Re: 's mommy here again (the one asking about Dr. )

[Guest guest]

,

That foot... at birth was not terribly severe looking. Could you

manipulate it at all or was it totally stiff? In my unprofessional

opinion, that foot should be able to be fully corrected in less than 6

casts. I would imagine Dr. P could get it corrected in 3 or 4 max. From

what that shows, it doesn't look like there has been ANY improvement since

the first cast, in fact... the pic of after the 7th cast looks worse than

the ones from after the 5th and 6th. Tell us about the casts

themselves. Are they long leg to the groin plasters or something else?

I would absolutely question this, and get a second opinion from a Ponseti

Dr. I would also not go to the Dr. that on the CF list recommended

because you don't become a candidate for Ponseti Method after any releases,

in fact after surgery you can't really take advantage of this

method. While this Dr. may be very nice and wonderful, he doesn't know

much about the Ponseti Method at all.

If you're going to get a second opinion (I think you will find parents here

recommending Feldman although you will need to be on your toes with him and

what you expect for your son's treatment) don't bother with the cast

tomorrow. In fact, if I were you I'd soak the one off he's got right now

and get myself into a different Dr. immediately and not even go back. Any

Dr. who knows a thing about this will get you in immediately, so don't let

any receptionist tell you it's a long wait. Some casts can do more harm

than good so being without a cast till his appointment isn't going to make

much difference. The way your son's foot looks now is how it should look

after the first cast, or at least that's what my daughter's foot looked

like. And since it's been like that the whole time, something is

absolutely amiss with this.

Can you get to Baltimore? Dr. Herzenberg is one of the best and won't

steer you wrong at all. Don't despair, this can and will be fixed in no

time. Promise!

If you're interested in sharing pictures come check out our CFPics yahoo

list. You can send attachments in an email on that list rather than having

to post in the photos section (in fact, please don't post in the photos

section - fills up too fast) and we do LOVE to see baby pics there~! Look

for the .rtf file that comes to the email addy you subscribe under, there's

information there about the list as well as a little survey at the end to

help us introduce you. Send your completed survey back and you can post

pictures to your heart's content!

*

http://groups.yahoo.com/group/CFPics/http://groups.yahoo.com/group/CFPics/

See you soon!

Kori

Darbi - Rt. CF - FAB 12-14hr/d

At 06:15 PM 2/9/2005, you wrote:

>I've posted pics of 's foot in the photos area. The album is

>named Antony. If anyone has a minute, please take a look and

>let me know how you think his foot looks after 7 casts. Should his

>foot look more corrected? He will be taking off his 8th tomorrow and

>will be getting a 9th put on tomorrow.

>

>I will look into other doctors in the New York area.

>

>

>

>

>

>

>

>

>

[Guest guest]

No say - ah that could get kinky! hahahaahha just kidding.

I've thought about posting pics of Everettt's feet but it always seemed like too

much trouble. Compared to his big brother though, his feet and legs look

great. Very normal~ has the skinny calves common with cf. In shorts he

does look deformed. but Evy has big meaty calves that match his thighs and

his rude father tells him, *You have your mother's legs* which pisses me off.

My legs are not meaty, they are athletic! LOL! His dad has chicken legs

though.

s.

I meant in the CFPics group, I have no say over what anyone posts here. Sorry!

Kori

[Guest guest]

See to me that is so sad, I'm so sorry for you. They should have given you some

time to love on your baby and love him the way he was. But my first time

through it, I didn't know any better either. They started him at 4 days old.

With baby #2 we started at 2 weeks old, plenty of time to love him just as he

was before they started rearranging him!

s.

I didn't even get the opportunity to manipulate the foot. It was casted the day

after he was born and I didn't even know to stop him or ask for another opinion

or what. I do know his case was not severe at all, from what his ped. & Dr.

said. The casts themselves are toe to groin plaster casts.

Question: Why would we have to be " on our toes " with Dr. Feldman? Please

explain...

frogabog frogabog@...> wrote:

,

[Guest guest]

I don't count it as surgery myself, it is that minor. Now let me tell you that

with my 1st son's treatment, the dr. DID treat it as major surgery! Put him to

sleep adn the whole nine yards of hell there. They acted like it was this

huge major ordeal that they don't see but once a decade!

