Re: High protein diet versus high protein, high fat, low carb diet

[Guest guest]

I ponder this question too. Supposedly the ideal for CPT is 70-15-15, the 70

being carbs. But even when I started this dietary regimen in 1983 I

definitely noticed that I felt worse, which at the time I put down to the

fact that I probably inadvertently reduced calories when I reduced fats,

since one gram of fat has 9 calories whereas one gram of carbs or protein

have only 4 calories.

Now that I am on a high-protein tube formula, I definitely notice

improvement, which has given me the courage to reduce oral carbs and

increase meat. Again, definitely better. Why is the question. At least part

of the answer is my hyperinsulinism, but in the meantime what is my body

really using for fuel? Fat metabolism is greatly impaired in multiple

pathways so that's not much help in the way of ATP, and if I'm not getting

high carbs for ATP, where is the fuel coming from?? All OXPHOS pathways are

impaired so that has to reduce that source of ATP. Maybe I'm really running

on phosphocreatine, the alternate source of ATP, since I'm taking both

creatine and phosphates in the form of K Phos Neutral? Generally the more

meat I eat the better I feel. I have experimented long enough now to be sure

of this. But I wonder what exactly it is in meat that helps so much. I do

know meat is a good source of both creatine and carnitine, but maybe it's

really some other unknown substance that meat is providing? Or maybe it is

the combination of substances?

Your abstracts are interesting. I noticed the reference to ammonia (knowing

you have a problem with this) but didn't really follow the biochemical

implications of their findings. With McArdle's what has usually been

recommended is low carb, since carbohydrate metabolism is impaired. However,

recently (I can't remember where) I saw a study that concluded McArdle's

patients can tolerate exercise better if they use a high-carb drink prior to

exercise. The idea was that it helped tide them over the immediate

dependence on carbs for ATP that occurs in initial exercise until they could

get into the phase where dependence on fats for ATP occurs, their second

wind, so to speak.

More and more I'm convinced that diet is crucial in these metabolic

disorders and I keep trying to hone my diet and squeeze as much benefit as

possible from whatever I can learn diet wise.

Re the muscle biopsy, normally myophosphorylase aka phosphorylase is assayed

quite reliably in frozen tissue, so it would be unusual to use fresh tissue

to rule out McArdle's. An ischemic forearm exercise test is often a good

indicator of myophosphorylase deficiency.

Barbara

> I'm finding that if I don't eat meat all day, I begin to get symptoms

> again, even if I keep my carbs low. I'm wondering if the high protein

> part is most important, with the fat and the carb balance less

> important for me.

>

> I found these interesting abstracts:

>

> http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

> cmd=Retrieve&db=PubMed&list_uids=3421703&dopt=Abstract

>

> http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

> cmd=Retrieve&db=PubMed&list_uids=3855499&dopt=Abstract

>

> I don't have McArdle's disease (as far as I know, it's hard to tell

> exactly what they tested the fresh muscle biopsy for in terms of named

> diseases), but the info is interesting nonetheless. I would think if

> one could keep maybe a 60-20-20 in terms of proteins, fat, and carbs

> eaten, calorie-wise, that might be more healthy than the Atkins diet,

> which has only 5 or 10% carbs in the most intensive phases. YMMV, we

> all respond differently diet-wise, it's difficult to find the best

> diet for our conditions. I was told at NEMC that their dietitian

> is " too busy " working with PKU patients to take on a case like mine

> that is somewhat undefined in terms of dietary needs.

>

> Take care,

> RH

>

>

>

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained

herein are

> not necessarily those of the list moderators. The author of this e mail is

entirely

> responsible for its content. List members are reminded of their

responsibility to

> evaluate the content of the postings and consult with their physicians

regarding

> changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the

attack.

