glaucoma & treatment with (suspected) mito

[Guest guest]

I got the news this morning that my eyeball pressure is " borderline

high " , the start of glaucoma. Although I need to wait for my original

eye doctor to look at the result & decide a plan of attack, I will

likely now be sent for tests on my peripheral vision and then we'll

have to look at treatment options.

I know at least a few people on list have linked glaucoma to mito,

and I did find an interesting article about a link between open angle

glaucoma & mitochondrial DNA abnormalities, and mitochondrial

respiratory activity as well.

http://www.iovs.org/cgi/content/abstract/47/6/2533

I'm only 39, and my only other risk factor for glaucoma is low blood

pressure, but mine isn't all that low (recent low was 100 over 60).

I'm now wondering if any of the treatments have been found to

conflict with mito - has anyone had problems? I don't have a definite

diagnosis of mito, but it is the number one suspect. Being as there

are multiple treatment options:

http://www.glaucoma.org/treating/medication.html#i59

I might as well avoid those known to have caused problems in other

mito patients.

Also, I note the contraindicated meds list on the Mitoldies website

is actually from 1997, and was posted in 2001. Is there a more

updated one? (I couldn't find one on the UMDF site, but might not be

looking correctly)

Thanks!

Cindy

[Guest guest]

Hi My name is I live in Australia. I had pressure behind my eyeball last

October they thought I had Glaucoma but turned out I didn't, to start with they

should have prescribed corticosteriods straight away about 60mg a day as you may

also have temporal arteritis which starts the pressure in the eyeball(this is no

pulse in your temple).

I ended up with further tests to show MS type lesions on the brain but don't

fit the classic MS symptoms. With the pressure keep an eye on other things

going on with the body especially if you are off balance, start to slur your

speech any numbness in any of the body parts, if any of these start to happen go

to Emergency Dept.

Cheers

KAren

baldassi baldassi@...> wrote:

I got the news this morning that my eyeball pressure is " borderline

high " , the start of glaucoma. Although I need to wait for my original

eye doctor to look at the result & decide a plan of attack, I will

likely now be sent for tests on my peripheral vision and then we'll

have to look at treatment options.

I know at least a few people on list have linked glaucoma to mito,

and I did find an interesting article about a link between open angle

glaucoma & mitochondrial DNA abnormalities, and mitochondrial

respiratory activity as well.

http://www.iovs.org/cgi/content/abstract/47/6/2533

I'm only 39, and my only other risk factor for glaucoma is low blood

pressure, but mine isn't all that low (recent low was 100 over 60).

I'm now wondering if any of the treatments have been found to

conflict with mito - has anyone had problems? I don't have a definite

diagnosis of mito, but it is the number one suspect. Being as there

are multiple treatment options:

http://www.glaucoma.org/treating/medication.html#i59

I might as well avoid those known to have caused problems in other

mito patients.

Also, I note the contraindicated meds list on the Mitoldies website

is actually from 1997, and was posted in 2001. Is there a more

updated one? (I couldn't find one on the UMDF site, but might not be

looking correctly)

Thanks!

Cindy

Send instant messages to your online friends http://au.messenger.yahoo.com

[Guest guest]

Hi

Thanks for responding. I am sorry to hear about your problems -I hope

they have it under control?

I've looked up the sypmtoms & diagnostic criteria for temporal

arteritis & I am relieved to say it is highly unlikely I have it. Of

the symptoms, I only have the droopy eyelids/blurry vision

periodically, which comes on with fatigue & disappears with rest, so

we figure that is the neuromuscular disorder. No brain lesions, thank

goodness. The problem with prescribing steroids is that steroids are

a risk factor for glaucoma, so they need to be careful.

The doctor I spoke with today said the pressure level was so mild &

borderline that it might be best to just follow it for the next

while, but I'm pretty sure the doctor in charge wants to send me for

further tests. I will mention your concerns, though, when I next

speak to him.

Thanks

Cindy

> I got the news this morning that my eyeball pressure

is " borderline

> high " , the start of glaucoma. Although I need to wait for my

original

> eye doctor to look at the result & decide a plan of attack, I will

> likely now be sent for tests on my peripheral vision and then we'll

> have to look at treatment options.

