Re: Canadian parents... and surgery after tenotomy?

[Guest guest]

I have NO idea on this... and would default to Dr. Ponseti (poor, poor Dr.

Ponseti...) on this one. Ask for copies of the u/s where it shows these

bones that need to be surgically placed and send them to him asking about

it. I'm inclined to think that the bones can be manipulated into place by

hand because that's the whole basis of the Ponseti Method, but I'm no

expert by any means. Since you can.... check it out with Dr. P and then

you'll know.

Kori

At 04:38 PM 2/11/2005, you wrote:

>I'm in Montreal and my son is being treated at St. JUstine's by Drs

>Grimard and Morin. Just wondering if anyone has any experience with

>them. They are using the Ponseti method.

>

>The tenotomy was last week and based on the ultasound of the foot,

>Dr. Grimard suggested he may need a further operation to place the

>bones in the foot. That need would be re-evaluated in a few months,

>as the improved flexibility might allow them to move into proper

>position.

>

>Based on their initial assessment, has a very severe case of

>clubbed feet, as did his father. I guess I'm just getting nervous

>based on some comments someone made. Just looking for some comments.

>

>TIA

>

>Dayle

>- (12/04) <-- not ANOTHER surgery?!?!

>

>http://dayle.kravec.com

>

>

>

>

>

>

>

>

[Guest guest]

Dayle I don't want to get excited here because I think we need more information

but the first question that comes to my mind is this: (maybe not a question

but more of a comment?) um... if he's been casted and has had his tenotomy -

theoretically his feet should be totally corrected now, awaiting only the

tenotomy to heal and begin using the DBB.

Can you tell us how many casts your son wore? Were they full length (toe to

groin)?

s.

Canadian parents... and surgery after tenotomy?

I'm in Montreal and my son is being treated at St. JUstine's by Drs

Grimard and Morin. Just wondering if anyone has any experience with

them. They are using the Ponseti method.

The tenotomy was last week and based on the ultasound of the foot,

Dr. Grimard suggested he may need a further operation to place the

bones in the foot. That need would be re-evaluated in a few months,

as the improved flexibility might allow them to move into proper

position.

Based on their initial assessment, has a very severe case of

clubbed feet, as did his father. I guess I'm just getting nervous

based on some comments someone made. Just looking for some comments.

TIA

Dayle

- (12/04) <-- not ANOTHER surgery?!?!

http://dayle.kravec.com

[Guest guest]

A while back there was a parent posting here (forget who) - they were facing

surgery because their dr. said the baby's foot bones were out of alignment...

anyone remember this? Club foot is where the bones are out of alignment, with

proper casting they are put back in place non surgically and if I remember

right, this parent found a Ponseti dr. who did that.

s.

Re: Canadian parents... and surgery after

tenotomy?

I have NO idea on this... and would default to Dr. Ponseti (poor, poor Dr.

Ponseti...) on this one. Ask for copies of the u/s where it shows these

bones that need to be surgically placed and send them to him asking about

it. I'm inclined to think that the bones can be manipulated into place by

hand because that's the whole basis of the Ponseti Method, but I'm no

expert by any means. Since you can.... check it out with Dr. P and then

you'll know.

Kori

At 04:38 PM 2/11/2005, you wrote:

>I'm in Montreal and my son is being treated at St. JUstine's by Drs

>Grimard and Morin. Just wondering if anyone has any experience with

>them. They are using the Ponseti method.

>

>The tenotomy was last week and based on the ultasound of the foot,

>Dr. Grimard suggested he may need a further operation to place the

>bones in the foot. That need would be re-evaluated in a few months,

>as the improved flexibility might allow them to move into proper

>position.

>

>Based on their initial assessment, has a very severe case of

>clubbed feet, as did his father. I guess I'm just getting nervous

>based on some comments someone made. Just looking for some comments.

>

>TIA

>

>Dayle

>- (12/04) <-- not ANOTHER surgery?!?!

>

>http://dayle.kravec.com

>

>

>

>

>

>

>

>

[Guest guest]

Hi Tia,

Hopefully will see this post, she and her hubby Dan live in

Montreal and see a Ponseti trained doctor and have had a great

outcome with their daughters foot. Personally, the mention of surgery

would raise major red flags with me!

I like you would be searching out as much info as I could regarding

these doctors, like are they appling the Ponseti method correctly? If

so, even a difficult case should be able to be treated by casts!! Our

daughter was brought to full correction with 4 casts and no tenotomy,

we see a very skilled Ponseti doctor in Vancouver BC. I would soooooo

get a second opinion even if my doctor was mentioning the

*possibility* of surgery!

It is good that you are here! You will learn so much from the people

on this site! I never even knew what club foot was before my daughter

was born with it. I feel very blessed to have found such a good

Ponseti doctor and this site!

& Grace 07-21-04

Right Unilateral club foot

FAB (Dennise Browne boots and bar) 16 hrs.