>

>

[Guest guest]

This is an interesting page on the metabolism of different types of

molecules:

http://www.biology-online.org/9/5_protein_activity.htm

This site has some even more interesting info:

http://www.cellinteractive.com/ucla/nutrition_101/phys_lect6.html

namely that protein metabolism becomes MUCH more efficient (yielding

more ATP that is) when performing aerobic exercise:

" Under usual exercise conditions, protein only provides about 6% of

energy needs. With high intensity endurance exercise, the production

of glucose from amino acids can be significant up to about 10 or 15%

of total energy needs. The only food that provides energy for short-

term fast-paced exercise is carbohydrate, while slow steady aerobic

exercise uses all three primary fuels but primarily fat and

carbohydrate. "

Finally, this site has a bit about NADH, and how it is related to

lactate and pyruvate concentrations:

http://www.medbio.info/Horn/Time%206/muscle_metabolism.htm

It also explains your comment about phosphocreatine

On a normal vs. mito disease note, my husband can't play hockey well

unless he eats a decent high carb meal beforehand. If he does not,

he gets a lot of muscle pain (he drinks water not Gatorade). I

increase my carbs and also drink Gatorade when I play sports. I tend

to fall asleep after high carb meals (not even abnormally high carbs,

but just " normal " carbs are high for me), and have " reactive

hypoglycemia " - a too high peak of insulin after meals which sends my

blood sugar low after I eat.

I keep thinking about how this could be scientifically tested...

BTW, regarding meats, high taurine (and other AA's) is one thing

found in meats more than other foods - I've had tests showing low

taurine levels, but no one has interpreted it.

Take care,

RH

>

> I ponder this question too. Supposedly the ideal for CPT is 70-15-

15, the 70

> being carbs. But even when I started this dietary regimen in 1983 I

> definitely noticed that I felt worse, which at the time I put down

to the

> fact that I probably inadvertently reduced calories when I reduced

fats,

> since one gram of fat has 9 calories whereas one gram of carbs or

protein

> have only 4 calories.

>

> Now that I am on a high-protein tube formula, I definitely notice

> improvement, which has given me the courage to reduce oral carbs and

> increase meat. Again, definitely better. Why is the question. At

least part

> of the answer is my hyperinsulinism, but in the meantime what is my

body

> really using for fuel? Fat metabolism is greatly impaired in

multiple

> pathways so that's not much help in the way of ATP, and if I'm not

getting

> high carbs for ATP, where is the fuel coming from?? All OXPHOS

pathways are

> impaired so that has to reduce that source of ATP. Maybe I'm really

running

> on phosphocreatine, the alternate source of ATP, since I'm taking

both

> creatine and phosphates in the form of K Phos Neutral? Generally

the more

> meat I eat the better I feel. I have experimented long enough now

to be sure

> of this. But I wonder what exactly it is in meat that helps so

much. I do

> know meat is a good source of both creatine and carnitine, but

maybe it's

> really some other unknown substance that meat is providing? Or

maybe it is

> the combination of substances?

>

> Your abstracts are interesting. I noticed the reference to ammonia

(knowing

> you have a problem with this) but didn't really follow the

biochemical

> implications of their findings. With McArdle's what has usually been

> recommended is low carb, since carbohydrate metabolism is impaired.

However,

> recently (I can't remember where) I saw a study that concluded

McArdle's

> patients can tolerate exercise better if they use a high-carb drink

prior to

> exercise. The idea was that it helped tide them over the immediate

> dependence on carbs for ATP that occurs in initial exercise until

they could

> get into the phase where dependence on fats for ATP occurs, their

second

> wind, so to speak.

>

> More and more I'm convinced that diet is crucial in these metabolic

> disorders and I keep trying to hone my diet and squeeze as much

benefit as

> possible from whatever I can learn diet wise.

>

> Re the muscle biopsy, normally myophosphorylase aka phosphorylase

is assayed

> quite reliably in frozen tissue, so it would be unusual to use

fresh tissue

> to rule out McArdle's. An ischemic forearm exercise test is often a

good

> indicator of myophosphorylase deficiency.

>

> Barbara

>

> > I'm finding that if I don't eat meat all day, I begin to get

symptoms

> > again, even if I keep my carbs low. I'm wondering if the high

protein

> > part is most important, with the fat and the carb balance less

> > important for me.

> >

> > I found these interesting abstracts:

> >

> > http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

> > cmd=Retrieve&db=PubMed&list_uids=3421703&dopt=Abstract

> >

> > http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

> > cmd=Retrieve&db=PubMed&list_uids=3855499&dopt=Abstract

> >

> > I don't have McArdle's disease (as far as I know, it's hard to

tell

> > exactly what they tested the fresh muscle biopsy for in terms of

named

> > diseases), but the info is interesting nonetheless. I would

think if

> > one could keep maybe a 60-20-20 in terms of proteins, fat, and

carbs

> > eaten, calorie-wise, that might be more healthy than the Atkins

diet,

> > which has only 5 or 10% carbs in the most intensive phases.

