Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 and , I take both of the things you have mentioned. When I can I take the candied ginger, but it is not good for my blood sugar. It does allow me to suck on it and lit it get absorbed sublingually, though. I also take Zofran Elixir. My doctor does not believe I absorb anything in my gut anymore, so she orders everything as a liquid that could be absorbed under my tongue or as a patch. I know Zofran is expensive, but it works wonders. I don't get the sleepiness that Phenergan does to me. I took Zofran pills but they were not helpful. I will continue to Zofran as long as I can. At this time my doctor said it was medically necessary. Karyn E. , RN Exec. Director, PAI Indianapolis, IN The PAI serves as a means of support, information, and advocacy. The PAI cannot offer medical advice or direction nor substitute for your health care provider. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 Hi Doesn't the nausea suck?!?!? I hate it! Mine has pretty much subsided now. A few people on the board recommended ginger. My doctor was nice enough to prescribe some Compazine for the nausea, but I would rather try the ginger first. I would rather try the ginger than putting more chemicals into my body. I don't know if the nausea was coincidence or a prelude to a bad attack. I have been feeling pretty awful since it happened. If I recall from some of your previous posts you were having a rough time getting a diagnosis. Is this correct? Have you had any luck? On a different note, I was actually considering planning a trip to Hawaii late this summer. My fiance is a real history nut and he really wants to visit Pearl Harbor and the Arizona site. I was thinking of surprising him with a trip. Any recommendations on what is the best time of year to visit? I was thinking that anytime is probably beautiful. Are you near there? Any tips would be greatly appreciated. Hope you are feeling well. Sending lots of happy thoughts your way..... Marisa~San Diego, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2003 Report Share Posted May 22, 2003 Hi Cassie is given nothing or naseua unless she vomiting and they are sdmitting her to the hospital. I justed taking phenergren this week. It can make you sleep though. Patty Hurst Bangor, ME Maine State Rep PAI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2003 Report Share Posted May 22, 2003 I want to know how you guys are chewing ginger.? How do you get past the taste? I cant get past the taste in most food, how can you chew on it by itself? It makes me feel even more like vomiting. Just wondering Patty Hurst Bangor, ME Maine State Rep PAI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2003 Report Share Posted May 22, 2003 Hi you forgot one for Maine - US Supreme Court just upheld Maine Rx program. Lower cost drugs across the board state wide if you are enrolled. Extra bonus is you can also have private insurance and get benefits from this program. when it was in use before, I was not using it because I had good prescription plan, I don't anymore so will sign up for it now that it's back in use, For those of you who are unaware of The Maine Rx program I'll see if I can explain. Canada and many other countries have much lower prescription drug prices than we do here in the US. Much of our tax $ go into developing these drugs yet as Americans we pay higher prices than foriegn countries. Why because they are allowed to barter where pricing is concerned and thet get volume discount. we are not allowed to do so here in the US. That's where Maine Rx comes in. The state negotiates drug prices thus, pharmacies start with a lower price and savings is passed on to all within the state. You have to apply thru DHS to get your card, but the program is open to all Mainer's even if you do have insurance. Your state can have a program like this too. Write, e-mail call etc.. your state legeslature tell them you want a program in your state like Maine Rx. Eventually maybe if all 50 states enact a similar program, drug companies may get the idea and stop charging us over and over again for the development of drugs. Patty Hurst Bangor, ME Maine State Rep PAI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2003 Report Share Posted May 22, 2003 Indigent Drug Programs State Pharmaceutical Assistance Programs Many pharmaceutical manufacturers have special programs to assist people who can't afford to buy the drugs they need. One problem is that it's often hard to learn about these programs. Each company has its own program with its special requirements, forms, and procedures. Actually, some companies