to sleep. I didn't use it during

the day and haven't had to use it since. So my back is improving,

thankfully. I hope it continues..

thanks :-)

>

> we really have to be careful about stretching and so forth. I know

I have

> problems with foot and toe cramps if I stretch and the

" charelyhorse " can do on

> for hours and hours. I have keterolac (10mg) in my cabinet and

valium 5mg in

> my cabinet for seizures and cramps.

> Hope this resolves quickly for you! Vivian

>

June 30, 2006

Adam

Baclofen is a muscle relaxant that is specific for skeletal muscles. I

couldn't live without it. It reduces the cramping in most cases and

those I have are more mild. I have to take it all the time and it took

several months to get the dosage right for me.

I'm glad your back is improving.

laurie

>

> Hi Irene..

>

> Thanks for sharing your experience on that. I will have to see about

> that. I haven't had any abnormal test results for lactic acid in the

> past, but if my back continues, I will have to be sure to get tested

> again. Right now, it is improving some and I am moving easier. I did

> call my mito doc just to review the directions the primary doc had

> given me and the nurse practitioner just told me to follow primary

> doc's recommendations.

>

> So what is baclofen? Are there any foods or supplements you can

> increase to take care of lactic acid build up? How much of an

> increase of lactic acid is too much?

>

> Thanks Irene, and so glad your problem resolved and you know what

> caused it.

>

> :-)

>

> -- In , Irene Sussmann wrote:

> >

> > Hi, I read your e mail and I would like you to hear

> > this. At first I thought I pulled a muscle also. It

> > happened just like yours. I awoke and went to yawn and

> > I had moved my arms, and muscle cramp, charlie horse

> > happened. Mine too got worse. Didn't go away right

> > away. For a full day and a half it occured when ever I

> > went to move, across the back etc. Well went to doc

> > and he said he didn't think it was a pulled muscle, he

> > found high lactic acid and some other things a little

> > out of whack. We worked on bringing my lactic acid

> > down and increased my baclofen and it went away right

> > away. If I don't stay on my increased baclofen it

> > occurs again. So I would not assume it may be a pulled

> > muscle, just in case. Hope this helps or may point you

> > in a direction too.

> >

> > --- adamm4321 wrote:

> >

> > > Hello :-)

> > >

> > > I pulled a muscle today and would like to ask

> > > whether there is

> > > something I should be doing/not doing, to speed up

> > > healing. I was

> > > amazed that I am having a real problem with it. I

> > > was sitting up in

> > > bed and just yawned and raised my arms over my head

> > > to stretch a

> > > little and afterward I thought I was having a cramp

> > > in that muscle in

> > > my back around the rib cage going down into my waist

> > > and that it would

> > > be fine in a few minutes. But it got worse and

> > > after a half hour, I

> > > was in pain with any movement. Now I can barely get

> > > comfortable or

> > > move around without pain.

> > >

> > > I thought I remembered someone telling me not to use

> > > too much ice or

> > > for too long, when you have mito muscles. I am not

> > > looking forward to

> > > sleeping tonight. I have to change positions a lot

> > > while I am

> > > sleeping and I can only imagine how that is going to

> > > go. I may have

> > > to go to my primary care doc tomorrow, but what is

> > > he going to be able

> > > to do? He is not experienced with mito.

> > >

> > > Is this just a case of doing what any other person

> > > would do for a

> > > pulled muscle or not?

> > >

> > > Thanks very much

> > > :-)

> > >

> >

> > __________________________________________________

> >

July 3, 2006

Adam

Cramping is very, very common in mito.

My lactic acid has only been documented as high on the one occasion

when I had the exercise test, but also isn't usually checked. My

cramping can certainly be made worse when magnesium is low (my

kidney's spill tons of it). I have a standing order for a magnesium

draw whenever I think I need it. It was my primary doc who wrote the

order. She is on staff at the hospital, so thought it would be best to

have her order it. I asked her to do it. Cramps can be caused my an

imbalance of potassium, calcium and magnesium. They can also be caused

by short circuits with the nerves - that is thought to be the cause of

mine when my electrolytes are in balance. I have had cramps since I

was a teen. It was my first symptom. My son has had them since he was

an infant (at least since he was able to point to the spot that hurt).

He was on quinine at an early age and I was still up almost everynight

rubbing his legs or arms.

laurie

>

> Hi Laurie,

>

> Sorry, I thought I had responded to your post already. Glad I checked

> back and noticed I didn't see my response..lol. Thanks for your

> explanation of what baclofen is. Does that mean muscle cramping is a

> common symptom for mito? How long did you have it before you realized

> it was related to lactic acid levels and started taking meds for it?