But my son was 3 months old by then having been casted once a week all that

time.

With son #2, Dr. Ponseti did the tenotomy when he was 2ish months old (after 5

casts 5 days apart) as a local in office deal. My husband held the baby, they

didn't put him to sleep, they just put this needle thin knife in to the heel and

gave it a half twist, pulled it out and casted him in place.

s.

Re: 's mommy here again (the one asking about

Dr. )

Another question which may sound stupid: Does a tenotomy count as surgery?

Ponseti DOES do tenotomies, no? Isn't a tenotomy a tendon release surgery?

frogabog frogabog@...> wrote:At 07:19 PM 2/9/2005, you wrote:

> (in fact, please don't post in the photos

>section - fills up too fast)

I meant in the CFPics group, I have no say over what anyone posts here. Sorry!

Kori

[Guest guest]

Kori, does your baby wear an AFO instead of a DBB?

s.

[Guest guest]

At 07:19 PM 2/9/2005, you wrote:

> (in fact, please don't post in the photos

>section - fills up too fast)

I meant in the CFPics group, I have no say over what anyone posts here. Sorry!

Kori

[Guest guest]

I didn't even get the opportunity to manipulate the foot. It was casted the day

after he was born and I didn't even know to stop him or ask for another opinion

or what. I do know his case was not severe at all, from what his ped. & Dr.

said. The casts themselves are toe to groin plaster casts.

Question: Why would we have to be " on our toes " with Dr. Feldman? Please

explain...

frogabog frogabog@...> wrote:

,

That foot... at birth was not terribly severe looking. Could you

manipulate it at all or was it totally stiff? In my unprofessional

opinion, that foot should be able to be fully corrected in less than 6

casts. I would imagine Dr. P could get it corrected in 3 or 4 max. From

what that shows, it doesn't look like there has been ANY improvement since

the first cast, in fact... the pic of after the 7th cast looks worse than

the ones from after the 5th and 6th. Tell us about the casts

themselves. Are they long leg to the groin plasters or something else?

I would absolutely question this, and get a second opinion from a Ponseti

Dr. I would also not go to the Dr. that on the CF list recommended

because you don't become a candidate for Ponseti Method after any releases,

in fact after surgery you can't really take advantage of this

method. While this Dr. may be very nice and wonderful, he doesn't know

much about the Ponseti Method at all.

If you're going to get a second opinion (I think you will find parents here

recommending Feldman although you will need to be on your toes with him and

what you expect for your son's treatment) don't bother with the cast

tomorrow. In fact, if I were you I'd soak the one off he's got right now

and get myself into a different Dr. immediately and not even go back. Any

Dr. who knows a thing about this will get you in immediately, so don't let

any receptionist tell you it's a long wait. Some casts can do more harm

than good so being without a cast till his appointment isn't going to make

much difference. The way your son's foot looks now is how it should look

after the first cast, or at least that's what my daughter's foot looked

like. And since it's been like that the whole time, something is

absolutely amiss with this.

Can you get to Baltimore? Dr. Herzenberg is one of the best and won't

steer you wrong at all. Don't despair, this can and will be fixed in no

time. Promise!

If you're interested in sharing pictures come check out our CFPics yahoo

list. You can send attachments in an email on that list rather than having

to post in the photos section (in fact, please don't post in the photos

section - fills up too fast) and we do LOVE to see baby pics there~! Look

for the .rtf file that comes to the email addy you subscribe under, there's

information there about the list as well as a little survey at the end to

help us introduce you. Send your completed survey back and you can post

pictures to your heart's content!

*

http://groups.yahoo.com/group/CFPics/http://groups.yahoo.com/group/CFPics/

See you soon!

Kori

Darbi - Rt. CF - FAB 12-14hr/d

At 06:15 PM 2/9/2005, you wrote:

>I've posted pics of 's foot in the photos area. The album is

>named Antony. If anyone has a minute, please take a look and

>let me know how you think his foot looks after 7 casts. Should his

>foot look more corrected? He will be taking off his 8th tomorrow and

>will be getting a 9th put on tomorrow.