have different programs for different drugs. There is no central clearinghouse for obtaining up-to-date information about these programs or the drugs themselves. Most pharmaceutical companies will send their application forms only to a physician's office, and usually only at the request of the physician or his/her representative. Some of the companies will send forms to social workers or to patients, and a few will forward the forms to the physician's office at the request of the social worker or patient. Also Triple AAA has a program that alot of people do not know about. If you buy their basic $40.00 membership, you get close to 10-30% off of your meds at participating drug stores. Medication Manufacturers' Indigent Drug Programs Most people don't realize that pharmaceutical companies produce a great deal of written information about disease and treatment. They are required by law to provide detailed descriptions about the drugs that they manufacture, but most also produce more general information for the public about the diseases that their drugs treat, also. In addition to this free material, almost all pharmaceutical compaies also have an " Indigent Drug Program " , which provides medications to people who cannot afford them. Your physician must apply to these programs on your behalf, but you can call and obtain the applications and information yourself. Amounts and eligibility will vary greatly from program to program. A directory of companies that offer drug programs is available by calling 1-. Below is a list of companies that have indigent drug programs: 3M Pharmaceuticals Products include: Most drug products sold by 3M Allergan, Inc. 2525 Dupont Drive Irvine, CA 92713 ext. 6421 Products include: Alphagan, Betagen, Epifrin Products include: Botox Alza Pharmaceuticals Products include: Ditrpan XL, Ehtyol injection, Progesatser, Testoderm, Urispas Amgen Products include: Epogen (only for patients on dialysis), Neupogen Anesta Products include: Actiq Astra USA, Inc. (800) 488-FAIR (488-3247) Products include: Foscavir injection Baxter Healthcare Corporation Products include: A Patient Assistance Program is being developed for Gammagard S/D and should be ready in about 3-4 months. Bayer Corporation Products include: Adalat, Adalat CC, Anaguard, Anakit, Biltricide, Chlo-amine, Cipro Cipro IV, Cortdome Suppositories, Domepaste Bandages, DTIC Dome, Mezlan, Mithracin MRV, Nimotop, Precose, Stilphostrol, Tridesilon, Zenomil Maintenance, Baycol Berlex Laboratories Products include: Betapace, Betaseron for SC Injection, Quadramat, Quinaglute Dura-Tabs Products include: Fludara Boehringer Ingelheim Pharmaceuticals, Inc. Products include: All products covered except controlled substances Boots Pharmaceuticals, Inc. Boots Cares Program 300 Tri-State International Center Suite 200 Lincolnshire, IL 60069-4415 Attn: Sandy Bauco Products include: Synthroid tablets Bristol-Myers Squibb Products include: Bicnu (BCNU), Blenoxane, Ceenu (CNU), Cytoxan, Hydrea, Ifex/Mesna, Lysodren, Megace, Mutamycin, Paraplatin, Platinol, Rubex, Taxol, Vepesid, Verit, Videx Ciba-Geigy Corporation , (800) CHIRON-8 (245-7668) Products include: Aredia, Cytadren, Actigall, Anafranil, Anturane, Apresazide, Apresoline, Brethaire, Brethine, Cataflam, Desferal, Esidrix, Esimil, Estraderm, Habitrol, Ismelin, Lamprene, Lioresal, Lopressor, Lopressor/HCT Lotensin, Lotensin/HCT, Ludiomil, PBZ, Regitine, Rimactane, Ser-Ap-Es, Slow-K, Tegretol, TEN-K, Tofranil, Tofranil-PM, Transderm-Scop, Transdermal-Nitro, Voltaren Connaught Laboratories, Inc. Products include: TheraCys BCG live intravesical ConvaTec Professional Services - A Bristol-Myers Squibb Company P.O. Box 5254 Princeton, NJ 08543-5254 Convatec is a manufacturer of ostomy, wound care and incontinence products. DuPont Merck Pharmaceutical Company Products include: All non-controlled prescription products Eli Lilly and Company Products include: Most Lilly products and insulins except controlled substances Fisons Pharmaceuticals Gastrocon Patient Assistance Program P.O. Box 1766 Rochester, NY 14603-1766 Products include: Gastrocrom capsules Gastron Patient Assistance Program 775 Jefferson Road P.O. Box 1766 Rochester, NY 14603 Products include: Gastrocrom oral concentrate Genentech, Inc. Products include: Actimmune, Activase, Protropin, Nutrpoin Glaxo Wellcome Customer Service: Patient Assistance: Reimbursement Line: , Products include: Aleran, Blenoxane, Leukeran, Myleran, Navelbine, Purinethol, Zofran, Zovirax, and all other Glaxo Wellcome products Hoechst-n-Roussel, Inc. Customer Information Line: Products include: Carafate, Diabeta, Lasix, Trental, and