Guest guest Posted August 1, 2000 Report Share Posted August 1, 2000 In a message dated 8/1/00 3:18:20 PM Eastern Daylight Time, MiniGastricBypass (AT) egroups (DOT) com writes: > I just got a call from Prudential! I am approved 100% in network for > Dr. Rutledge!!!!!!!!!!!!!!!!! Yeah, MEM!! Way to go! Safe journey, MGB 03 MAY 00 Safely on the other side!!!! Dr. Rutledge clos.net Self-funded company plan administered by Interactive Medical Denied on appeal as an excluded benefit Self Pay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2000 Report Share Posted August 1, 2000 Hello, I have a question, i got my letter from Dr.R for the insurance company. My question is this: there is no BMI listed for me or my height, did your letters come like that also, and could i add it to the letter? Is that the way all insurance letters are like? HELP Joyce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2000 Report Share Posted August 1, 2000 Thank you Stormy, I do that, again thanks. Joyce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2000 Report Share Posted August 1, 2000 In a message dated 8/1/2000 8:21:22 PM Eastern Daylight Time, Jjtoan@... writes: > > Hello, > I have a question, i got my letter from Dr.R for the insurance company. > My question is this: there is no BMI listed for me or my height, did your > letters come like that also, and could i add it to the letter? Is that the > way > all insurance letters are like? HELP > Joyce Why would you add it? The letter Dr. R sends you is a copy of what he faxed to Insurance right? I thought the copy he sends to us is just for our records...am I wrong?? Holly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2000 Report Share Posted August 1, 2000 Hello Holly, I don't know, do i send this letter or has it already been sent by Dr.R? I'm just getting started, i hope i'm doing it right. i'll call the office tomorrow to be sure. Joyce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2000 Report Share Posted August 1, 2000 Hi. I had a simular problem last week. My letter was outdated so I called Debbie and she said that she could put my current weight and height in manually. When she faxed me the updated copy, the BMI was wrong, so I called her to inquire. She told me that it should have updated manually when she changed the other information and that something was wrong. She changed it again, and re-faxed it. I would suggest that you call her and ask her if she can change it. Your insurance will never approve you without that information! Stormy > Hello, > I have a question, i got my letter from Dr.R for the insurance company. > My question is this: there is no BMI listed for me or my height, did your > letters come like that also, and could i add it to the letter? Is that the way > all insurance letters are like? HELP > Joyce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2000 Report Share Posted August 1, 2000 The copy we get is just for our records, it shows us what they faxed to the insurance co. Then you will recieve a copy in the mail in a few days. Glad you asked things can get a little confusing sometimes. Marjory > In a message dated 8/1/2000 8:21:22 PM Eastern Daylight Time, Jjtoan@a... > writes: > > > > > Hello, > > I have a question, i got my letter from Dr.R for the insurance company. > > My question is this: there is no BMI listed for me or my height, did your > > letters come like that also, and could i add it to the letter? Is that the > > way > > all insurance letters are like? HELP > > Joyce > Why would you add it? The letter Dr. R sends you is a copy of what he faxed > to Insurance right? I thought the copy he sends to us is just for our > records...am I wrong?? > Holly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2000 Report Share Posted August 2, 2000 Hello again, The insurance comp. I have, I was unable to give them a fax number. Thats why I thought I had to mail it in myself. Will call, just to make sure. Joyce Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 Sometimes I feel like my mind is just going to bits. I was always excellent at remembering things, and now I can't remember conversations I have had with people. I keep asking my docotor if it is all the neurontin making it worse, and she says no. Has anyone noticed memory loss associated with neurontin? I have also gained weight since I started taking it. Anybody else notice the same? Sometimes it takes me several minutes to find the words I am looking for. I can recall memories from a long time ago, but I can't remember what happened yesterday. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 I have word finding problems and have for several years, but don't take Neurontin. My word findings is worse if I am tired or stressed. Have you noticed this? laurie > > > > > > > Sometimes I feel like my mind is just going to bits. I was always > excellent at remembering things, and now I can't remember > conversations I have had with people. I keep asking my docotor if it > is all the neurontin making it worse, and she says no. Has anyone > noticed memory loss associated with neurontin? I have also gained > weight since I started taking it. Anybody else notice the same? > Sometimes it takes me several minutes to find the words I am looking > for. I can recall memories from a long time ago, but I can't remember > what happened yesterday. > > Thanks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2006 Report Share Posted June 28, 2006 I guess it is not a wonder drug. I too was having problems with memory,still am, still getting worse, plus sometimes I say something that is no where near what I really wanted to say, and as I am listening to what I said, I say to myself, I can't believe I said that. Well these things are all getting worse.I too took neurontin, I didn't like the effects, didn't help me either and I stopped the pill by weaning off. It's not my age, I am young yet. Doc's say it is mito related. --- Laurie Fitzgerald laurie.fitzgerald@...