sensory question

[Guest guest]

hi everyone,

i have a question for the group. my son who has sensory integration problems

has developed a huge sensory issue lately.

he has a huge problem with cactus ( not sure if spelt correctly). if just

freaks literally if he thinks there is a cactus anywhere at all. he has a major

breakdown it looks like this he turns beat red in the face, screams, shakes and

cries in terror like he is being terrorized. we went shopping at our local

walmart recently and we went down an aisle that had this huge fern with the

leaves sticking out a few aisles down from us in the middle of the floor. well

my son just started freaking out. he scared the living daylights out of me. he

was so upset he just clung to me and turned purple and beat red in terror. this

was a fern granted the thing was big and ugly but did not even resemble a

cactus. now it seems that the issue has turned into every plant he sees and some

flowers too. he has convinced himself somehow that they are all cactus. now even

if it is just a picture or a design that resembles anything like these things he

has a sensory meltdown. these meltdowns are

like nothing i have even had an experience with for a reaction sensory wise. (

we have had many sensory issues with a lot of stuff) most of them have mostly

resolved though. this is causing probelsm for me and my son. now it seems that

no matter where i take him he either sees a cactus or thinks there is one there.

does anyone else have this problem with cactus, plants or flowers?

i have tried everything from talking to him to avoiding aisles and places they

might be. it just seems that the issue has exploded . i feel overwhelmed. i can

not keep him from cactus, plants and flowers.

here is the strange thing about it. the other day he asked to plant flowers in

the yard with his grandmother. so they planted flowers. he had a great time..

why did those flowers not bother him?

here is something funny he just answered my question for me.

they not cactus.

now that was funny i think. since i was not even talking just typing it.

by the way my son is 8 1/2 yo.

jeanne

berlin,nh

[Guest guest]

Look up proprioceptive behavior & sensory processing disorder. My

guess is that over half of the children with apraxia have sensory

issues -- if not more.

Sounds like your child might qualify for Early Intervention Services

>

>

>

> Is it common to have a child with apraxia to have sensory issues? He

> is very rough. He will go over things rather than around. He likes

> to jump & rough house, he hates loud noises like a train or

> yelling. He is only 20 months. The SLP is going to see for sure if

> he does have sensory issuse next week. Does it make it harder for

> kids to talk if they have oral apraxia & sensory. Please help.

> Thanks

> Angie

>

[Guest guest]

sounds like my son when it comes to bugs, he hates them, he freaks out when he

see ones.

www.ourchurch.com/member/b/amyangel/

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[Guest guest]

Not that I have a solution but an experience to share..My nine year old

daughter is pretty dramatic with feather boas and wigs of any sort I have

to avoid the area where she might see them or just usher her away from

them.. I wish I had more of an helpful answer but time seems to be the only

answer..She used to be the same way with cactus even pictures of them in the

Dr Seus book but after about a couple years now we joke about it when we see

them at the Zoo here in ville Fl.

Roxanne

_____

From:

[mailto: ] On Behalf Of Jeanne

Sent: Tuesday, May 15, 2007 7:15 PM

Subject: [ ] sensory question

hi everyone,

i have a question for the group. my son who has sensory integration problems

has developed a huge sensory issue lately.

he has a huge problem with cactus ( not sure if spelt correctly). if just

freaks literally if he thinks there is a cactus anywhere at all. he has a

major breakdown it looks like this he turns beat red in the face, screams,

shakes and cries in terror like he is being terrorized. we went shopping at

our local walmart recently and we went down an aisle that had this huge fern

with the leaves sticking out a few aisles down from us in the middle of the

floor. well my son just started freaking out. he scared the living daylights

out of me. he was so upset he just clung to me and turned purple and beat

red in terror. this was a fern granted the thing was big and ugly but did

not even resemble a cactus. now it seems that the issue has turned into

every plant he sees and some flowers too. he has convinced himself somehow

that they are all cactus. now even if it is just a picture or a design that

resembles anything like these things he has a sensory meltdown. these

meltdowns are

like nothing i have even had an experience with for a reaction sensory wise.

( we have had many sensory issues with a lot of stuff) most of them have

mostly resolved though. this is causing probelsm for me and my son. now it

seems that no matter where i take him he either sees a cactus or thinks

there is one there.

does anyone else have this problem with cactus, plants or flowers?

i have tried everything from talking to him to avoiding aisles and places

they might be. it just seems that the issue has exploded . i feel

overwhelmed. i can not keep him from cactus, plants and flowers.

here is the strange thing about it. the other day he asked to plant flowers

in the yard with his grandmother. so they planted flowers. he had a great

time.. why did those flowers not bother him?

here is something funny he just answered my question for me.

they not cactus.

now that was funny i think. since i was not even talking just typing it.

by the way my son is 8 1/2 yo.

jeanne

berlin,nh

[Guest guest]

>Does it make it harder for kids to talk if they have oral apraxia &

sensory.

