Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 Joanne That is it. It is more irritating than anything. I want to dry it off and the running part almost itches at times. laurie > > Hi Laurie, > > > > I'm curious about the feeling of " water " running. I'm on Plaquinal for Lupus (very high dose) and peripheral neuropathy is one potential side effect. On and off for several weeks I've noticed the feelign that I have a wet spot on one arm (or water running onto it). But, it's totally dry. Is this what you're talking about??? > > > Joanne Kocourek (mom to , lies, and ) > visit us at: http://www.caringbridge.org/il/annakris > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 Joanne, make sure you get your eyes checked regularly. Plaquenil can leave occular deposits which can really mess up your vision. I used to take it for Lupus too. bug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2005 Report Share Posted October 14, 2005 Joanne, I take large doses of plaquenil also for Lupus. Does it help you alot or just a little? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2005 Report Share Posted October 14, 2005 Joanne, not really that is why I was asking. I also take the prednisone more on than off and that does help more I must say than the plaquenil. I still have the fevers and mouth sores and joint pain if i stop the prednisone...still tired and sleep all the time but i also have mito so they cross over so much I never know which is causing which... do you have mito also or jsut the girlsi remember our kids have similar stomach issues .. karen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2005 Report Share Posted October 14, 2005 Hi , Honest answer....it seems only a little My breathing is still significantly affected, I still have intermittent skin lesions and my joints are often swollen, red and stiff. I'm also on Prednisone, Tolmentin and SSA in an attempt to reduce the flares and joint issues. Have you had a good clinical response to the treatment? MitomomX3@... wrote: Joanne, I take large doses of plaquenil also for Lupus. Does it help you alot or just a little? Quote Link to comment Share on other sites More sharing options...
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