> wrote: > > > I have word finding problems and have for several > years, but don't > take Neurontin. My word findings is worse if I am > tired or stressed. > Have you noticed this? > > laurie > > > > > > > > > > > > > > > > Sometimes I feel like my mind is just going to > bits. I was always > > excellent at remembering things, and now I can't > remember > > conversations I have had with people. I keep > asking my docotor if it > > is all the neurontin making it worse, and she > says no. Has anyone > > noticed memory loss associated with neurontin? I > have also gained > > weight since I started taking it. Anybody else > notice the same? > > Sometimes it takes me several minutes to find the > words I am looking > > for. I can recall memories from a long time ago, > but I can't remember > > what happened yesterday. > > > > Thanks > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2006 Report Share Posted June 28, 2006 Even if I am a little tired everything is worse. I have spent the last couple days unable to eat, and of course that makes it worse. I used to have an incredible memory, never had spelling problems, and I couldn't remember how to spell 40 on one of my checks. Heck, I had to double check spelling the word memory. I am forgetting conversations I have with people. I am able to remember things from a long time ago, but forgetting thing that happen throughout the day. Last year June I finished 12 law classes, and now I look at the books and it is like looking at a foreign language. Those classes I scored all 98-100% for every class. It is getting really frustrating and embarassing. I will stammer over what the thing is in my bedroom that holds the clothes. I have tried to tell my doctor how difficult it is getting with work, and she asked me if I considered changeing jobs.. Jeez, I was a controller of a software company, and have a cake job now- sort of- that at least gives me the flexibility of going to all the doctors appointments, leaving work when I am too sick to work... I just really don't know what to do. I just turned 31, and things are just getting more and more difficult. On my honeymoon my husband had to help me get dressed in the morning, sometimes I have to have him wash my hair for me etc., and it is like the docotrs can't even grasp the concept of what these problems are like to the person dealing with it. I talked to my doctor for 2 hours on Friday night, and all she could tell me is that what they are doing is all that they can do. I am doing their little cocktail, taking neurontin, lyrica, glucophage, and I can't remember what else. I could rattle on forever, and I just want someone to tell me what is happening. No one seems to be able to tell me other than we believe that what you are dealing with is several mitochondrial disorders. They got a positive on mitchondrial myopathy and now want to do some sort of DNA thing that can cause my mom's side of the family to have issues with getting insurance... So, what do I do? Have you had these tests? Have the had a negative impact on your family? The few relatives I have that are still alive are very young, and I don't want my problem to cause them issues with getting insurance. I am sorry for the rant, but I don't have anyone else to talk to, and it is starting to get scary. The pain and all the other fun stuff is bad enough, but now my mind. I have blamed everything I can for my memory, and I am worried about what my doctor is saying. Thanks, -- In , " Laurie Fitzgerald " wrote: > > > > I have word finding problems and have for several years, but don't > take Neurontin. My word findings is worse if I am tired or stressed. > Have you noticed this? > > laurie > > > > > > > > > > > > > > > > Sometimes I feel like my mind is just going to bits. I was always > > excellent at remembering things, and now I can't remember > > conversations I have had with people. I keep asking my docotor if it > > is all the neurontin making it worse, and she says no. Has anyone > > noticed memory loss associated with neurontin? I have also gained > > weight since I started taking it. Anybody else notice the same? > > Sometimes it takes me several minutes to find the words I am looking > > for. I can recall memories from a long time ago, but I can't remember > > what happened yesterday. > > > > Thanks > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2006 Report Share Posted June 28, 2006 Dear - I¹m pretty new to this (being able to call what¹s wrong with me by a name), and my mito is different than yours, so I can¹t offer much advice in that area. I¹m in the middle of diagnosis, too. Now, thirteen years after my first symptoms, I have the beginnings of a solid diagnosis, after years of dealing with people who had absolutely no idea