other prescription products (except Rifadin, Rifamate, Rifater, Tenuate) Immunex , Products include: Leukine, Novantrone, Thioplex, and all other currently marketed Immunex prescription products Janssen Products include: Duragesic, Ergamisol, Hismanal, Imodium, Nizoral tablets, Propulsid, Sporanox capsules, Vermox Knoll Pharmaceutical Company Products include: Isoptin, Rythmol, Santyl, Synthroid, Tarka, and Mavik Liposome Company, Inc. Financial Assistance Program: Reimbursememt: Executive Offices: Products include: Abelcet McNeil Pharmaceutical Products include: Prescription products prescribed according to approved labeled indications and dosage regimens Merck Human Health Division (800) NSC-MERCK (672-6372) Products include: Many Merck products Miles Inc. Pharmaceutical Division Products include: All Miles, Inc. prescription medications used as recommended in prescribing information Nabi (formerly known as Univax) Products include: WinRho SDF Novartis Patient Support Program: Products include: Clorazil Patient Assistance Program: Products Include: Aredia, Actigall, Desferal, Diovan, Dynacirc, Dynacirc CR, Estraderm, Femara, Lamisil, Lamprene, Lescol, Lotensin, Lotensin HCT, Lotrel, Metopirone, Micalcin, Migranal, Vivelle, Voltaren XR 100mg Ortho Biotech Products include: Leustatin, Procrit Parke- Products include: Most Parke- medications, including Accupril, Cilatin, Cognex, Lipitor, Loestrin, Neurotin, Rezulin, Zarontin Pfizer, Inc. Products include: Diflucan, and all other Pfizer products Pharmacia & Upjohn Products include: Adriamycin, Adrucil, Azulfidine, Dipentum, EMCYT, Fragmin, Idamycin, Meosar, Mycotubin, Vincasar, Zinecard Pharmaceutical Research and Manufacturers' of America (PhRMA) http://www.phrma.org Proctor & Gamble Pharmaceuticals, Inc. Products include: Actonel, Alora, Ascol, Dantrium capsules, Didronel, Helidac, Macrobid, Macrodantin Purdue Frederick ext. 4111 (Physicians Only) Products include: MS Contin, MSIR, Oxy Contin, OXYIR, OXYFAST Rhone-Poulenc Rorer, Inc. Products include: All products are eligible, with some limitations on supply Roche Laboratories OncoLine/HelpLine: Products include: FUDR, Roferon-A, Vesanoid, Xeloda Products include: All Roche products except for Versed, Lariam, Toradol, and Romazicon Roxane Patient Assistance: Customer Service: Medical Information: Products include: Marinol, Oramorph, Roxanol, Roxicodane, Viramune Sandoz , The second number is to NORD, Inc., the parent company of Sandoz. Products include: Clorazil, DynaCirc, Eldepryl, Lescol, Sandimmune, Sandoglobulin, Sandostatin Sanofi Pharmaceuticals, Inc. (choose option 2 twice) Products include: Aralen, Danocrine, Drisdol, Hytakerol, Mytelase, NegGram, pHisoHex, Primaquine, Skelid Products include: Photofrin Schering Plough Oncology Products include: Eulexin, Farestron, Intron-A, Rebetron Searle (Physicians Only) Products include: Aldactazide, Aldactone, Arthrotec, Calan, Calan SR, Celebrex, Cytotec, Kerlone, Norpace, Norpace CR Sequus Pharmaceuticals, Inc. (Corporate) Products include: Amphotec, Doxil Serono Laboratories, Inc. Products include: Metrodin (FSH) Sigma-Tau Pharmaceuticals, Inc. NORD Matulane Patient Assistance Program Contact: Michele McCourt Products include: Matulane kline Beecham Pharmaceuticals Access to Care Program 1 lin Plaza FP 1320 P.O. Box 7929 Philadelphia, PA 19101-7929 Products include: Amoxil, Augmentin, Bactroban, Compazine, Dyazide, Famvir, Kytril, Relafen, Riduara, Tagamet, and most other kline Beecham prescription products Solvay Pharmaceuticals, Inc. c/o Phoenix Marketing 1 Phoenix Drive Lincoln Park, NJ 07035 Attn: Patient Assistance Program Products include: Most Solvay products Tap Pharmaceuticals Products include: Lupron Wyeth-Ayerst Laboratories Norplant Supply and Removal Program: Products include: Norplant Indigent Patient Program: E. Professional Services IPP 555 East Lancaster Avenue St. s, PA 19087 Products include: Various products (not including II, III, or IV products) Zeneca Pharmaceuticals Foundation Products include: Arimidex, Casodex, Nolvadex, Zoladex Nausea > I was just wondering what everyone that has CP takes for nausea. I was > put on a drug called Zofran but it is quite expensive. It cost $2,500. > for one months supply and I don't know how long the insurance company > is going to pay for it. So could you all tell me what you are taking > for nausea so I can ask my doctor to try when the insurance company > decides not to pay anymore. They are already trying not to pay for it. > Thanks again, > > > > > > > > Please do not carry over the previous post with your reply. > > Too many emails! Change your mail delivery status not your membership status!! > send an e-mail to:KarynWms@... > > To change your mail delivery status, send an email to:KarynWms@... