Re: Re: RSS and dwarfism

[Guest guest]

Hillary thanks for that. I can't articulate as well as you do but I was sure

Jodie was wrong about the midget thing. Twice in Imogen's life people who don't

know any better have called her a midget (or asked if she is) and each time it

upset me to the point of tears.Whether she is or she isn't (and thanks to your

knowledge) she isn't...the term is nevertheless extreemley offensive and

upsetting. But I know of course that Jodie didn't mean to upset anyone. I'm new

to this site and from what I can gather Jodie has been an enormous source of

help and advice to people.

Just wanted to get the m word thing cleared up...and thanks to you Hillary I

think we have!

Eileen x

Eileen x

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[Guest guest]

Hi Jodi,it's definately a growth disorder and form of dwarfism. My understanding

is that it was discovered in the 1950's almost simultaneously by Proffessor

in England and Proffessor Silver in the US.Hence /Silver

Syndrome. I thought it was called RSS over here.and SRS where you are cos of

that! Maybe I got that wrong!!!

Hope little is well !

Eileen x

Jodi Rollison rssboy2002@...> wrote:

I was told that RSS is a form of dwarfism. It is just a rarer form

that many don't/didn't know existed. It was explained to me that most

people think of dwarfs as having disproportionate limbs to their

bodies, but those with RSS are proportionate, but still considered

dwarfs. Simply because they do have the shortness in stature. But,

yes, you can also say that RSS is a growth disorder. One of my

cousins is an Achondroplasia dwarf.

Just what I have been told,

Jodi R.