what was going on with me, and had no idea or care that there was anyone who did. Early this year I found the Center for Mitochondrial Medicine (Mitomed) at UC Irvine (thanks to Joanne on this list) It has made a huge difference to talk to folks who know something, and are willing to be upfront about what they don¹t. Where are you located? I¹ve been really impressed with Mitomed. At this point in time, the program is primarily research, which means they pay for a lot of the testing, and you can have complete anonymity if you choose. Let me know if you want contact info- you call them and they can take you from anywhere in the country- they¹ll tell you how to send them samples, lab write ups, etc. They have been very sensitive to my fears for the impact on my kids and my mother¹s family. For me at least, I don¹t think anybody can tell me what to expect, exactly. The expressions of mitochondrial disease seem to be so varied that predicting outcomes for a lot of us seems very difficult. Everything about this stuff is frontier medicine-they are literally learning as they go. I empathize with your worries for your family: I¹ve lived in a black fear that I¹d given mito to my kids for the last 8 months. It looks like that didn¹t happen, and I feel like a rocket just missed me by a hair. It¹s weird-so far the only parts of this disease that I¹ve cried about is my fear of not being able to ski or backpack anymore and that my kids look to be safe. Just thinking about either makes me totally lose it, to the great consternation of my husband and family. I don¹t participate a whole lot on this list, but I¹m unceasingly amazed by how kind and generous everyone who posts is. They share information, hope, and encouragement with extraordinary responsiveness. I hope you can find comfort here from talking to people who get it, and may have figured some ways of getting around it. peace to you, Kathleen > > Even if I am a little tired everything is worse. I have spent the last > couple days unable to eat, and of course that makes it worse. I used > to have an incredible memory, never had spelling problems, and I > couldn't remember how to spell 40 on one of my checks. Heck, I had to > double check spelling the word memory. I am forgetting conversations I > have with people. I am able to remember things from a long time ago, > but forgetting thing that happen throughout the day. Last year June I > finished 12 law classes, and now I look at the books and it is like > looking at a foreign language. Those classes I scored all 98-100% for > every class. It is getting really frustrating and embarassing. I will > stammer over what the thing is in my bedroom that holds the clothes. I > have tried to tell my doctor how difficult it is getting with work, > and she asked me if I considered changeing jobs.. Jeez, I was a > controller of a software company, and have a cake job now- sort of- > that at least gives me the flexibility of going to all the doctors > appointments, leaving work when I am too sick to work... I just really > don't know what to do. I just turned 31, and things are just getting > more and more difficult. On my honeymoon my husband had to help me get > dressed in the morning, sometimes I have to have him wash my hair for > me etc., and it is like the docotrs can't even grasp the concept of > what these problems are like to the person dealing with it. I talked > to my doctor for 2 hours on Friday night, and all she could tell me is > that what they are doing is all that they can do. I am doing their > little cocktail, taking neurontin, lyrica, glucophage, and I can't > remember what else. I could rattle on forever, and I just want someone > to tell me what is happening. No one seems to be able to tell me other > than we believe that what you are dealing with is several > mitochondrial disorders. They got a positive on mitchondrial myopathy > and now want to do some sort of DNA thing that can cause my mom's side > of the family to have issues with getting insurance... So, what do I > do? Have you had these tests? Have the had a negative impact on your > family? The few relatives I have that are still alive are very young, > and I don't want my problem to cause them issues with getting insurance. > > I am sorry for the rant, but I don't have anyone else to talk to, and > it is starting to get scary. The pain and all the other fun stuff is > bad enough, but now my mind. I have blamed everything I can for my > memory, and I am worried about what my doctor is saying. > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2006 Report Share Posted June 28, 2006 Hi , I can totally relate to what you are saying. I too have short term memory problems. I can remember things for years and years ago, but can't remember what I did today. It is very frustrating to say the least. I used to be a Vet. Tech and I also bred and raised Old English Mastiffs for 15 yrs. Now if one of the dogs gets sick I have to go to my books to review what is going on with them b/c my memory is soo bad. And I used to be in the surgery room assisting with surgeries. I also did very well in school. I also used to have a perfect memory. I could remember phone numbers, addresses, etc with out ever having to write them down. I was a great speller too!! The other day I asked my husband why they didn't have there reunion and he said don't you remember