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2003 Report Share Posted May 22, 2003 State Pharmaceutical Assistance Programs State Pharmaceutical Assistance Programs offer financial assistance to people within a particular state who are ill pay, to help them pay for medications. You (as the patient) are able to apply for these programs yourself. However, amounts and eligibility are different for each program. Also, please note: Each of these state programs listed below are only for the residents of that state. Connecticut - CONN PACE Program P.O. Box 5011 Hartford, CT 06102 , Delaware - Nemours Health Clinic Program 1801 Rockland Road Wilmington, DE 19803 , Illinois Pharmaceutical Assistance Program P.O. Box 19021 Springfield, IL 62794 , land Pharmacy Assistance Program P.O. Box 386 Baltimore, MD 21203 , Michigan Emergency Pharmaceutical Program for Seniors (MEPPS) P.O. Box 30676 Lansing, MI 48909-8176 http://www.mdch.state.mi.us/mass/masshome.html New Jersey PAAD Program Pharmacy Assistance to the Aged and Disabled P.O. Box 715 Trenton, NJ 08625 , New York State Elderly Pharmaceutical Insurance Coverage (EPIC) P.O. Box 15018 Albany, NY 12212-5018 , http://www.health.state.ny.us/nysdoh/epic/faq.htm Pennsylvania PACE Program (Pharm. Assist. Contract for the Elderly) Pharmacy Assistance Contract for the Elderly http://www.aging.state.pa.us Rhode Island Pharmaceutical Assistance to the Elderly (RIPAE) Department of Elderly Affairs 160 Pine Street Providence, RI 02903 , State of Maine Bureau of Taxation - Elderly Low Cost Drug Program State House Station 24 Augusta, ME 04332 , , TDD Vermont - VSCRIPT State Pharmaceutical Assistance Program for Elderly & Disabled 103 S. Main Street Waterbury, VT 05671 Nausea > I was just wondering what everyone that has CP takes for nausea. I was > put on a drug called Zofran but it is quite expensive. It cost $2,500. > for one months supply and I don't know how long the insurance company > is going to pay for it. So could you all tell me what you are taking > for nausea so I can ask my doctor to try when the insurance company > decides not to pay anymore. They are already trying not to pay for it. > Thanks again, > > > > > > > > Please do not carry over the previous post with your reply. > > Too many emails! Change your mail delivery status not your membership status!! > send an e-mail to:KarynWms@... > > To change your mail delivery status, send an email to:KarynWms@... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2003 Report Share Posted May 22, 2003 Hi Patty, I guess maybe you could try disguising the ginger in something, although it's pretty hard to disguise. I like the taste of it so it's not a problem for me. I don't know if it comes in a pill form or not, but you might want to check that out. Everything else seems to these days and ginger is pretty widely accepted to use for nausea. All my best wishes, Anita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 > I was just wondering what everyone that has CP takes for nausea. I was put on a drug called Zofran but it is quite expensive. > Thanks again, Hi . The nausea is soooo nasty, almost as bad as the pain. I have used both Compazine and Tigan, both pill and suppository forms. Both drugs were far more effective for me in the suppository form. Maybe its an absorbtion problem with the pills. Strangely enough, I've found that the most effective medicine is over- the-counter Dramamine (dimenhydrinate)pills - the original formula. The non-drowsy form of Dramamine and Bonine (meclizine) are totally ineffective for me. We are all different, so please keep talking with your doctor and keep trying until you find something to bring you relief. Good luck, jang Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 : Some doctors claim that nausea is not from the cp but from the pain medicine, but mine is very intermittent, which means I take the pain medicine but don't get sick on it all the time, though it causes some nausea. Anyway, I keep a supply of phenergan suppositories in my refrig. and they don't even make me drowsy anymore, but take the nausea right away. I've heard so much about the ginger, I might try that! Hope you feel better soon. Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2003 Report Share Posted May 24, 2003 , I take Reglan for mine. Most people take phenergan, but that doesn't work for me, but Reglan has always worked just great for me and it's not that expensive. Kimber -- Kimber Vallejo, CA hominid2@... Note: All advice given is personal opinion, not equal to that of a licensed physician or health care professional. