Guest guest Posted July 15, 2005 Report Share Posted July 15, 2005 Janet- I appreciate your input, it gives me something to think about. I don't need life insurance, I pre paid my fineral, don't have any debt, so it's not a factor. I was never able to have children (mutiple miscarriages), so I don't think I will pursue the genetic testing because of the cost. This has been an ongoing process of years, I just kind of feel like I need to see it through. Just " Thanks " for listening, it's good to know I'm not alone. Marla Janet Sample thesamples@...> wrote: Marla, As Laurie said it is a personal thing and she pointed out many of the factors I thought of and some I did not. I am fortunate in that I was diagnosed in 1997 via a blood test with one of the more " common " forms of mito--MELAS. My sister was first diagnosed in 1996 via a blood test but did have an " emergency " biopsy when she went into a two week coma--that was her 3rd coma in two yrs, 2nd one in 3 months. Anyhow, for me I did go thru extensive testing at the medical college in WI to determine a " baseline " . Before I did the genetic testing I also asked myself the same questions but if I were to go thru a biopsy I do not think I would do it unless I needed a definite diagnosis to get medical help. One question the doc asked before we did the genetic testing was if I had all the life insurance I wanted because even though they are not supposed to discrimiate based on mito they may. We had my son tested because we needed to let the school know the reasons why he sometimes could not be woken up in the morning for school and slept sometimes 20 hrs per day when he got sick. Janet Sample __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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