Re: 1st post

[Guest guest]

I too just had surgery about the same time as you, Dec. 20th. I had

upper with a 3 peice segmental and lower done. I have to agree with

you that food has not been tasting good. I have already lost 9 lbs

and I only weighed 120 before the sugery. Lately, I've been eating

this whey protein mix that tastes like a 's frostie (I got it

at Smoothie King but I'm sure you can find similar products at a

health food store). Other than that I strain a lot of soup.

How numb are you? I have feeling back in all my lower jaw (tongue

included and gums) except the right side of my chin and right side

of my lower lip and then I have no feeling in my upper lip, palate,

nose or areas arround my nose. I'm hoping I will be able to feel my

lips soon because I cannot close them yet and I am drooling on

everything.

Take Care,

>

> Hello all,

>

> I am new to this site. I had surgery on my upper and lower jaw

last

> Wednesday, the 22. I felt pretty nasty until today. Now I am

just

> worried about eating enough. Everything tastes pretty gross and

it

> is so hard to get it in there, but oh well. If anyone has any

> suggestions I would appreciate them.

>

> I just wasnted to thank everyone for posting. It gives me a lot

of

> hope that this swelling will go away and I will be glad that I had

> the surgery.

>

> Thanks,

> HappyD

[Guest guest]

I too just had surgery about the same time as you, Dec. 20th. I had

upper with a 3 peice segmental and lower done. I have to agree with

you that food has not been tasting good. I have already lost 9 lbs

and I only weighed 120 before the sugery. Lately, I've been eating

this whey protein mix that tastes like a 's frostie (I got it

at Smoothie King but I'm sure you can find similar products at a

health food store). Other than that I strain a lot of soup.

How numb are you? I have feeling back in all my lower jaw (tongue

included and gums) except the right side of my chin and right side

of my lower lip and then I have no feeling in my upper lip, palate,

nose or areas arround my nose. I'm hoping I will be able to feel my

lips soon because I cannot close them yet and I am drooling on

everything.

Take Care,

>

> Hello all,

>

> I am new to this site. I had surgery on my upper and lower jaw

last

> Wednesday, the 22. I felt pretty nasty until today. Now I am

just

> worried about eating enough. Everything tastes pretty gross and

it

> is so hard to get it in there, but oh well. If anyone has any

> suggestions I would appreciate them.

>

> I just wasnted to thank everyone for posting. It gives me a lot

of

> hope that this swelling will go away and I will be glad that I had

> the surgery.

>

> Thanks,

> HappyD

[Guest guest]

I definitely agree about the food thing. I didn't even have an

appetite for anything my first week after surgery. Just the thought

of food made me feel sick. But I had to force myself to eat. I

wasn't one of those people that could blend anything and everything

together and make a hamburger soup or something. I tried blending

solid food once and it was disgusting...haha. So I pretty much

lived off of Hershey's Milkshakes (really high calorie chocolate

milk...highly recommend it), yoplet nouriche shakes(good amount of

calories and lots of protein...plus lots of yummy flavors),

powerade, and Serious Mass Protein shakes. Being on a liquid diet

for a month isn't much fun...but you can find stuff that you like.

and once you get the go ahead from your OS...you can start eating

really soft stuff. when i got my splint out...my OS said i could

eat stuff like mac and cheese, mashed potatoes, etc. i still wasn't

allowed to chew(and to be honest...my jaw muscles weren't nearly

strong enough to...and i could only open about 1 cm). but the

secret is to kinda use your tongue to smash it. but just hang in

there...because you'll feel better and better. and the more you

eat...the better you'll feel and the quicker you'll recover:-)

Tom

>

> Hello all,

>

> I am new to this site. I had surgery on my upper and lower jaw

last

> Wednesday, the 22. I felt pretty nasty until today. Now I am

just

> worried about eating enough. Everything tastes pretty gross and

it

> is so hard to get it in there, but oh well. If anyone has any

> suggestions I would appreciate them.

>

> I just wasnted to thank everyone for posting. It gives me a lot

of

> hope that this swelling will go away and I will be glad that I had

> the surgery.