It can. For example, kids who have SPD may have difficulty processing

auditory input. This can effect how they learn language. You can not

speak a language if you do not first learn it properly. That's only

one example. If you suspect your child has sensory issues you should

get an eval. by a sensory trained OT right away. (Not all OT's do

sensory) Sensory is treatable but the earlier the better. A couple of

good books to read would be the Out-of-Sync Child and Raising a

Sensory Smart Child.

Good luck.

Nadine

[Guest guest]

hi roxanne,

thank you for your reply. hearing about your experience makes me feel more at

ease to know that i am not the only parent out there who is having sensory

issues to deal with as severe as this one with cactus.

my problem with this is. i can not figure out why or where this sensory issue

came from. 1. other than a cactus that is made to be a house plant variety my

son has never seen a cactus that is huge like in florida or out west. other than

seeing them on tv or a picture of one somewhere.2. the only place he has seen

one is in a store like a grocery store or walmart a store like that.3. we live

in the northeast of the us Berlin, New Hampshire. which is located near NY,NJ.

nh is one of those states in that area of a map. (just giving you an idea where

about i am located) so you have an idea of what i am talking about when i say

where we live there are none of those types of cactus. in fact i have never

actually seen that kind of one either. my son has never traveled out of nh

before.

anyway thank you for sharing your experience with me. by the way i also try to

avoid the aisles of cactus too. but unfortunately for us for some stupid reason

they have to put all the plants including ferns and cactus right in the entryway

of the stores or just as you enter inside. so there has been no way to avoid

them so far. i try to distract him but does not always work.

LEO AND ROXANNE LEONARD <leoroxie@...> wrote:

Not that I have a solution but an experience to share..My nine year

old

daughter is pretty dramatic with feather boas and wigs of any sort I have

to avoid the area where she might see them or just usher her away from

them.. I wish I had more of an helpful answer but time seems to be the only

answer..She used to be the same way with cactus even pictures of them in the

Dr Seus book but after about a couple years now we joke about it when we see

them at the Zoo here in ville Fl.

Roxanne

_____

From:

[mailto: ] On Behalf Of Jeanne

Sent: Tuesday, May 15, 2007 7:15 PM

Subject: [ ] sensory question

hi everyone,

i have a question for the group. my son who has sensory integration problems

has developed a huge sensory issue lately.

he has a huge problem with cactus ( not sure if spelt correctly). if just

freaks literally if he thinks there is a cactus anywhere at all. he has a

major breakdown it looks like this he turns beat red in the face, screams,

shakes and cries in terror like he is being terrorized. we went shopping at

our local walmart recently and we went down an aisle that had this huge fern

with the leaves sticking out a few aisles down from us in the middle of the

floor. well my son just started freaking out. he scared the living daylights

out of me. he was so upset he just clung to me and turned purple and beat

red in terror. this was a fern granted the thing was big and ugly but did

not even resemble a cactus. now it seems that the issue has turned into

every plant he sees and some flowers too. he has convinced himself somehow

that they are all cactus. now even if it is just a picture or a design that

resembles anything like these things he has a sensory meltdown. these

meltdowns are

like nothing i have even had an experience with for a reaction sensory wise.

( we have had many sensory issues with a lot of stuff) most of them have

mostly resolved though. this is causing probelsm for me and my son. now it

seems that no matter where i take him he either sees a cactus or thinks

there is one there.

does anyone else have this problem with cactus, plants or flowers?

i have tried everything from talking to him to avoiding aisles and places

they might be. it just seems that the issue has exploded . i feel

overwhelmed. i can not keep him from cactus, plants and flowers.

here is the strange thing about it. the other day he asked to plant flowers

in the yard with his grandmother. so they planted flowers. he had a great

time.. why did those flowers not bother him?

here is something funny he just answered my question for me.

they not cactus.

now that was funny i think. since i was not even talking just typing it.

by the way my son is 8 1/2 yo.

jeanne

berlin,nh

[Guest guest]

yes it does exactly sound like the same reaction with my son. i can relate to

you. thank you for sharing.

<jenniferdoxakis@...> wrote: sounds like my son when it

comes to bugs, he hates them, he freaks out when he see ones.

www.ourchurch.com/member/b/amyangel/

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[Guest guest]

what are the diferrent of apraxia? what the differents from oral, grobel? My

son alot og sensory problems buth he eat food fine. His doctor just say apraxia

.. isabelle

nadine_silber <nadine_silber@...> wrote: >Does it make it harder

for kids to talk if they have oral apraxia &

sensory.