we did have the reunion just last month. I totally forgot they had it. Duh!! I felt so stupid and so embarrassed. I feel so sorry for you. And just to let you know my husband also washes my hair for me at times, and he has to help me dress too. So please don't feel too bad. One thing to be grateful for is that you have a loving and caring husband that will do anything in this world to help you and he loves you too!! Not a lot of people can say that. I know so many families where the husband left b/c the wife or the children are sick with this disease and he just can't handle it. So you are truly blessed to have a wonderful and caring husband, like me and others out there. I could write so much more but i have to get up in less than 5 hours. I have a doctors appt. and it is 2 hours away. If you want you are welcome to email me privately at peetie@... Relax, and have a good night. Sending you lots of hugs, Ann-Marie Re: memory Even if I am a little tired everything is worse. I have spent the last couple days unable to eat, and of course that makes it worse. I used to have an incredible memory, never had spelling problems, and I couldn't remember how to spell 40 on one of my checks. Heck, I had to double check spelling the word memory. I am forgetting conversations I have with people. I am able to remember things from a long time ago, but forgetting thing that happen throughout the day. Last year June I finished 12 law classes, and now I look at the books and it is like looking at a foreign language. Those classes I scored all 98-100% for every class. It is getting really frustrating and embarassing. I will stammer over what the thing is in my bedroom that holds the clothes. I have tried to tell my doctor how difficult it is getting with work, and she asked me if I considered changeing jobs.. Jeez, I was a controller of a software company, and have a cake job now- sort of- that at least gives me the flexibility of going to all the doctors appointments, leaving work when I am too sick to work... I just really don't know what to do. I just turned 31, and things are just getting more and more difficult. On my honeymoon my husband had to help me get dressed in the morning, sometimes I have to have him wash my hair for me etc., and it is like the docotrs can't even grasp the concept of what these problems are like to the person dealing with it. I talked to my doctor for 2 hours on Friday night, and all she could tell me is that what they are doing is all that they can do. I am doing their little cocktail, taking neurontin, lyrica, glucophage, and I can't remember what else. I could rattle on forever, and I just want someone to tell me what is happening. No one seems to be able to tell me other than we believe that what you are dealing with is several mitochondrial disorders. They got a positive on mitchondrial myopathy and now want to do some sort of DNA thing that can cause my mom's side of the family to have issues with getting insurance... So, what do I do? Have you had these tests? Have the had a negative impact on your family? The few relatives I have that are still alive are very young, and I don't want my problem to cause them issues with getting insurance. I am sorry for the rant, but I don't have anyone else to talk to, and it is starting to get scary. The pain and all the other fun stuff is bad enough, but now my mind. I have blamed everything I can for my memory, and I am worried about what my doctor is saying. Thanks, -- In , " Laurie Fitzgerald " wrote: > > > > I have word finding problems and have for several years, but don't > take Neurontin. My word findings is worse if I am tired or stressed. > Have you noticed this? > > laurie > > > > > > > > > > > > > > > > Sometimes I feel like my mind is just going to bits. I was always > > excellent at remembering things, and now I can't remember > > conversations I have had with people. I keep asking my docotor if it > > is all the neurontin making it worse, and she says no. Has anyone > > noticed memory loss associated with neurontin? I have also gained > > weight since I started taking it. Anybody else notice the same? > > Sometimes it takes me several minutes to find the words I am looking > > for. I can recall memories from a long time ago, but I can't remember > > what happened yesterday. > > > > Thanks > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2006 Report Share Posted June 29, 2006 I am so sorry to hear that you are dealing with all of this. I hear the fear and frustration in your words. This may sound weird, but my thinking and word retrieval improved when I started using a scooter (now have power wheelchair). That was 13 years ago and I worked for another 11 years as a result. I guess using less energy to move around allowed more for my brain. Of course, that is just me and we are so different. A couple of suggestions would be to talk with your doctor about taking Creatine. When I was put on it, the noticable change was in my brain function - it worked faster or something. The other is to ask about getting a neuropsych evaluation. This will give them a baseline to evaluate progression. The folks who do it can probably give you help in finding ways to deal with certain problems. These departments are usually connected with programs for the head injured and those having had strokes, so they are very experienced with your kind