>

> Thanks,

> HappyD

[Guest guest]

I definitely agree about the food thing. I didn't even have an

appetite for anything my first week after surgery. Just the thought

of food made me feel sick. But I had to force myself to eat. I

wasn't one of those people that could blend anything and everything

together and make a hamburger soup or something. I tried blending

solid food once and it was disgusting...haha. So I pretty much

lived off of Hershey's Milkshakes (really high calorie chocolate

milk...highly recommend it), yoplet nouriche shakes(good amount of

calories and lots of protein...plus lots of yummy flavors),

powerade, and Serious Mass Protein shakes. Being on a liquid diet

for a month isn't much fun...but you can find stuff that you like.

and once you get the go ahead from your OS...you can start eating

really soft stuff. when i got my splint out...my OS said i could

eat stuff like mac and cheese, mashed potatoes, etc. i still wasn't

allowed to chew(and to be honest...my jaw muscles weren't nearly

strong enough to...and i could only open about 1 cm). but the

secret is to kinda use your tongue to smash it. but just hang in

there...because you'll feel better and better. and the more you

eat...the better you'll feel and the quicker you'll recover:-)

Tom

>

> Hello all,

>

> I am new to this site. I had surgery on my upper and lower jaw

last

> Wednesday, the 22. I felt pretty nasty until today. Now I am

just

> worried about eating enough. Everything tastes pretty gross and

it

> is so hard to get it in there, but oh well. If anyone has any

> suggestions I would appreciate them.

>

> I just wasnted to thank everyone for posting. It gives me a lot

of

> hope that this swelling will go away and I will be glad that I had

> the surgery.

>

> Thanks,

> HappyD

[Guest guest]

Thanks for replying to my post

My upper area has full feeling, which is sorta bad because it also

hurts. My lower lips and chin have a little feeling, but I drool

all the time and don't know it unless it gets cold or drips onto

some other part of my body. I wonder how long it usually takes

people to get the feeling back and stop the never ending drool...

I am sure I have lost weight in the week since surgery but I haven't

weighed myself (I don't know that I could look down at the

reading ). I will admit that I was overweight before the

surgery, but I guess I wasn't planning on having no appetite or even

not being able to eat.

> >

> > Hello all,

> >

> > I am new to this site. I had surgery on my upper and lower jaw

> last

> > Wednesday, the 22. I felt pretty nasty until today. Now I am

> just

> > worried about eating enough. Everything tastes pretty gross and

> it

> > is so hard to get it in there, but oh well. If anyone has any

> > suggestions I would appreciate them.

> >

> > I just wasnted to thank everyone for posting. It gives me a lot

> of

> > hope that this swelling will go away and I will be glad that I

had

> > the surgery.

> >

> > Thanks,

> > HappyD

[Guest guest]

Thanks for replying to my post

My upper area has full feeling, which is sorta bad because it also

hurts. My lower lips and chin have a little feeling, but I drool

all the time and don't know it unless it gets cold or drips onto

some other part of my body. I wonder how long it usually takes

people to get the feeling back and stop the never ending drool...

I am sure I have lost weight in the week since surgery but I haven't

weighed myself (I don't know that I could look down at the

reading ). I will admit that I was overweight before the

surgery, but I guess I wasn't planning on having no appetite or even

not being able to eat.

> >

> > Hello all,

> >

> > I am new to this site. I had surgery on my upper and lower jaw

> last

> > Wednesday, the 22. I felt pretty nasty until today. Now I am

> just

> > worried about eating enough. Everything tastes pretty gross and

> it

> > is so hard to get it in there, but oh well. If anyone has any

> > suggestions I would appreciate them.

> >

> > I just wasnted to thank everyone for posting. It gives me a lot

> of

> > hope that this swelling will go away and I will be glad that I

had

> > the surgery.

> >

> > Thanks,

> > HappyD

[Guest guest]

Glad to hear that someone agrees about the blender thing. I went to

supper at my parents and my mom just put the food they were having

into a blender and then served it to me in three bowls. I ate it, I

admit, but it all seemed pretty gross. Milkshakes, though, those

actually sound good...

Thanks,

> >

> > Hello all,

> >

> > I am new to this site. I had surgery on my upper and lower jaw

> last

> > Wednesday, the 22. I felt pretty nasty until today. Now I am

> just

> > worried about eating enough. Everything tastes pretty gross and

> it

> > is so hard to get it in there, but oh well. If anyone has any

> > suggestions I would appreciate them.

> >

> > I just wasnted to thank everyone for posting. It gives me a lot

> of

> > hope that this swelling will go away and I will be glad that I

had

> > the surgery.

> >

> > Thanks,

> > HappyD

[Guest guest]

Glad to hear that someone agrees about the blender thing. I went to

supper at my parents and my mom just put the food they were having

into a blender and then served it to me in three bowls. I ate it, I

admit, but it all seemed pretty gross. Milkshakes, though, those

actually sound good...

