Re: Reduced hours for Tommy Lee!

[Guest guest]

Yeah, Tommy Lee.

giannasmommy2002 nannylulu@...> wrote:

We saw Dr. Herzenberg and he told us to join the nights only club! I

told him we were going to be over cautious and do 16 hours and he was

fine with that. He is aware that is what the Ponseti protocol is but

feels Tommy is old enough to go to 12 hours. Still we are sticking

to 16 hours! He did say he may still need another tendon snipping

down the road as he feet only dorsiflex to neutral. But he said that

may improve once he starts walking. I am so happy to have found this

board and learn that we were receiving improper treatment and make

the switch. There is no doubt in my mind that we were on the road to

major surgery with the first doctor.

PS: So funny that he crawls so much better with the bar on! He is

really a spaz without it.

[Guest guest]

YEA! Happy for you for the good news

Marilouise

9/9/03, LCF, DBB 14/7

Owen and 3/20/99

>

> We saw Dr. Herzenberg and he told us to join the nights only

club! I

> told him we were going to be over cautious and do 16 hours and he

was

> fine with that. He is aware that is what the Ponseti protocol is

but

> feels Tommy is old enough to go to 12 hours. Still we are

sticking

> to 16 hours! He did say he may still need another tendon snipping

> down the road as he feet only dorsiflex to neutral. But he said

that

> may improve once he starts walking. I am so happy to have found

this

> board and learn that we were receiving improper treatment and make

> the switch. There is no doubt in my mind that we were on the road

to

> major surgery with the first doctor.

>

> PS: So funny that he crawls so much better with the bar on! He

is

> really a spaz without it.

[Guest guest]

That is great ! Isn't funny when they crawl without the bar??

Christian still moves his hips like he has the bar on when he doesn't. It's

hysterical!

Mommy to (12-17-98) and

Christian (1-30-04) LCF - DBB (nights only)

_____

From: giannasmommy2002

Sent: Friday, February 04, 2005 9:16 PM

To: nosurgery4clubfoot

Subject: Reduced hours for Tommy Lee!

We saw Dr. Herzenberg and he told us to join the nights only club! I

told him we were going to be over cautious and do 16 hours and he was

fine with that. He is aware that is what the Ponseti protocol is but

feels Tommy is old enough to go to 12 hours. Still we are sticking

to 16 hours! He did say he may still need another tendon snipping

down the road as he feet only dorsiflex to neutral. But he said that

may improve once he starts walking. I am so happy to have found this

board and learn that we were receiving improper treatment and make

the switch. There is no doubt in my mind that we were on the road to

major surgery with the first doctor.

PS: So funny that he crawls so much better with the bar on! He is

really a spaz without it.

[Guest guest]

That's great! I have a question though...when a doctor says 'Nights

only' are they also giving you the corresponding number of hours? I

ask because all children are so different in their sleeping patterns,

ie., some may sleep for 14 hours straight through (these ones are

rare!), some are 12 hour sleepers and then again, some are 10 hours

or less. So, how many hours is 'nights only'?

Thanks,

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/7 (12hours @night + 2hours @nap)

>

> We saw Dr. Herzenberg and he told us to join the nights only club!

I

> told him we were going to be over cautious and do 16 hours and he

was

> fine with that. He is aware that is what the Ponseti protocol is

but

> feels Tommy is old enough to go to 12 hours. Still we are sticking

> to 16 hours! He did say he may still need another tendon snipping

> down the road as he feet only dorsiflex to neutral. But he said

that

> may improve once he starts walking. I am so happy to have found

this

> board and learn that we were receiving improper treatment and make

> the switch. There is no doubt in my mind that we were on the road

to

> major surgery with the first doctor.

>

> PS: So funny that he crawls so much better with the bar on! He is

> really a spaz without it.

[Guest guest]

Hi Daiga,

When Dr. Herzenberg said nights only he meant 12 hours. We are being

overly cautious though and also putting then on for naps( an

additional 3-4 hours).

> >

> > We saw Dr. Herzenberg and he told us to join the nights only

club!

> I

> > told him we were going to be over cautious and do 16 hours and he

> was

> > fine with that. He is aware that is what the Ponseti protocol is

> but

> > feels Tommy is old enough to go to 12 hours. Still we are

sticking

> > to 16 hours! He did say he may still need another tendon

snipping

> > down the road as he feet only dorsiflex to neutral. But he said

> that

> > may improve once he starts walking. I am so happy to have found

> this

> > board and learn that we were receiving improper treatment and

make

> > the switch. There is no doubt in my mind that we were on the

road

> to

> > major surgery with the first doctor.

> >

> > PS: So funny that he crawls so much better with the bar on! He

is

> > really a spaz without it.