Best resources for learning

[Guest guest]

Two more good sites are:

Muscular Dystrophy Association _www.mdausa.org_ (http://www.mdausa.org) and

Mitochondrial Disease Action Committee _www.mitoaction.org_

(http://www.mitoaction.org)

Malisa

In a message dated 7/6/2006 12:47:43 P.M. Eastern Standard Time,

jmcgowan38@... writes:

All the ideas I've been getting from this group got me thinking. What

are the best resources you have found for learning about mito

diseases? So far the this group, the umdf web site and medline have

been the most useful things I have found.

What helped you the most? What sources were not helpful and you would

steer people away from?

I want to learn as much as I can about this. I think it helps my

husband get better care if he has an educated advocate with him.

Plus, I'm just one of those people who deals with scary things by

trying to learn about them. As a side benefit, some of what I've

learned has just been interesting in itself.

JoAnn

Santa Clara, CA

[Guest guest]

All the ideas I've been getting from this group got me thinking. What

are the best resources you have found for learning about mito

diseases? So far the this group, the umdf web site and medline have

been the most useful things I have found.

What helped you the most? What sources were not helpful and you would

steer people away from?

I want to learn as much as I can about this. I think it helps my

husband get better care if he has an educated advocate with him.

Plus, I'm just one of those people who deals with scary things by

trying to learn about them. As a side benefit, some of what I've

learned has just been interesting in itself.

JoAnn

Santa Clara, CA

[Guest guest]

JoAnn M

I'm also one of those people who deal by gaining knowledge. One of the

best things I did in the beginning was to go to the UMDF conference. I

learned sooooo much. Of course, this years was just held. There is

more on the web now, but I try to stick to the medical sites such as

medline and articles from universities. I stay away from the articles

from supplement manufacturers or similar places. This is just my

preference for getting what I feel is more accurate information.

Getting current stuff is also important as things are changing so fast

in the mito area. There is more known about MELAS than mito in general

as it was one of the first identified and has known genetic markers.

laurie

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>

>

>

>

>

> All the ideas I've been getting from this group got me thinking. What

> are the best resources you have found for learning about mito

> diseases? So far the this group, the umdf web site and medline have

> been the most useful things I have found.

>

> What helped you the most? What sources were not helpful and you would

> steer people away from?

>

> I want to learn as much as I can about this. I think it helps my

> husband get better care if he has an educated advocate with him.

> Plus, I'm just one of those people who deals with scary things by

> trying to learn about them. As a side benefit, some of what I've

> learned has just been interesting in itself.

>

> JoAnn

> Santa Clara, CA

>

>

[Guest guest]

Aside from MedLine and other internet resources, honestly, I find the truly

knowledgeable physicians and other individuals.families walkign similar paths

have consistantly been the best source of information.

Joanne Kocourek (mom to , lies, and )

visit us at: http://www.caringbridge.org/il/annakris