Thanks,

> >

> > Hello all,

> >

> > I am new to this site. I had surgery on my upper and lower jaw

> last

> > Wednesday, the 22. I felt pretty nasty until today. Now I am

> just

> > worried about eating enough. Everything tastes pretty gross and

> it

> > is so hard to get it in there, but oh well. If anyone has any

> > suggestions I would appreciate them.

> >

> > I just wasnted to thank everyone for posting. It gives me a lot

> of

> > hope that this swelling will go away and I will be glad that I

had

> > the surgery.

> >

> > Thanks,

> > HappyD

[Guest guest]

Hi ,

Welcome! Thank you for sharing your story and your son's It is

nice for me (and I am sure most other members) to hear from adults

that life is pretty normal. My daughter has unilateral clubfoot

(left) and our biggest struggle now is that her left foot is a size

3 double-wide and her right is a size 5. I worry about this

significant difference! I know it is different with bilateral but

was wondering about your brother -- does he wear different size

shoes? Just curious.

Marilouise

9/9/03, LCF, DBB 14/7

Owen and 3/20/99

>

>

> Hi Folks,

>

> I am the proud father of a very active 1 yr old boy. Along with my

> good looks, my son inherited my bilateral clubfeet as well. My

> brother was also born with one clubfoot.

>

> Anyway, we were informed prior to his birth of the condition, so I

> researched what had changed since my treatment 35 yrs ago and found

> that the Ponsetti method was very popular/successful, and used by

our

> Children's Hospital here in Toronto.

>

> He wears his DBB's around 12 -15 hrs a day now, mostly sleeping at

> night. Usually wakes up slightly every few hours, but he can be

> adjusted and put to sleep again. He was recently ill for a couple

of

> days and did not sleep well at all. But I realize that it wasn't

the

> shoes, only his cold. Needless to say, my wife and I didn't sleep

> much either.

>

> Anyway, I thought I'd say hello and pass along our story. Things

are

> going well so far. My son crawls a lot, and has been 'cruising'

with

> a walker. I often wonder if it's best to keep the child in a pair

of

> shoes during the day, or socks only. I hear different things from

the

> experts.

>

> For those concerned parents, I'd like to let you know that I led a

> very normal childhood with lots of sports. Only now do I notice a

bit

> of stiffness after high impact activities. Keep in mind I was

> operated on as an infant. It's something I never really dwelled on

> growing up.

>

> Cheers,

>

>

[Guest guest]

Thank you for your insight! It is so nice to hear from an adult that has

been through this. We are always wondering how things will be down the road

and cross our fingers! Thanks, Lori

_____

From: al_a_boy

Sent: Saturday, February 05, 2005 8:10 PM

To: nosurgery4clubfoot

Subject: 1st post

Hi Folks,

I am the proud father of a very active 1 yr old boy. Along with my

good looks, my son inherited my bilateral clubfeet as well. My

brother was also born with one clubfoot.

Anyway, we were informed prior to his birth of the condition, so I

researched what had changed since my treatment 35 yrs ago and found

that the Ponsetti method was very popular/successful, and used by our

Children's Hospital here in Toronto.

He wears his DBB's around 12 -15 hrs a day now, mostly sleeping at

night. Usually wakes up slightly every few hours, but he can be

adjusted and put to sleep again. He was recently ill for a couple of

days and did not sleep well at all. But I realize that it wasn't the

shoes, only his cold. Needless to say, my wife and I didn't sleep

much either.

Anyway, I thought I'd say hello and pass along our story. Things are

going well so far. My son crawls a lot, and has been 'cruising' with

a walker. I often wonder if it's best to keep the child in a pair of

shoes during the day, or socks only. I hear different things from the

experts.

For those concerned parents, I'd like to let you know that I led a

very normal childhood with lots of sports. Only now do I notice a bit

of stiffness after high impact activities. Keep in mind I was

operated on as an infant. It's something I never really dwelled on

growing up.

Cheers,

[Guest guest]

Hi Marilouise,

As a matter of fact, my brother does where different sized shoes. I

believe around two sizes different. It's not something you really

notice on him. Other than sometimes having to buy two pairs of shoes,

it hasn't really bothered him much. Some stores are accommodating to

him, and sometimes he finds what he's looking for in the same shoe

box. (he he)

Actually, for his birthday next month, we're going to chip in and buy

him a pair of ski boots, cause two pairs would be costly for a young

bachelor.