It can. For example, kids who have SPD may have difficulty processing

auditory input. This can effect how they learn language. You can not

speak a language if you do not first learn it properly. That's only

one example. If you suspect your child has sensory issues you should

get an eval. by a sensory trained OT right away. (Not all OT's do

sensory) Sensory is treatable but the earlier the better. A couple of

good books to read would be the Out-of-Sync Child and Raising a

Sensory Smart Child.

Good luck.

Nadine

[Guest guest]

sounds like my son

when it comes to bugs, he hates them, he freaks out when he see ones.

>

> www.ourchurch.com/member/b/amyangel/

>

>

>

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> Never miss an email again!

> Toolbar alerts you the instant new Mail arrives. Check it

out.

>

>

[Guest guest]

> what are the diferrent of apraxia? what the differents from oral,

grobel? My son alot og sensory problems buth he eat food fine. His

doctor just say apraxia . isabelle

Dear Isabelle,

Apraxia (also called dyspraxia) is what is known as a motor planning

disorder. That means that the brain sends a signal for the body to

do something but the signal is not iterprted correctly. So if the

brain sends a signal to the mouth to say a word, the word may not

come out correctly or at all. Global apraxia refers to signals that

are sent to different parts of the body. For example, the signal to

clap your hands or jump. Verbal apraxia refers specifucally to

talking.

Sensory processing disorder occurs when the sensory input from the

visual, tactile, auditory etc. systems get misinterpreted and the

brain and central nervous system have difficulty processing the

information. SPD can be very different in different children. Some

are hypersensitive and may not like the feel of certain clothes or

may not like bright lights or loud noises etc. Some are

hyposensitive and they may frantically seek out sensory input by

climbing, pushing, spinning, opening and closing doors etc. Because

the brain is working so hard at processing sensory information it

can't always do other things like work on speech. Some children are

both in different circumstances. SPD is usually diagnosed by an

occupational therapist. There is a good book - the Out-of-Sync-Child

that explains it well.

Hope this Helps.

Nadine

[Guest guest]

I am perplexed. My three year old daughter without a diagnosis is showing

signs of covering her ears with certain things, and saying they are too loud.

She cries and gets upset when things get too loud or there is to much

commotion. Now her thing is if someone says the word MMMM like something tastes

good,

she stops dead in her tracks and starts sobbing. What is this all about does

anyone know? She has a brother on the autism spectrum but she can read and

sing and play, talk up a storm and do a lot of things. She does have an

appointment with the Developmental ped but not until April. She also seems more

tired than usual, maybe she is going through a growth spurt. Any ideas? Jen

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[Guest guest]

Her ears are hypersensitive. I posted an exercise for you late last month to

try for sacral cranial stroking. Did you give it a go? I would look into The

Listening Program or some other type of therapeutic listening before this

problem starts to cascade on you and other systems become affected. Nip it

right away! Don't wait too long before you address this for it will begin to

affect her development in other areas if she has to endure this for too, too

long.

Janice

Mother of Mark, 14

Re: [ ] SENSORY QUESTION

I am perplexed. My three year old daughter without a diagnosis is showing

signs of covering her ears with certain things, and saying they are too loud.

She cries and gets upset when things get too loud or there is to much

commotion. Now her thing is if someone says the word MMMM like something

tastes good,

she stops dead in her tracks and starts sobbing. What is this all about does

anyone know? She has a brother on the autism spectrum but she can read and

sing and play, talk up a storm and do a lot of things. She does have an

appointment with the Developmental ped but not until April. She also seems

more

tired than usual, maybe she is going through a growth spurt. Any ideas? Jen

**************A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

(http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol?redir=http://\

www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De

cemailfooterNO62)

[Guest guest]

My daughter is nearly 4 and a lot like your son. I too have noticed things getting worse but it may be that expectations increase the older that they get. Is he attending OT?? This could help him with both issues you are describing and has truly made a difference in my daughters behaviors....CarolynSent from my iPadOn Mar 2, 2011, at 11:45 AM, Darlene Holik <drores1125@...> wrote:

Hi All,

My 3yr old son was diagnosed with Aspergers in January. I have noticed that things seem to be getting worse for him...he hates having clothes on, and complains that his 100% cotton sheet hurts his skin. I try to make him as comfortable as possible, but have a hard time doing so. He has also started to complain about loud noises like the tv or stereo hurting him as well...is this going to get worse? Is there any advice someone can offer as to how to make him more comfortable? I make sure his clothes are soft...nothing but elastic waste bands, but when we are home, he takes everything off.