>

> I'm in Montreal and my son is being treated at St. JUstine's by Drs

> Grimard and Morin. Just wondering if anyone has any experience

with

> them. They are using the Ponseti method.

>

> The tenotomy was last week and based on the ultasound of the foot,

> Dr. Grimard suggested he may need a further operation to place the

> bones in the foot. That need would be re-evaluated in a few months,

> as the improved flexibility might allow them to move into proper

> position.

>

> Based on their initial assessment, has a very severe case of

> clubbed feet, as did his father. I guess I'm just getting nervous

> based on some comments someone made. Just looking for some

comments.

>

> TIA

>

> Dayle

> - (12/04) <-- not ANOTHER surgery?!?!

>

> http://dayle.kravec.com

[Guest guest]

Duh!! I meant to say " Hi Dayle " not hi TIA hehe, sorry!

& Grace

> >

> > I'm in Montreal and my son is being treated at St. JUstine's by

Drs

> > Grimard and Morin. Just wondering if anyone has any experience

> with

> > them. They are using the Ponseti method.

> >

> > The tenotomy was last week and based on the ultasound of the

foot,

> > Dr. Grimard suggested he may need a further operation to place

the

> > bones in the foot. That need would be re-evaluated in a few

months,

> > as the improved flexibility might allow them to move into proper

> > position.

> >

> > Based on their initial assessment, has a very severe case

of

> > clubbed feet, as did his father. I guess I'm just getting nervous

> > based on some comments someone made. Just looking for some

> comments.

> >

> > TIA

> >

> > Dayle

> > - (12/04) <-- not ANOTHER surgery?!?!

> >

> > http://dayle.kravec.com

[Guest guest]

Hi,

The casts were full length, and he had a total of 6 casts prior to

the surgery. It was going to be the week the 6th was put on, but

there was an emergency surgery that bumped us that day. So the last

cast was done pretty much wihtout any manipulation.

I am seeing the doctor on tuesday, the post-op cast will be changed

(on for 2 weeks) or removed. Do you have any questions to suggest I

ask?

Thanks,

Dayle

> Dayle I don't want to get excited here because I think we need

more information but the first question that comes to my mind is

this: (maybe not a question but more of a comment?) um... if he's

been casted and has had his tenotomy - theoretically his feet should

be totally corrected now, awaiting only the tenotomy to heal and

begin using the DBB.

> Can you tell us how many casts your son wore? Were they full

length (toe to groin)?

> s.

>

> Canadian parents... and surgery

after tenotomy?

>

>

>

>

> I'm in Montreal and my son is being treated at St. JUstine's by

Drs

> Grimard and Morin. Just wondering if anyone has any experience

with

> them. They are using the Ponseti method.

>

> The tenotomy was last week and based on the ultasound of the foot,

> Dr. Grimard suggested he may need a further operation to place the

> bones in the foot. That need would be re-evaluated in a few

months,

> as the improved flexibility might allow them to move into proper

> position.

>

> Based on their initial assessment, has a very severe case

of

> clubbed feet, as did his father. I guess I'm just getting nervous

> based on some comments someone made. Just looking for some

comments.

>

> TIA

>

> Dayle

> - (12/04) <-- not ANOTHER surgery?!?!

>

> http://dayle.kravec.com

>

>

>

>

>

>

>

>

[Guest guest]

I'm still not sure - anyone else want to chime in here? I guess about all I

can speculate is this: if your son wears his DBB with out any issue, you can

generally figure his feet were corrected properly. If he has big issues with

the DBB (pain, blisters, pressure sores, heels not fitting, etc.) then they

probably are not corrected properly. The DBB won't do a thing for correction,

not sure if you know that or not - they maintain correction but don't give

correction. Anyway - if in a few months your dr. is still talking surgery I'd

definately seek out a 2nd or 3rd opinion first. Once an operation takes place

there's no going back.

s.

Canadian parents... and surgery

after tenotomy?

>

>

>

>

> I'm in Montreal and my son is being treated at St. JUstine's by

Drs

> Grimard and Morin. Just wondering if anyone has any experience

with

> them. They are using the Ponseti method.

>

> The tenotomy was last week and based on the ultasound of the foot,

> Dr. Grimard suggested he may need a further operation to place the

> bones in the foot. That need would be re-evaluated in a few

months,

> as the improved flexibility might allow them to move into proper

> position.

>

> Based on their initial assessment, has a very severe case

of

> clubbed feet, as did his father. I guess I'm just getting nervous

> based on some comments someone made. Just looking for some

comments.

>

> TIA

>

> Dayle

> - (12/04) <-- not ANOTHER surgery?!?!

>

> http://dayle.kravec.com

>

>

>

>

>

>

>

>

[Guest guest]

Hi Dayle-

I would definately get a second opionion from a certified Ponseti

doctor with lots of experience. There are many doctors practicing

the Ponseti Method, but not ALL of them are able to manipulate the

foot enough to avoid surgery. Since your doctor mentioned possible

surgery that would suggest he can't manipulate to the level your son

needs. With Ponseti method everything is corrected by the tenonomy

time and that is the last thing. You don't do the tenonmy and still

have bones out of place. You are suppose to have the whole foot

corrected and then just do the tenonomy to bring the heel down.