of issues. As far as the genetic testing goes, I had $40,000 worth of testing done and away without anything more than when it started. Since mito doesn't always come from the mother, the risk of causing them insurance problems might not be any greater than it is for your father's side of the family. The doctors are fairly certain that our family's mito is maternally inherited (we have three generations confirmed with mito with clear maternal connections in 8 people). They knew what complex was defective and still couldn't find the genetic defect. I did it, so my sons would know their risk of passing it along, not because I thought it would change my treatment. I wish you luck in deciding what decisions to make and in in dealing with these issues. Hugs, laurie > > > > > > > Even if I am a little tired everything is worse. I have spent the last > couple days unable to eat, and of course that makes it worse. I used > to have an incredible memory, never had spelling problems, and I > couldn't remember how to spell 40 on one of my checks. Heck, I had to > double check spelling the word memory. I am forgetting conversations I > have with people. I am able to remember things from a long time ago, > but forgetting thing that happen throughout the day. Last year June I > finished 12 law classes, and now I look at the books and it is like > looking at a foreign language. Those classes I scored all 98-100% for > every class. It is getting really frustrating and embarassing. I will > stammer over what the thing is in my bedroom that holds the clothes. I > have tried to tell my doctor how difficult it is getting with work, > and she asked me if I considered changeing jobs.. Jeez, I was a > controller of a software company, and have a cake job now- sort of- > that at least gives me the flexibility of going to all the doctors > appointments, leaving work when I am too sick to work... I just really > don't know what to do. I just turned 31, and things are just getting > more and more difficult. On my honeymoon my husband had to help me get > dressed in the morning, sometimes I have to have him wash my hair for > me etc., and it is like the docotrs can't even grasp the concept of > what these problems are like to the person dealing with it. I talked > to my doctor for 2 hours on Friday night, and all she could tell me is > that what they are doing is all that they can do. I am doing their > little cocktail, taking neurontin, lyrica, glucophage, and I can't > remember what else. I could rattle on forever, and I just want someone > to tell me what is happening. No one seems to be able to tell me other > than we believe that what you are dealing with is several > mitochondrial disorders. They got a positive on mitchondrial myopathy > and now want to do some sort of DNA thing that can cause my mom's side > of the family to have issues with getting insurance... So, what do I > do? Have you had these tests? Have the had a negative impact on your > family? The few relatives I have that are still alive are very young, > and I don't want my problem to cause them issues with getting insurance. > > I am sorry for the rant, but I don't have anyone else to talk to, and > it is starting to get scary. The pain and all the other fun stuff is > bad enough, but now my mind. I have blamed everything I can for my > memory, and I am worried about what my doctor is saying. > > Thanks, > > > -- In , " Laurie Fitzgerald " > > wrote: > > > > > > > > I have word finding problems and have for several years, but don't > > take Neurontin. My word findings is worse if I am tired or stressed. > > Have you noticed this? > > > > laurie > > > > > > > > > > > > > > > > > > > > > > > > > Sometimes I feel like my mind is just going to bits. I was always > > > excellent at remembering things, and now I can't remember > > > conversations I have had with people. I keep asking my docotor if it > > > is all the neurontin making it worse, and she says no. Has anyone > > > noticed memory loss associated with neurontin? I have also gained > > > weight since I started taking it. Anybody else notice the same? > > > Sometimes it takes me several minutes to find the words I am looking > > > for. I can recall memories from a long time ago, but I can't remember > > > what happened yesterday. > > > > > > Thanks > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2006 Report Share Posted June 29, 2006 Kathleen, I have been through the whole MS diagnosis, and SLE. It took an emergency room trip with my heart having problems before they really seriously got on the ball, and that was over a year ago. In the meantime I lost my ability to play guitar or drums, because I just physically couldn't do it. As for hiking, camping and back packing- my husband and I have went to Montana for vacation every year the last 5 years, and this is the first year that I couldn't go hiking. I used to whitewater raft, go horseback riding, etc. I keep asking my docotors questions about side effects from the drugs and they tell me it is not side effects. I ask what else they can do, and they have no answers. I am Cincinnati, and am seeing doctors at the Arring group for the neurological problems. I was sent to them because all the other docs thought it was MS, and my new doctor is saying it isnt. It feels like I am getting no where fast with them. I have several other things going on