From: susanne hansen <s_hansen34@...> Sent: Wed, March 2, 2011 11:33:59 AMSubject: Re: ( ) new to asper group

Hi Jacki and welcome to the group. Glad to have you! Hopefully we can help you along the way. My son is now 14 and things have gotten better but it takes time and SOOOO much patience. But the hardest part is seeing them struggle or hurt. So every time I am at my wits end I tell myself it is nothing compared to what my son must be going through. That is just one of my coping strategies. ne> From: jacki <jacki842000@...>> Subject: ( ) new to asper group> > Date: Monday, February 28, 2011, 7:36 PM> > > > > > > > > > > > > > > > > > > > > > > > > > hi everyone > > i didnt see my post from before. thought i would post> again.> > my son is 9 yrs old the school diagnosed him with asper.> > i sure need this group to help my son and me do better> with> > issues. he twitches head, fingers , flaps arms, stares> off,> > behavior issues at home not at school with not getting> way.> > is doing iep at school helping him alittle more. motor> skills> > are very delayed. i hope you all can send me some support

> > i will try to help you too. just nice to have other> parents> > going through the same will help me so much i cry alot. > > wish i could help my son more. jacki > > > > > > > > > > > > > > > > > > > > > > > > > >

[Guest guest]

OT? Occupational Therapy? Sorry, so new Im not yet familiar with all of the abbreviations I see on here. As I stated, he was just diagnosed in January...he had his MRI & EEG a week ago & we have a follow up appt on the 17th. I will talk with the neurologist at that time.

Thank you!

From: Carolyn <ccweisbard@...>" " < >Sent: Wed, March 2, 2011 3:23:51 PMSubject: Re: ( ) Sensory Question

My daughter is nearly 4 and a lot like your son. I too have noticed things getting worse but it may be that expectations increase the older that they get. Is he attending OT?? This could help him with both issues you are describing and has truly made a difference in my daughters behaviors....

Carolyn

Sent from my iPad

On Mar 2, 2011, at 11:45 AM, Darlene Holik <drores1125@...> wrote:

Hi All,

My 3yr old son was diagnosed with Aspergers in January. I have noticed that things seem to be getting worse for him...he hates having clothes on, and complains that his 100% cotton sheet hurts his skin. I try to make him as comfortable as possible, but have a hard time doing so. He has also started to complain about loud noises like the tv or stereo hurting him as well...is this going to get worse? Is there any advice someone can offer as to how to make him more comfortable? I make sure his clothes are soft...nothing but elastic waste bands, but when we are home, he takes everything off.

From: susanne hansen <s_hansen34@...> Sent: Wed, March 2, 2011 11:33:59 AMSubject: Re: ( ) new to asper group

Hi Jacki and welcome to the group. Glad to have you! Hopefully we can help you along the way. My son is now 14 and things have gotten better but it takes time and SOOOO much patience. But the hardest part is seeing them struggle or hurt. So every time I am at my wits end I tell myself it is nothing compared to what my son must be going through. That is just one of my coping strategies. ne> From: jacki <jacki842000@...>> Subject: ( ) new to asper group> > Date: Monday, February 28, 2011, 7:36 PM> > > > > > > > > > > > > > > > > > > > > > > > > > hi everyone > > i didnt see my post from before. thought i would post> again.> > my son is 9 yrs old the school diagnosed him with asper.> > i sure need this group to help my son and me do

better> with> > issues. he twitches head, fingers , flaps arms, stares> off,> > behavior issues at home not at school with not getting> way.> > is doing iep at school helping him alittle more. motor> skills> > are very delayed. i hope you all can send me some support > > i will try to help you too. just nice to have other> parents> > going through the same will help me so much i cry alot. > > wish i could help my son more. jacki > > > > > > > > > > > > > > > > > > > > > > > > > >

[Guest guest]

My advice is to find an OT who is very experienced in dealing with SPD and begin

therapy to deal with it. SPD never completely goes away but your child can learn

coping mechanisms. The early that you deal with SPD the better.

My son's SPD issues have varied greatly over the years. I once asked an OT who

was very experienced in treating SPD about it. She said that it was quite common

for SPD issues to change intensity over periods of time. My son was dx'ed with

mild sensory issues at age 3. But SPD continues to be an issue for us even now

at age 15. For us kindergarten was difficult as it was set up as a standard

classroom rather than a sensory one like the preschool had. Another difficult

time was going from elementary school with few transitions and recess to middle

school with lots of transitions and no recess. When my son's SPD over whelmed

him in kindergarten we went to a private OT. She helped us tremendously in 1)

treating my son's SPD effectively and 2) educating us about SPD and how we could

deal with it better. Unfortunately this OT moved away so my son only saw her for

@ 6 months.

Caroline

>

> > From: jacki <jacki842000@...>

> > Subject: ( ) new to asper group

> >

> > Date: Monday, February 28, 2011, 7:36 PM

> >

> >

> >

> >

> >

> >

> >

> >

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> >

> > hi everyone

> >

> > i didnt see my post from before. thought i would post

> > again.

