Re: going to see Dr. Cohen

[Guest guest]

, Prayers ascending!

Isaiah 26:3 and Isaiah 57:10 are two of my favorite

nervous-before-seeing-new-doctors verses.

Barbara

> going to see Dr. Cohen

>

> Hey Everyone,

>

> I wanted to wait until I was on my way out the door to go see Dr. Cohen

before I

> said anything because I didnt' want to jinx anything. I am going to see

Dr. Cohen

> on Tuesday at Cleveland Clinic. The last two neuro's there that were

supposed to

> do my biopsy suddenly stopped taking mitochondrial patients without

warning and I

> was left in the dark.

>

> Well I called Dr. Cohen's office and talked to his nurse. I told her that

we have an

> apparent family history of mitochondrial disorders in our family. I told

her that Dr.

> Cohen and his associate Dr. Parhik (I dont' know how to spell it) are

treating two of

> my cousins and that I have another aunt that is suspected of it, and it is

a possibility

> that my cousin's grandmother may have had it (hope I am not confusing

anyone,

> but most of you already know the story, lol).

>

> She said that she knew my cousins and that Dr. Cohen had a working

relationship

> with my neuro, Dr. Simpson, and she would talk to Dr. Cohen about getting

me in.

> She didnt' think it would be until August or September though. She said

that she

> would have the appointment lady call me. Well about 10 or 15 minutes

later, I got a

> phone call from the appointment lady, and Dr. Cohen had an opening on July

26th

> and he wanted to see me.

>

> Well that was two weeks ago and I am on my way to stay with my mom tonight

and

> tomorrow and then we are going up to Cleveland Clininc early tuesday

morning.

>

> Please pray for me because I am very nervous now.

>

> I will pray for you all very much while I am gone.

>

>

> In Christ,

>

> McCombs

> 2 Cor 1:3-4

>

>

[Guest guest]

,

Good luck. Hope things go well. Let us know!

McCombs aarondmccombs29@...> wrote:

Hey Everyone,

I wanted to wait until I was on my way out the door to go see Dr. Cohen before I

said anything because I didnt' want to jinx anything. I am going to see Dr.

Cohen on Tuesday at Cleveland Clinic. The last two neuro's there that were

supposed to do my biopsy suddenly stopped taking mitochondrial patients without

warning and I was left in the dark.

Well I called Dr. Cohen's office and talked to his nurse. I told her that we

have an apparent family history of mitochondrial disorders in our family. I

told her that Dr. Cohen and his associate Dr. Parhik (I dont' know how to spell

it) are treating two of my cousins and that I have another aunt that is

suspected of it, and it is a possibility that my cousin's grandmother may have

had it (hope I am not confusing anyone, but most of you already know the story,

lol).

She said that she knew my cousins and that Dr. Cohen had a working relationship

with my neuro, Dr. Simpson, and she would talk to Dr. Cohen about getting me in.

She didnt' think it would be until August or September though. She said that

she would have the appointment lady call me. Well about 10 or 15 minutes later,

I got a phone call from the appointment lady, and Dr. Cohen had an opening on

July 26th and he wanted to see me.

Well that was two weeks ago and I am on my way to stay with my mom tonight and

tomorrow and then we are going up to Cleveland Clininc early tuesday morning.

Please pray for me because I am very nervous now.

I will pray for you all very much while I am gone.

In Christ,

McCombs

2 Cor 1:3-4

[Guest guest]

,

Are you seeing Cohen or Parikh? I took my kids to

Parikh after we waited over a year to see Cohen.

Parikh did a very poor exam and said that you have to

be DD or MR to have mito. I think he'd also diagnose

for known genetic mutations but that's about it. I'm a

nurse and asked another nurse whose kids saw Parikh

what she thought. She compared him to a resident who

didn't do his reading. He is not an attending but is a

fellow.

By the way, I'm new to . My name is . My

DH and I have two children, 16 and 7, both with

issues.

Both kids are about to get service dogs. will

get one for mobility and alerts and will get one

to alert to her alarms.

Mom to the two best kids in the world!

http://www.caringbridge.org/visit/thomasandkatie

__________________________________________________

[Guest guest]

Good luck with the appointment.

laurie

> Hey Everyone,

>

> I wanted to wait until I was on my way out the door to go see Dr. Cohen before

I said anything because I didnt' want to jinx anything. I am going to see Dr.

Cohen on Tuesday at Cleveland Clinic. The last two neuro's there that were

supposed to do my biopsy suddenly stopped taking mitochondrial patients without

warning and I was left in the dark.

>

> Well I called Dr. Cohen's office and talked to his nurse. I told her that we

have an apparent family history of mitochondrial disorders in our family. I

told her that Dr. Cohen and his associate Dr. Parhik (I dont' know how to spell

it) are treating two of my cousins and that I have another aunt that is

suspected of it, and it is a possibility that my cousin's grandmother may have

had it (hope I am not confusing anyone, but most of you already know the story,

lol).

>

> She said that she knew my cousins and that Dr. Cohen had a working

relationship with my neuro, Dr. Simpson, and she would talk to Dr. Cohen about

getting me in. She didnt' think it would be until August or September though.

She said that she would have the appointment lady call me. Well about 10 or 15

minutes later, I got a phone call from the appointment lady, and Dr. Cohen had

an opening on July 26th and he wanted to see me.

>

> Well that was two weeks ago and I am on my way to stay with my mom tonight and

tomorrow and then we are going up to Cleveland Clininc early tuesday morning.