>

> I know at least a few people on list have linked glaucoma to mito,

> and I did find an interesting article about a link between open

angle

> glaucoma & mitochondrial DNA abnormalities, and mitochondrial

> respiratory activity as well.

> http://www.iovs.org/cgi/content/abstract/47/6/2533

> I'm only 39, and my only other risk factor for glaucoma is low

blood

> pressure, but mine isn't all that low (recent low was 100 over 60).

>

> I'm now wondering if any of the treatments have been found to

> conflict with mito - has anyone had problems? I don't have a

definite

> diagnosis of mito, but it is the number one suspect. Being as there

> are multiple treatment options:

> http://www.glaucoma.org/treating/medication.html#i59

> I might as well avoid those known to have caused problems in other

> mito patients.

>

> Also, I note the contraindicated meds list on the Mitoldies website

> is actually from 1997, and was posted in 2001. Is there a more

> updated one? (I couldn't find one on the UMDF site, but might not

be

> looking correctly)

>

> Thanks!

>

> Cindy

>

>

>

>

>

> Send instant messages to your online friends

http://au.messenger.yahoo.com

>

>

[Guest guest]

Hi Cindy,

I was diagnosed with this Optic nerve pressure. I take Diamox which is a

diuretic. It pretty much controls it. The only link to Mito I was told is that

it can be caused by being sedentary. Mine is actually too much spinal fluid

pressure. Although the Dr. that did the spinal tap said I was far smaller than

most of the patients he sees this with! LOL

good luck. I was also told it does not necessarily mean glaucoma, only that

like with type 2 diabetes, if not treated correctly can lead to Glaucoma.

Hugs,

Elle

baldassi baldassi@...> wrote:

I got the news this morning that my eyeball pressure is " borderline

high " , the start of glaucoma. Although I need to wait for my original

eye doctor to look at the result & decide a plan of attack, I will

likely now be sent for tests on my peripheral vision and then we'll

have to look at treatment options.

I know at least a few people on list have linked glaucoma to mito,

and I did find an interesting article about a link between open angle

glaucoma & mitochondrial DNA abnormalities, and mitochondrial

respiratory activity as well.

http://www.iovs.org/cgi/content/abstract/47/6/2533

I'm only 39, and my only other risk factor for glaucoma is low blood

pressure, but mine isn't all that low (recent low was 100 over 60).

I'm now wondering if any of the treatments have been found to

conflict with mito - has anyone had problems? I don't have a definite

diagnosis of mito, but it is the number one suspect. Being as there

are multiple treatment options:

http://www.glaucoma.org/treating/medication.html#i59

I might as well avoid those known to have caused problems in other

mito patients.

Also, I note the contraindicated meds list on the Mitoldies website

is actually from 1997, and was posted in 2001. Is there a more

updated one? (I couldn't find one on the UMDF site, but might not be

looking correctly)

Thanks!

Cindy

I am only as strong as the coffee I drink, the hairspray I use and the friends

I have.

To the cool women that have touched my life. Here's to you! author unknown

[Guest guest]

Hi Cindy,

Understand where you are coming from mine is still undiagnosed

Neuromuscular/MS/Mitochondrial/Genetic DNA. I have a daughter who is soon to be

two and she has central apnea she is undergoing the Mito testing for the second

time.......

Pretty scary sometimes with some of the symptoms,

I just thought I would mention what happened with me, the temporal arteritis

ended up being from build up of spinal fluid causing inflammation on brain and

damaging eye nerve. I too have droopy eyelids when fatigued and when unwell

even with a cold looks like half my face has sagged. But I walk funny and speak

funny when it happens.

Have patients there are so many Neuro muscular disorders out there and they

take so long to diagnose maybe thats only because I live remote.

Wish you heaps of luck and a speedy diagnosis

Take Care

KAren

baldassi baldassi@...> wrote:

Hi

Thanks for responding. I am sorry to hear about your problems -I hope

they have it under control?