>

>I will look into other doctors in the New York area.

>

>

>

>

>

>

>

>

>

[Guest guest]

Another question which may sound stupid: Does a tenotomy count as surgery?

Ponseti DOES do tenotomies, no? Isn't a tenotomy a tendon release surgery?

frogabog frogabog@...> wrote:At 07:19 PM 2/9/2005, you wrote:

> (in fact, please don't post in the photos

>section - fills up too fast)

I meant in the CFPics group, I have no say over what anyone posts here. Sorry!

Kori

[Guest guest]

Dr. Feldman has at least one patients here who have had problems with him

knowing if the feet are fully corrected and some other issue I can't

remember for sure about now. I'm not sure if it was just a mistake, or if

he was busy that day or what... but he put a baby into the DBB with less

than fully corrected feet and both baby and mama were miserable. I think...

he has also alluded to surgery being the only way for a child to get his

feet corrected and the child was able to be corrected

non-surgically. Here, let me send you all the posts that mention him since

Sept. and you can work it out for yourself, I just sent these to another

mama who asked much the same thing. I don't think he's a *bad* doc, just

that you must be very informed if you go to him. Kinda like our doc who is

using AFO's now instead of the DBB. More than one good doc out there is

still re-inventing the wheel and if you don't know what's supposed to

happen you could get caught up in it.

Kori

At 07:49 PM 2/9/2005, you wrote:

>I didn't even get the opportunity to manipulate the foot. It was casted

>the day after he was born and I didn't even know to stop him or ask for

>another opinion or what. I do know his case was not severe at all, from

>what his ped. & Dr. said. The casts themselves are toe to groin

>plaster casts.

>

>Question: Why would we have to be " on our toes " with Dr. Feldman? Please

>explain...

>

>frogabog frogabog@...> wrote:

>,

>

>That foot... at birth was not terribly severe looking. Could you

>manipulate it at all or was it totally stiff? In my unprofessional

>opinion, that foot should be able to be fully corrected in less than 6

>casts. I would imagine Dr. P could get it corrected in 3 or 4 max. From

>what that shows, it doesn't look like there has been ANY improvement since

>the first cast, in fact... the pic of after the 7th cast looks worse than

>the ones from after the 5th and 6th. Tell us about the casts

>themselves. Are they long leg to the groin plasters or something else?

>

>I would absolutely question this, and get a second opinion from a Ponseti

>Dr. I would also not go to the Dr. that on the CF list recommended

>because you don't become a candidate for Ponseti Method after any releases,

>in fact after surgery you can't really take advantage of this

>method. While this Dr. may be very nice and wonderful, he doesn't know

>much about the Ponseti Method at all.

>

>If you're going to get a second opinion (I think you will find parents here

>recommending Feldman although you will need to be on your toes with him and

>what you expect for your son's treatment) don't bother with the cast

>tomorrow. In fact, if I were you I'd soak the one off he's got right now

>and get myself into a different Dr. immediately and not even go back. Any

>Dr. who knows a thing about this will get you in immediately, so don't let

>any receptionist tell you it's a long wait. Some casts can do more harm

>than good so being without a cast till his appointment isn't going to make

>much difference. The way your son's foot looks now is how it should look

>after the first cast, or at least that's what my daughter's foot looked

>like. And since it's been like that the whole time, something is

>absolutely amiss with this.

>

>Can you get to Baltimore? Dr. Herzenberg is one of the best and won't

>steer you wrong at all. Don't despair, this can and will be fixed in no

>time. Promise!

>

>If you're interested in sharing pictures come check out our CFPics yahoo

>list. You can send attachments in an email on that list rather than having

>to post in the photos section (in fact, please don't post in the photos

>section - fills up too fast) and we do LOVE to see baby pics there~! Look

>for the .rtf file that comes to the email addy you subscribe under, there's

>information there about the list as well as a little survey at the end to

>help us introduce you. Send your completed survey back and you can post

>pictures to your heart's content!