YMMV, we

> > all respond differently diet-wise, it's difficult to find the best

> > diet for our conditions. I was told at NEMC that their dietitian

> > is " too busy " working with PKU patients to take on a case like

mine

> > that is somewhat undefined in terms of dietary needs.

> >

> > Take care,

> > RH

> >

> >

> >

> >

> >

> >

> >

> >

> > Medical advice, information, opinions, data and statements

contained

> herein are

> > not necessarily those of the list moderators. The author of this

e mail is

> entirely

> > responsible for its content. List members are reminded of their

> responsibility to

> > evaluate the content of the postings and consult with their

physicians

> regarding

> > changes in their own treatment.

> >

> > Personal attacks are not permitted on the list and anyone who

sends one is

> > automatically moderated or removed depending on the severity of

the

> attack.

> >

> >

[Guest guest]

Great links, RH! I have read and bookmarked them all. It's always a pleasure

to ride on the coattails of someone else's research. For the first time I

also got a clear definition of the difference between cofactors and

coenzymes. I never could understand Tabor's definitions for those two items.

As a bonus, I discovered the muscle metabolism page had a link to another

page about creatine supplements for athletes. Their charts of ATP usage of

phosphates indicate that creatine doesn't really help athletes

much--presumably because they have normal amounts of phosphocreatine anyway.

This is one of those times when we neuromuscular folks benefit from a

supplement developed for athletes, which ironically turns out not be very

useful for athletes but does help people with neuromuscular

disease---because we often have abnormally low amounts of phosphocreatine in

muscle. Sort of poetic justice when you think of all the billions expended

on developing products to enhance athletic performance as opposed to the

many fewer millions spent on treatments for serious neuromuscular disease.

Cheers!

Barbara

> http://www.medbio.info/Horn/Time%206/muscle_metabolism.htm

>

> It also explains your comment about phosphocreatine

>

> On a normal vs. mito disease note, my husband can't play hockey well

> unless he eats a decent high carb meal beforehand. If he does not,

> he gets a lot of muscle pain (he drinks water not Gatorade). I

> increase my carbs and also drink Gatorade when I play sports. I tend

> to fall asleep after high carb meals (not even abnormally high carbs,

> but just " normal " carbs are high for me), and have " reactive

> hypoglycemia " - a too high peak of insulin after meals which sends my

> blood sugar low after I eat.

>

> I keep thinking about how this could be scientifically tested...

>

> BTW, regarding meats, high taurine (and other AA's) is one thing

> found in meats more than other foods - I've had tests showing low

> taurine levels, but no one has interpreted it.

[Guest guest]

> Now that I am on a high-protein tube formula, I definitely notice

> improvement, which has given me the courage to reduce oral carbs >

>and increase meat.

I'm the opposite. I need high carb. I feel best when I eat complex

carbs. Not eating much protein doesn't seem to effect me.

Kim

Again, definitely better. Why is the question. At least part

> of the answer is my hyperinsulinism, but in the meantime what is

my body

> really using for fuel? Fat metabolism is greatly impaired in

multiple

> pathways so that's not much help in the way of ATP, and if I'm not

getting

> high carbs for ATP, where is the fuel coming from?? All OXPHOS

pathways are

> impaired so that has to reduce that source of ATP. Maybe I'm

really running

> on phosphocreatine, the alternate source of ATP, since I'm taking

both

> creatine and phosphates in the form of K Phos Neutral? Generally

the more

> meat I eat the better I feel. I have experimented long enough now

to be sure

> of this. But I wonder what exactly it is in meat that helps so

much. I do

> know meat is a good source of both creatine and carnitine, but

maybe it's

> really some other unknown substance that meat is providing? Or

maybe it is

> the combination of substances?

>

> Your abstracts are interesting. I noticed the reference to ammonia

(knowing

> you have a problem with this) but didn't really follow the

biochemical

> implications of their findings. With McArdle's what has usually

been

> recommended is low carb, since carbohydrate metabolism is

impaired. However,

> recently (I can't remember where) I saw a study that concluded

McArdle's

> patients can tolerate exercise better if they use a high-carb

drink prior to

> exercise. The idea was that it helped tide them over the immediate

> dependence on carbs for ATP that occurs in initial exercise until

they could

> get into the phase where dependence on fats for ATP occurs, their

second

> wind, so to speak.

