Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 I'm back again. Lindsey was dx with RSS almost two years ago,but I'm not convinced she has this,but then I start thinking maybe she does and I join again lol. Anyway, Lindsey biggest concern right now is her speech, she will be 8 in June and still has very little air sounds,and she has verbal and oral apraxia,along with oral motor weakness. I was doing a search on apraxia again about 1 month ago and It led me to a site,pub med or something where a child was apraxic and had Floating harbor syndrome. I joined the group,to learn more about it,and was amazed how similar it is to RSS. Some of the pictures the people would send in looked so RSS,but were dx as FHS. 2 big features in FHS, is a wide nose(some didnt)& severe expressive language delay and MR,although most of the people on the list have never had their kids tested,but are several years behind their peers,just like Lindsey,but Lindsey is not MR,so RSS fits her better if she has it.. Why am I telling you this? I have no idea! I just want to share,and say Hi! Jennie Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.