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I¹m in the early stages of diagnosis, and I¹m pretty sure some of my

extended family wants to believe I¹m being a hypochondriac because the

alternative is too frightening for them- and after spending a weekend with

my mom, having her try to do everything for me so I wouldn¹t become too

tired out, I¹m not sure that¹s not better... :{

We¹re a scientific/researching bunch, and from the moment the doctor said

³mitochondrial cytopathy² they¹ve all read everything they can get their

hands on. The responses run the gamut from sheer terror to abject denial,

and sometimes dealing with their stuff is more difficult than dealing with

my own body and its various problems. My family is close and loving, and I

need/want their support (especially for my husband and kids) but more and

more, I¹m questioning my wisdom in telling them or anyone for that matter-

Anyone else with similar experiences? Any ideas for managing?

Kathleen

> Yes, they use software to " attune it " to different chemicals, and

> that software is muyo expensive. Amazing though, it was the first

> test that made me think " wow, I'm not making this up " LOL...

>

> For those newcomers, many of us have had doctors and family and

> friends question whether we were making up symptoms or being

> hypochondriacs...

>

> Take care,

> RH

>

>

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