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2003 Report Share Posted May 25, 2003 > Some doctors claim that nausea is not from the cp but from the pain medicine...... I've heard so much about the ginger, I might try that! Robin Robin, I really have to scoff at that explanation from doctors. I had serious bouts of nausea for months before I was diagnosed, and was not on any type of pain medication at that time. While I agree that perhaps certain pain medications may cause nausea for some, I do believe that nausea is one of the accepted symptoms of CP, and any doctor that doesn't acknowledge this doesn't know what he's talking about! Do try the ginger, it really works well, and it's one less pill that you have to take! With hope and prayers, Heidi Heidi H. Griffeth Bluffton, SC State and Regional Representative Pancreatitis Association, International Note: All comments are personal opinion only, and should not be a substitute for professional medical consultation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 I would place call into your doctor and ask for a prescription. Prior to both of my surgeries, I was given a patch to put behind my ear for nausea, and I think it helped. After the first upper/lower surgery (Oct. 5, 2004), I was given some liquid medicine for nausea. I haven't had any this go round, but I have had some brief bouts of nausea. Nutrition is imperative to your healing, so call your doctor immediately and ask for an anti-nausea prescription. > > Hi I just had an upper and lower jaw surgery this past Wedndesday. I > am still very much swollen. The most difficult thing is that I feel > nauseated and could not take any of the dietary supplements -- Ensure > or boost. They taste too sweet to me. I cannot take chicken soup > either because it smells too strong. Anyone had this problem before? > Any medicine helped? > > Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 I would place call into your doctor and ask for a prescription. Prior to both of my surgeries, I was given a patch to put behind my ear for nausea, and I think it helped. After the first upper/lower surgery (Oct. 5, 2004), I was given some liquid medicine for nausea. I haven't had any this go round, but I have had some brief bouts of nausea. Nutrition is imperative to your healing, so call your doctor immediately and ask for an anti-nausea prescription. > > Hi I just had an upper and lower jaw surgery this past Wedndesday. I > am still very much swollen. The most difficult thing is that I feel > nauseated and could not take any of the dietary supplements -- Ensure > or boost. They taste too sweet to me. I cannot take chicken soup > either because it smells too strong. Anyone had this problem before? > Any medicine helped? > > Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2004 Report Share Posted November 16, 2004 I agree call your doc asap, I couldn't keep anything in after surgery for 2 days, (just the smell of anything like chicken bouillon or v8 splash would make me throw up) when I did a checkup at the surgeon, and I told him I couldn't keep anything in, he put me back in a hospital bed with an infuse> (I don't know the english word: where they put liquid through your arm). You can get seriously hydrated so go see your doc immediately. After a couple of hours, I got sent home and I received medicines that really helped me not get nausious anymore. Nathalie > > > > Hi I just had an upper and lower jaw surgery this past Wedndesday. I > > am still very much swollen. The most difficult thing is that I feel > > nauseated and could not take any of the dietary supplements -- Ensure > > or boost. They taste too sweet to me. I cannot take chicken soup > > either because it smells too strong. Anyone had this problem before? > > Any medicine helped? > > > > Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2004 Report Share Posted November 16, 2004 I agree call your doc asap, I couldn't keep anything in after surgery for 2 days, (just the smell of anything like chicken bouillon or v8 splash would make me throw up) when I did a checkup at the surgeon, and I told him I couldn't keep anything in, he put me back in a hospital bed with an infuse> (I don't know the english word: where they put liquid through your arm). You can get seriously hydrated so go see your doc immediately. After a couple of hours, I got sent home and I received medicines that really helped me not get nausious anymore. Nathalie > > > > Hi I just had an upper and lower jaw