Re: stroke and seizures

[Guest guest]

I just sent a message about my sisters seizures. She also had a stroke that

left her with a limp on her left side and used alot of wrong words like

describing there recent trip saying sea works instead of sea world. She

experienced the stroke between being released from the hospital after the 4 day

coma, aa 2 week trip to Florida, and returning home. Then 3 weeks later 10 hrs

of seizures while on a seizure med.

Janet Sample

Re: Newly diagnosed - what to

> ask doctors & dementia

>

>

>

> P.S. My understanding is that the mito SLEs are

> only stroke-LIKE, and can

> usually reverse within hours or days. But that's

> from listening to others,

> so perhaps you should hear directly from them. I

> personally have had several

> serious neurological symptoms improve dramatically

> with the right meds,

> supplements, or physical treatment...

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[Guest guest]

>

> I just sent a message about my sisters seizures. She also had a

> stroke that left her with a limp on her left side and used alot of

> wrong words like describing there recent trip saying sea works

> instead of sea world.

I do that frequently (and interestingly also have residual weakness on

my left side), although it is much better when I stay on my low-carb

diet and take my supplements as I should. At least at this point I

don't get laughs from my husband about it, but my dad (who is very

helpful in general) seems to still find it funny and a point to argue

about. Like saying " Colorado " for " cauliflower " or " them " instead of

" there " . I had one day over our vacation the end of June where

literally every sentence included switched words (hundreds of

sentences each day of course

Personally I find it very frustrating because I know what I mean but

the wrong words come out. Sometimes I go through a few sentences

before I realize that I used some wrong words. I also have had

aphasia where I can't speak at all but the words are in my head.

I am still able to work full-time - it seems that even when I have

trouble talking, my typing is fine and I detect mistakes quickly and

fix them. I think the Mitoldies list is very responsible for my " good

health " right now, as I am very tuned-in to when I start to have more

symptoms and have some hope of changing my own supplement regimen and

diet to reduce symptoms.

I am currently working at home, and I found that when I was working in

the office, I had trouble following conversations and speaking, so my

tendency towards ADD was balanced by being afraid I couldn't speak

correctly. Emails work much better. Oh, and luckily I am in research

where we are expected to be kind of " nutty "

Take care,

RH

[Guest guest]

I am sure that there are many who can relate to what

you just said. I too, have had a stroke and still have

lots of SLE. I am weaker on the left side. But when

you talk about the wording/ I am with you all the way

on that. It is very frustrating and like you said,

sometimes I don't even notice it or catch it. Like one

time I was driving cause I felt good that day, even my

head felt good that day, and my neices were in the

back of the car. My neice said she was hot, and I said

well open the car door and let the air in. Thank God

she was old enought to no better. And then there are

times like you said, I will substitute another word

for the one I wanted to really say. But typing, I have

no problem. Just wanted you to no, we are with you. As

of yet I have not found anything that helped in this

new vocabulary.

--- ohgminion2 ohgminion2@...> wrote:

>

> >

> > I just sent a message about my sisters seizures.

> She also had a

> > stroke that left her with a limp on her left side

> and used alot of

> > wrong words like describing there recent trip

> saying sea works

> > instead of sea world.

>

> I do that frequently (and interestingly also have

> residual weakness on

> my left side), although it is much better when I

> stay on my low-carb

> diet and take my supplements as I should. At least

> at this point I

> don't get laughs from my husband about it, but my

> dad (who is very

> helpful in general) seems to still find it funny and

> a point to argue

> about. Like saying " Colorado " for " cauliflower " or

> " them " instead of

> " there " . I had one day over our vacation the end of

> June where

> literally every sentence included switched words

> (hundreds of

> sentences each day of course

>

> Personally I find it very frustrating because I know

> what I mean but

> the wrong words come out. Sometimes I go through a

> few sentences

> before I realize that I used some wrong words. I

> also have had

> aphasia where I can't speak at all but the words are

> in my head.

>

> I am still able to work full-time - it seems that

> even when I have

> trouble talking, my typing is fine and I detect

> mistakes quickly and

> fix them. I think the Mitoldies list is very

> responsible for my " good

> health " right now, as I am very tuned-in to when I

> start to have more

> symptoms and have some hope of changing my own

> supplement regimen and

> diet to reduce symptoms.

>

> I am currently working at home, and I found that

> when I was working in

> the office, I had trouble following conversations

> and speaking, so my

> tendency towards ADD was balanced by being afraid I

> couldn't speak

> correctly. Emails work much better. Oh, and

> luckily I am in research

> where we are expected to be kind of " nutty "

>

> Take care,

> RH

>

>

>

>

>

>

__________________________________________________