Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 Hi Laurie, Breathing and cardiac issues are rampant in our house, especially with lies (and air hunger). Fortunately lies, and , do respond to low flow oxygen when this happens. They are similar in that weight doesn't necessarily change but the signs/symptoms DO. Very frustrating every time it happens. We are fortunate in that we have oxygen in our house that we can use as needed adn it usually helps. Their critical care attendign suspects that this is cardiac related but the cardiologist has refused to run the blood test he requested (said he wouldn't know how to treat if it came back positive). >My PO2 was 68 (range 74-108), but my blood gas O2 sat was 92 so they >are just going to repeat all the pulmonary stuff in Oct (pft, abg, >lung CT) and sleep study in Aug. >Do the girls get such severe breathing issues that they can't do >anything at all? My heart also pounds when I am like this. It lasted >for almost 2 weeks and eveyone just said it was due to obesity. When >the weight doesn't change and the symptoms do, then something new is >going on. ..._,___ Joanne Kocourek (mom to , lies, and ) visit us at: http://www.caringbridge.org/il/annakris Quote Link to comment Share on other sites More sharing options...
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