Re: flathead and clubfoot???

[Guest guest]

has the same problem, but they have not recommended a helmet. He also

has slight tortocollis (SP?), so he really favors his left side especially at

night. When I lay him on the floor, I just lay him on his right side. He will

stay like this for 15 minutes some time. When I feed him, I try to put the

bottle, so he has to look to the right. I also stretch him by holding his

shoulder and slowly rotating his head. I do this at diaper changes; however, if

she is fully able to turn her head and just doesn't, you may not need to do

this.

I know there are different severities to this condition, so I can't say that

what they want you to do is wrong, but this is what my dr. has told me to do.

" flathead " and clubfoot???

Hi there-

I'm brand new to this group and I must say that it is an awesome

source for us parents with children who have clubfeet...what a

blessing to discover this.

Anyways, my daughter Ella is 5 1/2 months old and was born with

bilateral clubfeet. We did the casts for 7 weeks and she has been

in the DBB for 3 months. Our general pediatrician noticed that the

back of her head is becoming flattened especially on her right

side. The technical name for this is " Plagiocephaly " and the

doctor wants us to consider putting her in a helmet or headband to

re-shape her head round.

Because of the DBB and Casts, Ella has only slept on her back since

day 1 and always favors her right side. During the day I try my

hardest to keep her off her back to prevent pressure on the back of

her head.

I certainly don't want Ella to have to wear one of those helmets

23/7...I feel like she's already been through so much.

Has anyone ever heard of this related to CF or have any

recommendations. I figure it might be sort of common amongst kids

with CF since they can't sleep on their tummies (at least it doesn't

seem like they can sleep on their tummies??_

Thanks so much,

Ella 10/9/04 bilateral CF DBB 237

[Guest guest]

At 5 months she can probably learn to lay on her belly some. Can she turn over

in the DBB yet?

s.

" flathead " and clubfoot???

Hi there-

I'm brand new to this group and I must say that it is an awesome

source for us parents with children who have clubfeet...what a

blessing to discover this.

Anyways, my daughter Ella is 5 1/2 months old and was born with

bilateral clubfeet. We did the casts for 7 weeks and she has been

in the DBB for 3 months. Our general pediatrician noticed that the

back of her head is becoming flattened especially on her right

side. The technical name for this is " Plagiocephaly " and the

doctor wants us to consider putting her in a helmet or headband to

re-shape her head round.

Because of the DBB and Casts, Ella has only slept on her back since

day 1 and always favors her right side. During the day I try my

hardest to keep her off her back to prevent pressure on the back of

her head.

I certainly don't want Ella to have to wear one of those helmets

23/7...I feel like she's already been through so much.

Has anyone ever heard of this related to CF or have any

recommendations. I figure it might be sort of common amongst kids

with CF since they can't sleep on their tummies (at least it doesn't

seem like they can sleep on their tummies??_

Thanks so much,

Ella 10/9/04 bilateral CF DBB 237

[Guest guest]

Yes, she's slowly mastering turning over with the DBB to her tummy

but can't roll back the other way (to her back), maybe when it

becomes easier for her she will spend more time on her tummy.

We'll try as much tummy time as possible

Thanks,

> At 5 months she can probably learn to lay on her belly some. Can

she turn over in the DBB yet?

> s.

>

> " flathead " and clubfoot???

>

>

>

>

>

> Hi there-

> I'm brand new to this group and I must say that it is an awesome

> source for us parents with children who have clubfeet...what a

> blessing to discover this.

>

> Anyways, my daughter Ella is 5 1/2 months old and was born with

> bilateral clubfeet. We did the casts for 7 weeks and she has

been

> in the DBB for 3 months. Our general pediatrician noticed that

the

> back of her head is becoming flattened especially on her right

> side. The technical name for this is " Plagiocephaly " and the

> doctor wants us to consider putting her in a helmet or headband

to

> re-shape her head round.

>

> Because of the DBB and Casts, Ella has only slept on her back

since

> day 1 and always favors her right side. During the day I try my

> hardest to keep her off her back to prevent pressure on the back

of

> her head.

>

> I certainly don't want Ella to have to wear one of those helmets

> 23/7...I feel like she's already been through so much.

>

> Has anyone ever heard of this related to CF or have any

> recommendations. I figure it might be sort of common amongst

kids

> with CF since they can't sleep on their tummies (at least it

doesn't

> seem like they can sleep on their tummies??_

>

> Thanks so much,

>

>

>

> Ella 10/9/04 bilateral CF DBB 237

>

>

>

>

>

>

>

>

>

>

[Guest guest]

My son was born 8/1/04 with BCF and when he was about 3 months

old, I began noticing that his right forehead was protruding more

than the left and I was worried (thought maybe he was growing a tumor

or something - you know how the mind works). Anyway at his 4 month

checkup, I asked his pediatrician about it and he could tell by

looking at the back of his head that it was the way he lays and

sleeps. He said not to worry and that when he gets more mobile his

head would all even out. He's now almost 8 months and is very mobile

not only when awake but usually rolls over in his sleep and sleeps on

his stomach...and now his head is almost totally evened out. A few

months ago, his orthopedic nurse told us there may be something wrong

because his head wasn't perfectly even and I told her that I wasn't

worried because of what the pediatrician had said. Of course, all

babies are different and this may not be your daughter's situation,

but I'm just saying that a helmet may not be what she needs since

Jake's head reshaped itself. I would get another opinion just to be

safe. You don't want to put her thru any more than she's already

going thru with CF, but if she really needs it, you don't want to

have her not wear it.....Best of luck,

>

>

> Hi there-

> I'm brand new to this group and I must say that it is an awesome

> source for us parents with children who have clubfeet...what a

> blessing to discover this.

>

> Anyways, my daughter Ella is 5 1/2 months old and was born with

> bilateral clubfeet. We did the casts for 7 weeks and she has been

> in the DBB for 3 months. Our general pediatrician noticed that the

> back of her head is becoming flattened especially on her right

> side. The technical name for this is " Plagiocephaly " and the

> doctor wants us to consider putting her in a helmet or headband to

> re-shape her head round.

>

> Because of the DBB and Casts, Ella has only slept on her back since

> day 1 and always favors her right side. During the day I try my

> hardest to keep her off her back to prevent pressure on the back of

> her head.

>

> I certainly don't want Ella to have to wear one of those helmets

> 23/7...I feel like she's already been through so much.

>

> Has anyone ever heard of this related to CF or have any

> recommendations. I figure it might be sort of common amongst kids

> with CF since they can't sleep on their tummies (at least it

doesn't

> seem like they can sleep on their tummies??_

>

> Thanks so much,

>

>

>

> Ella 10/9/04 bilateral CF DBB 237