Mitoldies venting after neuro appt

[Guest guest]

,

Thanks for that info. I have been on a mixture of the Mito cocktail in

the past but didn't see any change at all so was told not to waste my

money!

At the moment all I am on is Lyrica and paracetamol or Asprin.

I feel so bad I just can't take it any more. At the appt on Tuesday we

agreed to get me off the Lyrica and then start again with our thinking

of what to do next.

Thanks again

Wanda

[Guest guest]

Wanda

I was on the mito cocktail and didn't think it was helping, but when I

went off I felt so much worse, that I went back on and felt better. I

guess I was hoping for improvement and only got a maintenace of

symptoms which is okay - better than rapid deterioration.

laurie

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> ,

> Thanks for that info. I have been on a mixture of the Mito cocktail in

> the past but didn't see any change at all so was told not to waste my

> money!

> At the moment all I am on is Lyrica and paracetamol or Asprin.

> I feel so bad I just can't take it any more. At the appt on Tuesday we

> agreed to get me off the Lyrica and then start again with our thinking

> of what to do next.

> Thanks again

> Wanda

>

>

[Guest guest]

It can take months to see improvement. It also may

take combos of meds. For example, we tried riboflavin

a couple of years ago. We used it for a few months

because my son has severe migraines. We started again

last October but used it in combo with other mito

meds. I'm convinced that it's the slightly increased

dose and the combo with carnitor and CoQ10 that makes

the difference. It took several months for the

headaches to improve.

--- wandaramsdell jordyalan@...> wrote:

> ,

> Thanks for that info. I have been on a mixture of

> the Mito cocktail in

> the past but didn't see any change at all so was

> told not to waste my

> money!

Mom to the two best kids in the world!

http://www.caringbridge.org/visit/thomasandkatie

__________________________________________________

[Guest guest]

,

If your dosages weren't as high as recommended or the brand you used

wasn't as bioavailable as others, you also may not have noticed a

improvement. Did you check your dosages against what is on Dr. Cohen's

list perhaps?

wandaramsdell wrote:

> ,

> Thanks for that info. I have been on a mixture of the Mito cocktail in

> the past but didn't see any change at all so was told not to waste my

> money!

> At the moment all I am on is Lyrica and paracetamol or Asprin.

> I feel so bad I just can't take it any more. At the appt on Tuesday we

> agreed to get me off the Lyrica and then start again with our thinking

> of what to do next.

> Thanks again

> Wanda

>

>

>

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