Re: Seizure meds - Daughter depression (new)

[Guest guest]

at one time was thought to have bipolar disorder. A number of

seizure medications can help with bipolar and are used in its

treatment. She was on lithium for years, which was marginally helpful

if at all. She became violent on Depakote before me knew that she

might have mito. Then she was put on a variety of other seizure

medications, then none, and lastly Neurontin. was nonverbal at

the time and would hold her head and grimace her face like something

was painful. She would have periods of time that she would stare into

space. You could wave your hand in front of her and she would not

flinch. EEG's did not show seizure activity. Her legs would quiver

sometimes. After Neurontin was added she no longer had these symptoms

and the bipolar type symptoms disappeared to the best of our knowledge.

Understand for a year did not speak, did not know who we were and

needed total care. This is why we are so overjoyed at this point that

she has improved. has been a puzzle child, now adult, to many

doctors since birth.

Shelby

> Hi Shelby I have been following your stories with your daughter . Just

> curious about the seizure meds and why that would help with depression

> (trying to understand the processes...) certainly I am willing to try

> anything, one by one. thks pamela

> Re: Daughter pelvic pain (gone) depression (new)

>

> My daughter has a clinical diagnosis of mito (She is 32.) She was

> treated with Elavil, Prozac and Zoloft at different times for

> depression. Zoloft worked best of any but was not too effective. It

> takes time for those medicines to work. A seizure medicine was added,

> I think Lamictal and that helped the most. She is off antidepressants

> and Lamictal at the moment but is on 1500 mg of Neurontin daily. When

> my daughter is in crisis she is psychotic. We have found D10 IV

> effective in calming the waters. Good luck, Shelby

>

>

>

> > Hi everyone - asking for your thoughts again for my daughter (22).

> >

> > >

> > With one problem gone another has started and that is severe and

> > frightening depression which is so unlike how she has been in the

> > past. I believe she is in crisis the only thing I am not sure about

> is

> > whether it is just a direct result of feeling low about not being

> able

> > to perform over the last few years (she is constantly fatigued and

> > sick, glands up etc) and this affected school years and further

> study

> > in photography . Or perhaps there is a biochemical reason ie an

> energy

> > crisis between the mitochondria and the brain (perhaps related to

> all

> > the pain she has been experiencing over the last year) . I feel the

> > latter must be closer or maybe its a combination. Penny has been on

> > CoQ10 300 mg for a few months now and just started B2 - yet to try

> > Carnitine but that is next. Any other ideas and has anyone had

> > anything similar? She is not really responding that well to SSRI

> > antidepressants at least yet (after a few weeks on them) they are

> not

> > enough to stop some dramatic! episodes of sudden diving into

> sobbing,

> > shaking, episodes where she is terrified she might hurt herself,

> > temporary inability to function etc. Other times she is quite happy

> > and normal. I feel it has to be related to the mito. My thinking is

> > that no matter what you throw at someone they're not going to work

> if

> > the energy pathways are not there - does that make sense? I'm not

> sure

> > whether she needs more rest or more exercise - for sure we always

> > strive for better nutrition. Any ideas or experiences would be

> > appreciated. Would be good to understand the processes like some of

> > you biochemistry wizards .. Pamela (Melas) about Penny (also Melas)

> >

> >

> We Made Changes

> Your Yahoo! Groups email is all new.

>

> Learn More

>

> Share Feedback

>

> Recent Activity

> a.. 2New Members

> Visit Your Group

>