>

> More and more I'm convinced that diet is crucial in these metabolic

> disorders and I keep trying to hone my diet and squeeze as much

benefit as

> possible from whatever I can learn diet wise.

>

> Re the muscle biopsy, normally myophosphorylase aka phosphorylase

is assayed

> quite reliably in frozen tissue, so it would be unusual to use

fresh tissue

> to rule out McArdle's. An ischemic forearm exercise test is often

a good

> indicator of myophosphorylase deficiency.

>

> Barbara

>

> > I'm finding that if I don't eat meat all day, I begin to get

symptoms

> > again, even if I keep my carbs low. I'm wondering if the high

protein

> > part is most important, with the fat and the carb balance less

> > important for me.

> >

> > I found these interesting abstracts:

> >

> > http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

> > cmd=Retrieve&db=PubMed&list_uids=3421703&dopt=Abstract

> >

> > http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

> > cmd=Retrieve&db=PubMed&list_uids=3855499&dopt=Abstract

> >

> > I don't have McArdle's disease (as far as I know, it's hard to

tell

> > exactly what they tested the fresh muscle biopsy for in terms of

named

> > diseases), but the info is interesting nonetheless. I would

think if

> > one could keep maybe a 60-20-20 in terms of proteins, fat, and

carbs

> > eaten, calorie-wise, that might be more healthy than the Atkins

diet,

> > which has only 5 or 10% carbs in the most intensive phases.

YMMV, we

> > all respond differently diet-wise, it's difficult to find the

best

> > diet for our conditions. I was told at NEMC that their dietitian

> > is " too busy " working with PKU patients to take on a case like

mine

> > that is somewhat undefined in terms of dietary needs.

> >

> > Take care,

> > RH

> >

> >

> >

> >

> >

> >

> >

> >

> > Medical advice, information, opinions, data and statements

contained

> herein are

> > not necessarily those of the list moderators. The author of this

e mail is

> entirely

> > responsible for its content. List members are reminded of their

> responsibility to

> > evaluate the content of the postings and consult with their

physicians

> regarding

> > changes in their own treatment.

> >

> > Personal attacks are not permitted on the list and anyone who

sends one is

> > automatically moderated or removed depending on the severity of

the

> attack.

> >

> >

[Guest guest]

> I'm the opposite. I need high carb. I feel best when I eat complex

> carbs. Not eating much protein doesn't seem to effect me.

> Kim

Well, this is an important clue, and I hope your doctors pay attention. It

would be typical of disorders of fat metabolism, but most likely could occur

in other kinds of disorders too.

Barbara

[Guest guest]

I remember the first few years I was on this list, many people talked

about having to have a corn starch product before they went to bed to

give them energy overnight. I wonder if our mito diseases are caused

by different primary things (other metabolic ills not found yet, like

specific enzyme deficiencies taxing parts of the mito complexes), or

problems with different complexes lead to different tolerances and

avoidances.

I can go many hours without eating, and be fine. I've not eaten for

whole days sometimes, and often don't eat for more than 12 hours.

That may be related to the fact my body doesn't seem to need carbs as

much as others (or has trouble with carbs, whichever).

Take care,

RH

>

> > I'm the opposite. I need high carb. I feel best when I eat

complex

> > carbs. Not eating much protein doesn't seem to effect me.

> > Kim

>

> Well, this is an important clue, and I hope your doctors pay

attention. It

> would be typical of disorders of fat metabolism, but most likely

could occur

> in other kinds of disorders too.

>

> Barbara

>

[Guest guest]

I don't really have a doc that's trying to figure it out. I'm trying

to convince myself I have the strength/energy to go out of state to

someone, but so far it just seems overwhelming.

Kim

>

> > I'm the opposite. I need high carb. I feel best when I eat

complex

> > carbs. Not eating much protein doesn't seem to effect me.

> > Kim

>

> Well, this is an important clue, and I hope your doctors pay

attention. It

> would be typical of disorders of fat metabolism, but most likely

could occur

> in other kinds of disorders too.

>

> Barbara

>

[Guest guest]

Kim, I'm so sorry to hear your doctors have more or less given up. This is

discouraging. And I can understand why the travel seems overwhelming too.

During the times when I didn't have good medical help and didn't know what

to do, sometimes the only thing I could see to do was wait. So that's what I

did. I didn't even know what I was waiting for except some open door

somewhere. The doors did open eventually for me, and I think they will for

you too. But the waiting is so hard. I remember.