I've looked up the sypmtoms & diagnostic criteria for temporal

arteritis & I am relieved to say it is highly unlikely I have it. Of

the symptoms, I only have the droopy eyelids/blurry vision

periodically, which comes on with fatigue & disappears with rest, so

we figure that is the neuromuscular disorder. No brain lesions, thank

goodness. The problem with prescribing steroids is that steroids are

a risk factor for glaucoma, so they need to be careful.

The doctor I spoke with today said the pressure level was so mild &

borderline that it might be best to just follow it for the next

while, but I'm pretty sure the doctor in charge wants to send me for

further tests. I will mention your concerns, though, when I next

speak to him.

Thanks

Cindy

> I got the news this morning that my eyeball pressure

is " borderline

> high " , the start of glaucoma. Although I need to wait for my

original

> eye doctor to look at the result & decide a plan of attack, I will

> likely now be sent for tests on my peripheral vision and then we'll

> have to look at treatment options.

>

> I know at least a few people on list have linked glaucoma to mito,

> and I did find an interesting article about a link between open

angle

> glaucoma & mitochondrial DNA abnormalities, and mitochondrial

> respiratory activity as well.

> http://www.iovs.org/cgi/content/abstract/47/6/2533

> I'm only 39, and my only other risk factor for glaucoma is low

blood

> pressure, but mine isn't all that low (recent low was 100 over 60).

>

> I'm now wondering if any of the treatments have been found to

> conflict with mito - has anyone had problems? I don't have a

definite

> diagnosis of mito, but it is the number one suspect. Being as there

> are multiple treatment options:

> http://www.glaucoma.org/treating/medication.html#i59

> I might as well avoid those known to have caused problems in other

> mito patients.

>

> Also, I note the contraindicated meds list on the Mitoldies website

> is actually from 1997, and was posted in 2001. Is there a more

> updated one? (I couldn't find one on the UMDF site, but might not

be

> looking correctly)

>

> Thanks!

>

> Cindy

>

>

>

>

>

> Send instant messages to your online friends

http://au.messenger.yahoo.com

>

>

[Guest guest]

Hi Cindy etc - we have both mito and glaucoma in our family. My pressure was

just found to be for the first time high, 22 whatever that is, have to check

again in 6 mths. However the eye specialist (who is knowledgeable about mito

also) referred to my possibility of having glaucoma, as a separate condition

(gene) from the mito. It's interesting though that some believe there may be a

link albeit not proven yet ... pamela 57 (melas)

Re: glaucoma & treatment with (suspected) mito

Hi Cindy,

I was diagnosed with this Optic nerve pressure. I take Diamox which is a

diuretic. It pretty much controls it. The only link to Mito I was told is that

it can be caused by being sedentary. Mine is actually too much spinal fluid

pressure. Although the Dr. that did the spinal tap said I was far smaller than

most of the patients he sees this with! LOL

good luck. I was also told it does not necessarily mean glaucoma, only that

like with type 2 diabetes, if not treated correctly can lead to Glaucoma.

Hugs,

Elle

baldassi baldassi@...> wrote:

I got the news this morning that my eyeball pressure is " borderline

high " , the start of glaucoma. Although I need to wait for my original

eye doctor to look at the result & decide a plan of attack, I will

likely now be sent for tests on my peripheral vision and then we'll

have to look at treatment options.

I know at least a few people on list have linked glaucoma to mito,

and I did find an interesting article about a link between open angle

glaucoma & mitochondrial DNA abnormalities, and mitochondrial

respiratory activity as well.

http://www.iovs.org/cgi/content/abstract/47/6/2533

I'm only 39, and my only other risk factor for glaucoma is low blood

pressure, but mine isn't all that low (recent low was 100 over 60).

I'm now wondering if any of the treatments have been found to

conflict with mito - has anyone had problems? I don't have a definite

diagnosis of mito, but it is the number one suspect. Being as there

are multiple treatment options:

http://www.glaucoma.org/treating/medication.html#i59

I might as well avoid those known to have caused problems in other

mito patients.

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