Re: sick/need advice and support

[Guest guest]

I am so sorry that you have lost your grandmother and can't go to the funeral.

What you are describing sounds like it could be dysautonomia. My blood

pressure and heart rate are all over the map and I have most of the

other symptoms you describe. Have you been evaluated for dysautonomia?

I haven't but with my documenting everything and ruling out all other

things, my neuro (I agree) that this is what I get. It can last for

weeks or for days and then all of a sudden, I am back to normal -

whatever that is :-) I do try to drink more, increase my CoQ and rest

as much as possible. I know you push yourself.

I hope you find some answers. I'll keep you in my thoughts.

hugs,

laurie

> Hi all,

>

> I'm sorry I have not been participating more with the group. I was out of

> town for 1 1/2 months and had only limited access to the computer. Welcome

to

> all the newbies. I hope everyone is doing well. I am way behind on mail.

>

> Anyway, I need some advice. I have been sick for quite awhile and the docs

> are giving up on me. It started out with a bad bladder infection or bladder

> cystitis. They put me on Cipro. Within a week or so, my CPK level was high

> and I went into rhabdomyolisis (sp?). I was visiting my parents at the time

> and had no access to docs and didn't want to be hospitalized so I treated

> myself with constant fluids and rest. The CPK and rhabdo went away but I'm

> still sick. I'm back in Florida now and they have been running lots of

tests.

> My white blood count is high (17) as well as platelets, red blood cells and

> others I don't understand. There are a few low readings also. My blood

> pressure is fluctuating all over the place. 106/46-142/110. And that's on

high

> blood pressure pills. I'm very sweaty, have a bad headache, dizziness, body

> aches, nausea, abdominal pain etc. They ultra sounded my entire right sound

> thinking gallbladder which was fine. My liver did show some kind of deposit

> which could indicate chrossis (I don't drink) so I have to see a specialist.

> Other than that there is no sign of infection or illness. I just feel like

> garbage and it seems different than normal mito. I have had high WBCs before

> and the docs have ignored them. Does anyone have any advice or similar

> episodes? I really need to get healthy. I need to go back to work soon.

Em's

> dad is not paying child support and I need to pay bills. To compound things,

> my grandma died this morning from cancer and I'm too sick to travel to the

> funeral. Sorry so long.

>

> S

>

>

>

[Guest guest]

Hi ,

Sorry to hear that your grandma has passed away that you feel so badly that

you won't make it to your grandma's funeral. I am sure she knows how much

you loved her and that you would be there if you could. I know she understands.

And I also wanted to say that it sounds like your body is going through

some progression of the disease. I get like this every few months and it

totally wipes me out and I never get back to my baseline, heck I don't even

know what my baseline is anymore.

I hope you start to feel better soon. Just know that you are in my thoughts

and in my prayers daily. I hope that with each day you gain more and more

strength.

Hugs,

Ann-Marie

At 06:57 PM 7/28/2005, you wrote:

>Other than that there is no sign of infection or illness. I just feel like

>garbage and it seems different than normal mito. I have had high WBCs

>before

>and the docs have ignored them. Does anyone have any advice or similar

>episodes? I really need to get healthy. I need to go back to work

>soon. Em's

>dad is not paying child support and I need to pay bills. To compound

>things,

>my grandma died this morning from cancer and I'm too sick to travel to the

>funeral. Sorry so long.

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[Guest guest]

,

I am sorry to hear about your grandmother. You have my

sympathies. I am sorry you are not able to make it to the funeral.

I agree with Laurie that some of this sounds like Autonomic

dysfunction. My BP can go all over the place and I just don't feel

" right " . I just had to have a central line placed so I can get the

needed fluids, as I can't drink like I used to for various reasons.

My thoughts are with you.

Hugs,

a

> Hi all,

>

> I'm sorry I have not been participating more with the group. I was

out of

> town for 1 1/2 months and had only limited access to the computer.

Welcome to

> all the newbies. I hope everyone is doing well. I am way behind on

mail.

>

> Anyway, I need some advice. I have been sick for quite awhile and the

docs

> are giving up on me. It started out with a bad bladder infection or

bladder

> cystitis. They put me on Cipro. Within a week or so, my CPK level

was high

> and I went into rhabdomyolisis (sp?). I was visiting my parents at

the time

> and had no access to docs and didn't want to be hospitalized so I

treated

> myself with constant fluids and rest. The CPK and rhabdo went away

but I'm

> still sick. I'm back in Florida now and they have been running lots

of tests.

> My white blood count is high (17) as well as platelets, red blood

cells and

> others I don't understand. There are a few low readings also. My

blood

> pressure is fluctuating all over the place. 106/46-142/110. And

that's on high

> blood pressure pills. I'm very sweaty, have a bad headache,

dizziness, body

> aches, nausea, abdominal pain etc. They ultra sounded my entire right

sound

> thinking gallbladder which was fine. My liver did show some kind of

deposit

> which could indicate chrossis (I don't drink) so I have to see a

specialist.

> Other than that there is no sign of infection or illness. I just feel

like

> garbage and it seems different than normal mito. I have had high WBCs

before

> and the docs have ignored them. Does anyone have any advice or

similar

> episodes? I really need to get healthy. I need to go back to work

soon. Em's

> dad is not paying child support and I need to pay bills. To compound

things,

> my grandma died this morning from cancer and I'm too sick to travel to

the

> funeral. Sorry so long.

>

> S

>