KC newspaper piece about mito

[Guest guest]

http://www.kansascity.com/mld/kansascity/news/opinion/14557856.htm

[Guest guest]

Hi Kristie! I just turned Mitoldies email back on after an extended

" vacation. " Glad to be back. Making progress finally and feeling hopeful

that my new G-tube will work much better than the old J-tube. Good signs

right now, anyway, and gaining strength. We did have to get an adjustable

bed now that I'm doing G-tube feedings at night, but ironically my body has

not adjusted to the adjustable bed---does not appreciate sleeping at a 30

degree angle, apparently. Messed up old neck and shoulder problems, etc, but

eventually I'm sure I'll figure out some position that works better.

Cheers!

B

> RE: KC newspaper piece about mito

>

> Barbara.How are you?? It is good to see you posting.

>

>

>

> Kristie

[Guest guest]

Aha! Exactly what I was thinking. Pillow shopping! None of the 27+ in the

house seem to be what I need. Something softer but thicker to support my

head better. It wants to flop to one side.

B

> I'm glad you are healing and adapting to the new tube. More spaghetti at

> night now, ehh? What fun! I found initially with the adjustable bed that

I

> actually did better without a pillow. I've now transitioned to a pillow

> that is called Quilted Comfort (wal-mart I'm ashamed to say). It has a

> memory foam core with down quilt cover. It has by far been the best

pillow

> I've ever had.

>

>

>

> Hugs,

>

> Kristie

[Guest guest]

Thanks, Laurie. Will try!

B

> Barbara

>

> I still sleep with the head of my bed down most of the time, but I

> slept with it very upright for about 3 months after my shoulder

> surgery. I used two pillows turned longways on the head with my head

> between them. That way I was able to turn my head to either side and

> it was supported. I tried one of the " U " shaped pillow upside down

> (like they use for tiny babies in car seats, but liked the pillows

> better.

>