> >

> > my son is 9 yrs old the school diagnosed him with asper.

> >

> > i sure need this group to help my son and me do better

> > with

> >

> > issues. he twitches head, fingers , flaps arms, stares

> > off,

> >

> > behavior issues at home not at school with not getting

> > way.

> >

> > is doing iep at school helping him alittle more. motor

> > skills

> >

> > are very delayed. i hope you all can send me some support

> >

> > i will try to help you too. just nice to have other

> > parents

> >

> > going through the same will help me so much i cry alot.

> >

> > wish i could help my son more. jacki

> >

> >

> >

> >

> >

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> >

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>

[Guest guest]

Yes occupational therapy. It has made a world of difference for my daughterSent from my iPadOn Mar 2, 2011, at 4:00 PM, Darlene Holik <drores1125@...> wrote:

OT? Occupational Therapy? Sorry, so new Im not yet familiar with all of the abbreviations I see on here. As I stated, he was just diagnosed in January...he had his MRI & EEG a week ago & we have a follow up appt on the 17th. I will talk with the neurologist at that time.

Thank you!

From: Carolyn <ccweisbard@...>" " < >Sent: Wed, March 2, 2011 3:23:51 PMSubject: Re: ( ) Sensory Question

My daughter is nearly 4 and a lot like your son. I too have noticed things getting worse but it may be that expectations increase the older that they get. Is he attending OT?? This could help him with both issues you are describing and has truly made a difference in my daughters behaviors....

Carolyn

Sent from my iPad

On Mar 2, 2011, at 11:45 AM, Darlene Holik <drores1125@...> wrote:

Hi All,

My 3yr old son was diagnosed with Aspergers in January. I have noticed that things seem to be getting worse for him...he hates having clothes on, and complains that his 100% cotton sheet hurts his skin. I try to make him as comfortable as possible, but have a hard time doing so. He has also started to complain about loud noises like the tv or stereo hurting him as well...is this going to get worse? Is there any advice someone can offer as to how to make him more comfortable? I make sure his clothes are soft...nothing but elastic waste bands, but when we are home, he takes everything off.

From: susanne hansen <s_hansen34@...> Sent: Wed, March 2, 2011 11:33:59 AMSubject: Re: ( ) new to asper group

Hi Jacki and welcome to the group. Glad to have you! Hopefully we can help you along the way. My son is now 14 and things have gotten better but it takes time and SOOOO much patience. But the hardest part is seeing them struggle or hurt. So every time I am at my wits end I tell myself it is nothing compared to what my son must be going through. That is just one of my coping strategies. ne> From: jacki <jacki842000@...>> Subject: ( ) new to asper group> > Date: Monday, February 28, 2011, 7:36 PM> > > > > > > > > > > > > > > > > > > > > > > > > > hi everyone > > i didnt see my post from before. thought i would post> again.> > my son is 9 yrs old the school diagnosed him with asper.> > i sure need this group to help my son and me do

better> with> > issues. he twitches head, fingers , flaps arms, stares> off,> > behavior issues at home not at school with not getting> way.> > is doing iep at school helping him alittle more. motor> skills> > are very delayed. i hope you all can send me some support > > i will try to help you too. just nice to have other> parents> > going through the same will help me so much i cry alot. > > wish i could help my son more. jacki > > > > > > > > > > > > > > > > > > > > > > > > > >

[Guest guest]

Again I have to ditto what Deborah said. My son has to have the tags cut out of all his clothes and he only likes cotton sheets and clothes. He says any other material makes his "pecks" feel sensitive. LOL!

He also rides the bus with headphones on to listen to his Ipod or DS and drown out other noices.

At 14 the still comes home and strips down to pajama pants or shorts only. He can't stand shoes, socks or long sleeved shirts, and never has liked them.

His sensory issues have gotten better as he has gotten older. He has learned to cope better. There are still certain things he will avoid like the plague or has to do all the time because it calms him, like chewing on things. ne> From: jacki <jacki842000@...>> Subject: ( ) new to asper group> > Date: Monday, February 28, 2011, 7:36 PM> > > > > > > > > > > > > > > > > > > > > > > > > > hi everyone > > i didnt see my post from before. thought i would post> again.> > my son is 9 yrs old the school diagnosed him with asper.> > i sure need this group to help my son and me do better> with> > issues. he twitches head, fingers , flaps arms, stares> off,> > behavior issues at home not at school with not getting> way.> > is doing iep at school helping

him alittle more. motor> skills> > are very delayed. i hope you all can send me some support > > i will try to help you too. just nice to have other> parents> > going through the same will help me so much i cry alot. > > wish i could help my son more. jacki > > > > > > > > > > > > > > > > > > > > > > > > > >