Wish I could do more to help.

Hugs,

Barbara

> I don't really have a doc that's trying to figure it out. I'm trying

> to convince myself I have the strength/energy to go out of state to

> someone, but so far it just seems overwhelming.

> Kim

[Guest guest]

Barbara,

You're very helpful. I don't know exactly what I have, but it's

clear it's something metabolic.

My pcp is just calling it fibromyalgia and leaving it at that. At

least it's a diagnosis. I might be able to apply for disability

with that (if I decide to).

What kind of specialist is best for metabolic diseases? With so

many different ones effecting so many people it should be a

specialty of its own if it isn't already.

I agree about the waiting. I've been doing that since my second

biopsy last December. I can't believe it's been almost a year and

I've not really done much more to figure this out. It's hard when

your docs quit on you. I guess I need to find someone else. I just

wish I could find someone in my area to figure it out.

Ok, I've whined enough. I'm sorry. I'm hanging in there, and I'm

sure it'll all work out in time.

Thanks for your support.

Kim

>

>

> Kim, I'm so sorry to hear your doctors have more or less given up.

This is

> discouraging. And I can understand why the travel seems

overwhelming too.

> During the times when I didn't have good medical help and didn't

know what

> to do, sometimes the only thing I could see to do was wait. So

that's what I

> did. I didn't even know what I was waiting for except some open

door

> somewhere. The doors did open eventually for me, and I think they

will for

> you too. But the waiting is so hard. I remember.

>

> Wish I could do more to help.

>

> Hugs,

> Barbara

>

> > I don't really have a doc that's trying to figure it out. I'm

trying

> > to convince myself I have the strength/energy to go out of state

to

> > someone, but so far it just seems overwhelming.

> > Kim

>

[Guest guest]

> I can go many hours without eating, and be fine. I've not eaten for

> whole days sometimes, and often don't eat for more than 12 hours.

> That may be related to the fact my body doesn't seem to need carbs as

> much as others (or has trouble with carbs, whichever).

RH

Hi, RH

This discussion of diet has been very interesting for me. I too feel

better if I generally restrict my carbs, and I can go for a relatively

long time without food - 12+ hours - without feeling ill effects. As a

matter of fact, it seems that whenever I eat I feel somewhat sluggish

afterwards, even with mostly protein. Go figure. Wish I knew more,

and that I had the discipline to manipulate my diet rigorously, but

that is a challenge too. Maybe I will give it a go again, and do a

pure protein for a few days, and see how I feel. Thank you, RH for

sharing your experience. It is always good to others who are similar in

one way or another. )

Regards

Sunny

>

[Guest guest]

Sunny

One reason that many of us feel sluggish after eating is that it takes

energy to digest food and we have a limited amount. I always shop

before eating or the shopping doesn't get done. Most of the time I

don't feel hungry when I should, but suffer the consequences if I

don't eat. It is hard to relate just when or what will happen, but I

will regret not eating, so try to eat when my meds are due. I do sleep

better if I have eaten something before bed (something like cheese).

My mother (who had mito) always ate a slice of wheat bread with peanut

butter when up during the night. She always said she couldn't go back

to sleep without eating something. I now know what she meant.

laurie

> > I can go many hours without eating, and be fine. I've not eaten for

> > whole days sometimes, and often don't eat for more than 12 hours.

> > That may be related to the fact my body doesn't seem to need carbs as

> > much as others (or has trouble with carbs, whichever).

> RH

>

>

>

> Hi, RH

>

> This discussion of diet has been very interesting for me. I too feel

> better if I generally restrict my carbs, and I can go for a relatively

> long time without food - 12+ hours - without feeling ill effects. As a

> matter of fact, it seems that whenever I eat I feel somewhat sluggish

> afterwards, even with mostly protein. Go figure. Wish I knew more,

> and that I had the discipline to manipulate my diet rigorously, but

> that is a challenge too. Maybe I will give it a go again, and do a

> pure protein for a few days, and see how I feel. Thank you, RH for

> sharing your experience. It is always good to others who are similar in

> one way or another. )

>

> Regards

>

> Sunny

> >

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail

> is entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with

> their physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

>

>

>

[Guest guest]

>

> One reason that many of us feel sluggish after eating is that it takes

> energy to digest food and we have a limited amount............