surgery this past Wedndesday. I > > am still very much swollen. The most difficult thing is that I feel > > nauseated and could not take any of the dietary supplements -- Ensure > > or boost. They taste too sweet to me. I cannot take chicken soup > > either because it smells too strong. Anyone had this problem before? > > Any medicine helped? > > > > Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2004 Report Share Posted November 16, 2004 Little help with the english words: I think you mean an intravenous line, by " infuse. " There's probably something technical that's closer, like " an intravenous infusion, or transfusion, " but I'm no pro. And I think you also mean that one can become seriously DE-hydrated, meaning not taking in enough fluids (like water, juice, broth, etc.) and need an IV line in to pump in some fluids and electrolytes. And yes. There are meds that can be taken orally, intravenously, intramuscularly and rectally that can offer significant help with nausea. No need to take on those additional risks, when help is readily available, maybe even through a phone call and a trip to the pharmacy. Take care, Cammie > > I agree call your doc asap, I couldn't keep anything in after surgery > for 2 days, (just the smell of anything like chicken bouillon or v8 > splash would make me throw up) when I did a checkup at the surgeon, > and I told him I couldn't keep anything in, he put me back in a > hospital bed with an infuse> (I don't know the english word: where > they put liquid through your arm). You can get seriously hydrated so > go see your doc immediately. After a couple of hours, I got sent home > and I received medicines that really helped me not get nausious anymore. > > Nathalie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2004 Report Share Posted November 16, 2004 Little help with the english words: I think you mean an intravenous line, by " infuse. " There's probably something technical that's closer, like " an intravenous infusion, or transfusion, " but I'm no pro. And I think you also mean that one can become seriously DE-hydrated, meaning not taking in enough fluids (like water, juice, broth, etc.) and need an IV line in to pump in some fluids and electrolytes. And yes. There are meds that can be taken orally, intravenously, intramuscularly and rectally that can offer significant help with nausea. No need to take on those additional risks, when help is readily available, maybe even through a phone call and a trip to the pharmacy. Take care, Cammie > > I agree call your doc asap, I couldn't keep anything in after surgery > for 2 days, (just the smell of anything like chicken bouillon or v8 > splash would make me throw up) when I did a checkup at the surgeon, > and I told him I couldn't keep anything in, he put me back in a > hospital bed with an infuse> (I don't know the english word: where > they put liquid through your arm). You can get seriously hydrated so > go see your doc immediately. After a couple of hours, I got sent home > and I received medicines that really helped me not get nausious anymore. > > Nathalie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 Hi , Dr. Whiteman changed both of my girls Carnitor back to the Sigma Tau because of GI issues after the pharmacy changed to generic. Nausea was not the symptom, though, increased abdominal pain and spasms were. They both have intermittent nausea (lies far worse than ) and did long before starting the Carnitor. Van Verst tbnkatie@...> wrote: Anybody have ideas about how to combat nausea? My son insists that his mito meds are causing nausea. Of course, he'd started complaining of nausea before he started the meds. He had stopped most of his eating before starting the cocktail too. He's now insisting that the carnitor is what is causing the nausea and his inablity to eat. Has anybody had any luck with Carnitor vs the generic? He's using the generic now. Mom to the two best kids in the world! http://www.caringbridge.org/visit/thomasandkatie __________________________________ Yahoo! Mail - PC Magazine Editors' Choice 2005 http://mail.yahoo.com Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 , I would make sure that he's well hydrated because dehydration can definately cause nausea. Ginger is excellent for nausea...ginger ale, ginger snap cookies etc... this would address both the hydration and nutrition issues hopefully. If nothing else works, let the doc know and maybe they have some other ideas. I always start with the home remedies first. Good luck, bug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 --- venomvw pamcroy@...