[Guest guest]

i forgot about all the chewing! my son makes a beaver look like a dull chainsaw. he can chew through a pencil in 5 minutes, including the eraser and metal thing that holds it in. his teacher gives him gum to chew all day and that really helps out. he will chew on anything that is plastic also, like the lids to water bottles, small balls, his computer mouse, it doesnt really matter. Sycamore Art StudiosSycamore Art SchoolDeborah GustlinGraphic & Web DesignArt classes for K-12www.sycamoreartstudios.comwww.sycamoreartschool.comHome: 408-710-0892 Business: 408-710-6070From: susanne hansen

<s_hansen34@...> Sent: Wed, March 2, 2011 7:47:26 PMSubject: Re: ( ) Sensory Question

Again I have to ditto what Deborah said. My son has to have the tags cut out of all his clothes and he only likes cotton sheets and clothes. He says any other material makes his "pecks" feel sensitive. LOL!

He also rides the bus with headphones on to listen to his Ipod or DS and drown out other noices.

At 14 the still comes home and strips down to pajama pants or shorts only. He can't stand shoes, socks or long sleeved shirts, and never has liked them.

His sensory issues have gotten better as he has gotten older. He has learned to cope better. There are still certain things he will avoid like the plague or has to do all the time because it calms him, like chewing on things. ne> From: jacki <jacki842000@...>> Subject: ( ) new to asper group> > Date: Monday, February 28, 2011, 7:36 PM> > > > > > > > > > > > > > > > > > > > > > > > > > hi everyone > > i didnt see my post from before. thought i would post> again.> > my son is 9 yrs old the school diagnosed him with asper.> > i sure need this group to help my son and me do better> with> > issues. he twitches head, fingers , flaps arms, stares> off,> > behavior issues at home not at school with not getting> way.> > is doing iep at school helping

him alittle more. motor> skills> > are very delayed. i hope you all can send me some support > > i will try to help you too. just nice to have other> parents> > going through the same will help me so much i cry alot. > > wish i could help my son more. jacki > > > > > > > > > > > > > > > > > > > > > > > > > >

[Guest guest]

Any advice on how to locate an OT experienced with sensory issues? My son has a few sensory issues that need attention, but not SPD. From: Catcelia <c2cats@...>Subject: ( ) Re: Sensory Question Date: Wednesday, March 2, 2011, 6:40 PM

My advice is to find an OT who is very experienced in dealing with SPD and begin therapy to deal with it. SPD never completely goes away but your child can learn coping mechanisms. The early that you deal with SPD the better.

My son's SPD issues have varied greatly over the years. I once asked an OT who was very experienced in treating SPD about it. She said that it was quite common for SPD issues to change intensity over periods of time. My son was dx'ed with mild sensory issues at age 3. But SPD continues to be an issue for us even now at age 15. For us kindergarten was difficult as it was set up as a standard classroom rather than a sensory one like the preschool had. Another difficult time was going from elementary school with few transitions and recess to middle school with lots of transitions and no recess. When my son's SPD over whelmed him in kindergarten we went to a private OT. She helped us tremendously in 1) treating my son's SPD effectively and 2) educating us about SPD and how we could deal with it better. Unfortunately this OT moved away so my son only saw her for @ 6 months.

Caroline

[Guest guest]

My son who is 5 is the same way except for the sheets. He hasn't mentioned that one so thanks for the heads up. We also use large earphones to help drown out some of the noise especially when we go to Disneyland and/or fireworks. Regarding the clothes, we too had to put some rules in place too. For a while, my son was chewing on anything he could get his hands on, so we bought him "chew toys". He loves them!From: susanne

hansen <s_hansen34@...> Sent: Wed, March 2, 2011 7:47:26 PMSubject: Re: ( ) Sensory Question

Again I have to ditto what Deborah said. My son has to have the tags cut out of all his clothes and he only likes cotton sheets and clothes. He says any other material makes his "pecks" feel sensitive. LOL!

He also rides the bus with headphones on to listen to his Ipod or DS and drown out other noices.

At 14 the still comes home and strips down to pajama pants or shorts only. He can't stand shoes, socks or long sleeved shirts, and never has liked them.

His sensory issues have gotten better as he has gotten older. He has learned to cope better. There are still certain things he will avoid like the plague or has to do all the time because it calms him, like chewing on things. ne> From: jacki <jacki842000@...>> Subject: ( ) new to asper group> > Date: Monday, February 28, 2011, 7:36 PM> > > > > > > > > > > > > > > > > > > > > > > > > > hi everyone > > i didnt see my post from before. thought i would post> again.> > my son is 9 yrs old the school diagnosed him with asper.> > i sure need this group to help my son and me do better> with> > issues. he twitches head, fingers , flaps arms, stares> off,> > behavior issues at home not at school with not getting> way.> > is doing iep at school helping

him alittle more. motor> skills> > are very delayed. i hope you all can send me some support > > i will try to help you too. just nice to have other> parents> > going through the same will help me so much i cry alot. > > wish i could help my son more. jacki > > > > > > > > > > > > > > > > > > > > > > > > > >

[Guest guest]

I have to know from other parents...is there an age where the aspergers' is at its full potential & that's the worst it will ever be? OR, will my son continue to have new issues and side effects from this disorder? Im just curious as to what Im in for...my boy is only 3yrs old now, and I am noticing something new with him every week or so...please advise.

