Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 I would also be interested to know of any other members from Texas. We live in San and my daughter is SGA but not diagnosed with RSS. I hope to make a trip to either NY or Chicago this summer to confirm if she is RSS or not, but we cannot affort 3-month followups to see Dr H if she is, therefore would like to know if any other doctors in Texas who is knowledgeable about RSS. My daughters doctors are from UT Health Science center, her endocronologist is good, positive, we like him, but is pretty young and has not had much experience with RSS. But on the plus side he is open minded and willing to do research and really wants to diagnose her, and has said he thinks she is candidate for GH therapy, even though he thinks she is not growth hormone deficient. There was doubt earlier on whether her short stature was caused by skeletal dysplasia (then GH would not work) which has now been ruled out. Sabina mother of Naomi Quote Link to comment Share on other sites More sharing options...
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