Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 Hi , My son Anton aged 7.10 years has a horseshoe kidney.(He is not RSS but is SGA) I have read varying estimates that say that maybe 1 in 20 people have them and usually don't even know it. (A bit of trivia for you - Mel Gibson has a horseshoe kidney!) The only time they usually cause trouble is if the ureter tubes (the small tubes that direct urine through to the bladder) run across the top of the kidneys (instead of below or beside like with normal kidneys - there can be pressure and blockage or infections which can cause hydronephrosis. My son has never had any problems and you just keep an eye on them to make sure they don't have urinary tract infection symptoms. I understand that if it does become a problem there is a relatively simple surgery in which they re-position the tubes so there is less chance of them becoming blocked. There is a lot of information on the internet about horseshoe kidneys which will ease your mind. All the best, Siri Kidney anomaly? > I took to get an ultrasound today. His endocrinologist (who > saw him for the 1st time when he was 3 months old and doesn't want to > see him again until he is 3 years old) had mentioned he should have > one done, but never ordered it. So I asked his ped about it and it > got scheduled. I took him in today, but he was too wiggly and his > stomach wasn't empty enough, so I'm taking him back tomorrow. > > Anyway, the technician did say it looked like he had " horseshoe " > kidneys. She said they are like the shape of a horseshoe, and when > they were being formed, they never got separated. I am going to take > him back tomorrow to see if they can get a better look at 'em, but > wondered if any of you have ever been told something similar? > > Also, he has his first GI appt. tomorrow. I asked for ideas on what > to ask, but didn't get any responses. I'm not sure what to ask or > what kind of tests to request. If any of you have any suggestions > I'd appreciate it. > > Thanks in advance. > > > > 's mom (9 months old on 4/3, about 10 lbs or so) > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 Hi sonia!! i am not to sure about the horseshoe shape, but i know when christopher used to get the ultrasound they said his left kidney was smaller than his right one. also i never had the gi testing but i remember from reading other posts that they usually do a stomach emptying test and possible an upper gi if there are reflux issues. sorry i couldnt be more help but maybe someone else will post to you as well. did they ever ask you about sedating him for the ultrasound? that was always an option when we used to have them done but he luckly was just a baby then and we were able to keep him still. just make sure if they do sedate him they run an dextrose iv so his bs levels dont drop. also why doenst endo want to see him again until he is 3 ours saw him every 6m now it is every 3 but that is because of the ght.good luck. jodie (nicholas-6 nonrss, christopher-3 rss 23 lbs 33 " ght genotropin .6, johnathon-9m nonrss) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 Hi , You're probably tired of my opinions, but hey, I'll give them to you anyway About the endo, I think they should have blood tests once a year to check their hormones and such that endos do. I can't help you with the horseshoe kidney. Questions for GI, you sound like you know what you're doing, you've done the research, but just to add... He's on Zantac, right? Because I think you said he does that chewing thing, and I think that's a sign of reflux. I would just tell them that GI problems are a major concern with some RSS kids, including reflux, slow stomach emtpying, gut dysmotility, there's been a lot of talk about food allergies. Can't think of anything else right now. Maybe ask about seeing a nutritionist to give you ideas to help him gain weight. As far as any tests to be done, my GI is of the opinion, which I totally agree with, is that if his treatment isn't going to change because of the results of the test, then why put him through it. I hope this helps some! Cindy Quote Link to comment Share on other sites More sharing options...
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