Re: ] reintroducing gluten - I'm DISAPPOINTED

[Guest guest]

, I think some ask to be emailed privately because they get the digest

and sometimes with the digest they might miss the reply to their question

because the digests are so long and with lots of repeats. And some just do

not understand that their question and its answer might benefit many others.

Betty

----- Original Message -----

>

> On Mon, 2 Apr 2001 16:56:00 -0600 E Fuller fullerid@...>

> writes:

> > Could

> > it be that his gut is healing? > . Is it possible to reintroduce

> gluten at some point? I

> > know

> > he'll never have casein again, but he seems to be able to tolerate

> > gluten. Please email me privately at fullerid@....

> >

> > thanks,

> > Maureen

>

> *

> Hi, I'm disappointed that this post and so many others that I myself

> would really like to know the answers to are asked to be emailed

> privately. How come? It would be different if it was a personal matter,

> but this is something I'm sure others besides me too would like to know

> from others that have been there. Sorry, if I'm wrong, but I just want

> to learn so much and private emails doesn't help me or others.

> on Long Island New York

[Guest guest]

In a message dated 01-04-02 20:58:14 EDT, you write:

<<

*

Hi, I'm disappointed that this post and so many others that I myself

would really like to know the answers to are asked to be emailed

privately. How come? It would be different if it was a personal matter,

but this is something I'm sure others besides me too would like to know

from others that have been there. Sorry, if I'm wrong, but I just want

to learn so much and private emails doesn't help me or others.

on Long Island New York

* >>

Hi

We have been GF/CF since 5yrs.

We have been treating Underlying Virus w/much success for a year and a half.

Our Son is now 8.

We recently tried reintroducing Gluten.

We have zero reaction to Trace Glutens

We have spacey, almost sedated, quiet keep to himself behavior w/medium

amounts of Gluten .

We have all out Up in the Middle of the Night and painful bowel movements

w/lg amounts of gluten<3 hamburger buns in one day>.

This is after 2 weks of experimenting.

We have decided to go back to GF.

We won't cry if he gets trace gluten but he still needs to be GF.

I don't really mind but I think he enjoyed the gluten so much.

Emotionally, I think he needed and wanted control over his choices in eating.

Unfortunately it seems we won't be able to continue to give him those

choices.

Miriam