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going to see shofner

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Hi...it has been so long that I have posted...I was really sick for

awhile and seemed to have lost access to my yahoo account.

Anyway, since I last checked in, it seems that all three of my

children have symptoms of mito and my cardiologist has gotten my an

appointment with Dr. Shofner. I fly on Tuesday, see him on

Wednesday, biopsy on Thursday, fly home on Friday.

I had a biopsy locally four years ago, (frozen one) that didn't show

anything. All the doc's have been pushing me to take my 12 year old

instead and have him biopsied instead, saying the mito will show up

easier in a child.

Wow, I can't believe that I have finally figured out the computer

enough to get back on line.

Any words of encouragement or what to expect with Shofner would be

great. We are staying at the Mc house...is that a good

idea?

Thanks for any and all replies.

Vivian

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