> *

>http://groups.yahoo.com/group/CFPics/http://groups.yahoo.com/group/CFPics/

>See you soon!

>

>Kori

>Darbi - Rt. CF - FAB 12-14hr/d

>

>

>

>At 06:15 PM 2/9/2005, you wrote:

>

>

> >I've posted pics of 's foot in the photos area. The album is

> >named Antony. If anyone has a minute, please take a look and

> >let me know how you think his foot looks after 7 casts. Should his

> >foot look more corrected? He will be taking off his 8th tomorrow and

> >will be getting a 9th put on tomorrow.

> >

> >I will look into other doctors in the New York area.

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

I wanted them to get started right away too. Once I was informed that she

actually did have clubfoot. So we went in the next day after I was

released from the hospital (surgical birth). They told me I could wait but

for some reason I didn't want to. I now wish I had. I would have had more

time to play with her foot, and get to know it in it's clubfoot state. Now

of course it sounds like a good experience, then all I wanted was to get

her foot fixed.

Kori

At 07:37 PM 2/9/2005, you wrote:

>See to me that is so sad, I'm so sorry for you. They should have given

>you some time to love on your baby and love him the way he was. But my

>first time through it, I didn't know any better either. They started him

>at 4 days old. With baby #2 we started at 2 weeks old, plenty of time to

>love him just as he was before they started rearranging him!

>s.

>I didn't even get the opportunity to manipulate the foot. It was casted

>the day after he was born and I didn't even know to stop him or ask for

>another opinion or what. I do know his case was not severe at all, from

>what his ped. & Dr. said. The casts themselves are toe to groin

>plaster casts.

>

>Question: Why would we have to be " on our toes " with Dr. Feldman? Please

>explain...

>

>frogabog frogabog@...> wrote:

>,

>

>

>

>

[Guest guest]

it counts, and it doesn't count. It's technically a surgical procedure

yes. But it's a very minor one that only needs a bandaid (I don't even

think they close with that surgical glue right?). It's a tiny little

incision and they nick the tendon. It grows back together. Most Ponseti

babies do have the tenotomy, yes. Although not all. My daughter for one,

did not have it. She's got a huge scar from her sores though, much bigger

than any tenotomy scar could ever be!

Even with the tenotomy, the Ponseti Method is still considered

non-surgical. It is a tendon release surgery, in the technical

sense. But most docs, when they talk about tendon releases aren't talking

about tenotomies.

Kori

At 07:52 PM 2/9/2005, you wrote:

>Another question which may sound stupid: Does a tenotomy count as

>surgery? Ponseti DOES do tenotomies, no? Isn't a tenotomy a tendon

>release surgery?

>

>frogabog frogabog@...> wrote:At 07:19 PM 2/9/2005, you wrote:

> > (in fact, please don't post in the photos

> >section - fills up too fast)

>

>I meant in the CFPics group, I have no say over what anyone posts

>here. Sorry!

>

>Kori

>

>

>

>

>

[Guest guest]

Hi -

First off your son is beautiful! Second, I would take him to

another doctor if I were you. Your son's foot looks about the same

as my son's foot at birth looked (not very severe) and it should of

been fully corrected by now. My son's foot was fully corrected with

4 casts. It looks like your doctor was able to do some correction in

the first few casts, but now is in a " stuck " phase. I wouldn't waste

anymore time with him. Sorry I don't know any doctors on the east

coast, since we are on the west coast. Keep us posted!

>

> I've posted pics of 's foot in the photos area. The album is

> named Antony. If anyone has a minute, please take a look and

> let me know how you think his foot looks after 7 casts. Should

his

> foot look more corrected? He will be taking off his 8th tomorrow

and

> will be getting a 9th put on tomorrow.

>

> I will look into other doctors in the New York area.

>

>

[Guest guest]

If I am not mistaken, you are referring to Chelsea, who has atypical clubfoot.

Dr Feldman, like Dr Mosca, was unfamiliar with it at that time (back when it was

first becoming recognized by Dr Ponseti, but a few other doctors had already

seen it and identified it).