> wrote: > , I would make sure that he's well hydrated > because dehydration > can definately cause nause He won't eat or drink. Today he's had about six ounces of milk, his neurontin, lamictal and one dose of carnitine and one dose of CoQ10. That's not too uncommon in him. He's gaining weight, not losing. Mom to the two best kids in the world! http://www.caringbridge.org/visit/thomasandkatie __________________________________ Yahoo! Mail - PC Magazine Editors' Choice 2005 http://mail.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 Anorexia (not eating or drinking) can cause nausea, certainly. Have you tried a social worker or psychiatrist to get him to comply? (for me, the threat of a psychologist visit worked, LOL!) I am sorry you are having such a difficult time of it. Could you get a literal " mito cocktail " made up - that is a liquid formulation of all of his mito meds? Would he understand that he might have to take injections if he can't take things by mouth? Unfortunately depression can cause lack of appetite... Your body really needs a lot of water to process medications, especially those that aren't in liquid form. Also, my kids like Spirutein, it is a nutritious shake product found in health food stores, in many flavors, perhaps that or similar would be worth a try (my kids also drink pediasure or ensure as well when they aren't eating well). Take care, RH > > > , I would make sure that he's well hydrated > > because dehydration > > can definately cause nause > > He won't eat or drink. Today he's had about six ounces > of milk, his neurontin, lamictal and one dose of > carnitine and one dose of CoQ10. That's not too > uncommon in him. He's gaining weight, not losing. > > > > > Mom to the two best kids in the world! > http://www.caringbridge.org/visit/thomasandkatie > > > > > __________________________________ > Yahoo! Mail - PC Magazine Editors' Choice 2005 > http://mail.yahoo.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 We swear by crystlized ginger in our house. Van Verst wrote: >Anybody have ideas about how to combat nausea? My son >insists that his mito meds are causing nausea. Of >course, he'd started complaining of nausea before he >started the meds. He had stopped most of his eating >before starting the cocktail too. He's now insisting >that the carnitor is what is causing the nausea and >his inablity to eat. Has anybody had any luck with >Carnitor vs the generic? He's using the generic now. > > > >Mom to the two best kids in the world! >http://www.caringbridge.org/visit/thomasandkatie > > > > >__________________________________ >Yahoo! Mail - PC Magazine Editors' Choice 2005 >http://mail.yahoo.com > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 He's gaining weight, not losing. ???? Sorry, I don't get it. He's not eating or drinking but he's gaining weight ? Is he sneaking food behind your back ? Irregardless, it sounds like he's forcing your hand and I would agree that he needs psychological intervention if he's not going to cooperate. He's obviously got major depression and taking all those supplements and medication would be toxic to the body without proper nutrition and hydration. Get help immediately before things get worse. His doctor needs to get involved. bug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 --- ohgminion rakshasis@...> wrote: > Anorexia (not eating or drinking) can cause nausea, > certainly. Have > you tried a social worker or psychiatrist to get him > to comply? (for > me, the threat of a psychologist visit worked, LOL!) This is not a psychiatric problem. It's a physiological problem. He's not eating or drinking because he has nausea and severe abdominal pain. The thing that has kept him going is milk. He now thinks that the milk is hurting and not helping. He sees a counselor. This is NOT a psychological problem. Using a liquid formulation would not help either. It tastes really bad and that would be worse for him, not better. He's going to be 17 next week and liquid meds aren't the answer. He's tried slim fast, ensure, Boost, propel, water, milk, CIB, etc. It all causes nausea and abdominal pain. This is not psychological. He also has blood in his stools. This is entirely physiological. He's also NOT losing weight. He's gaining. The gaining has slowed down a bit, at least. He's gained about 60 pounds in the last year or so. Mom to the two best kids in the world! http://www.caringbridge.org/visit/thomasandkatie __________________________________ Yahoo! Mail - PC Magazine Editors' Choice 2005 http://mail.yahoo.com Quote Link to comment Share on other sites More sharing options...
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