Guest guest Posted November 4, 2005 Report Share Posted November 4, 2005 Dear , I have 2 family members and 2 friends with Crohn's disease (the family members are in-laws not blood relatives) and I've seen a lot of sides of this illness. If you have mostly seen it in surgery or ER, I can understand why you are freaked. But, while all 4 of the people I know have had surgeries and hospitalizations--and frankly, 2 were gravely ill for awhile--they have all managed major bounce backs that have lasted years and which continue to last. 3 of them have been working full time for many years, raising children, and usually feeling rugged (minus one dip with pancreatitis, which he recovered well from). The 4th was a friend who moved away and who I lost touch with, but I heard from a mutual friend that she's been doing quite well, too. It seems like getting through the crises is the hard thing and then for some people, finding a lifestyle/dietary approach that suits you takes time. In any case, I certainly hope that 's situation improves soon. Best, Shayna p.s. I don't know anything about the diagnostic process for Crohn's, but I admit I was surprised to hear they could do it from a blood test. Are you certain about that aspect of it? > > > > The WBC scan seemed to indicate Crohn's for , > 17. Now, my med/surg nurse background is freaking out > because I've only seen really terrible cases. My mom's > ER nurse background is making her freak a bit too. > > We should know more Monday with the results of the > small bowel follow-through. > > > > Mom to the two best kids in the world! > http://www.caringbridge.org/visit/thomasandkatie > > > > __________________________________ > Yahoo! FareChase: Search multiple travel sites in one click. > http://farechase.yahoo.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2005 Report Share Posted November 4, 2005 Hopefully a dx will be a relief anyway. My older friend (she's near 80) has had Crohn's for a while, the challenge was to find the right doctor and medicines to help her out. At least now there seem to be more options. http://ccfa.org/info/about/crohns I do wonder about how strong the autoimmune element is in cases of mitochondrial disease. I've had signs of autoimmune disease (high anticardiolipin antibodies), but nothing confirmed. Take care, RH > > The WBC scan seemed to indicate Crohn's for , > 17. Now, my med/surg nurse background is freaking out > because I've only seen really terrible cases. My mom's > ER nurse background is making her freak a bit too. > > We should know more Monday with the results of the > small bowel follow-through. > > > > Mom to the two best kids in the world! > http://www.caringbridge.org/visit/thomasandkatie > > > > __________________________________ > Yahoo! FareChase: Search multiple travel sites in one click. > http://farechase.yahoo.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2005 Report Share Posted November 4, 2005 I am skeptical. He's not anemic even though he has von Willebrand's disease and bleeding. He's not had a high SED rate.It seems more logical to me that it would be the metabolic disease. --- ohgminion rakshasis@...> wrote: > Hopefully a dx will be a relief anyway. My older > friend (she's near > 80) has had Crohn's for a while, the challenge was > to find the right > doctor and medicines to help her out. At least now > there seem to be > more options. > > http://ccfa.org/info/about/crohns > > I do wonder about how strong the autoimmune element > is in cases of > mitochondrial disease. I've had signs of autoimmune > disease (high > anticardiolipin antibodies), but nothing confirmed. > > Take care, > RH > > > > > > The WBC scan seemed to indicate Crohn's for > , > > 17. Now, my med/surg nurse background is freaking > out > > because I've only seen really terrible cases. My > mom's > > ER nurse background is making her freak a bit too. > > > > We should know more Monday with the results of the > > small bowel follow-through. > > > > > > > > Mom to the two best kids in the world! > > http://www.caringbridge.org/visit/thomasandkatie > > > > > > > > __________________________________ > > Yahoo! FareChase: Search multiple travel sites in > one click. > > http://farechase.yahoo.com > > > > > > > > Mom to the two best kids in the world! http://www.caringbridge.org/visit/thomasandkatie __________________________________ Yahoo! Mail - PC Magazine Editors' Choice 2005 http://mail.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2005 Report Share Posted November 4, 2005 --- shaynapearl happyclam8@...> wrote: p.s. I don't know anything about the diagnostic > process for Crohn's, > but I admit I was surprised to hear they could do it > from a blood > test. Are you certain about that aspect of it? It's not a blood test, really. They remove blood and then separate out the WBCs. They tag them with radioactive material. They then reinject that and then do a nuclear med scan a few hours later. WBCs gather at sites of inflammation and infection. I'm not convinced that this is anything more than the metabolic disease attacking his gut. Mom to the two best kids in the world! http://www.caringbridge.org/visit/thomasandkatie __________________________________ Start your day with Yahoo! - Make it your home page! http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2005 Report Share Posted November 5, 2005 I am being currently worked up for Crohns and a blood test was never mentioned. I have had a CT of the entire Gi system which showed wall thickening and dilation of the small intestine and colon which is what is seen in Crohns. i was told if it is just the colon then it is something other if it is small bowel and colon then they look for Crohns. Now I am scheduled for a small bowel study, then endoscopy then colonoscopy with biopsies. hope you get some good news ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2005 Report Share Posted November 5, 2005 I'm sure things most likely have changed over the years, but I had massive rectal bleeding years ago and the was taken by ambulance to the hospital. The did a colonoscopy and found areas that they said looked like Crohns, but when they biopsied the areas, it wasn't Crohns. They never did find out why I had all the bleeding. My girlfiend has Crohns and she at least at the time was told other than biopsy, there was no way to know for sure. YMMV. I hope you get some answers soon. MitomomX3@... wrote: >I am being currently worked up for Crohns and a blood test was never >mentioned. I have had a CT of the entire Gi system which showed wall thickening and >dilation of the small intestine and colon which is what is seen in Crohns. i >was told if it is just the colon then it is something other if it is small >bowel and colon then they look for Crohns. Now I am scheduled for a small >bowel study, then endoscopy then colonoscopy with biopsies. >hope you get some good news ... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2005 Report Share Posted November 5, 2005 --- Crohns is definitely diagnosed by a a Biopsy of the small bowel and the colon. Both have to be affected to be Crohns. She has had two colonoscopies and EDG...I was told this is the only way. My daughter was diagnosed with Crohns because she had inflammation in the colon and small bowel. If it is just the colon it is called colitis. Dawn ANich In , Van Verst wrote: > > > > --- shaynapearl wrote: > > p.s. I don't know anything about the diagnostic > > process for Crohn's, > > but I admit I was surprised to hear they could do it > > from a blood > > test. Are you certain about that aspect of it? > > It's not a blood test, really. They remove blood and > then separate out the WBCs. They tag them with > radioactive material. They then reinject that and then > do a nuclear med scan a few hours later. WBCs gather > at sites of inflammation and infection. > > I'm not convinced that this is anything more than the > metabolic disease attacking his gut. > > > > Mom to the two best kids in the world! > http://www.caringbridge.org/visit/thomasandkatie > > > > __________________________________ > Start your day with Yahoo! - Make it your home page! > http://www.yahoo.com/r/hs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2005 Report Share Posted November 5, 2005 My son's inflammation is in small bowel only. His SED rate has been normal. Biopsy would be definintive but you can't get to all parts of the small bowel. --- dawnanich Danich1@...> wrote: > --- Crohns is definitely diagnosed by a a Biopsy of > the small bowel > and the colon. Both have to be affected to be > Crohns. Mom to the two best kids in the world! http://www.caringbridge.org/visit/thomasandkatie __________________________________ Yahoo! Mail - PC Magazine Editors' Choice 2005 http://mail.yahoo.com Quote Link to comment Share on other sites More sharing options...
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