>

> Please pray for me because I am very nervous now.

>

> I will pray for you all very much while I am gone.

>

>

> In Christ,

>

> McCombs

> 2 Cor 1:3-4

>

>

[Guest guest]

Welcome to the group.

laurie

> ,

>

> Are you seeing Cohen or Parikh? I took my kids to

> Parikh after we waited over a year to see Cohen.

> Parikh did a very poor exam and said that you have to

> be DD or MR to have mito. I think he'd also diagnose

> for known genetic mutations but that's about it. I'm a

> nurse and asked another nurse whose kids saw Parikh

> what she thought. She compared him to a resident who

> didn't do his reading. He is not an attending but is a

> fellow.

>

> By the way, I'm new to . My name is . My

> DH and I have two children, 16 and 7, both with

> issues.

>

> Both kids are about to get service dogs. will

> get one for mobility and alerts and will get one

> to alert to her alarms.

>

>

>

>

>

> Mom to the two best kids in the world!

> http://www.caringbridge.org/visit/thomasandkatie

>

> __________________________________________________

>

[Guest guest]

Safe trip , and you have nothing to be nervous about, trust me.

McCombs wrote:

>Hey Everyone,

>

>I wanted to wait until I was on my way out the door to go see Dr. Cohen before

I said anything because I didnt' want to jinx anything. I am going to see Dr.

Cohen on Tuesday at Cleveland Clinic. The last two neuro's there that were

supposed to do my biopsy suddenly stopped taking mitochondrial patients without

warning and I was left in the dark.

>

>Well I called Dr. Cohen's office and talked to his nurse. I told her that we

have an apparent family history of mitochondrial disorders in our family. I

told her that Dr. Cohen and his associate Dr. Parhik (I dont' know how to spell

it) are treating two of my cousins and that I have another aunt that is

suspected of it, and it is a possibility that my cousin's grandmother may have

had it (hope I am not confusing anyone, but most of you already know the story,

lol).

>

>She said that she knew my cousins and that Dr. Cohen had a working relationship

with my neuro, Dr. Simpson, and she would talk to Dr. Cohen about getting me in.

She didnt' think it would be until August or September though. She said that

she would have the appointment lady call me. Well about 10 or 15 minutes later,

I got a phone call from the appointment lady, and Dr. Cohen had an opening on

July 26th and he wanted to see me.

>

>Well that was two weeks ago and I am on my way to stay with my mom tonight and

tomorrow and then we are going up to Cleveland Clininc early tuesday morning.

>

>Please pray for me because I am very nervous now.

>

>I will pray for you all very much while I am gone.

>

>

>In Christ,

>

> McCombs

>2 Cor 1:3-4

>

>

[Guest guest]

,

I am so happy that you are going to see Dr. Cohen. It is good that those

in your family who are affected by Mito are all seeing Dr. Cohen, this way

no one will fall through the cracks.

I can understand your nervousness with this appointment. I get nervous with

each new doctor that I see. It is so emotionally and mentally exhausting

but I have no doubt that everything will be fine and you will get the

answers you need and the referral for a biopsy that you want.

Safe travels, and know that I am keeping you in my thoughts and in my

prayers. Please update us when you get home and have the energy.

Hugs,

Ann-Marie

At 02:41 PM 7/24/2005, you wrote:

>Well that was two weeks ago and I am on my way to stay with my mom tonight

>and tomorrow and then we are going up to Cleveland Clininc early tuesday

>morning.

>

>Please pray for me because I am very nervous now.

>

>I will pray for you all very much while I am gone.

>

>

>In Christ,

>

> McCombs

>2 Cor 1:3-4

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[Guest guest]

Hi ,

I am also happy to hear you are going to see Dr. Cohen. Could you please

give me Bob Reid's phone number he called me last week after I wrote to Sen

DeWine and 's Ativan is finally going through I need to get a hold of

him and misplaced his number. Please let me know how your cleveland appointment

goes best of luck.

Donna K

---- McCombs aarondmccombs29@...> wrote:

> Hey Everyone,

>

> I wanted to wait until I was on my way out the door to go see Dr. Cohen before

I said anything because I didnt' want to jinx anything. I am going to see Dr.

Cohen on Tuesday at Cleveland Clinic. The last two neuro's there that were

supposed to do my biopsy suddenly stopped taking mitochondrial patients without

warning and I was left in the dark.

>

> Well I called Dr. Cohen's office and talked to his nurse. I told her that we

have an apparent family history of mitochondrial disorders in our family. I

told her that Dr. Cohen and his associate Dr. Parhik (I dont' know how to spell

it) are treating two of my cousins and that I have another aunt that is

suspected of it, and it is a possibility that my cousin's grandmother may have

had it (hope I am not confusing anyone, but most of you already know the story,

lol).

>

> She said that she knew my cousins and that Dr. Cohen had a working

relationship with my neuro, Dr. Simpson, and she would talk to Dr. Cohen about

getting me in. She didnt' think it would be until August or September though.

She said that she would have the appointment lady call me. Well about 10 or 15

minutes later, I got a phone call from the appointment lady, and Dr. Cohen had

an opening on July 26th and he wanted to see me.

>

> Well that was two weeks ago and I am on my way to stay with my mom tonight and

tomorrow and then we are going up to Cleveland Clininc early tuesday morning.

>

> Please pray for me because I am very nervous now.

>

> I will pray for you all very much while I am gone.

>

>

> In Christ,

>

> McCombs

> 2 Cor 1:3-4

>

>