From: susanne hansen <s_hansen34@...> Sent: Wed, March 2, 2011 9:47:26 PMSubject: Re: ( ) Sensory Question

Again I have to ditto what Deborah said. My son has to have the tags cut out of all his clothes and he only likes cotton sheets and clothes. He says any other material makes his "pecks" feel sensitive. LOL!

He also rides the bus with headphones on to listen to his Ipod or DS and drown out other noices.

At 14 the still comes home and strips down to pajama pants or shorts only. He can't stand shoes, socks or long sleeved shirts, and never has liked them.

His sensory issues have gotten better as he has gotten older. He has learned to cope better. There are still certain things he will avoid like the plague or has to do all the time because it calms him, like chewing on things. ne> From: jacki <jacki842000@...>> Subject: ( ) new to asper group> > Date: Monday, February 28, 2011, 7:36 PM> > > > > > > > > > > > > > > > > > > > > > > > > > hi everyone > > i didnt see my post from before. thought i would post> again.> > my son is 9 yrs old the school diagnosed him with asper.> > i sure need this group to help my son and me do better> with> > issues. he twitches head, fingers , flaps arms, stares> off,> > behavior issues at home not at school with not getting> way.> > is doing iep at school helping him alittle more. motor> skills> > are very delayed. i hope you all can send me some support > > i will try to help

you too. just nice to have other> parents> > going through the same will help me so much i cry alot. > > wish i could help my son more. jacki > > > > > > > > > > > > > > > > > > > > > > > > > >

[Guest guest]

There's a list of providers on the SPD site. And you can also just call your

local health provider and ask for an OT with experience in SPD. Before you start

with the OT you should talk with her regarding her experience in dealing with

SPD. Not all OT's have dealt with sensory issues. And the ones that have vary

greatly in their experience. It's a bit of a crap shoot. I lucked out on finding

one because I really wasn't familiar with SPD at that time.

Here's a link to the SPD site:

http://www.spdnetwork.org/

Caroline

>

> From: Catcelia <c2cats@...>

> Subject: ( ) Re: Sensory Question

>

> Date: Wednesday, March 2, 2011, 6:40 PM

>

>

>

>

>

>

>

>  

>

>

>

>

>

>

>

>

>

> My advice is to find an OT who is very experienced in dealing with SPD

and begin therapy to deal with it. SPD never completely goes away but your child

can learn coping mechanisms. The early that you deal with SPD the better.

>

>

>

> My son's SPD issues have varied greatly over the years. I once asked an OT who

was very experienced in treating SPD about it. She said that it was quite common

for SPD issues to change intensity over periods of time. My son was dx'ed with

mild sensory issues at age 3. But SPD continues to be an issue for us even now

at age 15. For us kindergarten was difficult as it was set up as a standard

classroom rather than a sensory one like the preschool had. Another difficult

time was going from elementary school with few transitions and recess to middle

school with lots of transitions and no recess. When my son's SPD over whelmed

him in kindergarten we went to a private OT. She helped us tremendously in 1)

treating my son's SPD effectively and 2) educating us about SPD and how we could

deal with it better. Unfortunately this OT moved away so my son only saw her for

@ 6 months.

>

>

>

> Caroline

>

[Guest guest]

Mine too- crunchy snacks and beef jerky seem to help a lot as well. OT reccommended frozen gummy bears and worms, and he loves that, but tought to do at school. We give himt eh Vitamin C kind and hope the extra boost will help hi fend off the germs. When he was younger it was always the shopping cart we cold not get out of his mouth - he just loved the metal. At the end of Kindergarten they sent home his pencil box and it was full of shrapnel from those metal things on the pencils- they make awesome chewy things to cover the ends and some even vibrate.

From: Deborah Gustlin <sycamorestudios@...> Sent: Wed, March 2, 2011 10:13:28 PMSubject: Re: ( ) Sensory Question

i forgot about all the chewing! my son makes a beaver look like a dull chainsaw. he can chew through a pencil in 5 minutes, including the eraser and metal thing that holds it in. his teacher gives him gum to chew all day and that really helps out. he will chew on anything that is plastic also, like the lids to water bottles, small balls, his computer mouse, it doesnt really matter.