Sorry I'm in the US, so don't have some to recommend. Did you check

the Ponseti Certified list???

>

>

> >I'm in Montreal and my son is being treated at St. JUstine's by

Drs

> >Grimard and Morin. Just wondering if anyone has any experience

with

> >them. They are using the Ponseti method.

> >

> >The tenotomy was last week and based on the ultasound of the foot,

> >Dr. Grimard suggested he may need a further operation to place the

> >bones in the foot. That need would be re-evaluated in a few

months,

> >as the improved flexibility might allow them to move into proper

> >position.

> >

> >Based on their initial assessment, has a very severe case

of

> >clubbed feet, as did his father. I guess I'm just getting nervous

> >based on some comments someone made. Just looking for some

comments.

> >

> >TIA

> >

> >Dayle

> >- (12/04) <-- not ANOTHER surgery?!?!

> >

> >http://dayle.kravec.com

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Dayle-

These are the certified doctors in Canada. I hope one is close

enough for you to get a second opionion:

P. Carey, M.D.

London Health Sciences Centre

Campus-W

London ON N6K 4BC Canada

Tel:

Fax:

Email Dr. Carey

Dr. son

Queen's University

76 Stuart Street

Kingston, Ontario, Canada K7L 2V7

Tel:

Fax:

Email Dr. son

Dr. J. Norgrove Penny, M.D.

P.O. Box 5007

, B.C., V8R 6N3 Canada

Tel:

Fax:

Email Dr. Penny

Shafique Pirani, MD

205-245 East Columbia Street

New Westminster

British Columbia

Canada V3L 3W4

Tel:

Fax:

Email Dr. Pirani

The only one I've heard used on the board is Pirani.

>

> I'm in Montreal and my son is being treated at St. JUstine's by

Drs

> Grimard and Morin. Just wondering if anyone has any experience

with

> them. They are using the Ponseti method.

>

> The tenotomy was last week and based on the ultasound of the foot,

> Dr. Grimard suggested he may need a further operation to place the

> bones in the foot. That need would be re-evaluated in a few

months,

> as the improved flexibility might allow them to move into proper

> position.

>

> Based on their initial assessment, has a very severe case

of

> clubbed feet, as did his father. I guess I'm just getting nervous

> based on some comments someone made. Just looking for some

comments.

>

> TIA

>

> Dayle

> - (12/04) <-- not ANOTHER surgery?!?!

>

> http://dayle.kravec.com

[Guest guest]

Hi Dayle,

We're in Mtl also!!! please email us off line tec8f20@... and we'll

give you our phone number if you want to talk with us- we went through this

5 years ago with our daughter Emma (our story is at

http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/emma.html ).

Thanks to Emma's great results (by Dr. Ponseti) the Shriner's and the

doctors from other hospitals working out of the Shriners gradually switched

from surgery to the Ponseti method. So this means that they have only been

at it a few years and they are not certified in the method yet. Basically I

can't say how well they are doing.

If they are warning you of a surgery I would get a second opinion from

either Dr. Ponseti himself (the best in the world) or if you want to stay in

Canada either with Dr. Tim Carey in London, Dr. Pirani in Vancouver, or Dr.

son in Kingston.

Most importantly if he's going into the FAB the feet should already be fully

corrected. The FAB only maintains corrected feet. Is irritable in

the brace now? How are your husband's feet doing today-- he must have had

surgery?

The name Morin rings a bell. Dr. P and Morcuende (in Iowa) mentioned that

he went for training in Iowa a few years ago. I don't know how well he's

doing the method.

Anyway, please contact us and we'll talk....

& Emma

Emma 18-10-99. Montreal, Canada

moderately severe bilateral clubfoot

3 months unsuccessful local casting pending surgery

corrected by Dr. Ponseti with 3 casts & tenotomy

unfortunately out of FAB too early, just before 2 yrs old (loose ligaments)

relapse, ATTT at 4 years old, doing great.

Canadian parents... and surgery after

tenotomy?

I'm in Montreal and my son is being treated at St. JUstine's by Drs

Grimard and Morin. Just wondering if anyone has any experience with

them. They are using the Ponseti method.

The tenotomy was last week and based on the ultasound of the foot,

Dr. Grimard suggested he may need a further operation to place the

bones in the foot. That need would be re-evaluated in a few months,

as the improved flexibility might allow them to move into proper

position.

Based on their initial assessment, has a very severe case of

clubbed feet, as did his father. I guess I'm just getting nervous

based on some comments someone made. Just looking for some comments.

TIA

Dayle

- (12/04) <-- not ANOTHER surgery?!?!

http://dayle.kravec.com