> I do sleep better if I have eaten something before bed (something like

> cheese).

Yes, Laurie, that makes sense. You always have such good points to

keep in mind. I will try to eat something before I go to bed, although

I need to keep it light because I have a tendency toward GERD.

I am testing something out in that area. I am taking one of my Prevacid

doses before bedtime, testing the idea that gastritis was awakening me

and getting me up way early in the morning. I think it might be

helping me sleep longer and better. Still experimenting with it.

Thank you for all your sharing, Laurie

Regards

Sunny

> Sunny

> I always shop

> before eating or the shopping doesn't get done. Most of the time I

> don't feel hungry when I should, but suffer the consequences if I

> don't eat. It is hard to relate just when or what will happen, but I

> will regret not eating, so try to eat when my meds are due.

> My mother (who had mito) always ate a slice of wheat bread with peanut

> butter when up during the night. She always said she couldn't go back

> to sleep without eating something. I now know what she meant.

>

[Guest guest]

Kim,

I am the same as you. I need high carb diet. If I go more than

2 days without some type of pasta, it feels like my body is almost

shutting down. That is when I become real sluggish. I also have to make

myself eat small meals about 5 times a day, so my blood sugars don't drop

and I feel better overall. I am not always hungry at those times, but

need to keep myself to it.

Smiles,

a

On Wed, 09 Nov 2005 15:25:40 -0000 " klaga5 " klaga5@...> writes:

I'm the opposite. I need high carb. I feel best when I eat complex

carbs. Not eating much protein doesn't seem to effect me.

Kim

[Guest guest]

An interesting sidenote - the time period of two days seems to be

important to me as well. If I start on a high protein, low carb

diet, it takes two days for my body to adjust to it, and that long to

have the full positive effects of it. My understanding is that it

takes some time for one's body to " figure out " that most of the

metabolism is coming from protein and fat instead of carbs.

On the contrary, it sounds like if you guys don't eat enough carbs

over two days, your body is switching metabolism as well. Bad for

you guys seems good for me (yet we both have mitochondrial disease!)

This may be important to others - I think people often don't keep

track of our eating habits well enough, and a weekend of different

eating patterns may be enough to cause a crash, or improve symptoms.

The big question we know is " which one are you? " and how does one

find out?

I sense a poll question forming in my brain

Take care,

RH

>

> Kim,

> I am the same as you. I need high carb diet. If I go more

than

> 2 days without some type of pasta, it feels like my body is almost

> shutting down. That is when I become real sluggish. I also have

to make

> myself eat small meals about 5 times a day, so my blood sugars

don't drop

> and I feel better overall. I am not always hungry at those times,

but

> need to keep myself to it.

>

> Smiles,

> a

>

> On Wed, 09 Nov 2005 15:25:40 -0000 " klaga5 " writes:

>

> I'm the opposite. I need high carb. I feel best when I eat

complex

> carbs. Not eating much protein doesn't seem to effect me.

> Kim

>

>

[Guest guest]

a,

Do you have a diagnosis?

Kim

>

> Kim,

> I am the same as you. I need high carb diet. If I go

more than

> 2 days without some type of pasta, it feels like my body is almost

> shutting down. That is when I become real sluggish. I also have

to make

> myself eat small meals about 5 times a day, so my blood sugars

don't drop

> and I feel better overall. I am not always hungry at those times,

but

> need to keep myself to it.

>

> Smiles,

> a

>

> On Wed, 09 Nov 2005 15:25:40 -0000 " klaga5 " writes:

>

> I'm the opposite. I need high carb. I feel best when I eat

complex

> carbs. Not eating much protein doesn't seem to effect me.

> Kim

>

>

[Guest guest]

Kim,

I do have a confirmed diagnosis from a muscle biopsy done in

1995. There is a known Complex IV deficiency. The doctors are now

thinking there might be more to it than just that.

Smiles,

a

On Thu, 10 Nov 2005 19:40:03 -0000 " klaga5 " klaga5@...> writes:

a,

Do you have a diagnosis?

Kim

>

> Kim,

> I am the same as you. I need high carb diet. If I go

more than

> 2 days without some type of pasta, it feels like my body is almost

> shutting down. That is when I become real sluggish. I also have

to make

> myself eat small meals about 5 times a day, so my blood sugars

don't drop

> and I feel better overall. I am not always hungry at those times,

but

> need to keep myself to it.

>

> Smiles,

> a