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Re: SLEs (was: Newly diagnosed - what to ask doctors & dementia)

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Plain old strokes are caused by interruption of blood supply (usually due to

arterial blockage) in one location in the brain. Muscle control and language

ability are frequently at issue, depending on the exact location affected.

Commonly, by the time this is treated there is at least some irreversible

damage to brain cells. Depending on what brain region was affected and how

severely, it may be possible to re-train other areas of the brain to at

least partially take over, but this is usually a long process.

By contrast, the mito SLE has much more mysterious causes, but I guess the

common denominator is that something isn't right about brain nutrition:

oxygen, glucose, or otherwise. Nonetheless, my understanding is that these

are not necessarily the symptoms of permanent brain damage, but can be due

to all sorts of metabolic imbalances. And therefore the good news, is that

these imbalances can frequently be reversed (with little lasting damage) by

appropriate metabolic intervention.

But I want to underline that the second paragraph above is based on my

reading about it (here and in various journals and textbooks). I have not

had an SLE. I'm sorry if I gave any impression otherwise. The people here

who have actually had SLEs are the experts. Especially, I have no real idea

about the statistics, i.e. just how many SLEs are readily reversed vs. lead

to long-term damage.

Still, it seems at least somewhat relevant that I (and many others here)

have had reversal of OTHER neurological symptoms, like (as reported

elsewhere, not my personal experience) the headaches sometimes " cured " by

riboflavin, or the mito fatigue sometimes " cured " by carnitine, for

instance.

Steve D.

Re: Newly diagnosed - what to

> ask doctors & dementia

>

>

>

> P.S. My understanding is that the mito SLEs are

> only stroke-LIKE, and can

> usually reverse within hours or days. But that's

> from listening to others,

> so perhaps you should hear directly from them. I

> personally have had several

> serious neurological symptoms improve dramatically

> with the right meds,

> supplements, or physical treatment...

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> But I want to underline that the second paragraph above is based on

my

> reading about it (here and in various journals and textbooks). I

have not

> had an SLE.

Could you point me to things to read? I've been having trouble finding

anything useful on the internet about the stroke-like episodes. Your

explanation is the most coherent one I've read to date.

JoAnn

Santa Clara, CA

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