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update on grace boothe

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I had an appointment with Dr Frick again yesterday to discuss Graces

rockerbottom and other issues. I was planning to just take her to

Dr Ponseti. I sent him an email explaining that no one was agreeing

on what treatment was best for Grace and that I would like to bring

her to Iowa to be treated. Well, this was probably a month ago and

I never heard back. Instead he contacted Dr Frick and Dr Frick sent

me an email saying he would be happy to see Grace again. Well, I

took Grace to Dr Frick yesterday a little optimistic that he would

cast her at Dr Ponseti's recommendation and that it would

miraculously help. When we got there he said casts will not help.

Then he discussed surgery again. So now I have to decide between

surgery or going to discuss the Ilizarov with Dr Herzenberg. Dr

Herzenberg and Dr Ponseti are both recommending that Grace not have

surgery..........however I dont think Dr Ponsetis idea to just

remold with casts will help at all and Im not sure if I can deal

with all that goes along with the Ilizarov method. It is a very big

ordeal. Anyways I know no one can really offer an advice, just

thought I would share Graces latest update. Thanks for listening,

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