Angel

Re: 's mommy here again (the one asking about

Dr. )

Dr. Feldman has at least one patients here who have had problems with him

knowing if the feet are fully corrected and some other issue I can't

remember for sure about now. I'm not sure if it was just a mistake, or if

he was busy that day or what... but he put a baby into the DBB with less

than fully corrected feet and both baby and mama were miserable. I think...

he has also alluded to surgery being the only way for a child to get his

feet corrected and the child was able to be corrected

non-surgically. Here, let me send you all the posts that mention him since

Sept. and you can work it out for yourself, I just sent these to another

mama who asked much the same thing. I don't think he's a *bad* doc, just

that you must be very informed if you go to him. Kinda like our doc who is

using AFO's now instead of the DBB. More than one good doc out there is

still re-inventing the wheel and if you don't know what's supposed to

happen you could get caught up in it.

Kori

At 07:49 PM 2/9/2005, you wrote:

>I didn't even get the opportunity to manipulate the foot. It was casted

>the day after he was born and I didn't even know to stop him or ask for

>another opinion or what. I do know his case was not severe at all, from

>what his ped. & Dr. said. The casts themselves are toe to groin

>plaster casts.

>

>Question: Why would we have to be " on our toes " with Dr. Feldman? Please

>explain...

>

>frogabog frogabog@...> wrote:

>,

>

>That foot... at birth was not terribly severe looking. Could you

>manipulate it at all or was it totally stiff? In my unprofessional

>opinion, that foot should be able to be fully corrected in less than 6

>casts. I would imagine Dr. P could get it corrected in 3 or 4 max. From

>what that shows, it doesn't look like there has been ANY improvement since

>the first cast, in fact... the pic of after the 7th cast looks worse than

>the ones from after the 5th and 6th. Tell us about the casts

>themselves. Are they long leg to the groin plasters or something else?

>

>I would absolutely question this, and get a second opinion from a Ponseti

>Dr. I would also not go to the Dr. that on the CF list recommended

>because you don't become a candidate for Ponseti Method after any releases,

>in fact after surgery you can't really take advantage of this

>method. While this Dr. may be very nice and wonderful, he doesn't know

>much about the Ponseti Method at all.

>

>If you're going to get a second opinion (I think you will find parents here

>recommending Feldman although you will need to be on your toes with him and

>what you expect for your son's treatment) don't bother with the cast

>tomorrow. In fact, if I were you I'd soak the one off he's got right now

>and get myself into a different Dr. immediately and not even go back. Any

>Dr. who knows a thing about this will get you in immediately, so don't let

>any receptionist tell you it's a long wait. Some casts can do more harm

>than good so being without a cast till his appointment isn't going to make

>much difference. The way your son's foot looks now is how it should look

>after the first cast, or at least that's what my daughter's foot looked

>like. And since it's been like that the whole time, something is

>absolutely amiss with this.

>

>Can you get to Baltimore? Dr. Herzenberg is one of the best and won't

>steer you wrong at all. Don't despair, this can and will be fixed in no

>time. Promise!

>

>If you're interested in sharing pictures come check out our CFPics yahoo

>list. You can send attachments in an email on that list rather than having

>to post in the photos section (in fact, please don't post in the photos

>section - fills up too fast) and we do LOVE to see baby pics there~! Look

>for the .rtf file that comes to the email addy you subscribe under, there's

>information there about the list as well as a little survey at the end to

>help us introduce you. Send your completed survey back and you can post

>pictures to your heart's content!

> *

>http://groups.yahoo.com/group/CFPics/http://groups.yahoo.com/group/CFPics/

>See you soon!

>

>Kori

>Darbi - Rt. CF - FAB 12-14hr/d

>

>

>

>At 06:15 PM 2/9/2005, you wrote:

>

>

> >I've posted pics of 's foot in the photos area. The album is

> >named Antony. If anyone has a minute, please take a look and

> >let me know how you think his foot looks after 7 casts. Should his

> >foot look more corrected? He will be taking off his 8th tomorrow and

> >will be getting a 9th put on tomorrow.

> >

> >I will look into other doctors in the New York area.

> >

> >

> >

> >

> >

> >

> >

> >

> >