Sycamore Art StudiosSycamore Art SchoolDeborah GustlinGraphic & Web DesignArt classes for K-12www.sycamoreartstudios.comwww.sycamoreartschool.comHome: 408-710-0892 Business:

408-710-6070

From: susanne hansen <s_hansen34@...> Sent: Wed, March 2, 2011 7:47:26 PMSubject: Re: ( ) Sensory Question

Again I have to ditto what Deborah said. My son has to have the tags cut out of all his clothes and he only likes cotton sheets and clothes. He says any other material makes his "pecks" feel sensitive. LOL!

He also rides the bus with headphones on to listen to his Ipod or DS and drown out other noices.

At 14 the still comes home and strips down to pajama pants or shorts only. He can't stand shoes, socks or long sleeved shirts, and never has liked them.

His sensory issues have gotten better as he has gotten older. He has learned to cope better. There are still certain things he will avoid like the plague or has to do all the time because it calms him, like chewing on things. ne> From: jacki <jacki842000@...>> Subject: ( ) new to asper group> > Date: Monday, February 28, 2011, 7:36 PM> > > > > > > > > > > > > > > > > > > > > > > > > > hi everyone > > i didnt see my post from before. thought i would post> again.> > my son is 9 yrs old the school diagnosed him with asper.> > i sure need this group to help my son and me do better> with> > issues. he twitches head, fingers , flaps arms, stares> off,> > behavior issues at home not at school with not getting> way.> > is doing iep at school helping him alittle more. motor> skills> > are very delayed. i hope you all can send me some support > > i will try to help

you too. just nice to have other> parents> > going through the same will help me so much i cry alot. > > wish i could help my son more. jacki > > > > > > > > > > > > > > > > > > > > > > > > > >

[Guest guest]

,

Check " yellowpagesforkids.com " and look for services in your local area then I

would call them and ask questions. Just a thought...

ne

>

> From: Catcelia <c2cats@...>

> Subject: ( ) Re: Sensory Question

>

> Date: Wednesday, March 2, 2011, 6:40 PM

>

>

>

>

>

>

>

>  

>

>

>

>

>

>

> My advice is to find an OT who is very experienced

> in dealing with SPD and begin therapy to deal with it. SPD

> never completely goes away but your child can learn coping

> mechanisms. The early that you deal with SPD the better.

>

>

>

> My son's SPD issues have varied greatly over the years.

> I once asked an OT who was very experienced in treating SPD

> about it. She said that it was quite common for SPD issues

> to change intensity over periods of time. My son was

> dx'ed with mild sensory issues at age 3. But SPD

> continues to be an issue for us even now at age 15. For us

> kindergarten was difficult as it was set up as a standard

> classroom rather than a sensory one like the preschool had.

> Another difficult time was going from elementary school with

> few transitions and recess to middle school with lots of

> transitions and no recess. When my son's SPD over

> whelmed him in kindergarten we went to a private OT. She

> helped us tremendously in 1) treating my son's SPD

> effectively and 2) educating us about SPD and how we could

> deal with it better. Unfortunately this OT moved away so my

> son only saw her for @ 6 months.

>

>

>

> Caroline

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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>

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[Guest guest]

Hi ,

There is a list of service providers on the SPD Foundation website here:

http://www.spdnetwork.org/directory/index.html That is where we found the OT who

originally dx'd my son with SPD. I will add that the OT we see now is not on

that list, but is a very experienced senior pediatric OT at a university

hospital, and she also has a great understanding of sensory issues, so there are

other good providers out there.

Bridget

>

> From: Catcelia <c2cats@...>

> Subject: ( ) Re: Sensory Question

>

> Date: Wednesday, March 2, 2011, 6:40 PM

>

>

>

>

>

>

>

>  

>

>

>

>

>

>

>

>

>

> My advice is to find an OT who is very experienced in dealing with SPD

and begin therapy to deal with it. SPD never completely goes away but your child

can learn coping mechanisms. The early that you deal with SPD the better.

>

>

>

> My son's SPD issues have varied greatly over the years. I once asked an OT who

was very experienced in treating SPD about it. She said that it was quite common

for SPD issues to change intensity over periods of time. My son was dx'ed with

mild sensory issues at age 3. But SPD continues to be an issue for us even now

at age 15. For us kindergarten was difficult as it was set up as a standard

classroom rather than a sensory one like the preschool had. Another difficult

time was going from elementary school with few transitions and recess to middle

school with lots of transitions and no recess. When my son's SPD over whelmed

him in kindergarten we went to a private OT. She helped us tremendously in 1)

treating my son's SPD effectively and 2) educating us about SPD and how we could

deal with it better. Unfortunately this OT moved away so my son only saw her for

@ 6 months.

>

>

>

> Caroline

>