Guest guest Posted May 29, 2004 Report Share Posted May 29, 2004 Hi As one of the main characteristics of RSS is normal head size with small body, I just wondered if anyone else has problems with constant head injurys?? Liam has had 2 quite bad knocks to his head this week, one could of had sutures but we opted to steri strip because he was so distressed. Both fall were quite accidental on he slipped off a bottom step, the other tripped over a chair leg. On a normal child Im sure they would not of done the damage Liam did, his head just comes down like a lead brick, even if he gets his arms out to try and stop. Liam also has pallid episodes, where he stops breathing till he blacks out then his body kicks in and starts breathing again, not a nice experience, and Im sure it only happens bacause his head is so heavy. Does any one do extra physio or any other ideas on how to control these big heads, short of a helmut Im at a loss. I dont want to curtail him running around. Have a good weekend Jody(mum to Liam 9.5kg 78cm 3 next week, and Cam(notRSS) 5) Quote Link to comment Share on other sites More sharing options...
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