other than memory that it took me complaining for 7 years before my regular GP would even do the damn blood work. They even knew my family history and just left me hanging. Ugh. -- In , Kathleen Robins wrote: > > Dear - > > I¹m pretty new to this (being able to call what¹s wrong with me by a name), > and my mito is different than yours, so I can¹t offer much advice in that > area. I¹m in the middle of diagnosis, too. Now, thirteen years after my > first symptoms, I have the beginnings of a solid diagnosis, after years of > dealing with people who had absolutely no idea what was going on with me, > and had no idea or care that there was anyone who did. > > Early this year I found the Center for Mitochondrial Medicine (Mitomed) at > UC Irvine (thanks to Joanne on this list) It has made a huge difference to > talk to folks who know something, and are willing to be upfront about what > they don¹t. > > Where are you located? I¹ve been really impressed with Mitomed. At this > point in time, the program is primarily research, which means they pay for a > lot of the testing, and you can have complete anonymity if you choose. Let > me know if you want contact info- you call them and they can take you from > anywhere in the country- they¹ll tell you how to send them samples, lab > write ups, etc. They have been very sensitive to my fears for the impact on > my kids and my mother¹s family. > > For me at least, I don¹t think anybody can tell me what to expect, exactly. > The expressions of mitochondrial disease seem to be so varied that > predicting outcomes for a lot of us seems very difficult. Everything about > this stuff is frontier medicine-they are literally learning as they go. > > I empathize with your worries for your family: I¹ve lived in a black fear > that I¹d given mito to my kids for the last 8 months. It looks like that > didn¹t happen, and I feel like a rocket just missed me by a hair. It¹s > weird-so far the only parts of this disease that I¹ve cried about is my fear > of not being able to ski or backpack anymore and that my kids look to be > safe. Just thinking about either makes me totally lose it, to the great > consternation of my husband and family. > > I don¹t participate a whole lot on this list, but I¹m unceasingly amazed by > how kind and generous everyone who posts is. They share information, hope, > and encouragement with extraordinary responsiveness. I hope you can find > comfort here from talking to people who get it, and may have figured some > ways of getting around it. > > peace to you, > > Kathleen > > > > > > > > Even if I am a little tired everything is worse. I have spent the last > > couple days unable to eat, and of course that makes it worse. I used > > to have an incredible memory, never had spelling problems, and I > > couldn't remember how to spell 40 on one of my checks. Heck, I had to > > double check spelling the word memory. I am forgetting conversations I > > have with people. I am able to remember things from a long time ago, > > but forgetting thing that happen throughout the day. Last year June I > > finished 12 law classes, and now I look at the books and it is like > > looking at a foreign language. Those classes I scored all 98-100% for > > every class. It is getting really frustrating and embarassing. I will > > stammer over what the thing is in my bedroom that holds the clothes. I > > have tried to tell my doctor how difficult it is getting with work, > > and she asked me if I considered changeing jobs.. Jeez, I was a > > controller of a software company, and have a cake job now- sort of- > > that at least gives me the flexibility of going to all the doctors > > appointments, leaving work when I am too sick to work... I just really > > don't know what to do. I just turned 31, and things are just getting > > more and more difficult. On my honeymoon my husband had to help me get > > dressed in the morning, sometimes I have to have him wash my hair for > > me etc., and it is like the docotrs can't even grasp the concept of > > what these problems are like to the person dealing with it. I talked > > to my doctor for 2 hours on Friday night, and all she could tell me is > > that what they are doing is all that they can do. I am doing their > > little cocktail, taking neurontin, lyrica, glucophage, and I can't > > remember what else. I could rattle on forever, and I just want someone > > to tell me what is happening. No one seems to be able to tell me other > > than we believe that what you are dealing with is several > > mitochondrial disorders. They got a positive on mitchondrial myopathy > > and now want to do some sort of DNA thing that can cause my mom's side > > of the family to have issues with getting insurance... So, what do I > > do? Have you had these tests? Have the had a negative impact on your > > family? The few relatives I have that are still alive are very young, > > and I don't want my problem to cause them issues with getting insurance. > > > > I am sorry for the rant, but I don't have anyone else to talk to, and > > it is starting to get scary. The pain and all the other fun stuff is > > bad enough, but now my mind. I have blamed everything I can for my > > memory, and I am worried about what my doctor is saying. > > > > Thanks, > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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