Looking back, I'd have to say that he and I were more active and

successful in sports compared to my non-clubfoot older brother. Go

figure.

Bye now,

> >

> >

> > Hi Folks,

> >

> > I am the proud father of a very active 1 yr old boy. Along with

my

> > good looks, my son inherited my bilateral clubfeet as well. My

> > brother was also born with one clubfoot.

> >

> > Anyway, we were informed prior to his birth of the condition, so I

> > researched what had changed since my treatment 35 yrs ago and

found

> > that the Ponsetti method was very popular/successful, and used by

> our

> > Children's Hospital here in Toronto.

> >

> > He wears his DBB's around 12 -15 hrs a day now, mostly sleeping at

> > night. Usually wakes up slightly every few hours, but he can be

> > adjusted and put to sleep again. He was recently ill for a

couple

> of

> > days and did not sleep well at all. But I realize that it wasn't

> the

> > shoes, only his cold. Needless to say, my wife and I didn't sleep

> > much either.

> >

> > Anyway, I thought I'd say hello and pass along our story. Things

> are

> > going well so far. My son crawls a lot, and has been 'cruising'

> with

> > a walker. I often wonder if it's best to keep the child in a

pair

> of

> > shoes during the day, or socks only. I hear different things

from

> the

> > experts.

> >

> > For those concerned parents, I'd like to let you know that I led a

> > very normal childhood with lots of sports. Only now do I notice

a

> bit

> > of stiffness after high impact activities. Keep in mind I was

> > operated on as an infant. It's something I never really dwelled

on

> > growing up.

> >

> > Cheers,

> >

> >

[Guest guest]

Hi ! It is great to hear your story and that you are an active

guy!

Louisa

Rachael 6-27-99

Zoe 2-22-04 RCF FAB 16/7

>

>

> Hi Folks,

>

> I am the proud father of a very active 1 yr old boy. Along with my

> good looks, my son inherited my bilateral clubfeet as well. My

> brother was also born with one clubfoot.

>

> Anyway, we were informed prior to his birth of the condition, so I

> researched what had changed since my treatment 35 yrs ago and found

> that the Ponsetti method was very popular/successful, and used by

our

> Children's Hospital here in Toronto.

>

> He wears his DBB's around 12 -15 hrs a day now, mostly sleeping at

> night. Usually wakes up slightly every few hours, but he can be

> adjusted and put to sleep again. He was recently ill for a couple

of

> days and did not sleep well at all. But I realize that it wasn't

the

> shoes, only his cold. Needless to say, my wife and I didn't sleep

> much either.

>

> Anyway, I thought I'd say hello and pass along our story. Things

are

> going well so far. My son crawls a lot, and has been 'cruising'

with

> a walker. I often wonder if it's best to keep the child in a pair

of

> shoes during the day, or socks only. I hear different things from

the

> experts.

>

> For those concerned parents, I'd like to let you know that I led a

> very normal childhood with lots of sports. Only now do I notice a

bit

> of stiffness after high impact activities. Keep in mind I was

> operated on as an infant. It's something I never really dwelled on

> growing up.

>

> Cheers,

>

>

[Guest guest]

Hello !

It is nice to hear from another cf adult. I was born with one

clubfoot and now have passed it along to my son (4 months old). Glad

to have you join the group, and glad things are going well w/ the DBB

for your son. I'm sure you will find this group a great source of

information, they always have an answer, even when it is not cf related!

I'm curious, you said you experience stiffness after high impact

activities...if you don't mind my asking, how old is " only now " ? I'm

37, had multiple surgeries to correct my cf and have been experiencing

the same thing w/ increasing pain since I was about 30.

>

>

> Hi Folks,

>

> I am the proud father of a very active 1 yr old boy. Along with my

> good looks, my son inherited my bilateral clubfeet as well. My

> brother was also born with one clubfoot.

>

> Anyway, we were informed prior to his birth of the condition, so I

> researched what had changed since my treatment 35 yrs ago and found

> that the Ponsetti method was very popular/successful, and used by our

> Children's Hospital here in Toronto.

>

> He wears his DBB's around 12 -15 hrs a day now, mostly sleeping at

> night. Usually wakes up slightly every few hours, but he can be

> adjusted and put to sleep again. He was recently ill for a couple of

> days and did not sleep well at all. But I realize that it wasn't the

> shoes, only his cold. Needless to say, my wife and I didn't sleep

> much either.