> I have often had what I would call 'tight' muscles, but hadn't really

> picked up on whether I was actually having muscle cramps. I am going

> to have to pay attention. My back actually seems to get better and

> then be right back again, so I am wondering if that is more the

> problem. I wonder, can you have the muscle cramping without having

> elevated lactic acid levels? Is there anything else that is connected

> to the cramping? I thought I read somewhere that low magnesium can

> also be a reason for 'tight muscles'.

>

> If you are in between appointments and something needs checking, like

> lactic acid levels, do you just ask your primary doctor to do a blood

> check?

>

> >

> > Adam

> >

> > Baclofen is a muscle relaxant that is specific for skeletal muscles. I

> > couldn't live without it. It reduces the cramping in most cases and

> > those I have are more mild. I have to take it all the time and it took

> > several months to get the dosage right for me.

> >

> > I'm glad your back is improving.

> >

> > laurie

> >

>

July 3, 2006

It could also be an abdominal migraine.

ABDOMINAL MIGRAINE

Abdominal migraine is one of the variants of migraine headache. It is

also known by other terms including " periodic syndrome. " This variant

most typically occurs in children. They usually have a family history

of migraine and go on to develop typical migraine later in their life.

The attacks are characterized by periodic bouts of abdominal pain

lasting for about two hours. Along with the abdominal pain they may have

other symptoms such as nausea and vomiting, flushing or pallor. Tests

fail to reveal a cause for the pain. Occasionally there may be EEG

findings suggestive of epilepsy but this is rarely related to seizures.

Medications that are useful for treating migraine work to control these

attacks in most children.

Okerlund wrote:

> So when my daughter complains of a pain in her stomach could this be a

> cramp? she complains of naueshea (spelling) headache, fatigue, a pain

> in her stomach and occational muscle pains.

>

> Laurie Fitzgerald laurie.fitzgerald@...

> > wrote: Adam

>

> Cramping is very, very common in mito.

>

> My lactic acid has only been documented as high on the one occasion

> when I had the exercise test, but also isn't usually checked. My

> cramping can certainly be made worse when magnesium is low (my

> kidney's spill tons of it). I have a standing order for a magnesium

> draw whenever I think I need it. It was my primary doc who wrote the

> order. She is on staff at the hospital, so thought it would be best to

> have her order it. I asked her to do it. Cramps can be caused my an

> imbalance of potassium, calcium and magnesium. They can also be caused

> by short circuits with the nerves - that is thought to be the cause of

> mine when my electrolytes are in balance. I have had cramps since I

> was a teen. It was my first symptom. My son has had them since he was

> an infant (at least since he was able to point to the spot that hurt).

> He was on quinine at an early age and I was still up almost everynight

> rubbing his legs or arms.

>

> laurie

>

> On 7/1/06, adamm4321 AdamM321@...

> > wrote:

> >

> > Hi Laurie,

> >

> > Sorry, I thought I had responded to your post already. Glad I checked

> > back and noticed I didn't see my response..lol. Thanks for your

> > explanation of what baclofen is. Does that mean muscle cramping is a

> > common symptom for mito? How long did you have it before you realized

> > it was related to lactic acid levels and started taking meds for it?

> > I have often had what I would call 'tight' muscles, but hadn't really

> > picked up on whether I was actually having muscle cramps. I am going

> > to have to pay attention. My back actually seems to get better and

> > then be right back again, so I am wondering if that is more the

> > problem. I wonder, can you have the muscle cramping without having

> > elevated lactic acid levels? Is there anything else that is connected

> > to the cramping? I thought I read somewhere that low magnesium can

> > also be a reason for 'tight muscles'.

> >

> > If you are in between appointments and something needs checking, like

> > lactic acid levels, do you just ask your primary doctor to do a blood

> > check?

> >

> > >

> > > Adam

> > >

> > > Baclofen is a muscle relaxant that is specific for skeletal muscles. I

> > > couldn't live without it. It reduces the cramping in most cases and

> > > those I have are more mild. I have to take it all the time and it took

> > > several months to get the dosage right for me.

> > >

> > > I'm glad your back is improving.

> > >

> > > laurie

> > >

> >

>

July 4, 2006

She has not complained of comstipation, I'll have to ask her that. We are

currently waiting on a insurance aith to take her to U of M for mito testing

since I have it.

peetie peetie@...> wrote:

,

The pain in your daughters stomach could also be dysmotility. Is she

constipated? I know that when I am constipated I get the same symptoms your