Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 I have a maybe NT child (shows some signs of AS) who gets diarrhea after eating g/c. I found this years ago (before I knew of this diet). After being GFCF (not as totally because I didn't know about all the hidden gluten), and his diarrhea seemingly cured I let him start having the foods. At first he could tolerate them as long as he didn't get them daily. Now he's back to not being able to have any. So.. what's my lesson? Can I let him have some once in while as long as I don't let them build up? Is he being damaged even when he is diarrhea free? Any thoughts? , you've learned a lot about this stuff, what's your opinion? Lolita >It would seem that yes, they can become more tolerant to a slip but it does >seem that over time, the kids slip down hill about three weeks into gluten >exposure. Supposedly some begin to act schizophrenic. Not something we >will be trying, P.S. While it is tempting to have a slip here >or there , I think it is wise to remember that this could and does harm >them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 Shari, Did you start seeeing improvements right away with the Chelation. We just did a 3 day challenge and Josh definitely seemed more aware. The only is that he has a little rash in the diaper area now. Is this common? We are thinking about starting a regular chelation schedule. Are you doing 3 days on and 4 off? leigh ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 Just wanted to say we have been giving my son infringements here & there (he is currently undergoing chelation,. and was the first time we did infringement test, when he had psycotic episodes) We chalked up his regression to antibiotics, BUT we skipped a week of chelation, and he regressed BIG TIME...3 weeks back on schedule, he is himself again, and improving in leaps & bounds. He has had gluten & casein infringements daily for 3 weeks now. We DO notice lack of concentration immediately after, but he usually is fine within 3 hours or less. Still noting progress, will keep you alll upsdated -Shari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 I know how we all long to stop reading every label and searching out hidden gluten (and casein). For newbies to gfcf, it might be helpful to put those ideas aside for now and concentrate on the diet. The truth is that there are no long term studies yet on whether ASD kids can ever return to a nongfcf way of life. n will probably pop in shortly with info on the one, small follow-up done by Dr. Reichelt. Some teens in the study had psychotic episodes, as has at least one gfcf kid on this list. (Incidentally, some adults with CD have been misdiagnosed with mental illness, but returned to health when the glutenfree.) Something I've wondered about with all these posts about reintroducing g and/or c: how can we know the true effects of a gluten or casein challenge unless the asd child has fully recovered first? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 Shari, Sorry to be such a pest...... But what are the improvements that you are seeing in speech? Is it more self initiated type of speech? Sentences? Just curious. I'm anxiously awaiting the results of our urine test. This was the first time that we used DMSA for a full 3 days and I'm real curious if the levels of metals will be higher this time. Thanks for your help.... It encourages me to hear good news. KELLY LEIGH ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 Hi - Just thought I would chime in with my 2 cents - not that I am a doctor or have done long term studies, but I just thought I would share our philosophy regarding the GFCF diet. We have seen such improvement from going GFCF that we are not going to give it up any time soon. Our son's language is still more than a year behind and he has difficulty expressing himself. Therefore, hubby and I made a deal. Until our son can clearly express to us what is going on with him physically, we will keep him GFCF. I guess that means he is GFCF until he recovers. We figure that once he can express himself that then we could do a challenge and let him tell us how he feels. That I think, for us, would be the only way to really know how G and C are effecting him. So...... we are in this for the long haul. I understand that everyone is different and approaches each therapy differently, but I just thought I would share our approach, for what it's worth. Moira Mom to Vico (4 ASD) and Culzean (11 months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 elly, Don't feel like a pest, no stupid questions, His expressive speech improved, from 1 to 3 word sentences to 5 to 10 word, consequtive sentences...(2 to 3 sentences) His eye contact improved, his patience, and MOSTLY his concentration level...we've had 4 urine tests post provocative (after chemet) His numbers were 24, then 6, then 5.5, now 5 ( After 4 months it's still coming out like crazy, normal is between (0-3)-Shari Shari, This is so COOL... the improvements in speech! This is what I DREAM OF for He was totally mute after losing all of his language at 14 months. He's 5 now and is doing alot of verbal imitation and can actually read some words. BUT his expressive speech is not spontaneous. I LONG for the day when I will hear him speak a sentence... even a 3 word sentence. Were the levels you spoke of (24, 6, 5.5, 5) all for Mercury?? If you don't mind I'd like to ask you just a few more questions. Let me know if you get tired of me and I'll give it a rest... It's just that it's so exciting to think that could actually learn to speak without being prompted. He does sing some songs by himself and it's just too cute! On your first test did you do a 3 day provocation or just one dose of the Chemet? I am curious, because Josh had high levels of some metals (Lead,aluminum, cadmium, bismuth, antimony, and arsenic) but Mercury was almost non detectible. This puzzled me, but I thought that perhaps that just one dose of Chemet wouldn't be enough to really show the levels of Mercury. At any rate, I guess it's probably bad to be seeing any of these metals at high levels. Are you going to use ALA after the numbers show 0 to 3? My Dr. is helping us with this, but I'm not real sure that he knows a great deal about Chelation. He is following Dr. Amy Holmes reccommendations and I feel pretty good about that. We have been considering Chelation for over a year now, but wanted to be safe. I'm to the point where I'm ready to take the plunge. Thanks for the information about the 11 days off. I was considering this, but wasn't sure. Every time Josh gets a dose of Chemet it seems like he's more verbal and aware. I'm hoping that this is a sign of good things to come. Thanks for your imput and good reports. I just LOVE happy endings!! Prayers for a complete recovery for your child! Sincerely, Meyer ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
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