>

> Anyway, I thought I'd say hello and pass along our story. Things are

> going well so far. My son crawls a lot, and has been 'cruising' with

> a walker. I often wonder if it's best to keep the child in a pair of

> shoes during the day, or socks only. I hear different things from the

> experts.

>

> For those concerned parents, I'd like to let you know that I led a

> very normal childhood with lots of sports. Only now do I notice a bit

> of stiffness after high impact activities. Keep in mind I was

> operated on as an infant. It's something I never really dwelled on

> growing up.

>

> Cheers,

>

>

[Guest guest]

Hi ,

I'm glad you asked. This only started for me last year, oddly enough

when my son was born. I'm 35. I should clarify that for several

years, I would feel aches for maybe a half day after playing a round

of golf. But 24 hrs later, it would be gone. Last summer I noticed

just cutting the grass would irritate them. Not to the point where I

couldn't walk or anything. Just a little more 'achey' than usual.

Anyway, I sure hope it stays like this. I can handle a little 'pain'

here and there. When my son was born, I was able to explain to the

nurses that I had the same condition, and look at me now. I don't

want to sound like 'I'm tooting my own horn', but I've accomplished

alot in life, and will show my son that this won't slow him down any.

Thanks for your post.

Until next time,

> >

> >

> > Hi Folks,

> >

> > I am the proud father of a very active 1 yr old boy. Along with my

> > good looks, my son inherited my bilateral clubfeet as well. My

> > brother was also born with one clubfoot.

> >

> > Anyway, we were informed prior to his birth of the condition, so I

> > researched what had changed since my treatment 35 yrs ago and found

> > that the Ponsetti method was very popular/successful, and used by our

> > Children's Hospital here in Toronto.

> >

> > He wears his DBB's around 12 -15 hrs a day now, mostly sleeping at

> > night. Usually wakes up slightly every few hours, but he can be

> > adjusted and put to sleep again. He was recently ill for a couple of

> > days and did not sleep well at all. But I realize that it wasn't the

> > shoes, only his cold. Needless to say, my wife and I didn't sleep

> > much either.

> >

> > Anyway, I thought I'd say hello and pass along our story. Things are

> > going well so far. My son crawls a lot, and has been 'cruising' with

> > a walker. I often wonder if it's best to keep the child in a pair of

> > shoes during the day, or socks only. I hear different things from the

> > experts.

> >

> > For those concerned parents, I'd like to let you know that I led a

> > very normal childhood with lots of sports. Only now do I notice a bit

> > of stiffness after high impact activities. Keep in mind I was

> > operated on as an infant. It's something I never really dwelled on

> > growing up.

> >

> > Cheers,

> >

> >

[Guest guest]

You're luckier than I, I do have days when I almost can't walk when I

first get out of bed, need to do lots of stretching to get that 'ol

clubfoot working. It probably helps that you are really active. I

notice a difference when I am getting out of shape, it's always my

wake up call that I need to get my butt in gear and start getting more

exercise. But this is why I am so so happy I found out about the

Ponseti method so Sammy won't have to deal w/ all of this when he gets

older!

>

> > >

> > >

> > > Hi Folks,

> > >

> > > I am the proud father of a very active 1 yr old boy. Along with my

> > > good looks, my son inherited my bilateral clubfeet as well. My

> > > brother was also born with one clubfoot.

> > >

> > > Anyway, we were informed prior to his birth of the condition, so I

> > > researched what had changed since my treatment 35 yrs ago and found

> > > that the Ponsetti method was very popular/successful, and used

by our

> > > Children's Hospital here in Toronto.

> > >

> > > He wears his DBB's around 12 -15 hrs a day now, mostly sleeping at

> > > night. Usually wakes up slightly every few hours, but he can be

> > > adjusted and put to sleep again. He was recently ill for a

couple of

> > > days and did not sleep well at all. But I realize that it

wasn't the

> > > shoes, only his cold. Needless to say, my wife and I didn't sleep

> > > much either.

> > >

> > > Anyway, I thought I'd say hello and pass along our story.

Things are

> > > going well so far. My son crawls a lot, and has been 'cruising'

with

> > > a walker. I often wonder if it's best to keep the child in a

pair of

> > > shoes during the day, or socks only. I hear different things

from the

> > > experts.

> > >

> > > For those concerned parents, I'd like to let you know that I led a

> > > very normal childhood with lots of sports. Only now do I notice

a bit

> > > of stiffness after high impact activities. Keep in mind I was

> > > operated on as an infant. It's something I never really dwelled on

> > > growing up.

> > >

> > > Cheers,

> > >

> > >